AMC Support
AMC Support
  • Видео 319
  • Просмотров 57 748
Together Tusdays - AMSCI News
In this session, we talked about AMCSI News, including our Facebook groups link webpage, mini meetups, upcoming fundraisers, and possibly doing an AMC dating episode!
Brought to you by AMCSI. Learn more at amcsupport.org
Просмотров: 11

Видео

Together Tusdays | Sharing Different Utensils and Techniques
Просмотров 272 месяца назад
This is a great episode to learn about different gadgets and techniques from opening bottles to bathing! Brought to you by AMCSI. Learn more at amcsupport.org
Closing Ceremony | Lady Karen Przytula, Grand High Priestess
Просмотров 142 месяца назад
19th Annual AMCSI Conference Closing Ceremony with the Lady Karen Przytula, Grand High Priestess Brought to you by AMCSI. Learn more at amcsupport.org
AMCSI Board Of Directors Meeting
Просмотров 302 месяца назад
AMCSI Board Of Directors Meeting in Atlanta, Georgia July 6th, 2025. Brought to you by AMCSI. Learn more at amcsupport.org
Mr. Matthew P. Cavedon - Disability Law
Просмотров 62 месяца назад
This session will be about disability law, especially the right to accessibility in public accommodations and to employment. A good companion to the separate session on disability rights in education. Brought to you by AMCSI. Learn more at amcsupport.org
Ms. Tricia Bucci PT & Ms. Jaccy Owens
Просмотров 452 месяца назад
Simple Solutions to Complex Cases; An Interdisciplinary Approach to Orthotic Care in AMC This presentation will include case studies of children with AMC and describe the collaboration between physical therapy and orthotics as we work to optimize each child’s mobility and functional skills. This will include detailed videos and pictures of each case study. The goal of the presentation is to des...
AMC Adult Panel - Careers
Просмотров 212 месяца назад
Come join a group of Adults with arthrogryposis as they discuss their diverse careers of choice, and how they were able to achieve their goals. Brought to you by AMCSI. Learn more at amcsupport.org
Ms. Jan Shea
Просмотров 142 месяца назад
What comes next after high school for students with disabilities. “Let’s talk about life after high school” is a chance to have a conversation and share resources about what college can look like for yourself/your son/daughter/loved one after high school. This presentation is going to talk about the difference between college and high school, what college accommodations are, tips for prospectiv...
Dr. Fran Guardo & Ms. Nancy Quinn OTR
Просмотров 782 месяца назад
Effective therapeutic intervention for individuals with arthrogryposis occurs through a lifetime continuum. Session attendees will gain an understanding of early intervention strategies and how early intervention is the first and key opportunity to promote movement and independence in children with arthrogryposis. An overview of rehabilitation following surgical interventions will educate the a...
Ms. Megan Ballard-Mitchell - Attorney Specializing In Education Civil Rights & Defense
Просмотров 102 месяца назад
This presentation will focus on the application of Section 504 and Title II in schools. We will cover the laws protecting physical accessibility in schools, covering aspects such as doors, sidewalks, hallways, parking, and access to facilities for guests, guardians and students. We will discuss the federal laws that apply to public and charter schools and almost all colleges and universities, a...
Dr. Therese Willkomm - DIY
Просмотров 92 месяца назад
