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Fight Bladder Cancer
Добавлен 20 сен 2017
Glen's Bladder Cancer Experience – Turning Shock into Advocacy
This video was made possible with financial support from Astellas and Roche. Fight Bladder Cancer has retained all editorial control. Meet Glen, who shares his powerful journey with bladder cancer, starting from an unexpected diagnosis to becoming an active voice in the bladder cancer community. Living in Scotland, Glen's story begins with a simple yet alarming symptom that led him to seek medical advice, encouraged by his wife.
In this video, Glen recalls the shock and confusion he felt when first hearing the words "cancer" and "tumour." His initial emotions were a mix of disbelief and fear, as he struggled to absorb the information. Despite the challenges, including the daunting task of ...
In this video, Glen recalls the shock and confusion he felt when first hearing the words "cancer" and "tumour." His initial emotions were a mix of disbelief and fear, as he struggled to absorb the information. Despite the challenges, including the daunting task of ...
Просмотров: 496
Видео
David's Journey From Diagnosis to Recovery and Beyond
Просмотров 3913 месяца назад
This video was made possible with financial support from Astellas and Roche. Fight Bladder Cancer has retained all editorial control. Meet David, who shares his personal journey with bladder cancer. Diagnosed in 2015 after noticing blood in his urine, David quickly sought help from his GP and underwent a cystoscopy that confirmed his condition. In this video, he opens up about the initial shock...
Bladder Cancer and Mental Health
Просмотров 1063 месяца назад
This video was made possible with financial support from Astellas and Gilead. Fight Bladder Cancer has retained all editorial control. Bladder cancer patient Bolu discusses the essential roles of support groups, caregivers, and healthcare professionals in enhancing the lives of those with bladder cancer. Learn how Fight Bladder Cancer eases NHS pressures by providing key information, care, and ...
Jane: From Misdiagnosis to Support
Просмотров 1,6 тыс.4 месяца назад
This video was made possible with financial support from Astellas and Roche. Fight Bladder Cancer has retained all editorial control. Join Jane, a 53-year-old from Nottinghamshire, as she shares her journey with bladder cancer. Despite experiencing three years of urinary infections, Jane's symptoms were dismissed until a night shift landed her in A&E. After a referral and a nerve-wracking wait,...
Navigating bladder cancer and the importance of patient-clinician communication
Просмотров 2074 месяца назад
This video was made possible with financial support from Astellas and Roche. Fight Bladder Cancer retains full editorial control. Join Johnstone, a retired GP from Edinburgh, as he shares his journey with bladder cancer. Despite initial discomfort discussing cancer with his doctor, Johnstone emphasises the importance of patient-clinician communication and advocating for oneself in the healthcar...
Andie's Journey from Bladder Cancer Patient to Advocate
Просмотров 8624 месяца назад
This video was made possible with financial support from Astellas and Roche. Fight Bladder Cancer retains full editorial control. Join Andie, a bladder cancer patient, nurse, Mum, and Fight Bladder Cancer patient advocate, as she shares her journey. Learn about the crucial role the bladder cancer community played in supporting her and how she's now giving back. Discover the importance of peer a...
Webinar: Robotic Cystectomies for Bladder Cancer
Просмотров 725Год назад
Intuitive contributed a grant towards the production costs of this webinar, but all editorial control was retained by Fight Bladder Cancer. In this webinar, chaired by Lydia Makaroff (Chief Executive of Fight Bladder Cancer), Matthew Perry (Consultant Urological Surgeon at the Royal Surrey NHS Trust) will talk about robotic surgeries for bladder cancer. They will explain: • How a robotic cystec...
Bladder Cancer - An Industrial hazard
Просмотров 174Год назад
At the GMB CONGRESS 2023, the London Region held a Fight Bladder Cancer Fringe Meeting on Wednesday 7 June 2023. It was Chaired by Penny Robinson, CEC member & London Regional President Speakers included: Dr Lydia Makaroff Chief Executive Dorothy Markham, Trustee and Patient Diarmuid Deeney, Solicitor, UnionLine This occupational cancer affects all ages and workers in various industries. Hear a...
