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The CDH Mum
Добавлен 3 фев 2018
The CDH Mum - successful nasogastric insertion
I was finally able to capture my attempt at inserting a nasogastric tube in myself, which I do several times a month for my baby who was born with a congenital diaphragmatic hernia, and who has relied on nasogastric feeding since birth.
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Видео
The CDH Mum - Inserting a nasogastric tube for Alfie
Просмотров 13 тыс.6 лет назад
It’s been a while in between videos so I thought I’d upload this one of Alfie’s nasogastric tube insertion. I had watched Alfie’s nasogastric tube be replaced so many times and I didn’t like having to take him into hospital each time he needed it replaced as sometimes he was kept waiting - once 6 hours - and I didn’t want Alfie to start associating hospitals with being a place where bad things ...
The CDH Mum - New feeding techniques for Alfie due to feeding aversion
Просмотров 2,6 тыс.6 лет назад
Alfie is 4 months old, and had his CDH repair on day 10. After 43 days in hospital Alfie returned home with a nasogastric tube for feeding as he developed a feeding aversion while in hospital. It has been 2 months since we first came home, and Alfie is no closer to showing interest in feeding. Alfie has regular appointments with a speech pathologist who suggested some new feeding techniques to ...
The CDH Mum - Talking about congenital diaphragmatic hernia
Просмотров 3626 лет назад
My baby, Alfie, was born with a congenital diaphragmatic hernia. He has his life-saving repair at 10 days old. Alfie is now 4 months old and is still reliant on a nasogastric tube for feeds as he hasn’t established feeding yet. If you haven’t already, take a look at my other videos relating to Alfie’s journey, on my channel. Thanks for the support!
The CDH Mum - A rundown of preparing Alfie’s nasogastric feed.
Просмотров 2966 лет назад
My baby has had a nasogastric tube since his CDH repair at 10 days old. He is now 4 months old and still receiving his feeds through a nasogastric tube as he hasn’t established oral feeding yet.
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3:11 call me evil, but that was hilarious how he went from 0 to 10 😂 its always satisfying watching a baby not get their way
try this: put hand socks over his hands to keep him from pulling out the tube.
How was your transition from the tube to oral feed experience ? My little daughter has feeding aversion and now have the feeding tube. I feel heartbroken and scared, any advise
Hey Andrew. My son has tube for 18 months before he started eating orally. It is definitely an emotional time. You will find yourself trying everything you can possibly think of to get her feeding - I sure did with Alfie. Do lots of feeding therapy but always stop when your daughter shows that she has had enough. Never push her further than she is ready for as it can worsen the aversion. Do you have a speech pathologist and occupational therapist? They are great for providing you with education for feeding therapy. Everyone’s journey is different, but be patient and trust that she will start eating when she is ready. Be her biggest supporter and always advocate for her if you feel she is being pushed too fast or if you can see that she needs a break from feeding therapy. I wish you all the best with your daughters journey to oral feeding :-)
Cutie pie! Why don't you bring the spoon inside his mouth instead of just touching the spoon to his mouth? This way, more food will go in.
Hi Kala, this was done that way as he had a severe oral aversion any if we pushed him further than he was comfortable with during his feeding therapy it would have caused worsening of the aversion. Part of his oral aversion started at around 6 weeks of life when he had bottles repeatedly forced into his mouth by others when we were trying to establish feeding. He was born unable to feed due to his medical condition so was commenced on nasogastric feeds on day 12 of life. In total he was nasogastric tube fed for 18 months and then decided he would try some food after all. He is now about to turn 4 and eats anything in his way :-)
@@thecdhmum1306 Oh OK. I didn't know. I see a lot of parents on YT doing it this way, hence I said what I did. Apologies. And thanks for the explanation! Glad he is fine now!
Also, I somehow missed the description. I usually read it before commenting. Somehow missed it this time.
That’s okay, no need to apologise at all :-)
@@thecdhmum1306 🙏 Glad to read he's doing great now!
Forget the food with all that kicking he needs a bicycle so cute god bless him hope alls well❤️
What an adorable little munchkin❤️
Hi, he has the tube for 17months? That doesnt irritate his skin? Or the doctor advise him for a peg or g tube? 😃
Is he okay now? Any updates? My son is exactly like him. Bottle aversions and has NG tube too
Hey how is your baby?
Hey there. Thank you for asking. Alfie is now 3 and a half and has successfully had his tube kept out for a long while now. He had it for a total of 17 months from birth.
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Hey hi how r u and how is baby doing now Is he eating now ...may god bless him
Hi Nish! Alfie is about to turn 4 in a couple of weeks; and after being nasogastric tube fed for 18 months he now eats a lot of different types of food and drinks well. It was a very long feeding therapy journey but we got there :-)
Mom you doing great job & cute baby
Just Amazing my beautiful Niece ❤️❤️
Cool trick. That way his hands are held down!
Poor bubba. Gorgeous though. And one tough mumma xxx hugs.