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I spoke to my oncologist today about starting tomoxifen ! I had 10mm breast lump and it spread to one lymph node, I tried the aromatase meds but got a rash, now offered Tomoxifen, after a lot of research and this great podcast I decided tomoxifen not for me ! My oncologist was nothing like Clair ! 😊 It was like your dad telling you off ! He said the NHS Predict tool wasn't very good when I told him my risk was only 1 % diff , he said thats just mortality ! Not weither the cancer will return ! I dont think anyway knows that ! Then he said we follow the science! He had no interest in women suffering from side effects and said if it was his family he would advice then to take the meds !

Thankyou Dr Louise Newson is the best 👌

I checked it . Why doesn't it include radiotherapy or lobular cancer ?

When I was 47 I had zero stage DCIS breast cancer, had a tiny lumpectomy, 6 wks radiation and no drugs/no tamoxifen. Regular mammograms, No recurrence. I have no other health issues and do not take prescription drugs. Wouldn't I be a good candidate for the estrogen/prog patch at my age, 66? I'm frustrated w/ my GYN being reluctant to prescribe it. I haven't slept more than a few hours a night since my 40s and really want to try estrogen. :( Quality of life is everything at my age, not necessarily longevity if I am not going to feel good.

What a great conversation with Dr. Macaulay. I found it to be invaluable and I feel that you touched upon the most important aspects of making decisions, recognizing the extreme emotional impacts, and how best to navigate your own journey. Thank you touched you both!!

Thank you for doing this interview ladies. I've just stopped Tamoxifen for good after 13 months. I struggled with it from day 1, had a couple of breaks, but stopped it. The meds I was being given to manage all the side effects were making me really ill, when I was already feeling awful on Tamoxifen. If I'd of been given all the information - and knew about Predict - at the very beginning I never would have agreed to it. I've lost over a year of my life to this, and suffered horrendously, for a 0.5%-1.5% risk at 15 years. My other issue is that I have never met my Oncologist. Is my cancer not bad enough for her? I have a Radiotherapy ACP, and a Nurse Consultant, but I feel the lack of access to my Oncologist and the breakdown in that communication led my original Nurse Consultant to recommend and persist with completely unnecessary Tamoxifen use. I'm really angry and upset that I was never given all of the information needed to make a fully informed decision.

Thank you for this uplifting podcast! Looking out for information, trying to sort out our options DOES take a lot of time and energy and as you say it feels sometimes like "this part time job or little project on the side" 😂 so true! thank you for putting out all this information through your podcast, and allowing us to feel less alone in this ❤

I asked my on oncologist if there are any recommendations he has on food or exercise and his response was, “Just do what you’ve been told for years, eat right and exercise.” Had to do my own research on specifics but it still gets confusing.

This is truly one of the best pod casts I've seen ! I had 10 mm lump removed Feb 24 , 1 lymph node romoved ! Been in a dilemma ever since re; meds I tried letrzole and Exemestane both gave me a rash I also had 1 injection of Zoledronic acid ! My gut feeling was I didn't want any of this because the side effects terrified me more than the cancer coming back but i felt a bit trapped in the system not knowing anything about cancer ! I stopped both pills as soon as I got a rash confirming my fears ! I've been given Tomoxifen which I didn't start ! I've been doing my own research reading books watching pod casts to make my decision before my next meeting with oncologist in Nov. I only found out recently about predict by reading comments on podcasts then came across this one yesterday! I put my stats in and for me taking the drugs with 10 yrs of pos side effects or worrying about side effects is a no brainer! A couple of percent better off with 10 yrs of drugs ! I'm so thankful for this talk and this oncologist who truly understands the whole picture ! It's helped me to feel confident with my decision! I wish they told me about this before I was given the drugs , as said here it's my life but feels like others making the decision for you by not giving you all the details and options! Thanks again keep up the great work. 🙏

Can you please explain about high-risk endometrial cancer (min 22:42) - how do I know if I have this type? Thank you so much

My ❤️ goes out to these three wonderful, courageous women! Thank you for sharing your experiences 💕♀️

So interesting to hear that Spanish women can get HRT over the counter. Here in Germany it is a long tedious process, but at least E2-gel and progesterone are paid for by insurance... 🤷🏻‍♀️

ruclips.net/user/clipUgkxb-5PEXTpejVT7XiYajNhBsEOUWIOv0S_?si=ZtiQk_6PvkMYR81J

Your episodes are so incredibly helpful. Ty!!

Thank you sooo much for this extremely important topic!! Gyn cancers barely get any discussion or studies on hormones after cancer treatment.

