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Hi i am newly diagnosed 😢

Hi i am newly diagnosed😢

Hi i am newly diagnosed advice u give me please stop me breaking down😢

Watching this in 2024. Nothing ever changes. They don't care about us.

Truely inspirational talk Richie - I’m in the same boat at the moment

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Thank you for this powerful message

Be strong girl. I'm sending love.

the number one most important medicine for CFS ME is Epsom salt. not some crazy, advanced, expensive and patented molecule from a lab at some big pharma corporation or a university.

I developed ME/CFS last year due to COVID. It makes me sad that people have known this for so many years and still refused to listen. I genuinely thought I was listening to a video made very recently.

Haer my sarcasm, "This makes it easier for me doctor".....screw the patient, let's make the DOCTORS job easier. Puke.🤮 Also this man CHUCKLING after describing some awful symptoms, 🤮

2024 ME/CFS patients still suffering. What is funny about this illness is that health professionals are so ignorant, that they confuse the (depressive, anxiety) symptoms as the disease themselves, rather they are a by-product of living with ME/CFS, and having to frustratingly explain to people how unwell you actually are.

Thank you

Mold can lead to ME/CFS. I believe that is what happened to me. Then I got covid that exacerbated every awful symptom. Covid, in and of itself, can lead to ME/CFS. 😒

EXTREME STRESS Brought on CFIDS ME for me... IT'S VERY VERY debilitating

What is your experience with toxic mold?

How familiar are you of the outbreak at Lake Tahoe in the 1980's? If you aren't...please check out Exposing Mold & Erik Johnson who was the prototype for CFS in Lake Tahoe. I have this illness. What he teaches is the only thing that actually truly helped me. I would never wish this illness on anyone it's awful. I have no one. Your daughter is lucky she has you two.

😢what advances have occurred in 2023. I need to find a doc that believes chronic fatigue exists.

If 50 more dr,s kids would get Cfs they were outdoors be working none stop on this.

Does anyone know the book he mentioned at 13-ish minutes?

Thank you for providing this video. Its information is very important, particularly regarding the wide range of times possible between exertion and PEM, and the wide range of times possible that PEM will last. It's this feature which makes patients look crazy to uninformed medical professionals and even to ourselves. I describe it as ME/CFS gaslighting us.

I got it 30 years ago after bad flu and although it was beyond awful was fortunate enough to get to the point where I could manage it and always had to be mindful of my limitations but gradually with good nutrition lived an active life. Unfortunately after getting several Covid infections I'm now very limited and can't believe I'm back there again.

I'm so happy to see symptoms of my disease getting some attention! Thank you so much, doctor and host, for doing this video!

Thank you - what an amazing and proactive doctor!

Have been watching this woman this doctor with hope for something to help me and my fellow sufferers for 33 years now. She has done so many studies but nothing fruitful has really come of her work that has led to real help, a cure of any kind, or a drug. Most of us all still in bed most of the time. Anything that has helped most of us has been done by our own research. Was myself diagnosed inn1985/8 when there was a large outbreak at Incline Village look it up, but nothing has come to really help. She knows a lot but why are most of us still after 30 years of her research still in bed? There should be something by now to help us and those suffering with long covid. Just saying.

I caught Glandular Fever 27 years ago at 35: fit, happy fabulous career. I fought it every step of the way but sadly still have ME - I can manage a 40 minute walk with my Chihuahus but no house work. However I went to the gym with ME as soon as I was able but then I'd be bedridden for days afterwards. Most people make a good recovery but I never managed despite being the most positive driven person I know. It's amazing to see a happy person talking about it because usually it's people lying around talking about it.

This condition is far worse than a life long jail sentence.

I love her. Now I wanna be a scientist again.

The number 1 thing doctors are missing for M.E/CFS recovery! on youtube think of emdr, fishoil, magnesium, melatonine, vetgetables and fruits on a daily base, take care

I feel like the exercise info is detrimental here

I've had issues in the past with vitamin d & iron and had to have strong levels of supplements. I take daily vitamin d forever. I'm guessing I should probably be taking others too 😅 (I have me/cfs & apas)

A lot of good information. Thank you

Do you think there is a link between Fibromyalga and CFE to MS?

I can so relate to your daughters story

Check out this book: the Great Pain Deception by Steve Ozanich. Dear friends of mine have healed from CFS after reading this literature and uderstanding the mindbody process. It helped me heal from severe chronic pain and has helped thousands of others!

