Duchenne Therapy Network
Duchenne Therapy Network
  • Видео 34
  • Просмотров 229 163
Video Blog 19 Duchenne muscular dystrophy's Effect on Respiratory System
Duchenne muscular dystrophy affects many systems of the body including the respiratory system. The pulmonology physician in this video discusses how the respiratory system works and what the effect of Duchenne muscular dystrophy is on the system. Brought to you by CureDuchenne Cares and Duchenne Therapy Network.
Просмотров: 633

Видео

Video Blog 20 Advanced Pulmonary Care in Duchenne Muscular Dystrophy
Просмотров 2975 лет назад
Those with Duchenne muscular dystrophy should be followed by a pulmonologist as a standard of their care. The treatment interventions that might be used are covered in this video. Brought to you by CureDuchenne Cares and Duchenne Therapy Network.
Fat Embolism Syndrome - CureDuchenne Cares
Просмотров 2 тыс.6 лет назад
Dr. Lee Murphy and Dr. Riad Lutfi from Riley Hospital for Children presented on Fat Embolism Syndrome (FES) during the CureDuchenne Cares workshop in Indianapolis. They highlighted the significance of families and medical professionals working together, especially in moments of critical care needs for those with Duchenne. For more information on Duchenne care topics go to www.CureDuchenneCares.org
Acute Respiratory Emergencies in Patients with Duchenne Muscular Dystrophy
Просмотров 9246 лет назад
Dr. Sandeep Puranik, pediatric pulmonologist from Riley Hospital for Children spoke about acute respiratory emergencies in patients with Duchenne muscular dystrophy at the CureDuchenne Cares workshop in Indianapolis. For more information about Duchenne care topics go to www.CureDuchenneCares.org
Dr. Eric Olson CRISPR/Cas9 Presentation at CureDuchenne Cares
Просмотров 9 тыс.6 лет назад
Dr. Eric Olson, University of Texas Southwestern Medical Center, discussed his CRISPR/Cas9 gene editing research at a CureDuchenne Cares workshop in Dallas. For more information on this research that could treat up to 80% of children who live with Duchenne go to: www.cureduchenne.org
CureDuchenne Family Summit - Basics of Home Accessibility and Modifications
Просмотров 3847 лет назад
A CureDuchenne Cares Family Summit featured a presentation on the basics of home accessibility and modifications. Karen Owens, PT, DPT, PCS, CAPS, is co-owner of SKY Pediatric Therapy, a private rehabilitation practice, and owner of Work-Able Home, providing home accessibility consultations. She has spent 25 years dedicating her physical therapy professional career to the enhancement of movemen...
CureDuchenne Cares Family Summit - Driving with Duchenne
Просмотров 3717 лет назад
Anne Edwardson from the California Children Services presented at a CureDuchenne Cares Family Summit. Watch the video to learn about the abilities required for driving, indications of driving readiness, preparatory passenger activities, DMV rules and procedures, components of driving evaluation and adaptive driving equipment. Learn more about Duchenne at www.CureDuchenne.org
CureDuchenne Cares - Duchenne Care Topics, Research, Resources and Connections
Просмотров 7147 лет назад
CureDuchenne Cares sessions are a wonderful way for families impacted by Duchenne muscular dystrophy to learn about care topics, the latest Duchenne research, clinical trials, meet researchers and pharmaceutical representatives, and connect with other families. For more information, go to www.CureDuchenne.org
CureDuchenne Cares Family Summit Transitional Panel
Просмотров 3487 лет назад
Transitioning from adolescence to young adulthood can be challenging, even more so when you have a physical disability. The Transitioning to Adulthood panel at the CureDuchenne Cares Family Summit was developed to help lead a discussion on topics such as getting ready for college, taking on responsibility for coordinating your own caregivers and identifying resources to help in the transition. ...
Respiratory Health and Pulmonary Care - Dr. Michael Rozvar
Просмотров 4947 лет назад
Dr. Michael Rovzar from Paloma Medical Group presented during the CureDuchenne Cares Family Summit. His session discussed respiratory health, what to expect from your pulmonary care team, typical pulmonary tests and what the results mean. For more information and resources on Duchenne go to www.CureDuchenneCares.org
CureDuchenne Family Summit - Equipment Options for Independent Lifestyles
Просмотров 7207 лет назад
Durable medical equipment helps individuals with Duchenne muscular dystrophy maintain independence throughout their lives. This video, featuring Kevin Philips, ATP/SMS, from Access Medical, covers some of the most common types of equipment, the differences between equipment choices, and who should be involved in the selection, justification and fitting of equipment. Helpful tips for getting ins...
