- Видео 23
- Просмотров 4 112
Our Voices - Our Life
Германия
Добавлен 20 сен 2018
Our Voices - Our Life | Experiencing Myotonic Dystrophy around the World
This channel was created in addition to our worldwide project "DM VOICES".
The main project is comprised of two parts, the Online Project and the Book Project. For both projects, DM-affected individuals and their family members provide their personal DM-experience and stories using an electronic format.
If you are affected by yourself, please participate and share your story.
Please visit our website for more information: www.dm-voices.com/
This channel was created in addition to our worldwide project "DM VOICES".
The main project is comprised of two parts, the Online Project and the Book Project. For both projects, DM-affected individuals and their family members provide their personal DM-experience and stories using an electronic format.
If you are affected by yourself, please participate and share your story.
Please visit our website for more information: www.dm-voices.com/
Olivier's DM Message for "Our Voices - Our Life"
"Our Voices - Our Life" STORIES and INTERVIEWS for our community.
Here is Olivier's DM Message.
*including subtitles
Here is Olivier's DM Message.
*including subtitles
Просмотров: 41
Видео
Christine und Jean-Claude's DM Message for "Our Voices - Our Life"
Просмотров 2015 лет назад
"Our Voices - Our Life" STORIES and INTERVIEWS for our community. Here is Christine und Jean-Claude's DM Message. *including subtitles
Florence's DM Message for "Our Voices - Our Life"
Просмотров 2135 лет назад
"Our Voices - Our Life" STORIES and INTERVIEWS for our community. Here is Florence's DM Message. (incl. subtitles)
Moritz's DM Message for "Our Voices - Our Life"
Просмотров 2005 лет назад
"Our Voices - Our Life" STORIES and INTERVIEWS for our community. Here is Moritz's DM Message. *including subtitles
Leonie's DM Message for "Our Voices - Our Life"
Просмотров 3585 лет назад
"Our Voices - Our Life" STORIES and INTERVIEWS for our community. Here is Leonie's DM Message. *including subtitles
Karin & Rolf's DM Message for "Our Voices - Our Life"
Просмотров 1875 лет назад
"Our Voices - Our Life" STORIES and INTERVIEWS for our community. Here is Karin & Rolf's DM Message. *including subtitles
Christian's DM Message for "Our Voices - Our Life"
Просмотров 1405 лет назад
"Our Voices - Our Life" STORIES and INTERVIEWS for our community. Here is Christian's DM Message. *including subtitles
Michele and Beate's DM Message for "Our Voices - Our Life"
Просмотров 1905 лет назад
"Our Voices - Our Life" STORIES and INTERVIEWS for our community. Here is Michele and Beate's DM Message. *including subtitles
Rita's DM Message for "Our Voices - Our Life"
Просмотров 1635 лет назад
"Our Voices - Our Life" STORIES and INTERVIEWS for our community. Here is Rita's DM Message. *including subtitles
Viola, Markus & Larissa Julia's DM Message for "Our Voices - Our Life"
Просмотров 2695 лет назад
"Our Voices - Our Life" STORIES and INTERVIEWS for our community. Here is Viola, Markus & Larissa Julia's DM Message. *including subtitles
Gudrun's DM Message for "Our Voices - Our Life"
Просмотров 3095 лет назад
"Our Voices - Our Life" STORIES and INTERVIEWS for our community. Here is Gudrun's DM Message. *including subtitles
Katrin & Bernd's DM Message for "Our Voices - Our Life"
Просмотров 2465 лет назад
"Our Voices - Our Life" STORIES and INTERVIEWS for our community. Here is Katrin & Bernd's DM Message. *including subtitles
Brigitte's DM Message for "Our Voices - Our Life"
Просмотров 3025 лет назад
"Our Voices - Our Life" STORIES and INTERVIEWS for our community. Here is Brigitte's DM Message. *including subtitles
Andreas' DM Message for "Our Voices - Our Life"
Просмотров 2156 лет назад
"Our Voices - Our Life" STORIES and INTERVIEWS for our community. Here is Andreas' DM Message. *including subtitles
Chantal's DM Message for "Our Voices - Our Life"
Просмотров 1436 лет назад
Chantal's DM Message for "Our Voices - Our Life"
Pascal's DM Message for "Our Voices - Our Life"
Просмотров 2276 лет назад
Pascal's DM Message for "Our Voices - Our Life"
Herbert and Elvira's DM Message for "Our Voices - Our Life"
Просмотров 976 лет назад
Herbert and Elvira's DM Message for "Our Voices - Our Life"
Elisabeth's DM Message for "Our Voices - Our Life"
Просмотров 1756 лет назад
Elisabeth's DM Message for "Our Voices - Our Life"
Mike's DM Message for "Our Voices - Our Life"
Просмотров 556 лет назад
Mike's DM Message for "Our Voices - Our Life"
Lauren's DM Message for "Our Voices - Our Life"
Просмотров 696 лет назад
Lauren's DM Message for "Our Voices - Our Life"
Dodo's DM Message for "Our Voices - Our Life"
Просмотров 1106 лет назад
Dodo's DM Message for "Our Voices - Our Life"
Eileen's DM Message for "Our Voices - Our Life"
Просмотров 456 лет назад
Eileen's DM Message for "Our Voices - Our Life"
Our voices - our life | myotonic dystrophy
Просмотров 1576 лет назад
Our voices - our life | myotonic dystrophy
This is great and everything.. but I barely heard the person affected utter a word, his wife spoke the entire time..
Salut j'ai le myopathie de ceinture type 2c est ce qu'il y a des nouvelles je suis tunisienne .
Wonderful interview I enjoy learning perspectives from people who don't have the disease but live with one of uswho does.
I too was diagnosed 4 months ago in October 2018 after 12 months of seeing my neurologist and 10 years after onset of symptoms at age 28. I’m in Australia, hello 👋
Liebe Leonie, ich finde, du hast schon innerhalb so kurzer Zeit nach der Diagnosestellung einen bemerkenswerten Umgang mit deiner Situation gefunden. Du wirst deinen Weg gehen und auch schwierige Zeiten zu meistern wissen, davon bin ich überzeugt. Mach weiter so! Alles Liebe und Gute Steffi
Vielen Dank Euch beiden, dass Ihr so offen über Eure Geschichte redet! Bin froh und dankbar Euch in Hohenroda begegnet zu sein.
Ihr macht das großartig, ihr drei! :)
Wow Katrin, I loved watching your story. I too have just been diagnosed DM2 and wonder what my future holds. I’m worried that since my symptoms began quite early (27/28 years old) that I may decline quite a lot in time. Thanks for sharing your story.