- Видео 19
- Просмотров 2 774
Powerful Patient
США
Добавлен 1 дек 2013
Breathing Problems? Consider Subglottic Stenosis (SGS)
Catherine Anderson was diagnosed with idiopathic subglottic stenosis. She has not only done research for her own case, she created a support group on Facebook for others with SGS of any origin: injury during surgery, injury during intubation for COVID or other emergency conditions, or "idiopathic" as in her case -- cause unknown. A professional researcher, she has applied her research skills to learning about the condition and pooling the experiences of the patients who have found their way to the support group, thus helping to educate both patients and physicians about this condition. She has created a strong partnership among the patients and physicians.
She has created a "Rough Guide to...
She has created a "Rough Guide to...
Просмотров: 104
Видео
Understanding and Managing Post Polio Syndrome
Просмотров 1,5 тыс.2 года назад
Ina Pinkney, the Breakfast Queen of Chicago, joins Joyce Graff to speak about Post Polio Syndrome, which can impact someone who survived polio. It tends to occur 20 or more years after the initial illness. In the Western world, polio survivors are mainly seniors today, but in the rest of the world, where polio is more recently eliminated, there are many survivors of polio who are younger and ar...
Then and Now - VHL Alliance in 1994 and 2021
Просмотров 213 года назад
Members of the 1994 Board of Directors of the VHL Alliance meet with Chandra Clark, current Executive Director, and Heidi Leone, Director of Advancement. We look back at what we were feeling when we began, the progress we have made, and our excitement as we enter a new era for VHL the first real medical treatment for VHL tumors, and the prospect of reducing or eliminating the need for surgeries...
Bruising? Bleeding? Lightheaded standing up? Heart Racing? Consider POTS
Просмотров 1593 года назад
Positional Orthostatic Tachycardia Syndrome (POTS) is one of the many multi-system conditions that are very tricky to diagnose. It is estimated that some 3 million people are affected, but there is no simple test to make a diagnosis. The average time to diagnosis is about four years, and about half of all diagnoses are ultimately made by a cardiologist. The symptoms of postural orthostatic tach...
International Kidney Cancer Coalition (IKCC.org)
Просмотров 613 года назад
Marta Szulc, newly appointed Executive Director of the International Kidney Cancer Coalition, joins Joyce, Robin, and Mike to talk about the many ways that IKCC supports patients, advocates and caregivers around the world who are dealing with kidney cancer. IKCC brings together leaders of patient support organizations worldwide to learn best practices for managing kidney cancer, and to support ...
Help for Teens with Migraines
Просмотров 1383 года назад
Dr. Jennifer McVige of the Dent Neurological Institute, a pediatric neurologist, speaks with Joyce Graff and Robin Martinez about headaches. We discuss what makes migraines different, and the many advances in diagnosis and treatment of headahces, including a new addition to the available options for treating migraines in adults and teens. 39 Million people suffer from headaches, and 28% of teen...
Why We Do the Things We Do
Просмотров 183 года назад
Bob Raleigh, Ph.D., author of THE SEARCH FOR WHY, speaks with Joyce Graff, Mike Lawing, and Robin Martinez on the Powerful Patient about his research into why people do what they do. Specifically we talk about sticking with a long-term project or therapy (like losing weight), and about masks and vaccines for Coronavirus protection. Raleigh provides his insights into how doctors and counselors c...
COVID-10 and Participatory Medicine
Просмотров 123 года назад
Advocates have been working since the 1990's to increase a patient's participation in his or her care, creating partnership with their physicians and helping physicians focus not only on the "best treatment," but also on the quality of the patient's life. Michael Millenson, author of Demanding Medical Excellence, speaks with Joyce Graff and Robin Martinez about his recent article "Does a Pandem...
Surviving the Pandemic
Просмотров 94 года назад
Mindy Jo Rigel, of WorryAboutYouToday.com. talks with Joyce and Robin about depression in isolation, and about her recent COVID-19 diagnosis. She thought she had a common cold and sinus infection until she lost her sense of taste and smell.
