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European Haemophilia Consortium
Бельгия
Добавлен 25 мар 2014
This is the video channel of the European Haemophilia Consortium (www.ehc.eu). We are an umbrella organisation representing 47 patients groups in Europe dealing with bleeding disorders.
EHC - ERN-EuroBloodNet Topic on Focus on Von Willebrand Disease: Ageing
Webinar #10 ERN-EuroBloodNet Topic on Focus on Von Willebrand Disease (VWD): Ageing
Speakers: Prof Giancarlo Castaman (AOU Careggi, Florence, Italy), Nicolas Giraud (French Haemophilia Society) and Catherine Harrison (Haemophilia & Haemostasis Disorders at Sheffield Haemophilia & Thrombosis Centre)
"Topic on Focus: Von Willebrand Disease (VWD) for patient organisations and healthcare professionals" has been coordinated by the EHC, represented by the EHC VWD Committee and patient representatives, and the ERN-EuroBloodNet. This educational programme is created in partnership with EURORDIS-Rare Diseases Europe and supported by members of the scientific committee: Prof Sophie Susen (CHU de Lill...
Speakers: Prof Giancarlo Castaman (AOU Careggi, Florence, Italy), Nicolas Giraud (French Haemophilia Society) and Catherine Harrison (Haemophilia & Haemostasis Disorders at Sheffield Haemophilia & Thrombosis Centre)
"Topic on Focus: Von Willebrand Disease (VWD) for patient organisations and healthcare professionals" has been coordinated by the EHC, represented by the EHC VWD Committee and patient representatives, and the ERN-EuroBloodNet. This educational programme is created in partnership with EURORDIS-Rare Diseases Europe and supported by members of the scientific committee: Prof Sophie Susen (CHU de Lill...
Просмотров: 11
Видео
EHC - ERN-EuroBloodNet Topic on Focus on Von Willebrand Disease: Maternity
Просмотров 99 часов назад
Webinar #9 Topic on Focus on Von Willebrand Disease (VWD): Maternity Speakers: Prof Karin van Galen (University Medical Center Utrecht, the Netherlands), Prof Rezan Abdul-Kadir (University College London, UK), Prof Jo Traunter (UK Haemophilia Society, EHC VWD Committee) and Debra Pollard (Advanced Nurse Practitioner, former Lead Nurse at the Katharine Dormandy Haemophilia Centre, Royal Free Hos...
EHC - ERN-EuroBloodNet Topic on Focus on Von Willebrand Disease: Women bleed too
Просмотров 159 часов назад
Webinar #8 Topic on Focus on Von Willebrand Disease (VWD): Women bleed too (Menstruation, managing periods, sex with VWD, etc.) Speakers: Dr Beatrice Nolan (Children's Health Ireland, Dublin, Ireland), Cathy Verbraeken (Dutch Haemophilia Society, EHC VWD Committee), Natalie Lawson (Haemophilia Specialist Nurse, Birmingham Children's Hospital and Charity, and UK Haemophilia Society) and Prof Kar...
EHC - ERN-EuroBloodNet Topic on Focus on Von Willebrand Disease: Surgery
Просмотров 119 часов назад
Webinar #7 Topic on Focus on Von Willebrand Disease (VWD): Surgery Speakers: Prof Flora Peyvandi (Foundation IRCCS Ca'Granda Ospedale Maggiore Policlinico, Milan, Italy) and Julia Rauscher (Austrian Haemophilia Society, EHC VWD Committee) "Topic on Focus: Von Willebrand Disease (VWD) for patient organisations and healthcare professionals" has been coordinated by the EHC, represented by the EHC ...
EHC - ERN-EuroBloodNet Topic on Focus on Von Willebrand Disease: Treating VWD-What are the options?
Просмотров 79 часов назад
Webinar #6 Topic on Focus on Von Willebrand Disease (VWD): Treating VWD - What are the options? Speakers: Prof Sophie Susan (CHU de Lille, France) and Cathy Verbraeken (Dutch Haemophilia Society, EHC VWD Committee) "Topic on Focus: von Willebrand Disease (VWD) for patient organisations and healthcare professionals" has been coordinated by the EHC, represented by the EHC VWD Committee and patien...
