Sammie Read
Sammie Read
  • Видео 32
  • Просмотров 5 350
Day 96 - Lots of publicity for The CF Trust for CF week, and publicity for Lukes book
My Cf journey through lockdown and isolating. Sammie’s isolation staycation
www.crowdfunder.co.uk/coughing-it-all-up/backers#start
Please donate anything you can every penny counts. #cysticfibrosis #coughingitallup #trikafta
Просмотров: 122

Видео

Day 86 - Paper interviews and Radio chats
Просмотров 1494 года назад
My cf journey through isolation and Sammies staycation vacation
Day 78 - New CF book in the making can’t wait!!!
Просмотров 1014 года назад
My cf isolation staycation link to the crowdfund page is on my Facebook and instagram or message for information #cysticfibrosis #coughingitallup #cftrust
Day 74 - How can it be June?!
Просмотров 1624 года назад
My cf isolation staycation vacation #cysticfibrosis #dachaundpuppy
Day 68 - Happy 40th Bec
Просмотров 1044 года назад
Isolation staycation with cystic fibrosis #trikafta #cysticfibrosis #royalpapworth #dachsund #labrador
Day 64 - Trikafta explained
Просмотров 3434 года назад
My cf journey through lockdown staycation vacation and starting Trikafta #cysticfibrosis #trikaftastarted #wonderdrug
Day 62 - First dose of Trikafta
Просмотров 1654 года назад
My cf isolation staycation #cysticfibrosis #trikafta #organdonation
Day 60 - A few Sammie’isms but lots of sweet treats
Просмотров 934 года назад
Cf isolation staycation #cysticfibrosis #sammieisms #covid19 #positivelifestyle
Day 57 - Brads back from Salisbury
Просмотров 864 года назад
My cf staycation vacation lockdown in isolstation #cysticfibrosis #covid-19 #dachaundpuppy
Day 55 - Amazing news regarding My Cf
Просмотров 2354 года назад
My CF staycation vacation with Covid-19 #cysticfibrosis #trikafta
Day 53 - Papworth port flush day
Просмотров 1014 года назад
Sammie’s cf staycation vacation covid-19 lockdown
Day 50 - VE Day
Просмотров 924 года назад
Sammie’s CF Staycation Vacation
Day 46 - So excited to reveal our surprise
Просмотров 2684 года назад
Sammie’s cf isolation staycation vacation. A blonde insight into my crazy life
Day 43 - 6 weeks isolation done 👍🏻
Просмотров 694 года назад
Sammie’s cf staycation vacation
Day 41 - Its brrrrr freezing
Просмотров 804 года назад
Day 41 - Its brrrrr freezing
Day 39 - I always knew I was a crazy moo now my pjs prove it
Просмотров 1224 года назад
Day 39 - I always knew I was a crazy moo now my pjs prove it
Day 36 - Brads completed on his pad and moved in.
Просмотров 1634 года назад
Day 36 - Brads completed on his pad and moved in.
Day 34 More Jobs and 21,000 + steps
Просмотров 954 года назад
Day 34 More Jobs and 21,000 steps
Day 32! One month down
Просмотров 1724 года назад
Day 32! One month down
Day 27 - A few ism’s in 1/2 hour
Просмотров 1014 года назад
Day 27 - A few ism’s in 1/2 hour
Day 25 - Did someone say eggs?
Просмотров 924 года назад
Day 25 - Did someone say eggs?
Day 22 - I finally got a hug after 3 weeks
Просмотров 2004 года назад
Day 22 - I finally got a hug after 3 weeks
Day 18 - Sunshine and sunburn in April
Просмотров 1304 года назад
Day 18 - Sunshine and sunburn in April
Day 15 - Another hospital appointment
Просмотров 1584 года назад
Day 15 - Another hospital appointment
Day 13 - Anyone know what’s day of the week it is
Просмотров 1724 года назад
Day 13 - Anyone know what’s day of the week it is
Day 11 - Sammie’s staycation I have escaped the village
Просмотров 1554 года назад
Day 11 - Sammie’s staycation I have escaped the village
Day 8 - Ewan’s big bear hugs within 14 days
Просмотров 1994 года назад
Day 8 - Ewan’s big bear hugs within 14 days
So it’s all got real now. Day 6
Просмотров 2294 года назад
So it’s all got real now. Day 6

