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Epilepsy Foundation of Metropolitan New York (EFMNY)
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Добавлен 13 авг 2015
The Epilepsy Foundation of Metropolitan New York has been at the heart of the NYC epilepsy community for almost fifty years, and is NYC's only specialized organization combining epilepsy education, awareness, and advocacy with individualized services such as counseling and vocational supports.
Epilepsy Education Webinars — Thursday, March 23 @ 7:00 PM
Epilepsy Education Webinars presented by the Epilepsy Foundation of Metropolitan New York with SK Life Science, Inc. & UCB Pharmaceuticals, Inc. - Thursday, March 23 @ 7:00 PM
Introduction by:
Dr. Fred A. Lado
Professor of Neurology & Director of Epilepsy: Central & Eastern Regions, Northwell Health
***
Advances in Anti-Seizure Medications and Surgery/Neurostimulation
Sponsored by SK Life Science, Inc.
7:00 - 7:45 PM
Presented by:
Dr. Steven M. Wolf
Patricia McGoldrick, NP, MPA, MSN
BCH, MFCH, NYMC
***
Women & Epilepsy Across the Reproductive Years
Sponsored by UCB Pharmaceuticals, Inc.
7:45 - 8:30 PM
Presented by:
Dr. Blanca Vazquez - Director of NYU Langone Brooklyn Epilepsy Program
Dr. Lara Marcuse - ...
Introduction by:
Dr. Fred A. Lado
Professor of Neurology & Director of Epilepsy: Central & Eastern Regions, Northwell Health
***
Advances in Anti-Seizure Medications and Surgery/Neurostimulation
Sponsored by SK Life Science, Inc.
7:00 - 7:45 PM
Presented by:
Dr. Steven M. Wolf
Patricia McGoldrick, NP, MPA, MSN
BCH, MFCH, NYMC
***
Women & Epilepsy Across the Reproductive Years
Sponsored by UCB Pharmaceuticals, Inc.
7:45 - 8:30 PM
Presented by:
Dr. Blanca Vazquez - Director of NYU Langone Brooklyn Epilepsy Program
Dr. Lara Marcuse - ...
Просмотров: 104
Видео
Seizure Detection Using Wearable Devices: Current & Emerging Technologies
Просмотров 1,2 тыс.2 года назад
Disease-state focused webinar presented by the Epilepsy Foundation of Metropolitan New York and LivaNova on Thursday, October 7, 2021 at 6:30 PM.
Seizure Clusters: Unmet Needs & Emerging Formulations [Webinar]
Просмотров 3113 года назад
Presented by Epilepsy Foundation of Metropolitan New York on Monday, November 23, 2020 at 7:00 PM
PREVENTING BREAKTHROUGH SEIZURES: You Can Do More Than You Think
Просмотров 9363 года назад
Upcoming Disease-State Focused Webinar Presented by the Epilepsy Foundation of Metropolitan New York and Eisai Inc.
Understanding Infantile Spasms - Symptoms, Diagnosis & Research
Просмотров 126 тыс.8 лет назад
Pediatric neurologist Dr. Steven Wolf & Patricia McGoldrick of the Mount Sinai Epilepsy Center discuss Infantile Spasms, also known as West Syndrome, a rare form of childhood epilepsy that typically affects infants within the first year of life. Learn how to recognize the seizure clusters typical of Infantile Spasms, why early diagnosis and treatment is paramount, and what is being done in the ...
Infantile Spasms Awareness - Epilepsy Foundation of Metropolitan New York
Просмотров 321 тыс.8 лет назад
Infantile Spasms is a rare form of age-specific epilepsy that usually presents itself in children within the first year of life. Early diagnosis and treatment of Infantile Spasms is of the utmost importance, and in many cases can ensure a more positive prognosis and a better quality of life, and significantly increases the chances of achieving reaching normal child development milestones. In ho...
'Into the Light' Walk for Epilepsy NYC - Epilepsy Foundation
Просмотров 2909 лет назад
1 in 26 people will develop epilepsy at some point in their lifetime. Please join us as we walk for AWARENESS, EDUCATION and EMPOWERMENT, and become a part of the EFMNY’s ongoing efforts to make a meaningful difference in the lives of those affected. The community's participation and the outpouring of support for the ‘Into the Light’ teams let others know they are not alone. To register today, ...