Understanding Bladder Cancer in England: Key Statistics and Implications for Patients
Просмотров 637Год назад
This video provides key statistics on bladder cancer in England. The study found that 150,816 people were living with a diagnosis of bladder cancer in England in 2019, with 75% of them being men and 25% women. It was also discovered that 57% of people were aged over 75 years, and 43% were 75 years or younger. 8.3% had Asian, Black, mixed race, other, or unknown ethnicity. Shockingly, 41% of peo...
Kathleen MacKenzie - bladder cancer nursing and workforce challenges
Просмотров 97Год назад
Kathleen MacKenzie, Urology Senior Advanced Clinical Nurse Specialist, speaks about bladder cancer nursing and workforce challenges in Scotland. The Fight Bladder Cancer Scottish Parliament reception, graciously sponsored by MSP Stuart McMillan, was a chance for our community in Scotland to come together to raise awareness of bladder cancer symptoms and share bladder cancer patient experiences ...
Maree Todd MSP - how bladder cancer fits into Scotland's health & social care strategy
Просмотров 70Год назад
Maree Todd MSP, who is MSP for Caithness, Sutherland and Ross as well as Minister for Public Health, Women's Health & Sport, speaks about how bladder cancer fits into Scotland's health & social care strategy. Our reception, graciously sponsored by MSP Stuart McMillan, is a chance for our community in Scotland to come together to raise awareness of bladder cancer symptoms and share bladder cance...
Glen, bladder cancer patient, talks about the importance of early diagnosis
Просмотров 293Год назад
Glen, bladder cancer patient, talks about the importance of early diagnosis to Members of the Scottish Parliament. Our reception, graciously sponsored by MSP Stuart McMillan, is a chance for our community in Scotland to come together to raise awareness of bladder cancer symptoms and share bladder cancer patient experiences with Members of the Scottish Parliament.
Stuart McMillan MSP - the impact of bladder cancer
Просмотров 109Год назад
Fight Bladder Cancer's Scottish Parliament reception, graciously sponsored by MSP Stuart McMillan, is a chance for our community in Scotland to come together to raise awareness of bladder cancer symptoms and share bladder cancer patient experiences with Members of the Scottish Parliament. Fight Bladder Cancer is a registered Charitable Incorporated Organisation in Scotland (SC051881)
Lydia Makaroff - Introduction to Fight Bladder Cancer and our policy recommendations
Просмотров 67Год назад
Our reception, graciously sponsored by MSP Stuart McMillan, is a chance for our community in Scotland to come together to raise awareness of bladder cancer symptoms and share bladder cancer patient experiences with Members of the Scottish Parliament. Dr. Lydia Makaroff, Fight Bladder Cancer Chief Executive, talks about findings from our Exemplar Report and our policy recommendations
FBC Business Brochure
Просмотров 27Год назад
Learning From the Patient Perspective: FBC HQ recently finalised a brochure to help guide companies on best putting bladder cancer patients and their families at the heart of their work. Learning from a patient's perspective is invaluable, and we can now help advise on achieving this aim. Here’s how we can help: - Advising clinical teams on trial design - Reviewing patient-facing materials - Fi...
Thank you, and a Happy New Year from Fight Bladder Cancer
Просмотров 46Год назад
Thank you, and a Happy New Year from Fight Bladder Cancer
Living with a Stoma Webinar Recording: Fight Bladder Cancer
Просмотров 4,1 тыс.Год назад
Living with a Stoma Webinar Recording: Fight Bladder Cancer
Improving bladder cancer awareness, support, and joint-decision making
Просмотров 60Год назад
Improving bladder cancer awareness, support, and joint-decision making
Growing & Developing the Bladder Cancer Workforce
Просмотров 65Год назад
Growing & Developing the Bladder Cancer Workforce
Putting in Place an Exemplar Bladder Cancer Pathway
Просмотров 71Год назад
Putting in Place an Exemplar Bladder Cancer Pathway
September is Community Awareness month at FBC!