Комментарии

  • @peterleid5060
    @peterleid5060 3 года назад

    Congratulations!! What an encouraging story that Trikafta brings Sammie. A little too late arriving for me, but I guess 13 years ago when I received a bi-lateral lung transplant I received the best available option. Diet wise I found that it's best to cut out almost all carbohydrate and up the fat and protein so my ratio is +/- 75-80% fats, 15-20% protein and up to a maximum of 5% carbohydrate. I never count calories because they are misleading... only calories from carbohydrates can be stored as "extra weight"... fat in the diet cannot be stored as fat and only a small amount of protein will be metabolised to make glucose and perhaps make it to fat storage (unlikely). The anti-rejection medication I must take makes me a diabetic, but my HbA1c is 53... normal on this Hi Fat, extremely low carb lifestyle. I'm a lean 12 Stone. The clinicians at Papworth Hospital are very happy with my overall health and I'm about to enjoy my 64th birthday!! Sounds to me as if you'll get to a good old age too Sammie, with this new group of breakthrough genetic modifier medications. My very best wishes.

  • @Emma-AnneHarmer-Collin70
    @Emma-AnneHarmer-Collin70 4 года назад

    My mum always believed in hugging trees xx

  • @Emma-AnneHarmer-Collin70
    @Emma-AnneHarmer-Collin70 4 года назад

    Well done you hun xx

  • @ThePollydoodles
    @ThePollydoodles 4 года назад

    Hey glad the meds already started working (i have cf too) . did you get the drug on compassionate use? guessing your from uk also? x

    • @sammieread4402
      @sammieread4402 4 года назад

      ThePollydoodles Hi, yes on compassionate grounds it’s amazing. I’m from the UK how’s your cf? X

    • @ThePollydoodles
      @ThePollydoodles 4 года назад

      @@sammieread4402 aw im glad !!..its good that it's available for those who really need it :) My Cf is not too bad currently, last blow was 68, but was normally mid 70's-80, but struggled alot after having my baby (now nearly 2 )and my pfts droppped into 50's but got them back up to a more comfortable level at 68.. however i have quite tricky bugs so is hard to improve now as IVs to treat are too harsh on liver etc!! Can't wait fot trikafta to be out properly! How was your lung function before and how are you now? if you've been able to do blows with everything going on!? xx

    • @sammieread4402
      @sammieread4402 4 года назад

      ThePollydoodles started just below 40 now mid high 50’s within 4 weeks it really is amazing. Fingers crossed it’s available to everyone soon who needs it X stay safe X

  • @Familylawgroup
    @Familylawgroup 4 года назад

    I was trying to learn about Trifakta and came across this video and learned about the law change in England about organ donation. That is SOOOO awesome. I live in St. Louis, Missouri in the United States. In our country, organ donation laws differ with each state. We can consent when we renew our state ID/ driver's licenses. Is England the first country to have a default answer to BE a donor unless you say NO to being one? In England, can family members override the default consent and can minors consent to being a donor despite parental objection?

  • @samanthamclean245
    @samanthamclean245 4 года назад

    OMG ❤️❤️❤️❤️

  • @samanthamclean245
    @samanthamclean245 4 года назад

    🤣🤣

  • @theherstorychannel
    @theherstorychannel 4 года назад

    Oh Ozzy 🥰 I have to walk Scruffy separate from the other two now cuz he can't keep up anymore. Still loves his walks and all the dogs he gets to meet though! ❤

  • @Emma-AnneHarmer-Collin70
    @Emma-AnneHarmer-Collin70 4 года назад

    Another great vlog xx

  • @Emma-AnneHarmer-Collin70
    @Emma-AnneHarmer-Collin70 4 года назад

    Was Brill hun xx

  • @theherstorychannel
    @theherstorychannel 4 года назад

    Glad you're feeling better lovely! If you ever want a natter just shout me over the fence 🤣💖

  • @samanthamclean245
    @samanthamclean245 4 года назад

    😘

  • @lorrainekinder4171
    @lorrainekinder4171 4 года назад

    take care sammie xxx

  • @samanthamclean245
    @samanthamclean245 4 года назад

    🥰

  • @samanthamclean245
    @samanthamclean245 4 года назад

    💐

  • @kellyperks5596
    @kellyperks5596 4 года назад

    Hi Sammie! Well done on the vlog. Watched it with my daughter to give her an insight into someone else's life and how you are isolating. Looking forward to the next one xxx

  • @gaynorriley1628
    @gaynorriley1628 4 года назад

    Love you Sammie, great first vlog! Can’t wait for the next one. Take care 😘😘😘❤️

  • @samanthamclean245
    @samanthamclean245 4 года назад

    ❤️