- Видео 18
- Просмотров 824
SPS Unscripted Podcast (Stiff Person Syndrome)
Великобритания
Добавлен 28 мар 2023
Join your hosts L&M, in our informative, open informal podcast as we discuss a disease so deeply immersed in a medical model and it’s language, often resulting in dehumanisation and loss of self for those with SPS. This podcast follows the journey of two friends, both one in a million, learning to heal, breathe and seek daily gratitude.
A gentle reminder: We are not medical professionals, this is a reflective journey of our lives with SPS whilst remaining under the care of medical teams whose advice we seek and follow. We strongly recommend you consultant your health professional with regards to any questions or concerns.
Some sensitive content, may not be appropriate for children.
All content photographs and graphics are subject to copyright
spotify.link/gQwFaQk0xyb
@spspunscriptedpodcast1
groups/553892459953978/?ref=share_group_link
Available on major podcast platforms
A gentle reminder: We are not medical professionals, this is a reflective journey of our lives with SPS whilst remaining under the care of medical teams whose advice we seek and follow. We strongly recommend you consultant your health professional with regards to any questions or concerns.
Some sensitive content, may not be appropriate for children.
All content photographs and graphics are subject to copyright
spotify.link/gQwFaQk0xyb
@spspunscriptedpodcast1
groups/553892459953978/?ref=share_group_link
Available on major podcast platforms
Menopause and Stiff Person Syndrome (SPS) | Early Menopause | Rare Disease Podcast|
L&M discuss menopause in particular early menopause with M experiencing menopause at 38 years old and L 41 years old.
#stiffpersonsyndrome
#internationalwomensday
#menopause
#earlymenopause
#davinamcallmenopause
#rarediseasepodcast
00:00 Beginning
1:50 M, early menopause
4:56 M, early menopause and SPS
5:56 M, menopause and migraines
6:15 Flushings
8:19 L insomnia and menopause
13:40 HRT
19:18 menorrhagia
23:23 Mood/emotional response
26:54 tremors/symptomatic
35:16 Historical approach to menopausal women
37:00 intimacy
37:05 menopausal symptoms
#stiffpersonsyndrome
#internationalwomensday
#menopause
#earlymenopause
#davinamcallmenopause
#rarediseasepodcast
00:00 Beginning
1:50 M, early menopause
4:56 M, early menopause and SPS
5:56 M, menopause and migraines
6:15 Flushings
8:19 L insomnia and menopause
13:40 HRT
19:18 menorrhagia
23:23 Mood/emotional response
26:54 tremors/symptomatic
35:16 Historical approach to menopausal women
37:00 intimacy
37:05 menopausal symptoms
Просмотров: 14
Видео
Episode 8 : Chorus of Voices
Просмотров 846 месяцев назад
Personal Stories| Chorus of Voices of those living with Stiff Person Syndrome| SPS| Rare Disease Day 2024 Release. 00:00 Rocco 6:03 Jennifer 21:51 Shannon 26:15 David 32:08 M 35:26 Tania 40:25 Léa 41:23 Lindsay 45:56 Madison #stiffpersonsyndrome #rarediseaseday #rarediseasepodcast #celinedion #personalstories
Don’t Forget to Press Pause… Travelling and Out & About
Просмотров 31Год назад
‘The one where Lindsay was developing a nasty strain of covid and M had to monopolise the airwaves’… L&M discuss the reality and practicalities of holidays and day trips with SPS. Discussions of personal experiences, trying to plan with the unpredictable nature and chronic fatigue of SPS whilst offering some tips as summer is now upon us. .
Episode:7 The Ever-Changing Day, Living with SPS
Просмотров 43Год назад
A very raw and open discussion between your hosts L&M. Stiff Person Syndrome being a spectrum disease has many faces. It can be difficult to navigate when it impacts upon daily life where you are unable to plan due to the unpredictability of the disease. As always L&M touch upon the seriousness of the topic but never fail to find joy and share laughter throughout. Thank you to all our listeners...
Episode 6: So My Friend….. How are you, Really?
Просмотров 16Год назад
In this episode L&M discuss the waxing and waning of living with SPS, but more so your hosts are raw and open as they share the trying few weeks of health challenges and chronic fatigue which left both feeling rather shaken; physically, emotionally and psychologically. By diving a little more in-depth with a longer podcast (don’t forget you can stop and restart as you feel able) L&M touch upon ...
Episode 5: Still Waters
Просмотров 13Год назад
This episode touches upon how it can feel when we are told “You don’t look sick”. It can be difficult to move forward, heal, and detach with love . We may often find ourselves stuck, ruminating and reliving the hurt. There is hope and strength within you to heal and learn to detach.
Episode 4: Hobbies, Interests & Finding Another Way
Просмотров 8Год назад
Join your hosts L&M as they discuss the importance of engaging in activities and hobbies to enable a fulfilling life particularly when facing health challenges. As always these friends combine laughter, honesty and hope. Stiff Person Syndrome
Personal Journey: Lindsay E03
Просмотров 18Год назад
In this episode Lindsay shares her personal experience with chronic fatigue. Stiff Person Syndrome
Episode 3: Sleep, Rest & Relaxation
Просмотров 8Год назад
Join your hosts L&M as they share their own daily self-care routines to help with symptom management, preventing boom and bust cycles of fatigue and the importance of their sleep routines. Stiff Person Syndrome
Episode 2: The Power of a Happy Heart
Просмотров 16Год назад
The Power of a Happy Heart. Join your hosts L & M as they discuss and suggest self-care routines which have helped them on their healing journey whilst living with SPS. Today’s episode covers self-care and well being practices such as Forest Bathing, Journaling, Smile Therapy, EFT and most importantly daily gratitude practices.