Просмотров 302 года назад
September is Community Awareness month at FBC!
How many people are diagnosed with bladder cancer in the UK?
Просмотров 5022 года назад
How many people are diagnosed with bladder cancer in the UK?
BCG treatment for non-muscle invasive bladder cancer
Просмотров 31 тыс.2 года назад
BCG treatment for non-muscle invasive bladder cancer
Bladder Cancer symposium at the British Association of Urological Nurses 2021 congress
Просмотров 1342 года назад
Bladder Cancer symposium at the British Association of Urological Nurses 2021 congress
Bladder Cancer Patient Information Booklets
Просмотров 2452 года назад
Bladder Cancer Patient Information Booklets
May good health return to you sir... but I read that now there are cancer cure medicines in the form of pills..... is any of that true?...
Good luck Ravi. Lindly practice yoga.. it really helps !!
Thank you for sharing. I am a recent bladder cancer patient having just completed surgery and my first BCG treatment. I'm curious if any of your doctors/health care practitioners have discussed if any diet changes such as changing to a ketogenic, carnivore, Mediterranean type diet and fasting would help?
All that schooling and still a fool 😂😂🎉❤🎉
Very complete information , thank you very much because even if im watching it 2 years later , It has been very helpful
I have bladder cancer had troumor hiding behind wall inside my bladder im on 2 different chemo arm sunshine 3 it's new chemo from usa im from England 2nd chemo is tar 200 put you sleep put chemo inside my bladder for 21 days im frist uk man get this new chemo im in so much pain in bed 24 7 cancer is so scary
I was blocked could not wee due to blood clots, went to hospital 6 times sent home after unblocking me, On the 6th time I said I was not going home till they did something about it. They did a biopsy told me I was ok, will do another to be on the safe side they did then told me I was T4 had to have bladder out, prostate and 21 nodes out so much for telling people about it. All that happened in 12 months. I am now 3 years stoma.
Felicia Gonzalez has bladder cancer if blood in urine all the time
We are grateful for you sharing your voice and your advocacy!
What happens if the 6 week course hasn't worked
He talks nicely. Lucky he could go to see a urologist. Here in Canada, 6 million have no family doc. and one needs a referral to a urologist from the family doc.
Try Maison Beljanski.
Had my first BCG today after they removed a tumour, when they pulled the catheter out I couldn’t stop wanting a pee ouch, and you need a bucket beside you as you don’t have time to get to the toilet🤦♂️😂
What a wonderful person. You filled my day with inspiration . Thank you.
propaganda.
I don't feel anything after each procedure, no pain, fever, etc. It doesn't work? Thank you.
😊what is b.c.g.
Did 6 treatments in december now finishing 3rd treatment monday so far so good.I call it pain day because the pain of the catheter going in is so painfull i have to hang on to side of bed even with them putting numbing it still feels like hot iron going in.They say I`m the most sensitve patient theyve had,lucky me.Catheter coming out isnt as bad because i tell them to take it out little quicker than normal.Like ripping a bandaid off.Coming out pain only lasts about a minute.Only side affects i get are shivers and small hot flashes.Second and third day after I`m physically exhausted and have to urinate frequently
How arrogant in the extreme! I have all vaccines, my 99 yr old mother who was still mobile around our house suddenly went down like a stroke...blood clots? Don't know the hospital because of her age just stuck her in a bed until I could arrange a nursing home...no testing no treatment at all! She dies 1 month later. Then I got bladder cancer! I'm 64 now. It is outrageous you can say that with such certainty, there is no evidence, no track record and no history...This advice is WRONG WRONG WRONG!
My husband is fighting bladder cancer and had his bladder removed, of course we are fighting this together and I'm the one who changes his bag. And if I may say I have gotten very good at it.
