Save Sight Institute
Save Sight Institute
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KeraClub 2024: Uniting Patients, Clinicians and Researchers on Keratoconus
The 9th annual KeraClub, a community event for patients with keratoconus and their carers, was held as a webinar on 13th November 2024, just days after World Keratoconus Day on 10th November. Co-hosted by the Save Sight Institute at The University of Sydney, in partnership with Keratoconus Australia, KeraClub 2024 aims to bring together patients, researchers, and clinicians for discussions on the latest advancements in keratoconus management.
This year’s KeraClub spotlighted cutting-edge research, with a special focus on contributions from the Save Sight Keratoconus Registry (SSKR). Attendees heard about recent breakthroughs in keratoconus treatment, including studies on corneal cross-link...
Просмотров: 451

Видео

Closing Remarks - Prof Peter McCluskey (2024 SSI Community Information Day)
Просмотров 42 месяца назад
Closing Remarks - Prof Peter McCluskey (2024 SSI Community Information Day)
Being prepared: hospitals, healthcare and emergencies - Annmaree Watharow MD PhD (2024 SSI Info Day)
Просмотров 22 месяца назад
Annmaree Watharow, MD PhD Annmaree is a clinician, writer and lived experience research fellow at the Centre for Disability Research and Policy (CDRP) at the University of Sydney. Their living experience with deafblindness works to inform their current research which aims to improve communication and care for people with disabilities in hospital and healthcare settings.  Annmaree has written tw...
Overview of the tactile playgrounds project - Dagmar Reinhardt PhD (2024 SSI Community Info Day)
Просмотров 162 месяца назад
Associate Professor Dagmar Reinhardt Dagmar teaches architectural design at the School of Architecture, Design and Planning, The University of Sydney. Her research explores design at the intersection of architecture, body, space and the senses, by integration of advanced data retrieval and fabrication methods, including photogrammetry and robotics. Dagmar designs touch access strategies for bli...
A snapshot of Aussie kids, vision and services - Sue Silveira PhD (2024 Community Information Day)
Просмотров 412 месяца назад
Sue Silveira, PhD Sue initially qualified in paediatric orthoptics and has worked extensively in the NSW public hospital system and in vision screening programs. She was previously with the University of Sydney School of Orthoptics. Currently, she holds a conjoint academic position with Macquarie University and is the Course Director for the Master of Disability Studies. Sue is also a research ...
Owning your story and living with hope - Lily Piccolo (2024 SSI Community Information Day)
Просмотров 32 месяца назад
Lily Piccolo (aka Adelina Holloway) Lily is a vision impaired para-athlete whose journey extends beyond the sporting arena. Despite living with retinitis pigmentosa, Lily is a nationally competing para cyclist and triathlete. She now inspires others to chase their dreams through mentoring and motivational speaking. Lily not only shines as a para-athlete but also embraces the joys of motherhood....
Seeing beyond limits: My journey to independence & triumph - Jenna Jones (2024 Community Info Day)
Просмотров 162 месяца назад
Jenna Jones (pre-recorded session) Instagram: jennax0x Jenna Jones is a 23 year-old two-time Paralympics swimmer, having attended Rio in 2016 and Paris in 2024. Diagnosed with cone-rod dystrophy at six years old, Jenna discovered a natural talent for swimming-setting 11 Australian age records in the process. She made her international debut at the Rio 2016 Paralympics Games at the age of 15. Ou...
LUXTURNA Research Update - Dr Will Yates (2024 SSI Community Information Day)
Просмотров 632 месяца назад
Dr Will Yates is an ophthalmologist and aspiring clinician-scientist involved in basic science and clinical research. He is currently a Clinical Associate Lecturer at the Save Sight Institute and a Conjoint Lecturer at the UNSW Prince of Wales Clinical School. He is also a PhD student under Professor Robyn Jamieson at the Children’s Medical Research Institute, investigating the natural history,...
Supporting eye disease research - Amanda Craze (2024 SSI Community Information Day)
Просмотров 72 месяца назад
Amanda Craze Amanda is the Associate Director of Development for the Faculty of Medicine and Health at the University of Sydney. Her role is to support funding research and education for two flagship centres; the Save Sight Institute and Child & Adolescent Health Centre, and work with academics at the Westmead Precinct. For Amanda, one of the best parts of her role is meeting with donors and pa...