Make Stuff and Love People - Creating Assistive Technology Solutions in Minutes This session will discuss new methods, materials and resources for creating hundreds of assistive technology solutions in minutes using low-cost materials including Coroplast, InstaMorph, loc-Line, PVC, and 10 different specialty tapes for rapid solution creations. This session will also discuss the importance of em...
Dr. Harold Van Bosse - Spine
Просмотров 942 месяца назад
Spine: The incidence of scoliosis in children with arthrogryposis multiplex congenita (AMC) is estimated to be about 20% over the course of childhood. Babies can be born with curves, or they can develop a curve at any time during childhood. In this talk, we will discuss the various ways that spine curves can present, and options for treatment, including bracing, spine casting, non-fusion (“grow...
Dr. Noémi Dahan-Oliel, Ms. Kristen Donlevie OT Student & Ms. Rose Elekanachi PT PhD Student Research
Просмотров 242 месяца назад
Toolkits for adults with AMC and caregivers As AMC is rare, individuals with AMC and caregivers of children with AMC may experience challenges in accessing care, getting information, and finding supports. To address these challenges, this session will present the work of two trainees on: a) The developmental of a toolkit for adults with AMC using focus groups with knowledge users and experts; b...
Dr. Lauren Hyer - Lowers
Просмотров 852 месяца назад
The foot is the most commonly affected area in persons with arthrogryposis. Because the foot and ankle complex is composed of 28 bones and 33 joints, it can also be one of the more tricky aspects of arthrogryposis to manage. During this session we will discuss everything from clubfoot to congenital vertical talus as well as treatment from infancy through adulthood. We hope this session will be ...
AMC Adult Panel: How Do You Do That?
Просмотров 162 месяца назад
AMC Adult Panel: How Do You Do That?
Dr. Maureen Donohoe - Clinical Specialist
Просмотров 112 месяца назад
Dr. Maureen Donohoe - Clinical Specialist
Dr. Sara Nossov - Lowers
Просмотров 492 месяца назад
Dr. Sara Nossov - Lowers
Mr. Don Brown | Understanding ABLE Accounts and Special Needs Trusts
Просмотров 82 месяца назад
Mr. Don Brown | Understanding ABLE Accounts and Special Needs Trusts
Dr. Lisa Wagner - Orthotics
Просмотров 1432 месяца назад
Dr. Lisa Wagner - Orthotics
Dr. Harold Van Bosse - Arthrogryposis 101
Просмотров 482 месяца назад
Dr. Harold Van Bosse - Arthrogryposis 101
Dr. Noémi Dahan-Oliel With Ahlam Zidan PT And PhD Student and Caroline Elfassy OT PhD - Research
Просмотров 412 месяца назад
Dr. Noémi Dahan-Oliel With Ahlam Zidan PT And PhD Student and Caroline Elfassy OT PhD - Research
Ms. Kim Kolstad With Mr. Cullen Robinson, Ms. Jo Crawford, and Mr. Truman Shoaff - Adaptive Sports
Просмотров 82 месяца назад
Ms. Kim Kolstad With Mr. Cullen Robinson, Ms. Jo Crawford, and Mr. Truman Shoaff - Adaptive Sports
Dr. Arun Hariharan - Spine
Просмотров 772 месяца назад
Dr. Arun Hariharan - Spine
Dr. Reid Nichols | Lowers
Просмотров 542 месяца назад
Dr. Reid Nichols | Lowers
Dr. Phillip Giampietro | Genetics
Просмотров 252 месяца назад
Dr. Phillip Giampietro | Genetics
Opening Ceremony | Keynote Speaker - Kim Kolstad | Adaptive Sports
Просмотров 392 месяца назад
Opening Ceremony | Keynote Speaker - Kim Kolstad | Adaptive Sports
Together Tusdays Cooking Tips and News
Просмотров 142 месяца назад
Together Tusdays Cooking Tips and News
Together Tusdays
Просмотров 162 месяца назад
Together Tusdays
Together Tusdays PostConferenceBlues
Просмотров 272 месяца назад
Together Tusdays PostConferenceBlues
Skybridge Walkway Peachtree Entrance
Просмотров 473 месяца назад
Skybridge Walkway Peachtree Entrance