CureDuchenne Cares Family Summit
Просмотров 2037 лет назад
The CureDuchenne Cares Family Summit provides an opportunity for families impacted by Duchenne muscular dystrophy to learn, engage and be empowered. This day long event provides resources and education on a variety of care topics including proper respiratory care, cardiology, behavior issues, social issues and transitions as well as the latest information on clinical trials. It also provides an...
CureDuchenne Cares Family Summit - Robert Kay MD CHLA Orthopedic Care for those with Duchenne
Просмотров 6687 лет назад
Dr. Robert Kay from Children's Hospital of Los Angeles spoke at the CureDuchenne Cares Family Summit on orthopedic care for those with Duchenne. The discussion addressed orthopedic care (both non-operative and operative) of common problems in Duchenne, particularly those involving the legs and spine. Scoliosis, surgical indications, timing and techniques were also discussed. www.CureDuchenneCar...
CureDuchenne Family Summit - Multiple Disciplinary Care Model with Leigh Ramos Platt MD CHLA
Просмотров 3027 лет назад
Dr. Leigh Ramos-Platt from Children's Hospital of Los Angeles presented during the CureDuchenne Cares Family Summit. Duchenne is a disorder that affects more than the skeletal muscles needed for mobility. It affects multiple organ systems and multiple facets of patient and family life. Seeing a child as a whole child requires physicians and other providers to speak to one another. For the famil...
Video Blog 19 Oral Health Considerations for Those With Duchenne Muscular Dystrophy
Просмотров 8097 лет назад
Those with Duchenne muscular dystrophy may be at increased risk for oral health complications. This video with Dr. Parish Sedghizadeh of USC School of Dentistry helps to explain some of the conditions, causes and symptoms to be aware of. Brought to you by CureDuchenne Cares and Duchenne Therapy Network.
Video Blog 18 - Nutrition Considerations For Those With Duchenne
Просмотров 4,4 тыс.8 лет назад
Video Blog 18 - Nutrition Considerations For Those With Duchenne
Video Blog 17 - Massage Program for Duchenne -CureDuchenne Cares
Просмотров 10 тыс.8 лет назад
Video Blog 17 - Massage Program for Duchenne -CureDuchenne Cares
Video Blog 16 - Transferring Someone with Duchenne -CureDuchenne Cares Education Series
Просмотров 11 тыс.8 лет назад
Video Blog 16 - Transferring Someone with Duchenne -CureDuchenne Cares Education Series
Video Blog 15 - School Limitations Related to Duchenne -CureDuchenne Cares Education Series
Просмотров 2,5 тыс.9 лет назад
Video Blog 15 - School Limitations Related to Duchenne -CureDuchenne Cares Education Series
Video Blog 14 - CureDuchenne Cares answered the common stretching questions
Просмотров 3839 лет назад
Video Blog 14 - CureDuchenne Cares answered the common stretching questions
CureDuchenne Cares
Просмотров 719 лет назад
CureDuchenne Cares
Video Blog 13 - Exercise Study in Duchenne - CureDuchenne Cares Education Series
Просмотров 1,9 тыс.9 лет назад
Video Blog 13 - Exercise Study in Duchenne - CureDuchenne Cares Education Series
Video Blog 12- Wrist, Hand Orthosis (Brace)- Cure Duchenne Cares Education Series
Просмотров 2,4 тыс.9 лет назад
Video Blog 12- Wrist, Hand Orthosis (Brace)- Cure Duchenne Cares Education Series
Video Blog 11 - Alter G AntigravityTreadmill- Duchenne Therapy Network&CureDuchenne Education Series
Просмотров 1,3 тыс.9 лет назад
Video Blog 11 - Alter G AntigravityTreadmill- Duchenne Therapy Network&CureDuchenne Education Series
Video Blog 10- Abilities Expo Recap- Duchenne Therapy Network & CureDuchenne
Просмотров 4569 лет назад
Video Blog 10- Abilities Expo Recap- Duchenne Therapy Network & CureDuchenne
Video Blog 9 -Self Stretching for Duchenne- Duchenne Therapy Network & CureDuchenne Education Series
Просмотров 20 тыс.9 лет назад
Video Blog 9 -Self Stretching for Duchenne- Duchenne Therapy Network & CureDuchenne Education Series
Video Blog 8 - Yoga for Duchenne - Duchenne Therapy Network & CureDuchenne Education Series
Просмотров 6 тыс.9 лет назад
Video Blog 8 - Yoga for Duchenne - Duchenne Therapy Network & CureDuchenne Education Series
Video blog 7 - Advanced Power Wheelchair Options- Duchenne Therapy Network & CureDuchenne Education
Просмотров 3,6 тыс.9 лет назад
Video blog 7 - Advanced Power Wheelchair Options- Duchenne Therapy Network & CureDuchenne Education
Video Blog 6 - Power Wheelchairs for Duchenne - Duchenne Therapy Network & CureDuchenne Education
Просмотров 8 тыс.9 лет назад
Video Blog 6 - Power Wheelchairs for Duchenne - Duchenne Therapy Network & CureDuchenne Education
Video Blog 5 -School Basics for Duchenne- Duchenne Therapy Network and CureDuchenne Education Series
Просмотров 4,2 тыс.9 лет назад
Video Blog 5 -School Basics for Duchenne- Duchenne Therapy Network and CureDuchenne Education Series

