PKD Foundation of Canada
PKD Foundation of Canada
  • Видео 118
  • Просмотров 294 073
Eric's Training Hike | Peaks for PKD
Eric Hampel is climbing Mount Kilimanjaro in October 2024 in order to raise awareness and funds for polycystic kidney disease (PKD) research and patient supports.
As part of his preparations for this significant physical and mental challenge, Eric is training with a combination of running and hiking. Here we find him on a two-day hike of the Isaac's Tea Trail in northern England.
Support Eric's fundraiser: www.endpkd.ca/eric
Read about Eric's journey to Kilimanjaro: www.endpkd.ca/PeaksBlog
Learn more about polycystic kidney disease, and the work of the PKD Foundation of Canada: endpkd.ca
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Our Facebook account: endpkd
Our Instagram: endpkd.ca
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Просмотров: 39

Видео

Finding My Living Kidney Donor | August 13, 2024
Просмотров 42Месяц назад
How do you ask a stranger to donate a kidney to you? This webinar shares valuable tips and suggestions for creating your own living organ donor appeal. 50% of people with PKD will eventually need dialysis or a kidney transplant. 80% of the people on the organ transplant list in Canada are waiting for a kidney. Living kidney donation can improve transplant outcomes, quality of life, and ease the...
Living Kidney Donation (June 11, 2024)
Просмотров 1713 месяца назад
Because polycystic kidney disease (PKD) can eventually lead to kidney failure, many of those affected by PKD are interested in learning about kidney transplantation as a possible life-extending treatment for PKD. In this webinar on the topic of living kidney donation, experts answered a number of questions about the living kidney donation process, such as: What are the rules regarding living ki...
À propos de la Fondation canadienne de la MPR
Просмотров 256 месяцев назад
Nous sommes là pour vous aider, vous et vos proches, dans votre parcours avec la MPR. Partagez cette vidéo afin que les gens comprennent mieux ce qu'est la MPR, ce que la Fondation canadienne de la MPR fait et comment s'impliquer ! La Fondation canadienne de la MPR mène la lutte nationale contre la maladie polykystique des reins (MPR) grâce à des programmes de recherche, de formation, de sensib...
Aimez vos reins ! Nutrition pour les personnes atteintes de la MPR
Просмотров 946 месяцев назад
Roxanne Papineau, diététiste agréée, aborde l'importance d'adopter un régime alimentaire respectueux des reins pour maintenir la fonction rénale chez les personnes atteintes de la MPR. Elle a expliqué quel régime adopter en fonction des différents stades de la MPR et comment trouver les aliments qui conviennent à vos besoins. Roxanne est aussi l'un des co-auteurs du nouveau livre de recettes po...
Love Your Kidneys: Nutrition and PKD with Emily Campbell
Просмотров 1566 месяцев назад
What better way to celebrate nutrition month (March 2024) and recognize the impact it can have on PKD than with a cooking demonstration and live webinar? Join Emily Campbell, registered dietitian and certified diabetes educator as she shares a recipe from the new PKD-focused Love Your Kidneys cookbook. Recipe: Chicken Multigrain Nuggets and Waldorf Salad NOTE In the video Emily asks viewers to ...
Introduction to the Kidney Paired Donation Program (February 15, 2024)
Просмотров 1827 месяцев назад
Kidney paired donation is a program that matches transplant candidates with suitable living donors. It gives people the chance to become a living kidney donor while ensuring that someone they want to help receives a needed kidney, even if they are not a direct match. Canada’s Kidney Paired Donation program is run by Canadian Blood Services, working with the living kidney donation and kidney tra...
Itching for New Therapies for Chronic Kidney Disease Associated Pruritis (CKD-aP)
Просмотров 2619 месяцев назад
This webinar, held on December 7, 2023, introduces the topic of itching related to Chronic Kidney Disease. Dr. Karthik Tennankore discusses chronic kidney disease associated pruritis (CKD-aP), how physicians screen and evaluate for CKD-aP, and treatment options for CKD-aP, including emerging therapies. Dr. Karthik Tennankore MD, SM, FRCPC, received his MD at the University of Western Ontario an...
2023 PKD Summit - The Importance of Nutrition & PKD - Emily Campbell, RD, CDE
Просмотров 22110 месяцев назад
In recent years, the importance of nutrition with PKD has grown in popularity and knowledge. This presentation reviews current recommendations for sustainable nutrition changes and health benefits to manage PKD, so that patients can appreciate the health benefits of nutrition changes for PKD, be able to identify sustainable nutrition changes, and understand the foods to include in a PKD-conscio...