Комментарии

  • @videocuoguz
    @videocuoguz 2 месяца назад

    Proud of you Marty

  • @drizzyizzy4220
    @drizzyizzy4220 3 месяца назад

    Wassup from Greenville sc Holla at me baby I was born with amc

  • @rajatrana1926
    @rajatrana1926 3 месяца назад

    Ooon

  • @1503RJLC
    @1503RJLC 4 месяца назад

    #8

  • @rubyliciousworld8301
    @rubyliciousworld8301 4 месяца назад

    Proud to be an amc big sister

  • @Krma-3
    @Krma-3 6 месяцев назад

    H.R.6640 - Marriage Equality for Disabled Adults Act. Support now!

  • @EntertainmentEnforcement
    @EntertainmentEnforcement 7 месяцев назад

    Doctor van bosse did 3 surgeries on me. Amazing man.

  • @SophiaWinton
    @SophiaWinton 8 месяцев назад

    Bravo! this is a really needed and worthwhile vid

  • @kishroneharriott2121
    @kishroneharriott2121 10 месяцев назад

    I have a two year old who has arthrogryposis. This interview is a great encouragement to me. I would like to speak with David, be part of a group, need to know much more than I do about what can be done vto help my daughter.

  • @craigcopeland9145
    @craigcopeland9145 Год назад

    😊 'Promo sm'

  • @jenniferl3079
    @jenniferl3079 Год назад

    Hello I’m Jojo and I have AMC

    • @AMCsupport
      @AMCsupport Год назад

      Hello, you can learn more about us at: www.amcsupport.org

  • @oogity-swoogity
    @oogity-swoogity Год назад

    Love what you do! Which wheel on the bike is your favourite?

  • @itsem358
    @itsem358 Год назад

    Omg frr. I found my friends w AMC bc I go to the AMC conference

  • @Hollywoodxav
    @Hollywoodxav Год назад

    Just enable it in the settings

  • @Jesus_lovesyou23
    @Jesus_lovesyou23 Год назад

    Hi my name is mj and I am amc strong

  • @Jesus_lovesyou23
    @Jesus_lovesyou23 Год назад

    I have amc and today is amc day😊

  • @BlastoffDailYtube
    @BlastoffDailYtube Год назад

    Rion...omg so I been watching so much AGT replays on RUclips. Then those singers I wonder where are they now. I do a search and come across other videos like this. It is such a pleasing & calming feeling it brings to hear and understand your real life grind. Yet you stay positive and just keep being you and moving forward. I really wish peace, calm, and more positive victory's and things come your way. Bless your heart, soul, and keep on; keeping on. Men to hear you say that you'd like to be able to serve others...just breaks my heart on how difficult the world makes it sometimes to just serve. If I had the money I swear I'd just take your dream of what type of business and vision of what you'd like and just build it for you. Wow I'm yappin'. Take care, God SPEED, keep smiling, and I almost forgot you sang. Keep singing...music is powerful. Cheers you two. Xoxo teddy

  • @Brooklyn0801
    @Brooklyn0801 Год назад

    I have AMC too lol

  • @kayjax5230
    @kayjax5230 Год назад

    Wow this is so similar to another individual I once knew with long white hair. Your approach in your speech and what you're doing is like so familiar. Hmmm... In wonder.

  • @הלןחאוי
    @הלןחאוי Год назад

    Thank you

  • @daltons8972
    @daltons8972 Год назад

    253? I feel like this is missing some context

    • @ryanasorusrex
      @ryanasorusrex Год назад

      Marshall Johnson who has AMC rode his bike 253 miles across northern New England. google is always there if you need it :) and i believe they have a video explaining it only 2 videos down 🩵

  • @_allatt2
    @_allatt2 Год назад

    Congratulations 🍾🎈🎊

  • @_allatt2
    @_allatt2 Год назад

    Wow 🤩 I’m goodness. Thank goodness someone out here cares about us. I can’t button my shirt. What a good idea 👍

  • @_allatt2
    @_allatt2 Год назад

    🥹 this is nice 👍 I only have one arm. I don’t play games but I’m sure it will be great for younger people who need it. Very good 👍

  • @rocb1319
    @rocb1319 Год назад

    It’s good to see different pics on here of people my nephew is an adult so judging by pics I can tell his AMC is quite severe he has come really far from where he began though with all his surgeries but it’s helpful to see others when we didn’t have that reference

  • @rocb1319
    @rocb1319 Год назад

    That’s my nephew he has classic

  • @rocb1319
    @rocb1319 Год назад

    We had the best drs in Boston my nephew wouldn’t be walking today without their dedication and bravery to take risks and try new procedures and tx

  • @rocb1319
    @rocb1319 Год назад

    So glad your making videos my nephew is 26 and lives with this

  • @rocb1319
    @rocb1319 Год назад

    My nephew has it he’s 26 now and I get it we couldn’t really find other people to talk to

  • @danielleservice2446
    @danielleservice2446 Год назад

    I live in Jamaica and my baby was born with this condition in his upper limbs and there isn’t much our health centers can do Can you please help me please please

  • @ghoulape6976
    @ghoulape6976 Год назад

    I seen no Black people, I’m skeptical. 😂😂

  • @jeffbozos7482
    @jeffbozos7482 Год назад

    Muh "operating costs".

