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This is a great video from our fellow MG "warriors" who have shared their struggles with this malady. Fortunately, I am part of a great support group and look forward to our meetings where I've found support and validation. Mestanon works great for me, and in addition to eating a healthy diet, I go to the Y for the water exercise classes. My neurologist tells me, "You are handling it very well". As with all of you, I keep trying as each day presents its own unique challenges.

Gws

Thank you for this great information

What about Generalized Myasthenia Gravis?

Thank you - This may help show my wife the reasons I am so fatigued. I have many other conditions that cause fatigue, and she has been very supportive, but I am sure it will help getting another persons perspective. Thank you!

Actually I am suffering from myasthenia gravis last 2 years

Which treatment you have taken

Horrible disease 😢

I have myasthenia gravis please suggest me which type food i eat

I was diagnosed in 2016. At age 35 married with 2 young children. Severe in my arms and legs. Had some very difficult years. I refused and still refuse to give in to the disease. My mindset has been with the advancements in medicine and modern science there will be a cure one day. That's what keeps me going

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God is good 🙏🙏🙏❤❤❤

My father got Myasthenia Gravis days after his first Covid vaccine he was forced to take in 2021 to be able to get a surgery he needed.

Thanks for this well done video. There has been so much progress toward better treatment since I was diagnosed 19 years ago. This gives me hope!

well said, makes me feel good about the surgery i am about to do

I’ve been in remission for more than 8 years. I have videos about my journey. For me fasting, diet and high dose vitamin D3 was key to getting off meds and getting in remission.

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A best friend was recently diagnosed with MG. I learned a TON about MG watching this recording. Outstanding!

Hello, I have been suffering from severe sinusitis for exactly 30 years. I am Brazilian, I am 45 years old and today they are treating me at the HC Hospital das Clínicas in São Paulo. I had a relapse because I had COVID and ended up with consequences, but with a lot of effort and prayers, today I am partially with limitations in my hands, I want to have better treatment for a better quality of life, and I know that in the United States everything is much more detailed and they give the best treatment in the world, I would like to know if you have any form of an exchange of treatment, as I have a dream of visiting the United States and taking part in the treatment of myasthenia gravis, I would really like to be able to go and get treatment there, could you tell me if there is any way for me to apply for a scholarship? study, oh please, I really want a better quality of life, I await your response and thank you

We are a great team together, but it's lonely on your own,we need each other to share stories. It's in this together condition.

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Martin Mark Perez Margaret Garcia Linda

Thank U

Hi I am a MG patient, I leave in Papua New Guinea in the Pacific islands and how can I get these treatments.

Thank you. how long can this treatment reach the Pacific Island region. PNG

Great!

😊

Thank you.

I have OMG and as a complication severe dry eye in the droopy eye. I was prescribed the eye ointment Lotemax and it worked on the dry eye and decreased the Ptosis.

God bless you and I hope your much better now ❤️ love from London

If you wanted to educate people you could have explained what this was in your video, just a thought

We love you 💪🏾

I attended the Newton Massachusetts health fair. It was a nice time. Very informative. I was diagnosed in April.

Well done I have the same

Please if you can help me

Please tell me treatment s

I have mayastheniya gravis. I am from sri lanka. I'm girl .l am17 years old.

Mg? Did it gradually get like that? Or quickly?

Ask them to be as fast as possible. Even with a mouth prop, you'll probably still struggle with swallowing. Which, for me was the biggest issue I had when sitting in a dentist chair with my mouth open...

Anne south Africa. My daughter was diagnosed with my genetica. When she was 6 and is in remission since 12. She is 33 years old with 2 kids. Can it came back. Thank you

Great, thanks for sharing this

I seem to make this mistake every week, when I feel good one day I do too much and pay for it the next day. Slow learner... Watching this is educating me to be smarter with energy.

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Beautiful 🙏🙏🙏🙏❤️❤️❤️❤️.

Thank you so much for this video. ! It helped me understanding more my OMG

how do you get meds? I am so tired

This is great info. Thanks for recording it.

Can digestive issues and myasthenia gravis be related?