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Thank you for sharing your story. Our grandson just had his tumor removed. He is 30 years old. After years of headaches, they finally found the problem. The surgeon said it was one of the largest they have seen. He is recovering now with some problems with his eye and numbness in his face. Prayers go out to you and to all who are recovering from this. God less you all.

i really appreciate all this info!

What a wonderful doctor you will be! Where did you have your treatment? Thank you for guiding those of us who have ANs and are trying to see the light at the end of the tunnel.

Hello Hela,(beautiful name by the way). Thank you for sharing your story. You are a warrior and you are tough but no doubt with a generous helping of softie as well. You are an encouragement. Thank you again.

I'm 10 years late, but you're absolutely beautiful and brave for sharing your experience. How the first surgeon didn't move it raises questions about him. The 2nd surgeon though must have snipped one of your nerves unfortunately.

Congratulations on becoming a DOCTOR!!! Your empathy makes you a wonderful doctor. 🎉🎉🎉

💝💝💝💝

That lady had some incredible and unique experience and perspective on that event! That even reminds of Mark Ruffalo's case of the same type of tumor, which he dreamt about, and his doctor for an MRI even though the doctor was trying to convince him there was no troubles and agreed to the MRI only so that Mark could set aside his fears. I'm myself over 20 months after a retro-sigmoid surgery for giant (~51x40x31mm) vestibular schwannoma removal - in my case fortunately almost complete removal (3-5% of the tumor is left, mostly around my facial nerve to avoid damaging it). So ~20 months after the surgery is seems there's still no growth of the remainder, but I have a hydrocephalus that doesn't get better. It was originally caused by the tumor by compressing the 4th ventricle and disturbing the normal CSF reabsorption, so in the next weeks I'll get another surgery - intracranial shunt, to allow the CSF to leave and stop the ventricles swelling. So far I lost only my right-ear hearing (completely ... though I'm still trying to sing ... to unclear to me success :/ ). My facial nerve is fine - before the surgery I was feeling constant tiredness in my right face half, but now it's fine. But I got quite interested of your BAHA hearing aid! With my acoustic nerve being damaged I though regular cochlear implants would be useless. That only an ABI (Auditory Brainstem Implant) could restore some hearing in my right side (bypassing the ear and acoustic nerve), but as I understand ABI is really complex surgery, and because of the risk/benefits balance it's not really recommended for patients that have one healthy ear & hearing. So I'm really interested if BAHA hearing aid can be used in such cases!

For the record because for some reason you don't see many stories like mine online........was diagnosed with a left sided AN in 2013 (appx 3 cm) wrestled with the head of neurosurgery when I told him I wanted to go the Gamma knife road vs surgery.......the lesion was appx 1.5mm from my brain stem at the time.......had the Gamma knife procedure on a Friday, was back at work the following monday (Could have actually gone back the next day) and here I am 10 years later with a follow up every 2 yrs or so.......highly, highly, highly recommend the radiation treatment. And as for the other comments on here....yes when you are initially diagnosed it is VERY common tho feel fatigued and feel like you are "under water" when ur walking around.......due to the affect on your balance more than likely.....

Te iubesc multo matura grasa Niko armasaro

Te doresc multo matura Niko armasaro

Te doresc multo matura Niko armasaro

I would love to know if she ever gave an update on her last surgery.

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You could have done radiation after first surgery

God bless you Hela🙏.

Your story is very heartbreaking. You mentioned that you would eventually have facial corrective surgery. Have you had this yet? My reason for asking is that I have had 2 acoustic neuromas. The 1st one was October 1986 at age 28 yrs (5cm), the 2nd was October 2018 at age 60 yrs, also 5 cm. After my 1st surgery I was left with facial paralysis. No point in my having corrective surgery now since I'm almost 65 yrs old. I would love to see a picture of you now. However, you are very beautiful and I'm so sorry that you had to endure such a traumatic experience. May God bless you👏.

You are so very beautiful and this is the first time I have seen someone with paralysis the same as mine. I've had 3 brain operations to remove my acoustic neuroma and the doctor's couldn't save my facial and hearing nerve. The fact that you can have corrective facial surgery is such a wonderful gift. May you continue to be blessed 🙌.

Thanks for sharing your story.

