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I was diagnosed in 1998 while attending `SUNY Stony Brook physician assistant program. Having always had perfect 20/20 vision and no need for glasses, I found myself struggling with lessons where the blackboard was used. I saw an ophthalmologist explaining what was going on with my vision and was promptly told in a superior type voice that ‘of course your vision is getting worse. You are a 42 yo woman. I almost left this very smug eye doctors office, but my time was almost always used up by didactic classes in first year. It was only after he started to examine my eyes that he said, ‘oh…you have Fuch’s Corneal Dystrophy. I knew nothing about this diagnosis. He told me it was inherited and eventually I would need a corneal transplant to restore my vision as close to what it was pre- diagnosis. I have many aunts, uncles, cousins, and 2nd and 3rd familial possibilities of who else had this diagnosis. My search was futile. No one had any eye disorder other than cataracts at a later age. One aunt had macular degeneration but that was it. As time went on, I occasionally would send out emails, letters to those familial relatives with no one having any issue with their sight. In 2024, my oldest cousin sent out an email basically wanting to know if anyone had this eye disorder called Fuch’s corneal dystrophy. She had been included in every email, message I sent out prior. She was 10 years older than me, and it was all like ‘Latin’ to her. I wrote her and said, yes I have it. Diagnosed in ‘98 and getting ready for a transplant of cornea and cataract removal. So, now I know it is from my paternal side of my family. It makes sense about gender effected most is female as she and I are the only female cousins. Lots of guys. Thank you for writing and releasing this information. I

What happens to the persons eyes if the donor transplant is rejected?

I had DWEK in an Australian research study 4y ago which went well but needed cataract done recently and prefer this sequence . I don't want a transplant that maybe last 8y or less but prefer to wait for lab grown cornea for DMEK That would last much longer❓

Hello Marianne I am 63yrs. Just few days bk with bit discomfort in my 👀 happened to visit the Opthalmologist. Clinical Details: CST as per advice,Reassured Diagnosis: FUCHS ENDOTHELIAL DYSTROPHY Dr has given 2 drops n a gel for 3 months to checkon. As per Dr it's Genetic. I need ur expert comment to handle it. Thnq

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Excellent video. Us eye bank technicians can take pride in what we are blessed to do to contribute! Keep up the good work everyone 💞

Congratulations Frank! (6 years too late!!!)

I've had a lot of eye problems . both my retinas came detached within a 2 wk span. The list goes on. I have glaucoma as well. I've got to have a cornea transplant in my rt eye. You made it look easy. I hope I do as well as you have. Thanks to all in the video for sharing ❤ 15:31

Why did they first graft fail?

This is 9 years later … now, today, how are you seeing? Still great?

I was diagnosed with FCD recently. I'm having cataract surgery soon. Will monitor the Fuchs. Damn, getting old is hard!

Agree 100%. Price Vision is the best in the business. Dr Price did both of my DMEKs

i'm very great to know this informations, thank you doc marianne for this, im much more gain knowledge and understand my illness very well, i've been diagnose with fuchs dystrophy recently and at the age of 35 and in need of cornea transplant, and i got my illness through genetics as well.

This is alot more information than my eye surgeon gave me.She gave me a brochure on Fuch's dystrophia and asked me to read it,come on i have cataracts and Fuchs and was given 5 years before total blindness, its been 3 years.And let me add you could do away with the white screen its absolutely is blinding.

Ann, thank you for sharing your experience. Did you have cataract removal at the same time as the Dmek? I may have missed it if you spoke about it.

I had my cornea transplant on July 6th 2022, still haven't gotten all vision.back

Nice

Are the lights bothering him?

Is your vision “perfect” (or would it be if you had corrective surgery like LASIK or PRK)? I supposed in asking, did this procedure correct all issues caused by the condition?

Thumbs down for the intro music.

I wish that I could afford to go to Dr. Price for DMEK surgery for Fuchs.

You said you got up the very next day…I thought that you had to lay on your back for very long time and could not get up and walk around.

I have just had my DMEK in one eye, in the UK. So far progressing well. I had to travel 150 miles to get it.

Thank you,Dr,Price,for your invaluable updated research information.I will continue to keep updated with your advancing research studies,dats.Most sincerely,Nancy,Missouri.

Hi Doc. Hope u r fine. Very in good presentation on corneal transplant. Sir/ Ma'am I had DMEK on 25 Jan 2022. Still my vision is not clear. It improves during the day a little bit but no vision next morning again. I am using Pred Forte, 5% Saline, Hisopt, and Vigamox. My eye surgeon claims that my graft is perfect. Then why it is not improving vision. Pl suggest any change in drops.

Why is my eyes scratchy one month after surgery. At night it’s not so scratchy.

what state does your husband practice in ? i need surgery my eyes getting worse

how long does it take ? where is he located? i live in california

you have to be awake ?????

If DMEK really does solve so many damaged corneas why aren't they fixing everyone's?

I have the pleasure to know this husband and wife duo personally. They are are both INCREDIBLY, NICE, FRIENDLY, SMART, TALENTED AND COMPASSIONATE PEOPLE AT HEART. Very glad to KNOW THEM!!!

I love your story. Just did my first DMEK on my right eye 4 days ago. I'm just now starting to understand how bad my vision is with Fuchs. I agree that we need piece and quiet during recovery. On my third day I started feeling overwhelmed with joy from the glimpse of the new vision. What a blessing and miracle. I'm so thankful for this gift of sight.

Thank you for sharing this video.

“Remaining awake” scares the hell out of me. What anxiolytic is used?

Who else here because its in NAIT's optical science year two studying

Stupid music

I wish we had him here in Columbus Ohio

I did endothelial transplant in my right eye and it was great

Someone actually thought a blast of hard rock would make a wonderful intro and outro to this presentation? Astounding.

I'm having surgery for my left eye next Tuesday. I'm frightened and hopeful. Thank you for this, I really needed to hear it.

This is a really useful video, thank you for uploading. I have my DMEA Cornea transplant surgery in two days and this is by far the most insightful video I have found!

Good information I’m getting to the point maybe next year or two for Transplant. But I am still scared to do this.

Congratulations on the transplants and we owe lot to the scientists and physicians . Just recently got diagnosed and doing some research into possible treatment. Thanks

My mom, sister,cousin and myself all have Fuchs :(

I have Fuchs dystrophy and this is very helpful thank you

There is no reason to be apprehensive at all about this procedure, stop waiting and just do it already.

Very grateful for the work you and Dr. Price are doing!

Gonna have This done December 7th

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Me too! best of luck with your Kerataconus!