Why We Walk: 'Into The Light' Walk for Epilepsy NYC
Просмотров 1919 лет назад
Connect with New York's epilepsy community on September 20th, 2015 at South Street Seaport, NYC for the 4th Annual 'Into The Light' Walk for Epilepsy! Join us as we walk for awareness, education and empowerment. To register today, please visit EpilepsyIntoTheLight.org The Epilepsy Foundation of Metropolitan New York has been at the heart of the NYC epilepsy community for almost fifty years, and...
My son has the spasm and they can not diagnose him here in Fiji....can you help him🙏
I need to see this lady 8 years later i am here seen wru i need to see ur baby today
What is the Cure/Treatment for Infantile epileptic spasm?
my baby girl same problem last 5 mouth what's the best treatment
Could u please post her latest video
Please tell me how is the child now
which infantile spasms type it is which story is displayed in video? head dropping forward & same arms legs movement ??
My son also has this disease he is 22 months old we are also getting treatment for him can anyone tell me how long this disease will get cured. From pakistan,peshawar
Hey brother i'm also from akistan fron where are yiu getting treatment and how is your child now pls reply?
My baby is 5months old and she has infantile spasms....it started when she was 2 months old And she has head drop...
Hi did you get any help how is your baby now
Ya Allah do not test me with more than what I can bear and grant cure to these sick infants Aameen.
Ameen
Please pray for my child she had the same
@@ameerameer3215 How is she doing now?
Aamin
Hindi
Can levetiracetam syrup work to stop infantile spasm?
My son has also discovers with IS and doctor recommend levetiracetam . Does it help in your case
One recommended going to the emergency room immediately and the other recommended just taking a video and going to see pediatrician.
The point is to not wait for a very long period of time. Like if a pediatrician appointment is scheduled within 2-3 days you might not need to go to an emergency room. But if have to wait for long periods of time it is better to go to an ER to prevent brain damage
My daughter suffering from west system since 6years ....2 years stoped jerking movements..now again started ... please help me
My baby is having infantile spasm right now and sad to say that the drug name sabril is not available here in the Philippines. My baby is taking topiramate and keppra 5 days from now. Hope it will be both effective but somehow I am curious about the sabril because I heard a lot of parents they said it is effective.
Now this mom I admire.
My daughter is 2 now she was born at 7 months and has spasms and also cerebral Palsy quadriplegic we are on physiotherapy but not improving up until now she is unable to sit on her own,cralw, etc is there anything we can do please help am in Malawi
12 months complete baby please help my Indian Disha Yevadu Heli sir🧠🧠🙏🙏😢😢 please help sir
DrObahistoricalherbs.
poolbabyChloe me andAshley mybabyEllahave seizuresxxx
All thanks to Dr oba on RUclips who cure me from epilepsy virus to I’m free thank you once again Dr you are the best on RUclips.
Infantile Spasms Awareness - Epilepsy Foundation of Metropolitan New York [ KESEDARAN TENTANG PENYAKIT INFANTILE SPASMS ; YAYASAN SAWAN KOTA METROPOLITAN NEW YORK ]
Thanks Any one WHO post this video my son have Wright medicin
You can get rid of infantile spasms by using Dr Omar special herbs and medication. You can subscribe to his youtube channel by searching Dr Omar meds
Amazed how Doctors can contradict themselves in the same video. Should I wait to take a video or should I go immediately to er? Jesus Christ
My thoughts exactly. We got an appointment for an EEG a month from today but after seeing this video we decided to go to the ER. We were admitted the same day and now we're getting an EEG in the morning.
@@juliegarcia802 what were the results? Is there an update?
I was just thinking this. Now I don’t know what to do because I think my baby might be having infantile spasms
I'm my case I took my son to the ER where he was misdiagnosed with reflux. I took him back home and called his pediatrician. She schedule a visit for the same day. We took him and she helped us and he was seem by a neuropediatrician next day. He was them admitted to the hospital in order get an eeg and mri done asap. Luckly it was not as bad as infatile spams but he was having seizures. He is now fine. Taking medicines twice a day.
My uncle who is almost 60 has Epilepsy also mental retardation my grandfather noticed the seizures when he was 2 but it makes me wonder if he knew about this information things would be different for him 😞
This is a hard journey. Perinatal hypoxic ischemia...6 months relatively normal dev...gentle spasms that looked almost like morrow reflex upon waking...EEG showed not full blown hypsarrhthmia...ACTH course worked with endless appetite and a month of being zoned out...3 days After ACTH ended spasms started again...heartbreaking...on the 3rd treatment now...It is soooooo hard to watch and be able to do nothing...Reading about the prognosis is burdensome in the extreme...Does anyone have a time machine?