I'm in America but found this information very helpful.
I’m starting BCG treatment April 4th. I was told when I come home each time I urinate I have to put 2 cups of bleach in the toilet let it sit for 15 minutes then flush. I have to do this gif 6 hours. My concern is we have a septic system and I’m not sure how all this bleach could possibly affect it? Any suggestions?? Thanks
Thank you, 6 BCG then 6 BCG with Interferon , still pink so 6 gemsideabene with docipaxsil then another 6 then 3 repeated 3 and now in 3 months Cystoscopy. Long haul, and trying to be positive but difficult, mind plays tricks
You are a nice man and are very lucky you caught this early.I had T2 Muscle invasive Grade three i kept my Bladder but never found any support groups that had anyone in my same situation.So I had the Three point Seven Centimeter Tumor removed did seven weeks Chemo and thirty seven Radiation treatments.That was ten years ago. Now its just wait until next time but they already told me the outcome of that but I accept whatever happens because i got more time than others i know that had the same.Just keep your kids from worrying about you and tell them you are fine because its very scary for them.
I’m starting BCG in Feb 2024. I pray I can tolerate it. I feel scared. Thank you for the positive video. It made me feel a bit better.
I had 12 BCG treatments over a 2 year period with good results.
Thank you Mr. Ravi ..I have the same cancer you have , I’m getting tire of going thru multiple recessions , and I was ready to give up . my faith was tested until I saw this video , thank you for your words of hope .
Plz do inform if ever there is any new things regarding the treatment
My brother in law in his seventies is now being treated for bladder cancer. He got the whole regiment of vaccines. His son’s wife’s father also got bladder cancer around the same time. He also got all the vaccines. A coincidence? I would like to know the odds…
Just finished 3 years of BCG maintenance schedule, all clear so far.
Is it painful? I'm scheduled for the next 6 weeks to take BCG.
@@a.gazelle9930 I had two procedures so far. No pain, but very uncomfortable. Second time was better, because I knew what to expect. It is doable. Good luck!
My father (78) grew three bladder tumors, he had surgery and cancer treatment, today (10-24-2023) he was confrmed cancer free, and was told by his oncologist and the treating staff that his tumors were caused by (specifically) the Pfeizer vaccine. My father reeceived two doses of sinovac and two doses of pfeizer as booster (this is why the oncologist was very specific). FYI.
Don't believe this lady! Many have gotten Bladder Cancer within months after getting the Cvd Vx's
Similar story as mine 57 year old diagnosed in 2016 , same as Ravi, re occurred in 2019, 2022. Two rouns of chemo so far
They can do transplants of virtually every organ in the human body! So, why not this one?!
I am 33 years old I was was diagnosed with bladder cancer in March 30th I have early stage and have done treatment on since may 5th.I had biopsy and cystoscopy on July 5th Dr called me Monday said the treatment didn't work as we wanted it to it spread in bladder only do another mix treatment which Dr said may not work so I'm giving myself the courage to Dr surgery watching this made me more at ease with my decision I was scared of getting more cancers in my body or even death but watching this video help me make my decision and it looks to be the best option to prevent the cancer spreading in my body thank you so much .😮💨🥺🤗
How you doing ??
@@mirthab.7576 I am doing good my treatments have been doing their part and me doing mine Dr said just one spot lower bladder has cancer and to being bacteria treatment for it and see in two months how it went I'm still keeping positive thoughts and vibes but whatever the outcome I will not give up I will keep on fighting thank you for checking on me God bless you ☺️
@@mirthab.7576yikes
Thank you for the discussion. I had it, but it wasn't too advanced - so now I don't have it.
I have prostate cancer that has spread to all of my lymph nodes so from there It can spread to just about any of my organs. Just have a lot of scans to see where it will go and how long I will live.