2023 PKD Summit - Getting to know the PKD Foundation of Canada - Jeff Robertson
Просмотров 5810 месяцев назад
Jeff Robertson, Executive Director, walks us through the history of the PKD Foundation of Canada and highlights past, present and future goals for the organization. During this presentation, Jeff also discusses the many ways the Foundation’s mission to promote programs of research, education, support, awareness and advocacy positively impact the national PKD community, and how you can get invol...
2023 PKD Summit - Pain Management & PKD - Dr. Mike Bevilacqua
Просмотров 12910 месяцев назад
Dr. Bevilacqua discusses the prevalence of pain in PKD patients over the course of the disease. He explains the different types of pain in PKD, giving suggestions about how to describe and monitor PKD pain, and suggests chronic pain management strategies and resources. Dr. Micheli (Mike) Bevilacqua is a nephrologist with additional training in health administration. His clinical nephrology prac...
2023 PKD Summit - Basics of Clinical Care for Children with ADPKD & ARPKD - Dr. Lisa Guay-Woodford
Просмотров 11010 месяцев назад
Dr. Guay-Woodford presented the basics of both ARPKD and ADPKD in children, autosomal recessive polycystic kidney disease management, and current ARPKD research and clinical trials. Dr. Guay-Woodford is an internationally recognized pediatric nephrologist whose work focuses on identifying clinical and genetic factors involved in the pathogenesis of inherited renal disorders, most notably autoso...
2023 PKD Summit - Progress in the Care of Patients with PKD - Dr. Matt Lanktree
Просмотров 25210 месяцев назад
Dr. Matt Lanktree discusses how genetics beyond PKD1 and PKD2 impact ADPKD, offers suggestions for how to slow cyst growth, and shares what he sees coming next in the treatment of PKD. Dr. Lanktree is a clinician-scientist, assistant professor, and medical director of the McMaster Kidney Genetics Clinic, caring for patients with chronic and end-stage kidney disease at St. Joseph's Healthcare Ha...
2023 PKD Summit - Closing Remarks - Jeff Robertson
Просмотров 3510 месяцев назад
Jeff Robertson, Executive Director for the PKD Foundation of Canada, wraps up the day with some brief closing remarks. Jeff Robertson has been involved with the PKD Foundation of Canada for many years, beginning as a volunteer for his local chapter, and Walk Coordinator in Toronto. His life has been deeply impacted by polycystic kidney disease (PKD) - both his mother and grandmother were diagno...
2023 PKD Summit - Being Your Own Best Advocate - Ciara Morin
Просмотров 12810 месяцев назад
2023 PKD Summit - Being Your Own Best Advocate - Ciara Morin
2023 PKD Summit - Cooking Demo: Kale and Chickpea Salad - Emily Campbell, RD, CDE
Просмотров 5810 месяцев назад
2023 PKD Summit - Cooking Demo: Kale and Chickpea Salad - Emily Campbell, RD, CDE
PKD in 2023 | Vancouver PKD Patient Forum - October 18, 2023
Просмотров 29011 месяцев назад
PKD in 2023 | Vancouver PKD Patient Forum - October 18, 2023
Meet Nick Ashawasega
Просмотров 117 тыс.Год назад
Meet Nick Ashawasega
Rencontrer Nick Ashawasega
Просмотров 102 тыс.Год назад
Rencontrer Nick Ashawasega
MPRAD en 2023 | Forum des patients atteints de la MPR à Montréal - mardi 19 septembre 2023
Просмотров 97Год назад
MPRAD en 2023 | Forum des patients atteints de la MPR à Montréal - mardi 19 septembre 2023
2023 Walk to END PKD - Nick's story
Просмотров 40Год назад
2023 Walk to END PKD - Nick's story
About the PKD Foundation of Canada
Просмотров 126Год назад
About the PKD Foundation of Canada
Understanding Liver Transplantation for PKD & PLD Patients (28 June 2023)
Просмотров 144Год назад
Understanding Liver Transplantation for PKD & PLD Patients (28 June 2023)
All About Polycystic Kidney Disease (01/03/2023)
Просмотров 1,2 тыс.Год назад
All About Polycystic Kidney Disease (01/03/2023)
Medical Cannabis in Patients with Chronic Kidney Disease (15/02/23)
Просмотров 2,4 тыс.Год назад
Medical Cannabis in Patients with Chronic Kidney Disease (15/02/23)
2022 Toronto PKD Scientific Conference: Day 2 - Discussion Panel 2
Просмотров 97Год назад
2022 Toronto PKD Scientific Conference: Day 2 - Discussion Panel 2
2022 Toronto PKD Scientific Conference: Day 2 - Discussion Panel 1
Просмотров 150Год назад
2022 Toronto PKD Scientific Conference: Day 2 - Discussion Panel 1
Practical Implementation of a Plant-Based Ketogenic Diet (15/10/2022)
Просмотров 1,4 тыс.Год назад
Practical Implementation of a Plant-Based Ketogenic Diet (15/10/2022)
Preclinical Studies of a Ketogenic Dietary Approach to Slow PKD Progression
Просмотров 2 тыс.Год назад
Preclinical Studies of a Ketogenic Dietary Approach to Slow PKD Progression
Medical Care and Human Connection: Lessons from the Pandemic (15/10/22)
Просмотров 31Год назад
Medical Care and Human Connection: Lessons from the Pandemic (15/10/22)

