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what is system speak when the bear is there? why the mind control 56 charm spell? why are they so pretty.... uh, nothing is real. and i control the world.

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Than k you all for sharing your experiences and perspectives.

This is a test. To check my phone account

Wow.

I am a partner of a an undiagnosed, unaware system. These videos have been the only thing that has connected all the dots for me and made me a much more supportive partner. I have so many questions, but things are becoming more clear with every day I gather more information. I cannot thank you enough, and I cannot describe how grateful I am to have discovered you folks. Your stories, your courage, your vulnerability is incredibly inspiring and massively helpful - life-changing. How can I bring these videos, and the DID experience in general, into her awareness?

This is so very helpful. Thank you.

Program starts at 3:12

We have I had his amend a d d PTSD cptsd I believe I have d i d I'm also a thalidomide survivor my body is 55

We don't trust anybody

Thanks for sharing this.. I'm going through therapy now..

Others went on to say so many more relatable things too. Love this talk. Thank you ❤

The person speaking at around 13 minutes in about what healing means for them, and having to go back and keep re writing what they thought they'd known to be true. SO RELATABLE. That's very much the stage I'm in at the moment and have been for a good few years since beginning therapy. I'm only just breaking out of using OCD type rituals to try to do it, like in the last 6 months. And it's still a struggle because I'm learning I'm also audhd. But yes it's always so validating to hear others know what it is that you're experiencing. ❤

Incredibly helpful, thank you!

This was so good! Thank you for sharing!

Thank you all so much for sharing this. I feel incredibly seen ❤

This video is incredibly educational and important in understanding DID. Tons of gratitude to the presenters for your courage and vulnerability in sharing your stories and all the helpful information provided.

I encourage you to invite Jeni Haynes of Australia as a keynote speaker at the next conference. Jeni has up to 2500 alter personalities. Six of her alters were permitted to testify in a court case against her father for the abuse he inflicted against her. The Australian 60 Minutes profiled her on of their shows. You can find a segment of the episode on RUclips.

Thank you all! Your work is so appreciated. This is very educational and eye opening to the resources that are out there.

Regarding ‘coming out’, my friands and family were made aware that I live with DID after manifesting unexplainable symptoms for 15 months and several several stays in 2 hospitals for 7 months, along with my 2 suicide attempts. I now tell people when I find myself out in an altered state, as I am co-conscious with my alters. I can observe what is happening, who I am with and where I am. However I do not ‘have control’ and din’t recall what I have said. There are times when I have had to seek assistance to get home. I now tell people I spend time with, so they are prepared if I switch. Much to my dismay some of my alters share with strangers because they are proud to be out and to show how strong our system us. Thus often makes the stranger uncomfortable. I would say one of my challenges now is a sort of ‘identity crisis’. I question, who ‘I am’ ? Am Ùi just another alter? I have an alter named ‘Mother’ who is maternal snd functional as a mother and who can help my younger parts. I gave birth naturally to my daughter and praised me for my strength. In recent years I have realized I dissociated during labor, that is how I endured the pain. I was in a dissociative state for nearly 2 years once my daughter was born. My family saw the personality changes and were confused. My mother thought it was post-partum depression. I now winder when I am with my daughter if it is me, or my alter, Mother. This is the case for other alters as well.

In the province I live in here in Canada there are support groups for families who have family members with a mental illness in general. Because DID is less known and families supporting those with DID with their basic needs such as groceries, finances, house cleaning, as well as driving and accompanying them to medical appointments often feel hopeless, helpless and tired. More importantly survivors have often been abused by a person within the family in an authority position who has threatened them not to tell anyone. Living in fear for years before being diagnosed, parents and other family members have to accept that this has happened, which can bring up feelings of guilt that they were unaware of the situation and did nit protect their child. Persons with DID once diagnosed and learning it stems from repeated abuse pick up in this and then have to deal with their own feelings of disappointment and anger that they were not protected. That they were not important enough for the parent to be aware of what was happening and the changes in personality that occur. It can also create feelings of doubt that maybe the parent did in fact know and did not protect them. The trauma is complex fir the survivor and create a complex reaction once the family learns of the abuse. Thus shame and guilt, along with being tired from caring for the survivor are factors impacting families and discouraging them to seek the support they need. In my case my mother became defensive and can not understand why I can’t put all of this behind me. And although I have made many efforts to refer my parents to books or educational RUclips videos to learn about DID and my struggles they have refused to fo so. Only upsetting me more and reinforcing my belief that I am not important enough.

As part of the training I think that therapists need to take into consideration a holistic approach to a patient’s healing journey, in addition to psychotherapy,. Patients should be encouraged to strengthen and/or improve the four pillars of sleep, exercise, diet and social interaction. In addition to incorporating mindfulness into their lives through meditation, yoga or tai chi. There is only so much a patient can learn or accomplish in a one hour therapy session. They must do their own work the other 167 hours of the week.

There is so much research going on in other areas of mental illnesses such as anxiety, depression, border line personality and bi-polar that the ISSTD can piggy back on and modify for DID, rather than starting at zero.

