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- Просмотров 63 356
Hope for HIE
США
Добавлен 14 ноя 2014
Hope for HIE is the premier worldwide organization dedicated to improving the quality of life for children and families impacted by Hypoxic Ischemic Encephalopathy through Awareness, Education & Support. Since organizing as an official 501c3 charity in 2013, Hope for HIE works tirelessly to ensure no family faces HIE alone.
Long Term Cognitive Impacts: Q&A with Dr. Melisa Carrasco McCaul
Dr. Melisa Carrasco McCaul, Pediatric Neurologist and Director of the TREES Lab at the University of Wisconsin-Madison. delves into perinatal brain injuries and their potential long-term cognitive impacts, focusing on her current research, the SPRINT Study, and its efforts to assess and enhance our understanding of cognitive outcomes in affected children.
Chapters:
00:00-3:42: Introductions
3:43-12:37: Overview of TREES Lab
12:38-19:43: The Current Research Landscape
19:44-31:16: SPRINT Study & Getting Involved
31:17-36:45: Recommended Resources
Chapters:
00:00-3:42: Introductions
3:43-12:37: Overview of TREES Lab
12:38-19:43: The Current Research Landscape
19:44-31:16: SPRINT Study & Getting Involved
31:17-36:45: Recommended Resources
Просмотров: 84
Видео
Exploring Ethics in Neonatal Clinical Trials: Q&A with Dr. Robert "Skip" Nelson, M.D. Ph.D.
Просмотров 70Месяц назад
Dr. Robert “Skip” Nelson, a renowned pediatric bioethicist and Senior Director of Pediatric Drug Development in the Child Health Innovation Leadership Department at Johnson & Johnson, joins Hope to discuss ethical considerations in neonatal trials. Chapters: 00:00-4:09: Introductions and Background 4:10-15:44: Historical evolution and perspectives regarding consent 15:45-27:33: Types of consent...
Child Life Q&A: Feeling Connected through Grief
Просмотров 46Месяц назад
Annie Gunning, Hope's Certified Child Life Specialist and Grief Counselor, met with our community to shed some light on how different age and developmental groups process loss and to provide meaningful remembrance activities that can bring comfort and form a sense of connection among family members as they grieve. Chapters: 00:00-3:35: Role of a Child Life Specialist and Grief Counselor 3:36-17...
Outcomes do not cancel out Trauma
Просмотров 91Месяц назад
Your trauma is valid and doesn’t get negated by your child’s outcome. You aren’t alone! #HopeforHIE #HIEawareness #HypoxicIschemicEncephalopathy #HIE #BirthTrauma #MildHIE #NICU #MentalHealth
HIE & Genetics
Просмотров 92Месяц назад
#HIE and #genetics! Let’s talk about the different types of research being worked on and advancing knowledge that can lead to decreasing the incidence and impact of #hypoxicischemicencephalopathy It’s exciting to see #OB #MFM #Neonatology and #PediatricNeurology all working on this! #HIEawareness #HopeforHIE #PatientAdvocacy #NICU #NewbornBrains
Navigating Moderate Outcomes: HIE Peer Perspective Series
Просмотров 97Месяц назад
This panel series features dedicated members of the HIE community who offer valuable insights into their experiences with the more moderate outcomes of HIE. Chapters: 00:00-1:40: Introductions 1:41- 9:07: NICU Experience and Next Steps 9:08 - 27:29: NICU Discharge and Early Years 27:30- 35:49: Mental Health Impacts 35:50 - 37:29: Helpful Support Resources 37:30- 50:14: Navigating School
Life with HIE Comes at You Fast
Просмотров 270Месяц назад
“The days are long but the years are short” We are here with you in it. Holding space, constantly building support and showing what HOPE looks like - across all ages, stages, outcomes and impacts with #HIE. You are never alone. #HopeforHIE #HypoxicIschemicEncephalopathy #ThisiswhatHOPElookslike #PatientAdvocacy #Hope #HIEawareness #NICU #neonatology #NewbornBrains
Become a Peer Support Mentor: Q&A with Haley Thomas, LMSW
Просмотров 21Месяц назад
Haley Thomas, Hope for HIE's social worker, explains how to apply to become a Peer Support Mentor! She reviews: 📌 The role of a Peer Support Mentor 📌 The role of a Peer Support Mentor On Call 📌 What Hope for HIE will provide 📌 How to apply Who we’re looking for: ➡️ Experienced peers with over 2 years in the Hope for HIE community. ➡️ Mentors who represent different backgrounds, races, ethniciti...