Sorry what you went thru

God bless you on your journey love from Ireland 🇮🇪

Hi there I want know that what is the best treatment option for acustic neuroma either surgical or stato therapy

Thank you for this video.

double vision, both eyes even after closing one,real hard head pain at my right side of head that vein, eye pain right side, little bit ear pain , sudden hearing loss at unexpected high moments, l[like your crush proposing you, completely unexpected] a vericose vein in right legand and please tell me if i need to look someone, am 16, male, thnx!

Very inspiring and uplifting. May God bless you and keep you.

Update on her?

Hela how are you now

My dear girl You will be fine. Let me tell you for sure. Got mine removed in 1992. 3cm.Had similar post operation conditions. Much better as time passes. God Bless TG.

😓😢😭

Keep going - well done on how far you've come my dear

God bless you

I did acoustic neurinoma surgery in 2004 at the age of 23. The tumor was 3.5 cm and was totally removed with right ear loss of ~80% . Since then I have recover a partial facial nerve kinesis and have tried biofeedback treatment. I am seeking more information about Baha machine and where I can found it in Europe. Any helpful is much appreciated

I hope U r a Dr now. Here goes my question, my balance is way worst than before surgery ( I need to walk with elderly trolley) still have headache, some days I'm still tired and sleepy, living dizzy Isa daily thing. Good things after surgery, I stopped my insomnia pills , I take them since I was 18, now I'm 49, 16 months from surgery never ever took a sleeping pill again. Other good thing is I have vomited 12 times in 16 months, before I used to vomited 3 or 4 times a day. I had the tumor and a blood clot which was bigger everything was removed. Don't know why but they said I was left with a thrombosis. Why? Thank U Dr.

Hi I understand you.I had a 6cm acoustic neuroma removed 6 years ago, I had my facial nerve severed so now living with permanent facial paralysis I also had a shunt put in with many more operations, now due surgery again in 2 weeks to remove a regrowth AN plus a cyst that is growing with it so this is one tough road but being strong is all you can be.

What were your symptoms

Amazing how you diagnosed yourself! Not fun either way 😢Nystagmus is what my first symptoms was.. now I’m trying to find out why I’m getting g dizzy when I look to the left or up 🤷‍♀️ wish me luck.. my problems have been happening for a few years now.

God bless you young lady🙏❤️🙏

True hero,Great Inspiration,very very inspiring. She is very very brave May she be really great at whatever she does

Hi Hela. I am 25 year old male about to see my Dr. to tell her I believe I have an acoustic neuroma myself. For 1.5 years I have felt an increasing pressure in what I thought was my upper jaw, but now believe is inner ear. Got all wisdom teeth removed thinking it would solve the problem but no. Saw many other doctors on short-notice and they all said put oil in ear, come back and we'll clean your ear again. Never changed anything. Finally 2 weeks ago I started getting balance issues, could not sleep whatsoever and can't properly focus on something especially on the eye on the affected side. I hope I am wrong. Thanks for sharing your story.

This is horrifying

God bless you ! I go next week to have a CT scan. I have a spinal cord stimulater so I can’t have an MRI. I have psoriatic arthritis so this new doctor I went to who is ton better than the specialist I was sent to last year. Well he told me it could be another autoimmune disease effecting my ear. Or acoustic neuroma. I am preparing myself much in the way I did when I had a hysterectomy and got my spinal cord stimulater. It’s my family I worry about. My illness has effected them so much I just don’t want them to suffer more. God will get us through this. Congratulations on becoming a doctor. You are beautiful. And I know you will do well with your up coming surgery so you can smile again. And I love it when my doctors are understanding. Your patients well love you too. There is a reason for everything under the sun. Take care, Leslye

Power to you lady

Strong woman.

Thank you for sharing your story, I have tinnitus,a twitching right eye, headaches ,pain behind left ear,facial numbness on right side.im scheduled for an MRI next week,my Dr. is checking for acoustic neuroma.Please let me know what other symptoms you have. Thank you...Dr. :)

I was diagnosed with Acoustic Neuroma 2 months ago and I wanted to know if anyone had issues with being tired too ?

God bless you Hela, and thank you for sharing your story. I'm dealing with a similar issue and you are an inspiration to me. Thank you! xo

I have facial paralysis for 3 years qwer @abeautifullifei Twitter

Facial paralysis for 3 years

you are a strong woman. God bless you! and wish you the best.

You, young lady, are a true Hero. Keep this attitude and many doors will open for you in the future