What is developing Hypsarrhthmia
My baby behaves just like this after 5 days from birth till now. Cranial ultrasound was done to check if there were brain damage but everything was normal.we then did an EEG Which showed cortical dysfunction. When I asked the paediatrician he told me that maybe it is because of luck of enough oxygen in the brain at the time of birth, like the baby did not cry as expected. Three months now he's been on epilim syrup and Nootropil tables. I hope this seizure will one day go. I'm trusting the process and believing in God.
How’s ur baby now?
@@saravanch2003 he's still on Epilim syrup and vigabantrim (sabril), the seizures are not intense as it used to be
@@louizahochola6259 thanks for your response. My kid is in 4th month now and diagonized with infantile spasm. We could not Believe such a rare disorder will affect her. But eeg confirms it and now taking Viganext 500mg. The episodes are around 6-10 times a day and lasting for about 30 seconds to 2 mins and the baby is crying. Taking an mri soon. We are also worried about her. She is our first kid. Hope doctor and god helps her to be better. I may come back here for more responses and updates. Wish ur kid a speedy recovery. Take great care of him
@@saravanch2003 God will remember us, I believe, because these babies belongs to God we are only their caregivers. I am also believing that they will outgrow these conditions because it hurts as a parent seeing your baby suffering and crying helplessly and there is nothing you can do. I would advise you to start your baby on occupational therapy as as soon as possible like I did so that your baby might achieve her milestones early and quick and it also make her to be physically fit. Good day, may God give you and your family peace of mind, strength and wisdom during this time. All the best dear.
My baby too has these symptoms,I have just realized now,and the milestones are so slow but I trust God
Good afternoon, My baby born at 34 weeks premature...now she is 5 weeks old I've recognized this behavior at at almost 2 weeks old and have been told on 5 visits to 2 different pediatrician its colic... She dont cry like a colic baby would... but I can tell she's in discomfort... I've been searching Google and RUclips for answers only to come across this video and wondering if it's already to late... I'm from Trinidad and Dr. keep saying is colic... Can someone reply with how long it took them to start treatment with a positive outcome couple years after... thanks in advance
My child's doctor told me the same thing when she was a baby. Even as she got older her would push my concerns away and tell me she was fine "she's just lazy" because she didn't crawl until 18 months and didn't take her first steps until she was 2 1/2. Fast forward to now. She's 8 yrs old. At 4 they did an EEG and MRI. She has epilepsy from a traumatic brain injury before birth. I wish I would've listened to my gut.
@@tiffanyheilman6119 thank you for this response...I'm so sorry she had to go through so much hope it get better soon...I will push harder to find out more...
@@tiffanyheilman6119 pls reply mam what injury baby had?? Is she fine now
Go to pediatric emergency .. and don't leave untill they do EEG for your child
We went to children's hospital, then transferred to pediatric specialty hospital and now getting EEG in the morning. Doctor said it is seizures. But with EEG exam will know more information and start medication. Keep pushing the doctors, insist and go with your gut. Take videos of your child and show them to the doctor. You know your child best and they need you to fight for them. Hope your baby gets help soon!
Please help me out plz
Dr Omar of (dromarsolutionhome@gmail.com) got you and can be off great help to you all epileptic patient reading this. His herbal meds is quite good, powerful, safe and it works perfectly.
Go to the doctor
The director is a good looking pediatrician 😂
Ohh God my baby has it all plz doctor help me find the best treatment am in Uganda please
Clear and informative video .Thanks from a medical student
My baby has seizure disorder.high risk pheumonia with hypoxia.that cause his infantile spasms.he is 1 yr.4mos right now.the Doctor give phenobarbital as maintenance for his seizure.
Hi how is ur baby now?
Is there any method to send you a video of a baby to know whether its a spasm or not.
ALLAH YAR VE YARDIMCINIZ OLSUN ABLAM ABİM
My daughter does this but her eeg report is normal... So is it due to colic or any disorder
How iur daughter dors
My daughter have also a seizure, I hope someone's can help me.
