Видео

Thank you, have been gone a long tie but I'll get back to it ASAP. If you have a request I'm always interested.

Thank you I deeply appreciate it.

Thank you brother it will be a live commentary

That's weird...

Ill try to schedule it better

Yes let me know

I hear yu, it is brutal. Here's a video that I hope can help. Take care

ruclips.net/video/Ck2SIY5abUE/видео.html

Sorry first experience on going live not used to it. Thanks for the kind words hope you re well.

I was diagnosed with severe refractory insomnia and chronic fatigue syndrome. I had a virus that attacked my neurological system from working security in an old hospital full of bacteria in the walls. We can talk if you want idk if we have similar time zones. Until then take care.

Insomnia, gut health, Batman, music, health issues, etc.

What kind of music you listen too If you listen to rap you should listen to thatmexicanot

@@joshuadelacruz2955 Alright I will thx. I listen mostly to movie soundtracks like Hans Zimmer but I like rap too.

There will be others, glad to hear you we sleeping. Take care.

Here are a few tips that can help. Good luck ruclips.net/video/Ck2SIY5abUE/видео.html

If you have SFI or FFI after 2 years you would be dead by now. Once these conditions are triggered they progress rapidly. And if you are cognitive to type a reply to this youtube video you don't have it because after a few months your ability to think would be gone because of dementia. Another problem with your diagnosis of FFI, it is only transferred genetically, so someone in your families past had to have it and there is only 40 families in the world that are known to have the genetic coding for FFI. As for SFI, can you walk and talk and think because at first that what usually goes first with SFI. Most people who have SFI aren't true insomniacs they do sleep but don't get the restorative sleep they need because of condition and usually the more world other conditions like dizziness or motor function problems (ataxia) or cognitive thinking(dementia) the insomnia is the least of their worries and usually comes later on. SFI is so rare on 39 cases in US have been documented could there have been more that was misdiagnosed yes absolutely but right now that is the best data we have. I have insomnia, myself, its a bitch, and I thought I had these conditions just like everybody else and I simply don't. I don't know what triggers mine but I am working on it and I have insomnia for over 6 years now.

You can talk with me josh I'm scared to

Get a polysomnography ASAP, else I'd recommend ca.helight.com/. I know how brutal it is, best of luck Paul.

So sorry to hear that, I know the feeling quite well...Try watching this video I made theres a few good tricks that I hope could help. Best wishes.ruclips.net/video/Ck2SIY5abUE/видео.html

In my case it is permanent. Hopefully, each person is different. Thx for watching.

@@thevirtuoso6168 but you do sleep, right?

@@GaryFountainHills With my medication that took 13 years to find yes

@@thevirtuoso6168 that's right, Dayvigo. How many hours do you sleep now?

I see you every where Gary. If you ever want to talk at night let me know. I could use someone to talk to

At first I experienced night terrors for a week or two, but yeah after dozens of medications, Dayvigo has been working best, but I also take 4 other drugs because I have other illnesses than insomnia.

@@thevirtuoso6168 gotcha. How many hours of a night do you get?

Since I jumped from sleeping pills to hypnotics, its another world. Sleeping better but damn it costs 130$ a month. Thanks for watching.

Thanks for the question, I saw 4 psychiatrists during the process. No help there...

@@thevirtuoso6168I have a few question man maybe you could help pretty much. I went to a sleep study, and I told him that I lost the ability to sleep on my own and just relying on medication asleep told him that I might have sporadic, fatal, insomnia, or something like that and they told me that it is all in my head and that I will sleep in three days good thing with me is that I know I won’t be sleeping and will be awake forever. If I stop my medication now how come these doctors don’t listen to what I have to say even went to a neurologist they didn’t took me seriously

Batman is still Batman without his gadgets. My money's on him ;)

Thanks for watching.

Im so sorry...get to a sleep clinic (polysomnography) asap. Get a good doctor that takes you seriously. Best of luck, always here for you

Thanks! I appreciate it.

Thank you so much, you made my day. Best wishes.

Thx a lot, you made my day. All the best

Thats very true, thanks for the advice

well...its supported by some research according to google but i know a monk who hasnt slept for 26.5 years and just meditate for 14 hours a day that man has been monitered by the local authorities trying to prove him wrong but all of them have failed🤣🤣

Thank you very much for the kind words. You made my day.

@@thevirtuoso6168 Keep fighting every moment of your life against this. You will succeed one or the other way!

Im not familiar with the term familial insomnia

@@thevirtuoso6168i believe that it past done from a person that has the gene and can past over to there kids

@The Virtuoso How are you doing, Virtuoso? I have never gone through what you are going through. I do suffer from insomnia, so does my son, but we never know when it's going to strike, but we both get a few hours sleep, usually after about 4am, on nights we have it. We both think our problem is that we can't switch our brains off. My children's father and our daughter, can practically go to sleep as soon as their head hits the pillow. I have never been able to do that; except when I had Mononucleosis (aka Glandular Fever).

@@NEGAN_JaneMisimovic Im truly sorry to learn this...it must be crushing to see your child suffer, and you...I am doing better but the new meds my neurologist put me on are ridiculously expensive. Wish you the best, and if I may I would recommend you to watch my video 'Tips to fall asleep faster', it is what helped me the most outside of medications.