Wellness and Resilience through Integrative Health
Просмотров 124 года назад
Dr. Daniel Monti speaks with Joyce Graff and Megan Conley about his new book, Tapestry of Health, providing guidance on supporting your own wellness. There has been a growing trend in the population for the past 50 years toward exploring techniques such as meditation, acupuncture, and nutritional support not replacing, but adding to the normal standards of medical care. In these tense times of ...
PP 20200915 Gerber clinical trials
Просмотров 154 года назад
Joyce and Robin speak with Dr. David Gerber of UTSW about the changes that have been made to keep clinical trials going and patients safe during the COVID emergency. The FDA has issued guidance to suggest modifications to clinical trial protocols that will protect patients and also ensure consistency of data. www.fda.gov/media/136238/download
Teaching Visually Impaired Students in Public Schools
Просмотров 734 года назад
Joyce Graff speaks with Arlene Hernandez, a retired Teacher of the Visually Impaired (TVI) who is still quite active working the visually impaired teens. Arlene has worked as a TVI for schools in Maryland and Tennessee, and brings her teacher's perspective to the conversation.
When will we have a safe vaccine for COVID-19?
Просмотров 374 года назад
We interview Dr. Ofer Levy, Chief of the Department of Precision Vaccines at the Children's Hospital, Boston, Massachusetts. Dr. Levy leads a group of scientists working to develop vaccines that are safe and effective for people of all ages and ethnicities. When will we have a vaccine for COVID? Will it be safe and effective? Will the pressure to have a vaccine quickly mean that there will be r...
How One Community is Containing COVID-19
Просмотров 194 года назад
In an interview with Dr. Swannie Jett, Commissioner of Public Health for Brookline, Massachusetts, we learn how a town of 60,000 people is keeping COVID-19 under control. Brookine was one of the first communities hit with cases of COVID in early March, but its profile of cases is a classic bell-shaped curve, with new cases under five a week. It takes work on the part of the entire community. Dr...
Tecnical Coaching for Visually Impaired St
Просмотров 1584 года назад
We talk with Dr. Denise Robinson, head of TechVision (www.YourTechVision.com). TechVision is a consulting company that works with students, parents, educators, school systems and employers to help get people up-to-speed on the use of the technology to be used in school and on the job. Dr. Robinson advocates learning "real" computer skills as early as possible, so that visually impaired students...
Talking Tech for Visually Impaired Students
Просмотров 2704 года назад
Talking Tech for Visually Impaired Students
COVID Online Schooling for the Visually Impaired
Просмотров 1054 года назад
COVID Online Schooling for the Visually Impaired
Mike Lawing wishing you Happy Holidays
Просмотров 5711 лет назад
Mike Lawing wishing you Happy Holidays
Thanks so much for confirming what is happening to me. God Bless you
Thank you for this video ! I am a polio survivor. I contacted polio in 1953. I do have post polio and have been having a lot of challenges walking. I thank you for the information. I am using a walker but I feel I am in need of getting a scooter. I was just able to use a cane and it seemed like it changed overnight. I have been very active and now noticing I have to slow down. It’s very hard for family and friends to understand. Thank you again for this video.
Excellent 22:19
Thank you for this valuable information. I loved the video by Dr Hannah on her book Autumn Ghost. Where can I purchase her book? I am a polio survivor (1953) living in Maine.
Good thank you for this information I am a polio survivor
Amen.
I just can t take going back to a wheelchair, can t face loosing hard earned independence, no futur. This 2nd time around, my will ti live has gone 14:28
Way to go!! If you want to get more fans research *promo sm*!!!
Nice one!!! Happy I came across your channel. You should think about using smzeus . c o m!! I’ve been using it to help grow my Instagram, you could use it to promote your channel.
Great interview! I think I found the same yahoo groups around that time too! :)
Kai does his math & science the same way 💜 His pre-cal book is 108 volumes! Kai’s braillist’s office is filled with books. Good job spreading awareness.
Always love to hear from Liza & Campbell 💜