Комментарии

  • @prakashsharmamusic591
    @prakashsharmamusic591 Год назад

    India need you sir 🌸🙏🌸

  • @ilhamwan4772
    @ilhamwan4772 Год назад

    Thanks alot , this video is very helpful

  • @sugaskavitha3736
    @sugaskavitha3736 2 года назад

    Sir price pls

  • @subramanir9153
    @subramanir9153 2 года назад

    Sir price please.....

  • @ghanshyamkumar9382
    @ghanshyamkumar9382 2 года назад

    Titment

  • @mityamixailov4608
    @mityamixailov4608 2 года назад

    Тутера у вас какой фирмы???

  • @arunsakthivel3643
    @arunsakthivel3643 3 года назад

    Iam DMD . May I do cycle ? . I cannot walk.. pls tell me

  • @piamzaman2489
    @piamzaman2489 3 года назад

    Ami Bangladesh

  • @piamzaman2489
    @piamzaman2489 3 года назад

    Bangla hola volo hoto

  • @harikrish1368
    @harikrish1368 3 года назад

    I need help I am muscular dystrophy patient my name harikrish

  • @harikrish1368
    @harikrish1368 3 года назад

    Hi

  • @HighTen_Melanie
    @HighTen_Melanie 3 года назад

    Good video. The sound is too loud though. Sounds like you are shouting even after I turned the volume down.

  • @wanslaymarcelcavalcante3640
    @wanslaymarcelcavalcante3640 4 года назад

    Excelente! Precisamos de mais videos como esse. Sou Brasileiro resisdente no Brasil, com filho de 5 anos na DMD. Obrigado Great! We need more videos like this. I am Brazilian resident in Brazil, with 5 year old son in DMD. Thanks

  • @manizhanosirova2996
    @manizhanosirova2996 4 года назад

    Пожалуйста переведите на русском языке пожалуйста

  • @billbutteris76
    @billbutteris76 5 лет назад

    how do we get our right to try??

  • @anthonyherrera1608
    @anthonyherrera1608 5 лет назад

    Our government needs to hurry the hell up with this crispr cas9. We're losing beautiful young men to this wicked condition. The human race is better than this.

  • @sidaraimalugol404
    @sidaraimalugol404 5 лет назад

    Sir where is the best treatment available for DMD patients in Karnataka or in India.

  • @dddeadlift
    @dddeadlift 5 лет назад

    is it also useable for other muscular dystrophy forms?

  • @dantomlinson2242
    @dantomlinson2242 5 лет назад

    Thanks. Seeing more helpful options takes some of the anxiety out.

  • @henrydonato2869
    @henrydonato2869 5 лет назад

    Help me

  • @henrydonato2869
    @henrydonato2869 5 лет назад

     My name is henry donato I have muscular dystrophy I inherited from my mother of 4 children she had only me that I am the oldest of them inherit the disease, she died because of the disease they began to fail their organ died at 42 years of age 11/19/07 and three of his brothers also died in the same way

  • @ghizlaneelaji6771
    @ghizlaneelaji6771 5 лет назад

    futurenet.club/fanpage/Myopathie/invite هدا رابط صفحتي علي موقع التواصل الاجتماعي فوترنت.المرجو دعمها ولكم مني كل الشكر والتقدير اخواني

  • @ghizlaneelaji6771
    @ghizlaneelaji6771 5 лет назад

    futurenet.club/fanpage/Myopathie/invite هدا رابط صفحتي علي موقع التواصل الاجتماعي فوترنت.المرجو دعمها ولكم مني كل الشكر والتقدير اخواني

  • @ramasharma6113
    @ramasharma6113 5 лет назад

    I m suffering lgmd muscular dystrophy..I am 25 years old and The disease has become 10 years old. please help me..🙏🙏🙏🙏

  • @rahulpaul2976
    @rahulpaul2976 5 лет назад

    Is it possible to change skin color genetically?