I just hate when someone tells me I can work. They don't even see me day after day,when i can't even do the most simple of household tasks, if any.

Amazing 😲. Don't get left behind > *promosm*.

I wonder whether in some people it’s an infection. I had something like this for 3 years and was continually declining in ability to the point where I became bedridden. My doctor put me on antidepressants and just continually increased them until I had serotonin syndrome. He didn’t believe me, nor listen to what was happening. I felt like a mental case, but also knew there was something really wrong. The symptoms were non-specific, every part of me was affected. Fortunately I developed early stage cervical cancer and had an infection in the uterus, that was life changing, because a gyno put me on 3 different forms of antibiotic for 7 weeks prior to surgeries. I had also told the gyno what I had been experiencing and he said he had a theory on this himself, and called it fibromyalgia, so I wonder whether the extensive and long course of antibiotics were maybe him experimenting with his theory. At week 4 on antibiotics I noticed I was able to get up and around again and do more day to day tasks, more energy and less pain. At week 5 a black, and puss blood stained discharge began to be released from the top of my sinuses and the dizziness went away. By week 6 my constant migraine had ceased. By week 7 on those antibiotics I had normal energy levels, which felt like super human energy because it had been so long since I had been able to even function. Once I had the hysterectomy to remove the cancer I then weaned myself off those terrible antidepressants under the supervision of a better gp, and then I got fit and started growing all of my own food organically to get the maximum nutrient content possible, I’ve never looked back.

Kratom can help a lot. Doesn't cause anxiety but gives an energy boost. Also helps to nullify pain quite well,, and can help with sleep---depending on which type of leaf you take, red, green or white. It is legal in most states and not terribly expensive, and one need not take a lot of it to receive its benefits. I know a number of people who take it to deal with ME/CFS, and it has served them well. Very low tendency for addiction, but you need to be informed about this area: Addicts have also used Kratom to help them get off of hard drugs. Kratom is a leaf/can be considered a herb. (For more info look up the American Kratom Association.) It has helped me: I've suffered with ME/CFS aka SEID, since 1986.

You randomly popped up on my RUclips, how is your life today? Have you remained well? And do you still help in the ME/CFS community?

The story of his daughter is so much like me! Even the food allergies. Thank you so much.

Prof. Tate may not want to consider the following, but...a number of friends with ME/CFS (and I might include this writer in this group) have found a great deal of relief by taking Kratom, a powder derived from leaves of a tree grown in Indonesian countries that is being studied in the US. The American Kratom Association and some of the chemists/biologists connected to that group can provide quite a bit of background re this plant. It doesn't cure ME/CFS, but makes life more tolerable, and can provide quite a degree of energy and better sense of well-being. I've had to deal with this illness since 1987, and Kratom is the only thing that has worked consistently (I've run the gammet of doctors, and treatments, to very little avail). I think it well worth looking into its chemical workings in the human body. (This plant is legal in most states in the US, but there are groups here that are making efforts to ban its use as some kind of drug, which it is not. It's an herb which has been used for hundreds, if not thousands of years to help people work and tolerate difficult living circumstances.)

Was there ever positive outcomes of studies done with MitoQ that was talked about back in 2017?

THANKS for posting Prof. Tate's 2022 update! This means a lot to me.

Great update, please keep up the great work.

Let me just say thank you. In the Midwest there are no doctors that will even acknowledge the diagnosis of cfs. And as a disabled nurse practitioner I have had to diagnose and treat myself. I finally read about NADH and magnesium and vitamin D which has really helped. Then I got Ambien so I could at last sleep.. and I started to use TED hose to help with the POTS . Also I discovered that the keto diet helped a little. I also began to get support from my local priest. it is so much a relief that someone believes that this illness is real.

If parents in the medical profession trying to help their daughter are also climbing this uphill battle. The rest of us are most certainly at a major disadvantage. I simply do not understand the politics of the medical system and the funding of disease research. How can this disease persist over decades and yet nobody has taken enough interest to even funds the research on such a debilitating disease?

Graded exercise made me MUCH worse for a few weeks I felt like death...then i noticed i could do a little more and a little more. I started to have stamina I hadnt had in years i could even drink coffee and work part time in small amounts and feel OK the next morning it was amazing. As soon as I stopped the daily exercise for a few weeks I went back to extreme exhaustion. Brain retraining is also working for me...but my body has been stuck in fight or flight mode for years. Im doing something called a stella ganglion block soon many have said this resets this nervous system feedback loop and can allow you to heal.