Hip surveillance with cerebral palsy and HIE
Просмотров 101Месяц назад
Hip surveillance with cerebral palsy and HIE
Epilepsy Diagnosis in Childhood after HIE
Просмотров 642 месяца назад
Epilepsy Diagnosis in Childhood after HIE
Learning, Attention, and HIE: HIE Peer Perspectives Series
Просмотров 1172 месяца назад
Learning, Attention, and HIE: HIE Peer Perspectives Series
Exploring HIE and Sleep: Q&A with Dr Renée Shellhaas
Просмотров 1422 месяца назад
Exploring HIE and Sleep: Q&A with Dr Renée Shellhaas
Learn about SOAR: Peer Support Program for Children with HIE
Просмотров 452 месяца назад
Learn about SOAR: Peer Support Program for Children with HIE
Child Life Q&A: Owning Their Story - Teaching Self-Advocacy Skills to Children with HIE
Просмотров 263 месяца назад
Child Life Q&A: Owning Their Story - Teaching Self-Advocacy Skills to Children with HIE
Navigating Hearing Impacts: HIE Peer Perspective Series
Просмотров 463 месяца назад
Navigating Hearing Impacts: HIE Peer Perspective Series
Building a Community of Culture of Research: Q&A
Просмотров 804 месяца назад
Building a Community of Culture of Research: Q&A
Causations & Misperceptions of HIE: Q&A with Dr. Mark Scher
Просмотров 1484 месяца назад
Causations & Misperceptions of HIE: Q&A with Dr. Mark Scher
Navigating Autism: HIE Peer Perspective Series
Просмотров 844 месяца назад
Navigating Autism: HIE Peer Perspective Series
The Importance of Data and Community Engagement in HIE Progress: Q&A with Dr. Danielle Barber
Просмотров 4774 месяца назад
The Importance of Data and Community Engagement in HIE Progress: Q&A with Dr. Danielle Barber
Parenting through Trauma: Q&A with Dr. LaTrice L Dowtin
Просмотров 444 месяца назад
Parenting through Trauma: Q&A with Dr. LaTrice L Dowtin
AI & Family Education: Q&A with Dr. Eric Peeples
Просмотров 235 месяцев назад
AI & Family Education: Q&A with Dr. Eric Peeples
Navigating Kidney Impacts HIE Peer Perspectives
Просмотров 285 месяцев назад
Navigating Kidney Impacts HIE Peer Perspectives
Participating in Clinical Trials - Betsy's Story
Просмотров 1,2 тыс.5 месяцев назад
Participating in Clinical Trials - Betsy's Story
Parent Perspective in Clinical Trials - Gabi's Story
Просмотров 1985 месяцев назад
Parent Perspective in Clinical Trials - Gabi's Story
Perspectiva de los Padres sobre Ensayos Clínicos e Investigación - Español
Просмотров 475 месяцев назад
Perspectiva de los Padres sobre Ensayos Clínicos e Investigación - Español
My son is almost six and has Severe HIE. He is doing well for having Severe. He has no physical symptoms, and is just developmentally delayed. Hes about the development of a 4 yr old. Most drs have never seen a case like his (He was without oxygen a LONG time due to Uterine rupture) being diagnosed Severe, and doing as well as he is for his circumstances
Living with HSV1 & 2 not been able to have a healthy relationship was messing up my life until I natural herbs from #dr_ehbos_herbs
My son has Severe HIE and is doing well for Severe. Even Drs are baffled that he's Severe
@@amandaboyens So many kids have a better outcome than predicted! We are learning more all the time behind the “why” and the more we know the more others may not have to endure so much with improved outcomes!
I am from India how to apply the admission
Go to HIE.Support and you can find links to our resources.
My baby has HIE mild to modearate plz help
That Nemo at the start has seen some shit
I heard with cooling, that it can make MRI appear normal. Just like ice on something swollen helps recuce the inflammation drastically. So my son's dr said studies are now showing you cant see the real extent of damage after cooling
Our baby has HIE
❤ Thank you.
Thank you for tuning in!
How can we schedule an appointment with Ashley Fielding for PT. My daughter has CP and would like to do DMI therapy with her.
