- Видео 22
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CJD Support Network UK
Добавлен 24 сен 2020
The CJD Support Network is the only UK charity providing emotional and practical support for all strains of CJD and for those who are at greater risk of CJD. For more information, visit our website: www.cjdsupport.net/
Dave Richardson 'Living with the risk of iatrogenic CJD'
If you are affected by any of the themes raised in this video, please visit cjdsupport.co.uk/crisis-support/ for information on where to access immediate support.
Between 1959 and 1985, human growth hormone (hGH) extracted from the pituitary glands of people who had died, was used in the UK to treat severe short stature. In 1985, one of the people treated died from the prion disease CJD. A link to the treatments was suspected, so the use of this type of hGH was stopped. This link was later confirmed. Nearly 2,000 individuals received this form of treatment before it was stopped, 81 one of whom have since died with the prion disease CJD. Dave is one of the people who is at an increased ris...
Between 1959 and 1985, human growth hormone (hGH) extracted from the pituitary glands of people who had died, was used in the UK to treat severe short stature. In 1985, one of the people treated died from the prion disease CJD. A link to the treatments was suspected, so the use of this type of hGH was stopped. This link was later confirmed. Nearly 2,000 individuals received this form of treatment before it was stopped, 81 one of whom have since died with the prion disease CJD. Dave is one of the people who is at an increased ris...
Просмотров: 38
Видео
International awareness day video 2024
Просмотров 2152 месяца назад
12th November is International CJD Awareness Day. A time for us to come together with friends across the world to raise awareness of CJD and prion disease. We would like to thank all who have contributed photos of their loved ones for this CJD Support Network UK video. For further information and support visit www.cjdsupport.co.uk
Elizabeth (Lizzie) Hill - Introduction to Prion Disease
Просмотров 303 месяца назад
Elizabeth (Lizzie) Hill, MRC Prion Unit PhD Student, gave an introduction to prion disease at the CJD Support Network 2024 Family Support Meeting. This could not be recorded on the day, however Lizzie has kindly recorded her talk separately for us to share on our channel. If you wish to get in touch with the CJD Support Network, please contact support@cjdsupport.co.uk
International CJD Awareness Day - 12th November 2023, CJD Support Network UK
Просмотров 592Год назад
12th November is International CJD Awareness Day. A time for us to come together with friends across the world to raise awareness of CJD and prion disease. We would like to thank all who have contributed photos of their loved ones for this CJD Support Network UK video. For further information and support visit www.cjdsupport.co.uk
Professor Richard Knight - Overview of prion disease
Просмотров 210Год назад
Professor Richard Knight giving an overview of prion disease at the CJD Support Network 2023 Family Support Meeting. (Subsequent Q&A session not recorded). If you wish to get in touch with the CJD Support Network, please contact support@cjdsupport.co.uk
Professor Simon Mead - Treatment update
Просмотров 168Год назад
Professor Simon Mead giving a treatment update at the CJD Support Network 2023 Family Support Meeting. (Subsequent Q&A session not recorded). If you wish to get in touch with the CJD Support Network, please contact support@cjdsupport.co.uk
Dr Diane Ritchie - Research update
Просмотров 79Год назад
Dr Diane Ritchie giving an update on her CJD Support Network Grant funded research at the CJD Support Network 2023 Family Support Meeting. (Subsequent Q&A session not recorded). If you wish to get in touch with the CJD Support Network, please contact support@cjdsupport.co.uk
Dr Alexander Peden Research introduction
Просмотров 72Год назад
Dr Alexander Peden introducing his CJD Support Network Grant funded research at the CJD Support Network 2023 Family Support Meeting. (Subsequent Q&A session not recorded). If you wish to get in touch with the CJD Support Network, please contact support@cjdsupport.co.uk
Dr Edgar Chan and Rhianna Brien - Research introduction
Просмотров 161Год назад
Dr Edgar Chan and Rhianna Brien introducing their CJD Support Network Grant funded research at the CJD Support Network 2023 Family Support Meeting. (Subsequent Q&A session not recorded). If you wish to get in touch with the CJD Support Network, please contact support@cjdsupport.co.uk
International CJD Awareness Day - 12th November 2022, CJD Support Network UK
Просмотров 1,2 тыс.2 года назад
12th November is International CJD Awareness Day. A time for us to come together with friends across the world to raise awareness of CJD and prion disease. We would like to thank all who have contributed photos of their loved ones for this CJD Support Network UK video. For further information and support visit www.cjdsupport.net
CJD Support Network
Просмотров 3582 года назад
This video introduces the CJD Support Network. If you would like to get in touch, please call 0800 774 7317 or email support@cjdsupport.net
Managing the Symptoms of CJD: Communication
Просмотров 1563 года назад
As part of our support session on managing the symptoms of CJD, Margaret Leitch (Senior Nurse/National CJD Care Coordinator) discussed communication changes.
Managing the Symptoms of CJD: Cognition
Просмотров 873 года назад
As part of our support session on managing the symptoms of CJD, Phil Parker (Lead Nurse, MRC Prion Unit) discussed cognitive changes.
Managing the Symptoms of CJD: Continence and Personal Hygiene
Просмотров 1153 года назад
As part of our support session on managing the symptoms of CJD, Margaret Leitch (Senior Nurse/National CJD Care Coordinator) discussed continence and personal hygiene.
Managing the Symptoms of CJD: Mood and Behaviour
Просмотров 2123 года назад
As part of our support session on managing the symptoms of CJD, Phil Parker (Lead Nurse, MRC Prion Unit) discussed difficulties with mood and behaviour.
Managing the Symptoms of CJD: Mobility and Coordination
Просмотров 643 года назад
Managing the Symptoms of CJD: Mobility and Coordination
Managing the Symptoms of CJD: Carer Support
Просмотров 443 года назад
Managing the Symptoms of CJD: Carer Support
Managing the Symptoms of CJD: Eating and Drinking
Просмотров 1913 года назад
Managing the Symptoms of CJD: Eating and Drinking
Managing the Symptoms of CJD: Advice for Carers
Просмотров 2593 года назад
Managing the Symptoms of CJD: Advice for Carers
Genetic Forms of CJD and Risk in Families
Просмотров 5384 года назад
Genetic Forms of CJD and Risk in Families