Комментарии

  • @ameliasuarez1235
    @ameliasuarez1235 3 дня назад

    Thank you! Very helpful!

  • @deshia1471
    @deshia1471 18 дней назад

    Dr. P is a killjoy. Nothing but negative feedback.

  • @sheilamashburn1595
    @sheilamashburn1595 24 дня назад

    Just wondering how your doing now

    • @ThePKDFOC
      @ThePKDFOC День назад

      You can find updates from Ciara on her Instagram Page - PKD Wellness instagram.com/pkd.wellness?igsh=ZDNlZDc0MzIxNw==

  • @MNprojects
    @MNprojects Месяц назад

    I would love to know what kind of food you brought with you. I find it hard obtaining food that isn't pure salt for long journeys.

  • @ayca7590
    @ayca7590 3 месяца назад

    What is she doing right now

  • @azronarif
    @azronarif 6 месяцев назад

    Merci beaucoup pour cette publication riche en bonne conseils, une petite proposition: inclure les différents molécules des médicaments connus dans les traitements des maladies rénale et aussi du cœur et les synchroniser avec les aliments compatible avec les médicaments. bon courage pour la suite ;)

    • @ThePKDFOC
      @ThePKDFOC 6 месяцев назад

      Merci pour vos suggestions, nous les garderons à l'esprit pour un prochain webinaire !

  • @pinoydietitiansinclinicalp2683
    @pinoydietitiansinclinicalp2683 9 месяцев назад

    Is Canola safe to consume?

  • @CaptainSteve777
    @CaptainSteve777 9 месяцев назад

    Very well done. Much of what you said was fantastic. Sadly, a good bit was wrong. You gave all the standard of care advice that I followed for 30 years until I was diagnosed with kidney and heart failure. Since then for five years now, I've been on very-low-carb, high fat, clean whole-food ketogenic diet, IF, low oxalate, and super hydration, and use KetoCitra. My conditions have reversed. My PKD cysts and TKV are shrinking, my eGFR is normal, my heart is normal, my blood pressure is normal (w/o meds), my HDL is high, and triglycerides and fasting insulin are low. The plate example you showed with 75% carbs is guaranteed to result in obesity, diabetes, and PKD cyst growth kidney failure. re uric acid: you only mention meat and purines. Fructose can cause increased uric acid. People of all types these days have NAFLD for plant-based diets. Lastly, no proper study or trial has ever concluded that saturated fat is harmful. It's not. Cheers

  • @drs-j3q
    @drs-j3q 10 месяцев назад

    what kind of workout of pkd

  • @donnell688
    @donnell688 10 месяцев назад

    Thank you very much ,I have been on keto diet for a couple of years, got my CKD from 59 back up to 76, no longer have to take metformin, lost around 40lbs and your video will help me to convince my wifrto give keto a chance for PKD. Dont understand why your video doesnt have thousands of comments?

