Видео

A recording of Jett Foundation's Community webinar Series from October 3, 2024, featuring a presentation from the team at Dyne Therapeutics on new clinical data from their DELIVER Trial of DYNE-251 in DMD demonstrating the impact on key disease biomarkers and improvement in multiple functional endpoints. To learn more, please visit jettfoundation.org.

A recording of Jett Foundation's 2024 Family Workshop Series in Portland, Maine on September 28. Family Workshops are our national educational program that brings together clinicians, researchers, and families affected by Duchenne to learn about care, crucial information, and resources in many cities each year. 00:00 - Jett Foundation Overview & Introductions 23:45 - Genetic Therapies in Duchen...

A recording of Jett Foundation's Community Webinar Series featuring a presentation and discussion from Jonathon Truwit and DJ Kimble on common myths around tracheostomies. To learn more, please visit jettfoundation.org.

A recording of keynote speaker Samuel Safford at Jett Foundation's 2024 World Duchenne Awareness Day event in Quincy, Massachusetts.

A recording of Jett Foundation's World Duchenne Awareness Day evening panel discussion featuring a diverse group of experts with both professional and personal experiences relating to advocacy, disability rights, and more. Learn more about Jett Foundation and our Awareness Day events at jettfoundation.org.

Jett Foundation is hosting a World Duchenne Awareness Day luncheon in Quincy, MA today, September 7, as well as a virtual panel discussion in the evening! Visit our website at jettfoundation.org/wdad to learn more and register for this evening's panel: Raise Your Voice for Duchenne.

A recording of Jett Foundation's Community Webinar Series featuring a presentation from Rikki Hooper on palliative care for Duchenne muscular dystrophy in South Eastern United States. To learn more, please visit jettfoundation.org.

A recording of Jett Foundation's Community Webinar Series featuring a presentation from Dr. Aravindhan Veerapandiyan on weekend steroid dosing for Duchenne muscular dystrophy. To learn more, please visit jettfoundation.org.

A recording of Jett Foundation's Community Webinar Series featuring a presentation from Dr. Jonathon Soslow on cardiac imaging, treatment, and therapy for individuals living with DMD, BMD, or are carriers. To learn more, please visit jettfoundation.org.

A recording of Jett Foundation's Community Webinar Series featuring a presentation and discussion from ITF Therapeutics on DUVYZAT™ (givinostat) for Duchenne muscular dystrophy. To learn more, please visit jettfoundation.org.

A recording of Jett Foundation's Community Webinar Series featuring a presentation from Dr. Ashley Nichols on Palliative Care, a medical care focused on relief from pain and symptoms of illnesses and diseases. To learn more, please visit jettfoundation.org.

A recording of Jett Foundation's 2024 Family Workshop Series in Charlotte, North Carolina. Jett's Family Workshops are our national education program that brings together clinicians, researchers, and families affected by Duchenne to learn about care, crucial information, and resources in many cities each year. www.jettfoundation.org

A recording of Jett Foundation's Community Webinar Series on May 30, 2024, where we heard from Ronald McDonald House Charities of Greater Charlotte on their programs, community support, mission, and more. To learn more about Jett Foundation, please visit jettfoundation.org.

A recording of Jett Foundation's 2024 Family Workshop in New Orleans, Louisiana. Family Workshops are our national educational program that brings together clinicians, researchers, and families affected by Duchenne to learn about care, crucial information, and resources in many cities each year. To learn more, please visit jettfoundation.org.

Packing and Preparing for Camp 2024

Community Webinar: FDA Approved Agamree and Catalyst Pathways

Community Webinar: Management and Access to Care for Female Carriers of Duchenne

FY23 Impact Report Message from our Executive Director

Community Webinar: PJ's Protocol Panel

Jett Foundation's 2024 Rare Disease Day Event

Community Webinar: Rhabdomyolysis in Duchenne

Community Webinar: PTC Therapeutics' 2024 EMFLAZA® Landscape

Community Webinar: Dyne Therapeutics' FORCE Duchenne Program

Community Webinar: Social Security and Supplemental Security Disability Benefits

Eric Snyder Receives Chick-fil-A Community Hero Award

Author Talk: Pigasus the Pirate and the Pirate and the Isle of Flying Pigs

Family Workshop: Columbia, MO

Jett Foundation's Camp Promise Mission Video 2023

Community Webinar: School Accessibility and Participation in Duchenne Muscular Dystrophy