My grandson just experienced something like This tonight. I’m so scared! He’s 7 mos old. I know what constipation looks like and tantrums tnis was not either. He did it at least 4 times. We got it in video I’m so thankful for this video. We are taking him immediately
What did the doc say?
@@kinzahussayn479 they did an EG he is absolutely fine now. There was no seizures seen. I am so thankful. I have no idea why he did that but he isn’t doing it anymore!!!!
@@red-lotus1 thats great
M so happy for you also my twins are doing it and m so stressed
Thank you my baby is under treatment he is now using sabril 500mg which give us good improvement
How’s your baby now? My baby has same problem.what can i do.?
How is your baby now? My baby is on oral steroid but still has spasm everyday
I think, it is very important to inform parents about making EEGs to exclude infantile spasms, when necessary. But it is also worth showing, that most of strange looking baby movements are nothing to worry about. This is mentioned in the last sentences as a conclusion, but me it would help to explicitly show it. Could you show differentiations to something "normal" ? (like for example ruclips.net/video/S5zcO3Ew3Hs/видео.html ) Thanks for your great work.
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ماهو علاج الحاله عندى طفل نفس هذا المرض😪😪
لازم تروح الطوارئ فورا .. لان اي تاخير يجعل الطفل متأخر عقليا ..
Stop vaccinating your child and they will be better off. My kid started seizing within 2-3 hours of his Dtap IPV vaccine. Then 4 days in hospital. Since then I've gotten educated. Vaccines are exploitation of children by bio-chemical companies for profit. The more you learn, the more this will become clear
My baby just got the vaccine monday and she started seizing 3 hours later. Nothing showed up on the EEG however. How is your child now?
@@nataschabiltsted3929 My son was two and a half months old when 2-3 hours after vaccination he would frequently seize for a couple seconds at a time. Sometimes the seizure would last four to five seconds. The longest I observed was 9-10 seconds. ...Which is a really long time to be frozen unable to breathe... watching your child go purple in the face, because his body would clench up. After two days of this we took him to the emergency at the hospital. They were less interested in considering an adverse reaction to vaccination and more interested in testing him in every way possible for signs of child abuse a.k.a. "shaken baby syndrome". Our pediatrician put the hospital on a witch-hunt against us, in spite of us explaining that it had to be the vaccine. So this was eye-opening to see the politics behind pushing the idea that vaccines are "safe and effective", notwithstanding the vaccine info packet I received from the pediatrician's office clearly lists seizures and spasms as known side effects. His EEG was fine, brain MRI fine, retina inspections fine. They discharged him as having "infantile spasms". He continued to have spasms for a few weeks. They gradually dissipated and went away. We vaccinated him again at age 5 and 1/2 months and he again started having mild spasms or seizures. So that was the nail in the coffin and we have not vaccinated since and he has not had spasms or seizures since. He is doing fantastic now. When I replay in my mind him seizing up and what the problem may be, I believe the thing affecting his brain was inflammation. Inflammation caused from the vaccine. When the brain is inflammed it becomes swollen and very sensitive. He was most sensitive to abrupt movement. ...When picking him up or riding in an elevator that stops, these movements would trigger him to spasm. My best advice is to take ginger care of the child while the brain is inflammed. Limit over-stimulus. Bright lights, loud sounds, stress, abrupt movements. Be gentle with the child and let them gradually heal. The other thing that can be inflammatory is food. Obviously breast milk is best. Sugary baby formula is not good. Sugar is inflammatory. Also fluoride in drinking water has been shown to be bad for child's brain development. Don't feed baby formula from tap water. Gentle Touch is healing if they respond well to it. Holding, cuddling. Not necessarily stroking, if it causes too much stimulus. Gauge their reaction. Put yourself in their shoes. Oxytocin, the love hormone, is an incredibly powerful healing brain hormone. I don't see how a drug will help the situation. Getting rid of the spasm with an anti-convulsant doesn't rectify the underlying reason why the child is spasming in the first place. If there is an injury to the brain, the solution is in restoring health to the brain. Most children, if their gut health is in tact, will be able to process the toxicity out of their body and do the natural healing process. Then the symptomatic expression of injury (spasms) will go away. Children who have taken antibiotics will have disrupted gut health. It's important to understand that gut health does the following three things 1) process food, 2) clear out toxins, and 3) produce hormones for the brain. Much of hormones for the brain are produced by bacteria in the gut, as well as