Best of luck in your journey
Had stage 2 bladder cancer, non invasive. Treatment was BCG straight in 2 the bladder. The side effects burning while urinating and the frequency. Adult diapers were used and still on going for a year now, as the bladder tends to leak. In september 2023 go8ng to have the camera in again to see and to have a laser at the ready to remove any debris if found.
Very good suggestion.
Thanks for sharing ing. I am going through a similar situation and You have encouraged me a lot.
Thank you! Have it now.
The best treatment for cancer in history is natural herbal medication and I'm proud to say that I'm completely free from bladder cancer. All thanks to Dr unugboje herbal Chanel on RUclips for saving my love life from cancer. Don't let ignorance make you lose your health.All the cancer drugs out there have little or no effect at all. Don't waste your time and money on drugs.
I have fought bladder and kidney cancer for 17 years. I was diagnosed in 2006 and lost 1 kidney in 2007. I then went to surgery to remove the tumors and began BCG treatments for the bladder cancer. The tumors disappeared. Then a 5 year check up period and in the 5th year the tumors returned. Once again surgery and BCG treatments and another 5 year check up period. Again more tumors in the 5th year. For the 3rd time the same. But this time at the end of the 5th year I was clear. I went on living my life until the 6th year and the cancer returned with a vengeance. I went through so many surgeries I have lost count and have experienced more pain than I ever dreamed a human body could handle. This last time (4th) I lost my bladder and prostate and the BCG would not work. The pain was 10 worse than before. I am 68 years old now and suppose to be cancer free once again. The one thing I know for sure is I am done with surgeries, CT scans, MRIs, Chemo or any other kind of treatments. I have had sooooo many cystoscopys I could do them myself. I have seen the amount on bladder cancer paintents more than quadrouple in those 17 years. It is PURE HELL!!! It not only turns your life upside down, but inside out as well.
Sorry you went through this. Curious to know if you smoke or smoked in the past
I have bladder cancer am supposed to go back for the the follow up after the first surgery soon. I’m going to try a lot of different things. Oh I can’t go thru all that. Hope your alright.Let me know how you are ❤
Interesting. He says BCG is given after the cancer cells have been removed. So used as a preventive in coming back. In my case I have a low grade non invasive Urothelial carcinoma and my 'tumor' is flat and appears red. Even tho it is flat and was tested as non invasive he said he could not remove it and will treat it as CIS. I didn't really understand why but he has me set up for 6 treatments as discussed in the video. He also said although the red spot gave him concern he thought I had a good chance of knocking it out after the six are completed. I hope he knows what he is talking about. I will start my first treatment in 3 weeks.
❤❤❤
3 rd bcg tomorrow, slight swelling this past week otherwise no side effects
Do you still believe this? My sister n law a HEALTHY 35 year woman was recently diagnosed with Stage 4 bladder cancer. I read were Ireland did a study showing bladder cancer rates are up with people vaccinated.
My Dad is just diagnosed with bladder cancer as well starting bleeding after 😢vaccine
@@speedy8326 same
Could you link the study? I can find these terrifying publications from 2020, proclaiming a coming wave of un diagnosed bladder cancer "due to a lack of screening, from fear and complications, during the pandemic era" predicting "a second wave of post pandemic deaths". I can't however, find current studies, as i attempt different refinements on the terms. I know of several people having concerning symptoms, and physician responses which seem to be overlooking some of them; they were all vaccinated, only one i believe actually contracted the illness, itself.
I also have been diagnosed with stage 4 bladder cancer after receiving the vaccine. Our government has been lying to us. 65 years old USA
@@Scp716creativecommons My father (78) grew three bladder tumors, he had surgery and cancer treatment, today (10-24-2023) he was confrmed cancer free, and was told by his oncologist and the treating staff that his tumors were caused by (specifically) the Pfeizer vaccine. My father reeceived two doses of sinovac and two doses of pfeizer as booster (this is why the oncologist was very specific). FYI. Get checked.
What if you have an allergy to BCG.
Starting g bcg soon.