  • @dnttreadonme9056
    @dnttreadonme9056 6 лет назад

    Time is muscle. We need a treatment already hurry up.

  • @TimothyRutt
    @TimothyRutt 6 лет назад

    For foot support, we added a couple of foam yoga blocks, attached by heavy-duty velcro strips.

  • @nishargakabir745
    @nishargakabir745 6 лет назад

    😍

  • @ravengabriel8723
    @ravengabriel8723 6 лет назад

    With all the respect for all researchers, you're moving very slow and many of us will die before having any chance to use this brilliant results!

  • @AnnetteMurphyger
    @AnnetteMurphyger 6 лет назад

    😀

  • @AnnetteMurphyger
    @AnnetteMurphyger 6 лет назад

    This infotmation though excellent is all about children. What about adults with any tupe of Muscular Dystrophy. Have you any advise for us. Thanks

  • @AnnetteMurphyger
    @AnnetteMurphyger 6 лет назад

    So not excessive calcium.

  • @AnnetteMurphyger
    @AnnetteMurphyger 6 лет назад

    So water and fibre

  • @AnnetteMurphyger
    @AnnetteMurphyger 6 лет назад

    Fruit and vegs are key

  • @AnnetteMurphyger
    @AnnetteMurphyger 6 лет назад

    Thanks for the advice about potatoes.

  • @AnnetteMurphyger
    @AnnetteMurphyger 6 лет назад

    No fried foods for me!

  • @AnnetteMurphyger
    @AnnetteMurphyger 6 лет назад

    I do not ever add salt or sugar

  • @AnnetteMurphyger
    @AnnetteMurphyger 6 лет назад

    Oranges are good though or some type of fruit!

  • @AnnetteMurphyger
    @AnnetteMurphyger 6 лет назад

    Vitamin D is very important. I hate my breakfast though except for a yogurt and lots of water.

  • @AnnetteMurphyger
    @AnnetteMurphyger 6 лет назад

    Good advice, except I am an adult with a mild form of Becker Limb Carrier Muscular Dystrophy and thankfully NOT on steroids.

  • @AnnetteMurphyger
    @AnnetteMurphyger 6 лет назад

    He appears very fit to me!

  • @AnnetteMurphyger
    @AnnetteMurphyger 6 лет назад

    Does this model patient in this video have Muscular Dystrophy?

  • @AnnetteMurphyger
    @AnnetteMurphyger 6 лет назад

    I have Beckers Muscular Limb Girdle Carrier Dystrophy only diagnosed finally in 2010 when I was 42 and am female.

  • @mariahc6888
    @mariahc6888 6 лет назад

    Wow incredible I will be your first test subject.

  • @joshargall5139
    @joshargall5139 6 лет назад

    Excellent video! Very powerful!

  • @lastefy02
    @lastefy02 6 лет назад

    thank you soo much for all this videos. they really help.

  • @larryprice4448
    @larryprice4448 6 лет назад

    When are they gonna start using it to cure H.I.V

  • @kotakondalaxmi8218
    @kotakondalaxmi8218 6 лет назад

    Which oil using

  • @emiemi1398
    @emiemi1398 6 лет назад

    Hello My name is Emi. I'm 21 years old. I live in Albania. I suffer from duchenne muscular dystrophy. Recently, I have a lot of difficulty walking. Please help me with any information.

    • @yanetcortez3789
      @yanetcortez3789 4 года назад

      Hi

    • @yanetcortez3789
      @yanetcortez3789 4 года назад

      I have muscular dystrophy too write me plz

    • @mityamixailov4608
      @mityamixailov4608 2 года назад

      В чем именно вам нужна помощь??? С Мышечной дистрофии Дюшенна

  • @rollakosta6554
    @rollakosta6554 6 лет назад

    Powerfull technique indeed!