Such a shame to hear how little informed many doctors are in 2024: they do not even know how little women profit in ABSOLUTE risk when taking AI ... We benefit so much from HRT with regards to sleep, brain fog, anxiety ... we can often live such a much more healthy way with HRT (exercise more, better diet etc. etc ) so why are we trated like children and denied making a well-informed decision for ourselves where we weigh risks and benefits???? Men would never be treated like this!!! Listen to the podcasts of US urologist Dr. Kelly Casperson where she compares how men are treated when they have to deal with a prostate diagnosis. It is a discrace and misogyny that we are not allowed to make an informed decision for ourselves!!!! ♀️♀️♀️

One Q : what about plastics BPA free ?

Brilliant conversation !! I already knew on plastics ( so I NEED to get rid of all my Tupperware too 🙃 ) …. One step at a time. Thank you 🙏

Thank you for this interview and information. I am a healthy 64 yo. A Very fit woman. I am 1.5 yrs from atypical lobular hyperplasia and 2mm DCIS found during a reduction and early stage 1 grade 1; a 4mm ILC BC, found with a dbl mastectomy, node neg. I was on topical estriol/prog creams, stopped it and my life was not worth living. I had been on HRT since I was 46 after a partial hysterectomy. I am presently seeing a HRT specialist in FL and on a low dose estradiol patch and 100mg of micronized progesterone, just started a few days ago. I am doing so much better!! He will gradually increase my patch. My estradiol level was so low as well as progesterone. My Med Onc is going to have a Fit! He only cares about the poss BC returning, not about the here and now, or quality of life.I do a Mediterranean diet. Vit D3, and other supplements.

It's more about triglycerides than ldl.

I had a heart attack prior to finding my breast cancer in the same year 2023. I radically changed my diet and bought in exercise. I was put on statins after my heart attack and have not had any muscle pain with it. I was additionally given another cholesterol medication, as my cardiologist said you can never have too low cholesterol, additionally I keep my saturated fats and salt in check. I wouldn't say it's an easy lifestyle and I do find some days I'm looking at a chocolate bar and then saying no I can't. It breaks my heart to feel this way, but treats have to be occasional. I am now on Tamoxifen and will eventually be put on to aromatase inhibitors so I do continue to have concerns for my future health. I think this podcast has been full of valuable information for everyone. Recent blood tests have given me a good reading with regard to cholesterol, so I am continuing on my lifestyle change and trying to meet the world of medicine halfway. I'm 54 years old and live in the uk. Thankyou

Literally burst into tears when she said she slept through the night after applying a Sandrina patch

How brilliant that this lady was able to access the kind of care facilities and clinicians she needed. I've been on Letrozole for 17 months. I feel a shadow of my former self, but I have 'the fear' of the mention of HRT after cancer as mine was also estrogen positive. No one can tell me the HRT I was on for 3 years did or didn't aid the cancer. I'm not brave enough to consider it again.

You have truly been a great resource for this specific subject of menopause and cancer, and I'm so glad I came across your channel. I officially went into menopause in January (a year since my last period). I was prescribed tamoxifen after my lumpectomy and radiation, which ended last Christmas. But knowing how potentially bad it could be, I kept putting off and finally started it in April. I only lasted 3 weeks. My occasional hot flashes revved up to several times a day, and also night. But the worst part was my sleep: whereas before, when I could sleep 7 to 8 hours straight, now I kept waking up every two hours, and finding it hard to go back to sleep in between. Sleep is extremely important to me because my mother and maternal grandmother both had Alzheimer's, and there seems to be a link between that, and not getting enough uninterrupted sleep. I've been off tamoxifen since the third week of April, but my sleep is still lacking (now it's 5-6 hours a night, and sometimes needing to get up to use the bathroom). I mostly blame this on menopause, but I'm desperate to get back to 7-8 hours. I really do want to get back on tamoxifen, and I know there are certain antidepressants and other types of pills that may aid in sleep, but I've read that lots of those types of drugs put people at a higher risk of dementia, and that terrifies me. Sorry to be so long-winded in my comment/question, but I basically would like to know if there are any medications for menopausal and tamoxifen/AI inhibitor-related sleeplessness that would not put people such as myself at risk for developing Alzheimer's. I really wish I could take HRT, but I just can't bring myself to take such a gamble. :(

This is excellent info and would deserve so many more views!!!! Thank you Dani, you are a lovely person and expert yourself!💕

I like how well-informed and clever you ask your questions, Dani! The HABITS STUDY (showing an increased risk of recurrence of BC) was flawed: They did not use a baseline mammography at the beginning so they could not detect existing cancers. Watch interviews with Dr Avrum Bluming who explains this in detail. HABITS is the one of 26 studies that showed an increased risk, 25 showed no increase.