I've lost the ability to sleep but not feeling tired. Honestly if your medication works I'm happy for you, I had to wait 6 years and try dozens of medication before finding a neurologist that took me seriously.

@@thevirtuoso6168 I'm so sorry. Are you able to sleep now?

My medication is very hit and miss.

@@twodeadpxls Yes, the war is somewhat over, I just can't bare the fact that they don't know what I have and got the balls to say it is incurable.

@@twodeadpxls I'm so sorry, the doctors and their fucking coktails...

I am better, thanks for asking.

Been there, lost my house, girlfriend, job...wish you luck

fr.helight.ca/products/helight-sleep?gclid=CjwKCAiA0JKfBhBIEiwAPhZXD2BsH-aBHZuvxCLw8Zzm6qoSzefYvMrojMvbDtcCu2Uy4BW1G_sWqhoC1KUQAvD_BwE

Yeah my heart was pumping as fuck, thats why lavender oil works for some people, lower the heart rate. I never 'dreamt' awake but I saw some crazy shit. It took 6 years for me to be properly tested and getting knocked out in a 400$ a day private clinic.

Sorry to hear that. It is quite the battle, let me know if I can help.

@@thevirtuoso6168 what's a good way to sleep the best way please tell me!!!!

@@shawngilmore3628 Heres a good way to start I made this video on the subject : ruclips.net/video/Ck2SIY5abUE/видео.html

@@thevirtuoso6168 ok thank you!!

I just went to sleep for like two hours and just wake up why it felt like 6 hours!!

In my case I always continued to exercice to keep my heart healthy (insomnia causes a lot of exhaustion) but sadly it never changed my sleep. Good thing is I hope youre not like me. It always helps, of course, I hope it does for you. Meanwhile get a helight, its the best non-chemical thing that has really helped me fall asleep. Its not cheap but your health isnt either. Being cold yeah it comes very fast and it sucks. As for staying in bed, everyone says bed is for sleep only if you dont sleep dont develop a mindset of not sleeping. I find that idiotic and not true in my case, like you said they've never been like us. Plus when you dont sleep your vision becomes foggy so I prefer my bed to a speeding car, but thats just me. Hope it helps, find a sleep clinic asap. Wish you the best.

Im so sorry for your situation, I empathize. Yes, Gaba works well for me. Here are my tips for relaxing the mind and falling asleep faster (or at all). A few tricks available to everybody : ruclips.net/video/Ck2SIY5abUE/видео.html

I never took Ambien but Im sure the withdrawal is horrible. I hope you can find a doctor that take you seriously. A polysomnography is an absolute must. I only got what I needed from a neurologist, regular doctors didnt know shit. Again Im no healthcare professional, just my own experience. Find a sleep clinic ASAP, I know the road is harsh and I dont know how your insurances work, but again I wish you the best of luck. Come back if you have any question I can answer (legally). I'll never let anyone behind if I can help.

He's got every right to describe what he's going through due to his disease. It may encourage people in similar situation to seek help. Spreading information about diseases (especially the rare ones) is important. He's brave to share such intimate information and thoughts. He's not trying to scare anyone. If you feel scared, it's ok, just don't watch it. It's that simple.

@ Thank you.

My thoughts exactly

Yep, he’s exactly like Karl. My wife had all symptoms and died and she didn’t have the mental ability to do RUclips videos let alone talk at all once symptoms became more advanced. He’s standing and talking like Karl.

I'm truly sorry for your loss, but please understand that it's been 10 years since I've been diagnosed and medicated. I consider myself very lucky. Please understand that I am only making these videos to help people the best I can. Stay safe & healthy, and again, so sorry for your loss, I can't imagine the pain. Take care.

Thank you for sharing your thoughts and yes, it is a battle indeed. As always, I am NOT a healthcare professionnal, but I would recommend you to wach my 2 videos My Battle with Fatal Insomnia and 'Tips for falling asleep faster. In those 2, I share all my tips for falling asleep and staying asleep. I cant recommand you to use alcohol, but I understand your desperate need to use anything to get the job done. I am guilty of it but I would never recommend it so do as you please. I'd start with getting a Helight fr.helight.ca/?gclid=Cj0KCQiAt66eBhCnARIsAKf3ZNFyBYVoxaVlbd7clv5mlWd4V45UEvj3X-LwRjbwgYZi9TGpJ_Qo5ykaAm8xEALw_wcB Best of luck and never hesitate to ask for help, I pray you find a good physycian or neurologist, I know it is Hell so continue to be brave.

@@thevirtuoso6168 I’ve got a question is there anyway that I can improve my sleep? I’m already taking try to trazdone melatonin is there any other sleeping supplements, I should take to have more effect towards it or should I go into a different medication since I can’t sleep on my own at all

@@joshuadelacruz2955 I suggest you watch this video I made if nothing works you can always come back to me I will answer, and of course I have to say Im not a doctor. Godd luck. ruclips.net/video/Ck2SIY5abUE/видео.html

@@thevirtuoso6168thanks man

I survived, thanks for caring.