Видео

I did Prednisone for 14 mnths in 93' 60 mg💥💥💥 what was i thinking 🤔🤔...... i wasnt...i gave it up & slowly my Sarcoidosis faded away 🫡🫡🫡✌🏿✌🏿✌🏿✌🏿

Western Diets create Havoc ....💥💥Big underlying factor

Most drugs harm kidney/ĺiver💥💥🥺🥺 herbal & Ayurveda are most valuable. Mind over medicine is a book title.....most americans r deeply conditioned to Allopathy....first do no harm is exstinct best wishes 🥺🫡🙏🏿

You’re a beautiful, brave girl. Keep up the fight against your illness. May God give you strength and courage to fight this illness and I wish you a long and healthy life xx❤️

I'm going thru the Depression and anxiety at night/ staying up crying. It's exhausting and draining. Just got diagnosed with Lupus.

stopped eating apples lol

Love you so much for this! 💌

Awh!! You are very brave! I admire you so much. I cried all day today I couldn't help it. Then, I went outside and washed my car, tended to my garden. My hobbies keep me busy. The chronic pain does suck though with the Lupus.

Thank you so much for this video! I just git diagnosed two weeks ago :'( I'm 30 years old turning 31 in two months. I experienced the rashes (looked like hives) in 2018 like 5 times in one year. The chronic pain I want to say since I been in high school. Hair loss too last year

You 're a beautiful young girl and clever too. You are very articulate and really you didn't desetve this. Hope you are feeling bettet now.❤

How are you doing now? It’s 5/24. Hoping you are feeling really well now..

Estrogens & Progesterone can trigger it for ppl so its possible it was hormone sensitivity & not the event itself, just an idea

Pesticides they spray on apples 😂😂

God bless you I hope you get a kidney soon!

I UNDERSTAND!! I'M GLAD I'M NOT ALONE!! THANKS FOR SHARING... I KNOW YEARS AGO BUT I NEEDED THIS TODAY! ❤🥺

Recently I was diagnosed with ds-dna lupus and I have no idea bout this ... Anyone pls feel free to make me understand what this is.

I was just diagnosed with Lupus Anti-Coagulant which is your basic Lupus plus thickening of the blood upon flare ups. Which basically means whenever my Lupus flares my heart starts spitting blood clots. Plus all the small joint pains and brain fog. Thank you for the video.

I have shifting pains in my long bones not just in the joints but also shaft n the pain is pin pointing which will vanish slowly within one HR on its own

, the fluid backs up towards your lungs and that will make you short of breath also

Hey- I just found your channel. I am about to start watching your videos. I was diagnosed with lupus nephritis when I was in my mid 30's.

Chronic illness can wear us down mentally and emotionally.

💖💖💖 how was u sisters wedding post a wedding vlog if u have recorded anything

lets gooooooooooo my fav youtuber is back

my fav youtuber is back lets goooooooooooo

u r a inspiration to all us chronic illness people thank you for all the positivity

lets goooooooooooo so happy for you

only some of us can say that our dad saved our life

dyyyyam ur dad is a irl hero

lets gooooooooooo another video

Hi!! Congrats on preschool teacher thing and also your engagement! I’m in Sacramento, not ready for 100F weather lol WOW kidney in a week! It is so hard to get a kidney, congrats!! Thank you to your Dad for donating his kidney to someone else that needed it.. keep us updated!!! I hope you recover quickly- hope to see you soon 🤗 💜

Did you find out about the hand fluid? I had that happen to me multiple time! Like fluid filled lumps. I thought it was a spider bite!

Gosh, I'm only a few minutes in and I'm freaked out. I started getting migraines at puberty. Then my hands started doing this swelling/burning/itching thing and my doctor said it was either a migraine in my hands or it could be lupus, but I never got the blood draw to test for autoimmune (I'm needle phobic and still have never had a blood draw). I just decided to go with the first option. I've had various symptoms on and off but I've mostly ignored them. BUT NOW, I got sick about 2 weeks ago with a upper respiratory infection. It went away but I was still feeling terrible. Now I've developed a rash on my arms and legs and it's just these red welts that look like bug bites but with no "bites" and they keep moving around and spreading, but only on my arms and legs. Went into the walk in clinic and he basically said "idk what it is, take some prednisone". Well, prednisone hasn't helped and I just did my last dose. 2 days ago I woke up with terrible knee pain. Like I had jumped a flight of stairs and landed on concrete. I'm getting headaches and I just feel "blah". Everything is pointing to lupus right now and I don't know what to do.

How long are flares do they vary ?

Did you ever get widespread muscle twitching?

I get it.....Thought I was going CRAAAAZY!!!! So glad I'm not. Going to see my Rheumatologist 4/15/22

You're so beautiful and brave!! So admirable ❤

Hello ma'am....how are you??

you never made the video about what happened in the hospital and the emergency room.

Jane, thank you for sharing your story.

My doctor prescribed be plaquenil last year when I first diagnosed with lupus !! But now this medicine is not working last 3 month I have severe chest pain, headache, muscle and join pain but my doctor is not changing my medication! Can you tell me anything about medicine please.. I am 29 years old.

hopefully you get new kidney very soon your videos help a lot.

This same thing happened to me I for 3 months was so tired everyday I could even get off the bed during that time I use to struggle even to take a shower but I still went out and partied with my gf but it took too much of a toll on my physical and mental health i started to resent her during that time and that broke us up entirely but the wierd thing is I don't care I only think about the fatigue

i hope you are ok i have the same symptoms but i also have severe eye pain and doctors cant figure it out i have visited 4 doctors for the eye pain but they have no clues what is wrong cause everything looks normal

Goodbye lupus it's a book from Dr Brooke Goldner

great advice, awesome, keep well, keep posting

I am 31 and kidney patient for past 6 months and taking dialysis treatment. sometimes my heartbeat rise very high when i feel sexually. and yes i had all these symtoms which i missed to acknowledge..

How did you get the finger swelling to go down? That was my first symptom at the beginning of this year, my engagement ring began to not be able to come off and then I ended up having to oil it off otherwise they were going to cut it off. The stiffness in my fingers in the morning too is horrible! I can't even move my fingers until about half an hour-1 hour after I wake up. I want the swelling to go away because it's so unsightly and I can't wear my engagement ring 😣 I've started having some of the other symptoms you experienced and have a rheumatologist appointment in 2 weeks to get a formal diagnosis.

Keep going girllll thank u for what are you doing ❤️❤️❤️❤️❤️

Does anyone who has lupus get numb all around the body ?

Hi what are some easy exercises to start out with I've just started plaquenil and starting to feel my body isn't so sorry and I also have RA so I want to keep active as much as I can love your videos it's help me process having lupus so thank you