  • @mimIsra1
    @mimIsra1 Год назад

    I'm loving this 😍

  • @harrasment6867
    @harrasment6867 Год назад

    Very few people know about arthrogryposis, its really valible tö have a Chanel about amc.

    • @AMCsupport
      @AMCsupport Год назад

      Exactly! Because arthrogryposis is a rare condition, educating the world is so important. Thank you for your comment! 💙

  • @sarashreve3992
    @sarashreve3992 Год назад

    We're you on Dr Phil?

  • @eprohoda
    @eprohoda Год назад

    Wow, you create dincredible recording. see you on my side.

    • @AMCsupport
      @AMCsupport Год назад

      Thank you for your kind comment! Learn more about arthrogryposis at amcsupport.org! 💙

  • @lydiahubbell6278
    @lydiahubbell6278 Год назад

    I just discovered her. I never watched X factor. I live in Nashville she is amazing in every way. Not sure why she decided show business was not for her, but she pretty much showed the world how talented she is. And so awesome. I saw a video of a mother with NO arms. It is amazing how people can adapt.

    • @AMCsupport
      @AMCsupport Год назад

      Yes, Rion is absolutely full of talent and radiance! Definitely check amcsupport.org to learn more about arthrogryposis and our community! 💙

  • @juliatrautschold5654
    @juliatrautschold5654 2 года назад

    This is so great, Marshall!! Have a great ride❤

    • @AMCsupport
      @AMCsupport Год назад

      It went so well, and Marshall was able to surpass his fundraising goal! Visit amcsupport.org/253foramc to see the final results! 💙

  • @GrowYourOwnLife
    @GrowYourOwnLife 2 года назад

    Here because I'm currently in pain. Gotta love this condition 😆🤦‍♂️

    • @harrasment6867
      @harrasment6867 Год назад

      Irritatingvtl hear disabled people dont suffer from the pain.. Im on pain all the time. Amc from birth and muscle athropy.. Healthy People dont really understand

    • @tinikashellington8738
      @tinikashellington8738 8 месяцев назад

      I understand what you are saying. I have a child with AMC. I am always looking for ways to reduce and get rid of pain.

  • @damon8645
    @damon8645 2 года назад

    💐 քʀօʍօֆʍ

  • @melissasmithmelissasmith2466
    @melissasmithmelissasmith2466 2 года назад

    God loves you have a blessed night to you my friend the only in your life

  • @melissasmithmelissasmith2466
    @melissasmithmelissasmith2466 2 года назад

    You have the real power for Jesus Christ and yourself thank you a good friend to you a real power is what the best thing for you to have in your life

  • @mikeansley254
    @mikeansley254 2 года назад

    Rion design your clothes and equipment...you have your family to help you...then patent them....

  • @quanganhbui9503
    @quanganhbui9503 2 года назад

    dude, thank you.

    • @AMCsupport
      @AMCsupport 2 года назад

      Of course! We're here to educate and spread awareness!

  • @zacharydavis3005
    @zacharydavis3005 2 года назад

    I don’t know what any of that is

    • @AMCsupport
      @AMCsupport 2 года назад

      We're so glad you found us! Arthrogryposis is a disability. And, we're a nonprofit that helps people with arthrogryposis! Learn more at amcsupport.org!

  • @quanganhbui9503
    @quanganhbui9503 2 года назад

    Great info

  • @Trapptv
    @Trapptv 2 года назад

    AMC to the moon 🌙 🚀🚀🚀🚀

  • @quanganhbui9503
    @quanganhbui9503 2 года назад

    Nice to see you

  • @kristymuratalla1859
    @kristymuratalla1859 2 года назад

    pքɾօʍօʂʍ

  • @cpr58
    @cpr58 2 года назад

    the university I went to was great for a disabled person. I can't speak on the dooms I lived at home. but access to all the buildings there never was a problem.

    • @AMCsupport
      @AMCsupport Год назад

      That's awesome-finding a college that contains all of the needed accommodations can be difficult for sure! But, we're happy you were able to find a college that's right for you!