She is a member of our Medical Advisory Board.
Thanks for sharing your story and positivity!😊
This is by far THE MOST informative video I’ve watched when it comes to feeding therapy. Thank you so much!!
Thank you so much for the comment and watching!
Thank you for having these conversations. My grandson has severe HIE.
We are here for you! We have a wonderful extended family support group over on Facebook, and 1:1 mentoring available for grandparents!
An MRI is how the brain looks, not how the brain works. Such a great quote!
Thanks for watching!
How's Stella now?
Stella is living her best life!
I love you Son
My child is diagnosis with HIE-3. Could you please let me know what I can do minimise the issue?
Are you a member of our support network? We cannot give medical advice, and recommend you join our peer support network - head to HIE.Support to connect in.
Thank you for sharing this information. Its educating us on HIE.
Do you get any benefit for that disabelity or any incom support my son have HIE 2 Stage thanks x praying for you 🙏🏽 he is doing well x
If you would like to connect with our social worker at HIE.Support, she can help you navigate any benefits you may qualify for!
😄 𝕡𝐫o𝕄o𝔰𝓶
Hii sir how to cute in Hie please sir
Why still OB/GYN are not concerned about nuchal cord? In our case we specifically asked about nuchal cord and OB/GYN told it cannot be seen in ultrasound report and it is common and which should not be a much concern if heartbeat of baby is fine and moving. But we ended up with 4 rounds of nuchal cord and moderate HIE.
My heyeroplasmy is 19/ is it good ?? Please let me know
Great and Helpful tips to get rid of infantile spasms by Dr Omar on youtube. Please subscribe to his youtube channel. He got nice meds and it's safe ruclips.net/video/L_sbqN_My7w/видео.html
You can get rid of infantile spasms by using Dr Omar special herbs and medication. You can subscribe to his youtube channel by searching Dr Omar meds
❤️
Respect sir/ma'am I am Sushila Chaudhary from Nepal 🇳🇵.Now I'm 29 years old and I have a 3 years old daughter and just yesterday I came to know that she is suffering from HIE. Please suggest me what to do now? How can I take care of her? Still she can't speak, walk or crawl, please suggest me.
Just do exactly what you are doing because it is working. HIE is a serious condition that can cause children to suffer disabilities. You have done incredibly well so just keep giving her the love and care she needs. Are there any hospitals in Nepal that are knowledgeable about this condition? Sorry my reply is 8 months late I have only just come across this channel myself.
@@ryanneedham7466 Thank you soo much for replying and suggestion..now slowly she is a improving herself...still she can't walk or speek but her actions make me understand. In Nepal there is no special hospitals for HIE but some nuerologist suggested for Therapy...
Hi,my premature baby had HIE the dr said HIE 1 but as have seen and read HIE GRADE 1 DONT CAUSE SEIZURES and my baby has epilepsy,can you explain please...my baby had HIE GRADE1, PVL, BRAIN BLEEDING LEFT GRADE1 RIGJT GRADE2,SEPSIS KLEBSIELLA BACTERIA NEC...
My son was stage 2 HIE, he walks, plays, says his alphabet ,counts, follow the actions of his nursery rhymes, says up to about 15 words,very energetic, however, he hasn't said mommy or daddy yet and he hardly ever respond to his name. I don't know if there is a speech delay of some sort so I am concern about that.
When he hold his neck
Speech delays are very common with HIE. Is he in speech therapy?
Omg that is so good i have premature baby with HIE as well but she has epilepsy...does your baby has epilepsy
@@learning-and-fun no he doesn't.
@@learning-and-fun he was recently diagnosed with a mild developmental delay where responsive speech is concerned though.
Can spasms comes again after treatment
Hi,sory to say it but yes the neurologyst of my daughter said to me that yes they can return back...
Which stage of hie was Dylan diagnosed with?
When she hold neck
How's your beautiful baby girl doing, hope all is well, wonderful video, sending love your way
What grade of hie
Would it be possible to have the link to the recent research published on Artane for dystonia (mentioned around 21:00), please?
I wish you all the best!
Thanks for this! I'm not a nurse, but I love a bunch of them! As an HIE parent, this is so helpful!
Hi mam wats the hie stage of ur baby?
Thanks for this! Definitely things that have been on my mind recently.
Happy to see ur son.....may I know the hie grade or stage of ur son mam?