EHC - ERN-EuroBloodNet Topic on Focus on Von Willebrand Disease: Accurately diagnosing VWD
Просмотров 69 часов назад
Webinar #5 Topic on Focus on Von Willebrand Disease (VWD): Do not let people bleed their way to treatment - Accurately diagnosing VWD Speakers: Prof Susie Shapiro (Oxford University Hospital, Oxford, UK), Georgia Korosidou (Greek Haemophilia Society), and Jo Traunter (UK Haemophilia Society, EHC VWD Committee) "Topic on Focus: Von Willebrand Disease (VWD) for patient organisations and healthcar...
EHC - ERN-EuroBloodNet Topic on Focus on Von Willebrand Disease: People with VWD bleed too
Просмотров 109 часов назад
Webinar #4 Topic on Focus on Von Willebrand Disease (VWD): People with VWD bleed too Speakers: Dr Michelle Lavin (National Coagulation Centre, St. James's Hospital, Dublin and Irish Centre for Vascular Biology, RCSI, Dublin, Ireland), Dr Dearbhla Doherty (Irish Centre for Vascular Biology, RCSI, Dublin, Ireland) and Baiba Ziemele (Latvia Haemophilia Society, EHC VWD Committee, WFH VWD Committee...
EHC - ERN-EuroBloodNet Topic on Focus on Von Willebrand Disease: Type doesn't define VWD symptoms
Просмотров 89 часов назад
Webinar #3 Topic on Focus on Von Willebrand Disease (VWD): Type doesn't define VWD Speakers: Prof Riitta Lassilla (Helsinki University, Helsinki, Finland) and Hannah Yarnall (UK Haemophilia Society) "Topic on Focus: Von Willebrand Disease (VWD) for patient organisations and healthcare professionals" has been coordinated by the EHC, represented by the EHC VWD Committee and patient representative...
EHC - ERN-EuroBloodNet Topic on Focus on Von Willebrand Disease: Genetics of VWD
Просмотров 69 часов назад
Webinar #2 Topic on Focus on Von Willebrand Disease (VWD): Genetics of VWD Speakers: Prof Frank Leebeek (Erasmus MC: University Medical Center Rotterdam, the Netherlands) and Prof Jo Traunter (UK Haemophilia Society, EHC VWD Committee) "Topic on Focus: Von Willebrand Disease (VWD) for patient organisations and healthcare professionals" has been coordinated by the EHC, represented by the EHC VWD...
EHC - ERN-EuroBloodNet Topic on Focus on Von Willebrand Disease: VWD is not haemophilia
Просмотров 259 часов назад
Webinar #1 Topic on Focus on Von Willebrand Disease (VWD): VWD is not haemophilia Speakers: Prof Jeroen Eikenboom (Leiden University Medical Center, The Netherlands) and Baiba Ziemele (Latvia Haemophilia Society, EHC VWD Committee, WFH VWD Committee, ERN-EuroBloodNet ePAG) "Topic on Focus: Von Willebrand Disease (VWD) for patient organisations and healthcare professionals" has been coordinated ...
Celebrating the end of 2024: watch the highlights of the best EHC moments
Просмотров 30Месяц назад
2024 was a year of growth, learning, and progress for the EHC. Together, we’ve worked hard to support our National Member Organisations through advocacy, communication, and education. As we reflect on the past year, we are deeply grateful for the dedication of our NMOs, partners, and community. Join us in celebrating some of the best moments from our 2024 events and let’s move forward with rene...
World Haemophilia Day 2024: EHC Academy Welcoming
Просмотров 799 месяцев назад
World Haemophilia Day 2024 Welcoming by EHC President Miguel Crato Every year on April 17, the rare bleeding disorders community worldwide marks World Haemophilia Day. This day is an opportunity to raise awareness about the needs of those affected by rare bleeding disorders. In 2024, the EHC focuses on education: Scaling Up The Knowledge To Empower The Bleeding Disorders Community! Serving its ...
World Haemophilia Day 2024: EHC Academy Treatment
Просмотров 619 месяцев назад
Every year on April 17, the rare bleeding disorders community worldwide marks World Haemophilia Day. This day is an opportunity to raise awareness about the needs of those affected by rare bleeding disorders. In 2024, the EHC focuses on education: Scaling Up The Knowledge To Empower The Bleeding Disorders Community! Explore our dedicated EHC Academy Treatment section to access essential informa...
World Haemophilia Day 2024: EHC Academy Legislation
Просмотров 169 месяцев назад
Every year on April 17, the rare bleeding disorders community worldwide marks World Haemophilia Day. This day is an opportunity to raise awareness about the needs of those affected by rare bleeding disorders. In 2024, the EHC focuses on education: Scaling Up The Knowledge To Empower The Bleeding Disorders Community! Explore the EHC Academy Legislation page to uncover the latest European health ...