I was diagnosed with stage 2 hormone receptor breast cancer in March, I have had a double mastectomy and immediate, nipple sparing reconstruction and lymph node clearance. I declined chemotherapy when I discovered it would only improve my outcome by 3%, I have avoided radiotherapy by having a double mastectomy and I tried Tamoxifen for a short while and due to a range of symptoms decided I was not prepared to squander 5 years in such misery, so I stopped. I prefer quality over quantity...I work with elderly people and their lives are a miserable struggle for them. I talk to them a lot and have come to the conclusion that hormone deprivation has caused 99% of their mental, physical and emotional problems. I would prefer 5 good years to 20 miserable ones. I am going back on HRT and practising metabolic therapy for cancer...I know this carries a risk...but a life without hormones and all of the ill health that entails is not worth it for me...I am comfortable with my decision

This is a great video! Thank you so much for this series. Such an important conversation!

Raw, honest and tremendously helpful conversation. Thank you for it! 🙏

Links to empower BC survivors to debunk the demonization of HRT(not mentioned in this podcast): ruclips.net/video/2QpaYmTWSvs/видео.htmlsi=i2teC68cQt0O5ToQ ruclips.net/video/ZBmUdZOg4Rw/видео.htmlsi=Qdk-FqsUbHkr1izH ruclips.net/video/sOj7w0gmsLY/видео.htmlsi=NzmR2TyCvlwu4T68 ruclips.net/video/xiyl--uZklQ/видео.htmlsi=-v8020CgV6jF3z0E ruclips.net/video/KXZSOf4_zmE/видео.htmlsi=Nwv7PRwU5zniPm3e ruclips.net/video/omodZ5HIDWE/видео.htmlsi=RTe3rScEk0Q5ueAD ruclips.net/video/a2UgUe3zFnk/видео.htmlsi=3pU4qdp2qmA7eucd ruclips.net/video/wI9G2jSVvoM/видео.htmlsi=j0qKEw7yRUYJiCQ4 ruclips.net/video/xPEcNridthc/видео.htmlsi=Hh-TSECso1M1Sm-y ruclips.net/video/zZ10ihN-4vg/видео.htmlsi=c54xRAXfsRURX5OI ruclips.net/video/rVzEhxIv7R8/видео.htmlsi=P368ZWpnNhIMX1YH

Yes, Dani, so many "nuggets of wisdom": here in this conversation with this wonderful doctor 💕 many women /BC survivors are still not informed that TAMOXIFEN only helps 3% of the women who take it perhaps the pro-inflammatory estrone is blocked by AIs rather than the anti-inflammatory estrodial or even the helpful testosterone (see the studies by Rebecca Glaser on T...) Local. estrogem (i.e. ESTRIOL) DHEA / INTRAROSA (presterone) should be given to BC survivors against urinary /bladder problems 💕

Thank you Dani for bringing on the wonderful Dr Newson -a true hormone specialist and women's rights advocate. Very educational!!! 💪

Can I breast cancer come back after both breasts been removed?

I would love to know what kind of diet you were on while on the HRT

Thankyou for this podcast series, it is very informative, but by having guest specialists enables us to get a feel for these people, their views and perspectives.

I think the socalled conclusions drawn y the WHI trial were absolutely criminal / malpractice.Announcing to the world that estrogen causes breast cancer when the estrogen arm of the study showed a decreased risk of breast cancer. Also , they used relative risk statistics not absolute risk which scared the heck out of everyone. Just awful. And releasing their so called results when the actual data had not been published. Unprofessional at best