Exhibitor Showcase (2024 Community Information Day)
Просмотров 22 месяца назад
Hear from exhibitors at the 2024 Community Information Day: Guide Dogs NSW/ACT Guide Dogs NSW/ACT is the leading provider of guide dogs and orientation and mobility services that enable people with low vision or blindness to navigate their communities safely and independently. NextSense ​NextSense is Australia’s largest non-government provider of therapy, education, cochlear implant and diagnos...
Making a difference - Harrison Kirkwood (2024 SSI Community Information Day)
2 месяца назад
Harrison Kirkwood Harrison was born with severe type 2 bilateral Peters Anomaly. While corneal transplantation provided some functional vision into his teenage years, retinal detachments and other complications meant all functional vision was lost. Harrison enjoys being involved in the community and spending time with friends and family. He has a keen interest in disability advocacy, having sat...
Tales from a vision impaired HSC student - Jeremy O'Kane (2024 SSI Community Information Day)
Просмотров 32 месяца назад
Jeremy O’Kane Jeremy is a 17 year old student born with bilateral cataracts and microphthalmia, later developing glaucoma. An academic high performer, Jeremy took first place at his school in Extension 1 and Extension 2 maths two years early, and is currently completing his remaining HSC units to finish Year 12 in 2025. Jeremy tutors students and is a strong advocate for his own disability acco...
Opening Remarks - Prof Peter McCluskey (2024 SSI Community Information Day)
Просмотров 22 месяца назад
A short history of the Save Sight Institute delivered by Save Sight Institute Director Prof Peter McCluskey at the 2024 SSI Community Information Day last 16th November 2024.
Annual HDR Student Symposium 2024: Vision Science and Ophthalmology
Просмотров 672 месяца назад
This event gives HDR students an important opportunity to showcase their research and to network with their peers.
New Patient Guide for Corneal Crosslinking
Просмотров 873 месяца назад
Prof Stephanie L Watson OAM | Save Sight Institute & Keratoconus Australia Join Professor Stephanie L Watson OAM as she introduces a new, comprehensive patient guide on corneal collagen crosslinking (CXL), launched by The University of Sydney’s Save Sight Institute in collaboration with Keratoconus Australia. This evidence-based resource provides crucial information for patients with keratoconu...
Dry Eye Club: Seeing Outcomes 2024 (18 July 2024)
Просмотров 2206 месяцев назад
Dry Eye Club: Seeing Outcomes 2024 (18 July 2024)
Macular Milestones 2024: Community Research Update
Просмотров 2767 месяцев назад
Macular Milestones 2024: Community Research Update
KeraClub 2023 | Patient Perspectives | Cross-linking | Contact lenses | Nanotechnology | Keratoconus
Просмотров 472Год назад
KeraClub 2023 | Patient Perspectives | Cross-linking | Contact lenses | Nanotechnology | Keratoconus
Close - Prof. John Grigg
Просмотров 135Год назад
Close - Prof. John Grigg
Education panel - Young kids (4-11 years old)
Просмотров 19Год назад
Education panel - Young kids (4-11 years old)
Sports with VI - Blind Sports NSW
Просмотров 43Год назад
Sports with VI - Blind Sports NSW
SSI Youth Mentorship Program
Просмотров 50Год назад
SSI Youth Mentorship Program
Research panel
Просмотров 92Год назад
Research panel
A blink then darkness: Tyler Jarman
Просмотров 77Год назад
A blink then darkness: Tyler Jarman
Know your Rights: Prof. Paul Harpur
Просмотров 59Год назад
Know your Rights: Prof. Paul Harpur
Keynote address: Michael Vaiasinni
Просмотров 121Год назад
Keynote address: Michael Vaiasinni
Welcome address - Prof. Peter McCluskey
Просмотров 47Год назад
Welcome address - Prof. Peter McCluskey
DRY EYE CLUB "SEEING OUTCOMES" WEBINAR 18.07.2023
Просмотров 353Год назад
DRY EYE CLUB "SEEING OUTCOMES" WEBINAR 18.07.2023
Macular Research Info Session 2023
Просмотров 225Год назад
Macular Research Info Session 2023
Macular Research Information Webinar - 30th May 2022
Просмотров 2162 года назад
Macular Research Information Webinar - 30th May 2022