World Haemophilia Day 2024: EHC Academy Access to Treatment and Care
Просмотров 479 месяцев назад
Every year on April 17, the rare bleeding disorders community worldwide marks World Haemophilia Day. This day is an opportunity to raise awareness about the needs of those affected by rare bleeding disorders. In 2024, the EHC focuses on education: Scaling Up The Knowledge To Empower The Bleeding Disorders Community! Access to healthcare is not just a privilege but a fundamental human right, uph...
World Haemophilia Day 2024: EHC Academy Advocacy
Просмотров 219 месяцев назад
World Haemophilia Day 2024: EHC Academy Advocacy
Women and Bleeding Disorders - Principles of Care - Episode II.
Просмотров 66Год назад
Women and Bleeding Disorders - Principles of Care - Episode II.
Women and Bleeding Disorders - Principles of Care - Episode I.
Просмотров 89Год назад
Women and Bleeding Disorders - Principles of Care - Episode I.
Healthy Movement at Every Age: Mental and Physical Health Perspectives
Просмотров 38Год назад
Healthy Movement at Every Age: Mental and Physical Health Perspectives
On a Pathway Towards Healthy Ageing: Liver Health
Просмотров 104Год назад
On a Pathway Towards Healthy Ageing: Liver Health
On a Pathway Towards Healthy Ageing: Importance of Multidisciplinary Care and Coordination
Просмотров 117Год назад
On a Pathway Towards Healthy Ageing: Importance of Multidisciplinary Care and Coordination
WHW 2023 - Welcome from Declan Noone, President of the EHC
Просмотров 133Год назад
WHW 2023 - Welcome from Declan Noone, President of the EHC
2022 - End-of-Year wishes from the EHC
Просмотров 802 года назад
2022 - End-of-Year wishes from the EHC
EHC Leadership Academy - Recapture of Session2
Просмотров 342 года назад
EHC Leadership Academy - Recapture of Session2
I need to know how I cope with having a colonoscopy if they cut out polyps
❤
Great video, quite informative. Good work as always. Thanks EHC.
GREAT STORY THANK YOU VERY MUCH CASSIUS I MISS YOU FROM MOORDOWN ST JOHNS
Doing great job... subscribe you Love you
Finally cleaned my system off the hepatitis B disease with the medications i ordered from herbal Dr.ademise on youtube
Need cure otherwise not need this
Need hemophilia A cure
Bravo 😉
Welcome back for Day 2 of our podcast series! Today’s podcast will focus on the future with regards to technology and access to healthcare. How has our healthcare changed during COVID, are these changes here to stay? Miguel Crato, EHC SC Member, Prof. Waander van Heerde; Chief Scientific Officer at Enzyre and management team member at the HTC-NEM, Prof. Kate Khair; Director of Research at Haemnet and Brian O’Mahony; CEO of the Irish Haemophilia Society discuss topics such as Home delivery, Tele-medicine, Hub and Spoke Models and Registries. Listen to the full playlist on soundcloud: @t
Here is the link for all of EHC World Haemophilia Week Podcasts: soundcloud.com/european-haemophilia-consortium/sets/ehc-world-haemophilia-week
This needs to be widely viewed. The music is really annoying for those of us with auditory sensitivities. I am glad Sweden is leading the way. In autism too; I feel there is a significant overlap with EDS.
Hi Christine, thank you for your comment and feedback and for pointing out about the music.
When is gene therapy for color blindness avaible? I think it is the most soght gene therapy on this planet. It affected over 300 million people and we lost our dreams and we also have been waiting for it for so long time. It was claimed that could cure red green color blindness in monkey in 2009, but till know we dont have clue when it is approved in human trials. Contact lenses or glasess is useless to correct our vision. We hope you proffessors, doctors, biologists and all of medicine expertises., please give us a miracle and spirit when we open our eyes in every morning🙏🙏🙏😭
She seems to be a great and caring doctor, would love to have a chat with her about the vWD. Great interview btw.
Thank you for sharing your experience.
Would be interesting to participate in all this conferences. EHC is a community in Europe but even in the World that produce perfect lessons about Hemophilia Issues and I hope to be there soon 👍🙏
Thanks a ton for sharing this excellent video.
my himofuliya
Very nice overview ... please note, volume does not come on until later in the video
my himofuliya
Good information
Declan is the best! 😀
Absolutely great idea to bring EHC closer to the community.