    • @ThePKDFOC
      @ThePKDFOC 10 месяцев назад

      Thanks for your kind words, @donnell688.

  • @carobsilver2184
    @carobsilver2184 11 месяцев назад

    This was very helpful, thankyou.

    • @ThePKDFOC
      @ThePKDFOC 10 месяцев назад

      Glad it was helpful, @carobsilver2184!

  • @CaptainSteve777
    @CaptainSteve777 3 года назад

    Fantastic presentation. Lots of great information. Thank you.

  • @gejo407
    @gejo407 3 года назад

    this is wonderful.

  • @CaptainSteve777
    @CaptainSteve777 3 года назад

    Excellent review. Thank you for posting this. I've been following this protocol for about a year.

  • @t.c.s.7724
    @t.c.s.7724 3 года назад

    Thank you for this empowering discussion. Individuals need not be passive victims of pkd, healing via diet modification is game changing.

  • @LoriIB1
    @LoriIB1 3 года назад

    Absolutely incredible.

  • @CaptainSteve777
    @CaptainSteve777 3 года назад

    Excellent discussion. Thank you all.

  • @gracegiven5093
    @gracegiven5093 3 года назад

    Thanks! Very valuable presentation.

  • @Lima547
    @Lima547 3 года назад

    Go Hurricane Harrison! You are already a champion of life 👏🏻👏🏻👏🏻🏅

  • @gracegiven5093
    @gracegiven5093 3 года назад

    I'm stage 5 (eGFR=9), pre-dialysis. I've been on intermittent fasting (IF) for 2 months, after looking into research on how to deal with slow gastric emptying. I have found IF to be very helpful, likely because I fast for 18 hours, which gives my stomach time to process food and empty as well as "rest". People with PKD need nutritional information as it is more important than previously understood, IMHO.

    • @Lima547
      @Lima547 3 года назад

      I also have PKD. eGFR 28. I try to eat well and be healthy, which is helpful as whole. I just feel frustrated that a transplant, a synthetic kidney or gene therapy would do much more compared to myself abdicating of so many things in my life to gain a few months of kidney function. What we need is more reliable ground breaking technology to fix the PKD. Faster and well conducted research. The rest is just mopping the rain.

    • @gracegiven5093
      @gracegiven5093 3 года назад

      @@Lima547 Yes, you're right. The presenters deftly alluded to the problem more than once. There's no $$$ in correcting PKD kidneys and offering a gene solution. Big Pharma profits greatly from the cocktail of chemicals a transplant patient must take to avoid rejection. Additionally, having taken Tolvaptan the price tag for such an intervention is significant and not available without insurance and the drug manufacturer "working" with insurance to make it accessible.

    • @Lima547
      @Lima547 3 года назад

      @@gracegiven5093 Did Tolvaptan work for you? I didn’t for me and my eGFR dropped bellow 30 and I had to stop. I was peeing the entire night and I didn’t like it. My nephrologist in Calgary said if you are responsible enough to drink 4L of water a day that medication is not necessary, plus it can come with side effects. I completely agree. If you already have a condition like PKD, you should not have to endure financial instability due to high cost medications.

    • @gracegiven5093
      @gracegiven5093 3 года назад

      @@Lima547 My eGFR was 20 when started, which is the cut-off point, actually. There is not much data on how someone at 20 responds to Tolvaptan, but I was willing to try since my nephrologist was willing to trial me on it. I was on it for approximately 14 months. In the end, my eGFR dropped, as I had some difficulty with phosphorus, if I recall correctly - or maybe potassium. While I mostly felt good on the drug, near the end, I felt brain fog. I think it did buy me some time since my father went into failure at 54, and I made it past that marker. It will be interesting to learn when the study is complete as to whether people at the end range actually do benefit.

