Видео 16
Просмотров 562

Sarah Noble's Rare and Heartwarming Stories/Living with A Rare Disease

6:20

My Fur Babies Holiday 2023

5:02

Come Explore the South with Me! Part One of My Holiday Adventure Awaits.

11:40

Thia week in style @rarelifestories by Sarah Noble #raredisease #mystery #mylife #ml #thingsilove

5:59

Sarah Noble's Vlog: Spring Has Arrived!

13:26

Our Journey with Mucolipidosis: Living with A Rare Disease

11:57

Unveiling The Mind-blowing 2024 Reset

Unveiling The Mind-blowing 2024 Reset is about my new beginning, new content and me starting a new venture, making goals, dreams and filling my bucket list. So, sit back and enjoy the ride. Just because I have a Rare Disease doesn't mean I can't live a fulfilling life. Mucolipidosis is considered part of the Ultra-orphans of the Lysosomal Storage Disease family of which there are over 60 known different disorders. There is no cure or treatment for this disease ML. and there is very few of us around the world. currently Cure ML is trying to work on a cure, but in doing that we need to fund raise money....
Created with Wondershare Filmore
So please help Cure Mucolipidosis by donating money ...

Видео

Sarah Noble's Rare and Heartwarming Stories/Living with A Rare Disease

6:20

Sarah Noble's Rare and Heartwarming Stories/Living with A Rare Disease

Просмотров 50Год назад

Sarah Noble's Rare and Heartwarming Stories Welcome to my vlog channel where I will take you on a ride and show you what my life is like living with a Rare Genetic Disease Mucolipidosis! alpha/beta. Not only that you will get an insight into my daily life what I get up to, my hobbies, my dreams, my goals and my wellness journey and much, much more so stick around and come along on the ride with...

5:02

My Fur Babies Holiday 2023

Просмотров 21Год назад

Sarah Noble lives with a rare genetic disease Mucolipidosis! alpha/beta and my two fur babies give me a lot of joy and happiness in my life. My family is so fortunate to have some wonderful friends who took care of them while my parents and I went down south on our holiday. This video is my fur babies' holiday with our awesome friends. Thank YOU for supporting me, it means the world to me! MP4 ...

Come Explore the South with Me! Part One of My Holiday Adventure Awaits.

11:40

Come Explore the South with Me! Part One of My Holiday Adventure Awaits.

Просмотров 25Год назад

This is my trip down South with my parents and one of our stops was Cromwell. I ticked one of my things off my bucket last and that was my Hot Lap at Highlands Motorsport Park. Also, we saw the Clyde Dam which was so cool. I hope you like this Vlog video. ❤❤❤ Thank YOU for supporting me, it means the world to me! It would really help support my channel if you could LIKE my video, SUBSCRIBE to m...

Thia week in style @rarelifestories by Sarah Noble #raredisease #mystery #mylife #ml #thingsilove

5:59

Thia week in style @rarelifestories by Sarah Noble #raredisease #mystery #mylife #ml #thingsilove

Просмотров 7Год назад

Sarah Noble lives with a rare genetic disease Mucolipidosis! alpha/beta. Mucolipidosis is considered part of the Ultra-orphans of the Lysosomal Storage Disease family of which there are over 60 known different disorders. There is no cure or treatment for this disease ML. This week's vlog video is about getting ready for my holiday down South of New Zealand with my Parents. Thank YOU for support...

13:26

Sarah Noble's Vlog: Spring Has Arrived!

Просмотров 23Год назад

Sarah Noble's Vlog video -Spring has arrived and, in this video, I am going to tell you what I got up to on the first day of Spring and you will get insight into one of my hobbies I like to do with my dad. For me to carry on doing what I love to do I need a CURE!!! so please help me out and donate today. Thank YOU for supporting me, it means the world to me! It would really help support my chan...

Our Journey with Mucolipidosis: Living with A Rare Disease

11:57

Our Journey with Mucolipidosis: Living with A Rare Disease

Просмотров 84Год назад

Sarah Noble lives with a rare genetic disease Mucolipidosis! alpha/beta. Mucolipidosis This video is about my Mum and I asking each other questions about our journey living with Mucolipidosis, Thank YOU for supporting me, it means the world to me! It would really help support my channel if you could LIKE my video, SUBSCRIBE to my channel and press the BELL button so you never miss a video! whic...

This is my 10 Worst Things About Mucolipidosis which is: a Painful, Incurable Disease

6:12

This is my 10 Worst Things About Mucolipidosis which is: a Painful, Incurable Disease

Просмотров 45Год назад

This is my 10 Worst Things About Mucolipidosis which is: a Painful, Incurable Disease

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