in the brain. Gut microbiome (flora, good bacteria) out of whack is one of the most abrupt areas of disturbance found in autistic children. Their gut bacteria is very very disturbed. This is why breast milk is so critical to baby's gut health because it provides the microbiota from the mother to the child. If you can't breastfeed your child yourself then source breast milk from another mother. When a child's gut health is restored then it will lend to healing brain health as well. The two can't be separated. If there were a "medication" to take for brain health, then I would start with PREGNENOLONE...considered the mother of all brain hormones. It's what your brain naturally makes from cholesterol and then turns into all the other brain hormones like cortisol, testosterone, DHEA, estradiol, serotonin etc. Remember that what I observed in my child was symptoms of brain inflammation. And when the inflammation subsided, he got back to normal. How to get healthy... Fresh air outside is good. Get out into nature. Go to the park. Go to the woods. Breathe it in. ...Nature's flora. Some daily sunshine exposure to bare skin is good. Vitamin D is synthesized by a reaction between sunlight and cholesterol in your skin. Supplemental Vitamin D is not a substitute, but better than nothing. Vitamin D is a powerful immune system regulator, as well as necessary for blood health (which is central to the inflammation process). Vitamin D is also a hormone which supports brain function. ... So there are things you can do. Too many children are sheltered inside and away from the sun. The sun is a great healer. Can "melt" health ailments away. We're talking about 20 minutes of sun exposure daily. Maybe just 5 or 10 minutes bare skin exposure at first to start. This is an important part of our biology that is often neglected. Lastly, a quality fish oil supplement contains EPA and DHA fatty acids that are critical for brain healing and function. The brain is built from cholesterol and fatty acids, hence why mothers milk, which contains cholesterol and fats, is so important. I know that the leading brain restoration clinics include fish oil supplementation as part of their recovery protocol. Just cut the capsule and squeeze the oil out. Oh, and iodine. Iodine deficiency in the mother is the leading cause of mental development issues in children worldwide. If you don't eat seafood then supplement. J.Crows Lugol's Iodine solution. A dozen drops a week on average. A little goes a long way. Doesn't need to be taken daily. Body stores it, but levels can get low, especially in child bearing women. At least 50% of child bearing women in American are deficient in Iodine. This is a lot. Hopefully it's helpful.
This isn't due to vaccines. Getting sick from preventable disease can cause some serious long lasting problems
My little girl was diagnosed with IS when she was 3months old. fortunately she responded well to treatments and now she is 2years and 8 months. she is doing well and everything about her is normal like her peers but her amazing doctor hasn't reduced dosage of medicines yet. Sometimes I can't stop overthinking about future and what's going to happen if she stops taking medicines? I read an article that children with IS may develop other kinds of seizures or epilepsy...😨
If her spasms have gone away then try weaning her off of the medication. You won't know if she still needs it until you try
@@danielacamara2265 hi! My baby also have IS, what's the best medication to her. She is 3y.o right now.
What were the symptoms,? Did she stopped smiling when she was having spasms
My daughter too. She was first diagnosed with Infantile Spasms at the age of 4 months. Indeed it often comes. Very often. Everyday... We seek treatment by seeing a pediatric neurologist since the diagnosis. I've tried many drugs too. Including Sodium Volpreate, Vigabatrin, Prednisolone, etc ... i'm still remember that she was struggling & restless when its comes. But, after a few years of treatment, she is better now. No more new episode of spasam @ seizures on 2019 till now. Now, Damia already turns 7 yrs old.
My 4 month old grandson has been diagnosed with this today ☹️
Doctor is attack ko kb tk thik kr skte h iska best treatment kya h or kha pr h
Contact the doctor directly on his WhatsApp number for your total Cure. +2348058485598
Ap ka baby ab kisa hy?
🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻
Contact this doctor directly on his WhatsApp number for your total cure. +2347030936239
My daughter died because of this nothing worked . No medication worked
My baby have a infantile spasms problem. Please help me. 😢😭
Contact this doctor directly on his WhatsApp number for her total cure. +2347030936239
@@danielacamara2265 where he from?
@@factsunknown2255 he is from African. And uses Africa herbs to cure all kinds of virus , sickness, diseases. He is a good man and he is truthfull.
@@danielacamara2265 My baby is 2 and she has also infantile spasms and we are in Malawi what should we do?😭
Go to the doctor
We have now moved to Boston Children's Health Physicians of Westchester and Connecticut- with office in Manhattan and Westchester