I have found in being open and letting friends and family know that I have DID they are more aware and sensitive to when I switch in person, on the phone or in messages. Some will ask ‘who am i speaking to?,’ which brings awareness to me that I have switched. Many times I can respond, however there are still times when I am unaware of an alter. This allows me the opportunity to reflect and learn more about this aspect of my personality/system.

Reducing time for diagnosis: awareness, education and mandatory training fir existing psychiatrists, psychologists, social workers, emergency doctors, and students in these fields.

I prefer using the term person with DID which provides an opportunity to raise awareness and educate people, rather than survivor. People are now more familiar with terms such as person with autism or on the spectrum, so we should use similar terminology. People tend to get uncomfortable with the term survivor of abuse. It can make them feel helpless and have pity. They too may have experienced trauma and it may trigger them. I am comfortable telling them that DID is a sophisticated coping mechanism for people who have experienced childhood trauma and moving the conversation in to the present and how therapy has helped me live with it.

There is a real need to bring awareness to DID and other mental illnesses to all people working in the public service and directly with children, adolescents, adults and seniors. Thus includes teachers, social workers, police, firemen, EMS, doctors, nurses, hospital staff, psychologists, etc. With awareness and training they could identify symptoms to discuss with family members. And upon responding to emergencies or a crisis call, they could assist the person and attempt to support them, to deescalate a situation and take them to a hospital to seek treatment. Organizations working in the mental health and DID in particular must advocate for change in Hollywood and denounce film producers, directors, actors and studios who perpetuate the myth that people with DID are dangerous and become murderers and serial killers. Movies and series like Glass, Split, Ratched and most recently Deadly Illusions on Netflix must be banned.

Not only do we need psychiatrists, psychologists and other therapists who are DID aware and DID competent, we need those currently in the system to be ‘DID Believers’. I was an inpatient in 2 hospitals for 3 and 4 month stays, where during each stay I was misdiagnosed and medicated. My family and daughter were told I was seeking attention as a result of my husband’s sudden death from undiagnosed stage 4 glioblastoma. I fragmented the moment I heard the diagnosis and understood the gravity of it and that it was terminal. My family was told I was a leech and holding them and the hospital staff hostage. Both my family and staff were told to leave me on the floor when I fell and could not get up. This would last sometimes for up to 3 hours. It was only 4 years later, after being diagnosed and spending 3 years in weekly therapy that I understood that I was falling when I switched to my 8 month old baby alter. During my third 7 month hospital stay once I had been diagnosed by a DID expert, I eventually picked up on the fact sone of the other psychiatrists did not believe DID is a real mental illness. Of the staff only one nurse with 25 years experience had ever cared for a person with DID before. I wad his third patient with DID. The staff were frightened if me when I relived flashbacks or switched. And I sensed some of the mire compassionate nurses felt helpless. There is a need to train police, EMS and first responders, as well as emergency doctors, nurses and staff as they are the front line staff for a person in crisis. I have an an emergency psychiatrists call ne hysterical, refused to talk to me and wanted to discharge me without any treatment. I have had an emergency doctor jump back snd tell me to back off when I reached out to talk to her. I have been admitted to hospital i a different color hospital gown to identify me as a ‘mental patient’’ which frightened the staff who were afraid to approach me to meet my basic needs.

Having been diagnosed with DID in 2016 I can now recognize some well known people who may have not been diagnosed for DID. It saddens me to think of the children and people who may have or may develop DID when you think of the world we live in. First of all I believe many people in prisons, juvenile delinquent centres or perhaps even rehab, have most likely experienced childhood trauma leading to the lives they have led or are now leading. Rather than getting support and treatment they are living in an environment which can trigger them and create trauma on trauma. The pandemic has been traumatic for people around the world, with the loss of loved ones, family or friends, homes and jobs. Living with fear in such uncertain times is already creating an increased need for psychotherapists. The rate of domestic violence and child abuse, as we know, has significantly increased. Add to that victims of war, both in the military and civilians. Refugees from war torn countries, economic struggles or due to race, religion and any other discrimination of a majority. Protestors in countries where governments control their citizens freedoms, such as Tibet, Hong Kong and Myanmar. We will experience more refugees as a result of the Climate Crisis. Victims of race or abductions in countries such as Nigeria and the Congo DR. Everyone will experience some form of trauma or loss in their lives. It just feels like there are more people affected than people are aware of and only the smallest minority will be diagnosed and receive some form of support and therapy. The need for structural and systematic changes is immense. As is the need for psychotherapists trained in trauma who are able to rapidly diagnose and treat those in need. Thank goodness for organizations like yours. There is a need to branch out.

Emily thank you for moderating this webinar. I am so grateful I came across it ‘by accident’.

Thank you Jamie for sharing your journey and the work you do with An Infinite Mind. I am looking forward to learning more about your annual conference. I would love the opportunity to meet other people with DID and to learn more about the resources available.

Anne, thank you for creating Beauty after Bruises and advocating and raiding funds for people with DID who need financial support for therapy and treatment.

Lexi, thank you for your courage to share your perspective and experience as a person with DUD.

Cathy, what you have read resonates so strongly with me. Thank you.

Love this! Thanks to all who put this event together.

Thank you all so much for sharing this video, it’s wonderful to see the positive changes happening regarding educating clinicians and the public alike in what can be a very isolating and stigmatised disorder to live with.