The carnivore diet commentary in this interview is complete mythology. 🤬 One has only to do 100% carnivore for a few months to understand the amazing anti-inflammatory benefits, improvements to nutrition due to improved bioavailability(*), improved neuropathy (**), LOWER CVD risk (***), low fiber(****), and improved immune system. *Mammalian forms of Vit A improve liver fx. Providing complete B vitamins, that are not found in vegs, with improved Cu and Zn intake through a combo of fish and red meats improves over all health and epigenetic signaling, etc. The improvements to liver function that quickly clear acne are likely due to mechanisms involving retinols (mammalian Vit A) and corresponding improvements to hormonal balance once the liver's function improves. **Improvements to neuropathy is due to a combination of higher thiamine intake and better regulation of histamines. Thiamine (aka B1) has been shown to aid myelin which is also why it helps brains with Parkinsons, Alzheimers, and Autism. This is also why high dose benfotiamine, a synthetic fat soluble form of thiamine, has been shown to aid peripheral neuropathy. Histamines and MCAS is something every cancer pt should understand as it may be a contributing factor to their cancer, progression, and neuropathy prior to and during treatment. (www.ncbi.nlm.nih.gov/pmc/articles/PMC7012972/) Issues with histamine metabolism can also contribute to harming digestion, therefore lowering nutritional status. This is ESPECIALLY a concern with plant based nutrition. This is one of the reasons many people feel better, quickly on a carnivore diet as histamines cause all sorts of weird symptoms. (www.ncbi.nlm.nih.gov/pmc/articles/PMC8069563/). ***Take a look at all the CAC scans that carnivores have been posting for the last 10 years. You will quickly understand that plaques form due to inflammatory response and are NOT due to high fat diets, especially diets high in Omega 3/DHA/EPA. This is a great explanation: ruclips.net/video/GBupwt73ITU/видео.html and Dr Ewes would be a great interview to dispell the mTor and other myths relating to Carnivore diets and cancer risk. He is VERY versed in the science of Carnivore from a surgeon's perspective. ****Fiber is not necessary for human health. Period. We have only to look at the health of indigenous populations who consume no plants, and their lack of heart disease, to understand how fiber is not a preferential dietary substance. Historically we only consumed fiber when necessary, often to fill one's belly during lean times, vs for nutritional or functional reasons. Humans are opportunistic scavengers preferring ruminant and DHA filled meats. We are not cows and many of us are, in fact, harmed by plant heavy diets. The interesting part of this fiber story is that the "need" for fiber was MANUFACTURED by Kellogg as part of the 7th Day Adventists religious doctrine. Yep, and just like the DeBeers' diamond engagement rings, fiber is just a marketing ploy. The only difference was that the diamond rings promised sex, vs fiber's addition was meant to decrease sexual activity. (www.theatlantic.com/international/archive/2015/02/how-an-ad-campaign-invented-the-diamond-engagement-ring/385376/ www.smithsonianmag.com/history/secret-ingredient-kelloggs-corn-flakes-seventh-day-adventism-180964247/)

So useful. Ty!!

This series is already fabulous and I'm only two in. Thank you so much Dani, for creating this for us. You are making groundbreaking progress, helping our community so very much, and doing it all with such kindness and empathy.

I had to come off HRT because of a BC diagnosis. The only reason I ever tried it was because of my inability to sleep postmenopause. Now because of the aromatase inhibitor I'm on, I still don't sleep. I would never consider HRT again.

Definitely relate, I’m 57, my main concern is the long term tablets and possible side affects

Where can I find these guidelines or recommendations?

Excellent discussion and really clearly explained!

That’s because their oncologists and radiologists and immunologists say changing your diet is not necessary. They scare their patients. Why?💵💵💵💵💵💵💵💵

What a fantastic podcast, thankyou

There are plenty of studies that prove safety of topical estrogen creams on the face and in vagina. Your speaker is not up to date on current studies. Unsubscribing.

Dear Dani I am so happy to have discovered your podcast this week. I have been on tamoxifen for two years and have been switched to Letrozole as of a few days ago. I am terrified of the side effects. Your calm demeanor paired with your knowledgeable guests helps me calm my nerves. I have a hard time accepting that I need to take meds that harm the body in so many ways in order to prevent a recurrence. I’m only 51 and would hate to start feeling aches and pains that a much older woman might have. Frightening to say the least.

Thank you for this video. I'm one year out from my ER/PR+ stage 1 breast cancer diagnosis. I've had a lumpectomy, radiation and was prescribed tamoxifen because I'm perimenopausal (to be followed by AI's for a total of 5 years of hormonal therapy). I tried tamoxifen and only lasted 3 weeks because of the severe hot flashes and -- more concerning -- insomnia. I couldn't sleep for more than 2 hours at a time. My mom, one of her siblings, and her mother all had Alzheimer's, so I have always tried to make sleep a priority, among other things, and tamoxifen was depriving e of that. I realize it takes time for side effects to subside, but I just couldn't handle the sleeplessness, and I've read so many accounts of how that side effect never goes away for some people. My main concerns with antidepressants are the loss of libido, but more importantly, the increased risk of dementia that I've read that they can cause. If it weren't for my maternal history, I'd be more open to take antidepressants for sleep, but I think I'm more afraid of developing early onset Alzheimer's than a recurrence of cancer ... and I can't believe I'm saying that, but it's true. :(

Oncologists are brainwashed by the pharmaceutical companies. They are committing greatvharm

Functional doctors who are not brainwashed tell women not to take the harmful pills