    • @islander1
      @islander1 3 года назад

      @@gracegiven5093 Fresnius and DaVita make a LOT of money off of us via dialysis equipment, too.

  • @romeodelacruz7101
    @romeodelacruz7101 3 года назад

    Thanks for your inspiring words, Elyse. I am PKD patient, got it from my father, from Metro Vancouver and experiencing kidney cysts ruptured just December last year. I felt that it will stop myself from having happy and fine days. But my loving partner and family with friends never stop giving me encouraging words. You are right, having this disease will never stop us from everything that we normally do. Together we can make it!

    • @Lima547
      @Lima547 3 года назад

      I am with you buddy! Stay strong! If you ever come to Calgary let’s have a coffee and share our experiences. I also have PKD.

  • @lucianogray6060
    @lucianogray6060 3 года назад

    I had trouble creating my own diet, I’m new and my main goal is to build muscle and what works for me the keto diet that I got from ketogenerator.online . I’ve been using it for a couple of months and It’s been working for me, I don’t know if it works to lose weight but It has the option to. And remember if something is worth it, it aint going to be easy! I hope it helps :)

  • @lucianogray6060
    @lucianogray6060 3 года назад

    I had trouble knowing what to eat, I’m new and my main goal is to build muscle and what worked for me is the keto diet that I got from ketogenerator.online . I’ve been using it for a couple of months and It’s been working for me, I don’t know if it works to lose weight but It has the option to. And remember if something is worth it, it aint going to be easy! I hope it helps :)

  • @luvnlife1986
    @luvnlife1986 3 года назад

    What if you do not want to lose weight? I am 35 height, 5’9” and weigh 145 pounds. When I tried keto and fasted I lost 15 pounds, I do not want to lose anymore weight. I was diagnosed with ADPKD and my kidneys are functioning at 35%. I have not done a genetic test and no one I know of in my family has PKD. I do not have diabetes or high blood pressure.

  • @luvnlife1986
    @luvnlife1986 3 года назад

    What if I do not want or need to lose weight? I tried keto and fasted and lost 15 pounds. I am 5’9” and now weight 145. I’m scared to do it again as I can not keep losing weight. I am stage 3 ADPKD. Although I have not done genetic testing no one that I know of in my family has had PKD. I do not have diabetes or high blood pressure.

  • @proscontract5679
    @proscontract5679 3 года назад

    May god bless you researchers for such excellent work!

  • @proscontract5679
    @proscontract5679 3 года назад

    Id like to know if a keto diet would be sage for a child with pkd

    • @seanc457
      @seanc457 3 года назад

      The term child is too vague; what age do you mean? He mentions the age of the rats in the study that Jacob Torres did. One consideration is that making a kid go on a keto diet can have the reverse effect if the child hates it and wants to rebel and eat everything sugary. It’s important to be careful with this.

    • @proscontract5679
      @proscontract5679 3 года назад

      @@seanc457 I meant safe.

  • @ArmagedoOom
    @ArmagedoOom 3 года назад

    Thank you for this information. If decided to approach it by fasting 3 days a week, would the rest of the days be OK to doing a normal vegetarian / whole grains diet? Would this limit the benefits of the 3 days weekly fasting?

  • @LorenzoLiverani
    @LorenzoLiverani 3 года назад

    Now the question for me is: where I can get the best info on how to start to get ketosis

  • @raefabbadi6669
    @raefabbadi6669 3 года назад

    thanks for this valuable research. my question is that, since the defected gene is present in all cells, why only 1% of the nephrons become cystic?

  • @audiobooksmore3374
    @audiobooksmore3374 4 года назад

    I can't begin to imagine what this is like for you.Thank you for sharing this wonderful video to the world!

  • @kaylieryder2167
    @kaylieryder2167 9 лет назад

    I hope the awareness gets out more someday, to what type of problems in this world that really need to be solved.. And what we need to do to to change that.

  • @kaylieryder2167
    @kaylieryder2167 9 лет назад

    :D I just hope that others learn from experiences like this.... And that someday that there will be a cure.

  • @tinachao8418
    @tinachao8418 9 лет назад

    Don't be afraid of the PKD ,live your life to the fullest!