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I have hyperPOTS and my BP spikes so badly when I get dehydrated. I hit the other end, where it gets dangerous. People need to understand that you can get it from the common cold and the spike in the illness that shall not be named, I saw a HUGE spike in the support groups. I think I’ve had POTS most of my life because I was ALWAYS heat intolerant. Always thirsty. I took one look at you and said to myself, she has POTS because of EDS. 😊I have type 3 myself and I’m also an ambulatory wc user too. I will say, Porto Mobility has a wonderful electric chair that folds up on its own with a remote. It’s a life saver. I don’t have to have SI dislocation to fold it up traveling. It’s travel and airline friendly. They have payment options.

So do you have a pump for your port? They’re telling me I don’t need one while I’m on the go for my IV infusions for POTS.

ruclips.net/video/g7cPdzahxkI/видео.htmlfeature=shared

Thank you for sharing! This is going to help so many feel less alone. ❤ I was recently diagnosed with gastroparesis. Currently, I am on TPN 18 hours a day. On my second picc line in a couple of months time. (The bandage left some scarring on my arm as well from a reaction.) I have been on the protocol for MCAS for a couple of years. -suspect POTS now as well. I get dizzy and see spots often when I stand up. My blood pressure is usually pretty low and my HR is high. It’s all a mess! I’d love to learn more about training a service dog.

I don’t have very long between tachycardia and completely losing consciousness. Sometimes only seconds apart and I’m out. I’m putting together a bag of everything I can use to bring me out of an episode to carry around, especially outside on our land. I also have let several neighbors know that if they see me laying on the side of our gravel road with my one Pyrenees Yeti, know that the other Pyr Honey goes directly back to our house and goes on camera alone to alert my husband to call my Apple Watch to check on me. It is now a complete foolproof method to let him know she returns to the house running if I have to sit or lay down near our road. I also let them know if they remember his name Yeti, he will allow them to come close and check on me. But not to approach if they don’t use his name, as he will guard me ferociously. ❤ And our rural volunteer rescue squad cannot help me unless my tachycardia goes to >200bpm before they can defibrillate my heart to reset the rate. Although my hr quite often is at 175-180ish…scary… The tachycardia started close to six months before I realized it was connected to my losing consciousness. I was outside in our yard and in distress. My husband was trying to get me back inside…I lost consciousness 10 times in under 10 minutes. It was then I knew it was related to my tachycardia. It’s a very unnerving feeling to not be able to control the fainting/syncope. But it feels better to understand why it’s happening, for both my husband and myself.

Beware if u ever buy anything saying its faux fur,as its NOT!

Are you on Beta blockers? I take Atenolol to control my heart rate. ❤😊

Gotta take that leash off him

P r o m o s m 😍

Dude that hill looked amazing

I was so tickled when spoke about not wanting to clean the kitchen. I should be cleaning my kitchen but am instead watching your video. lol. You cleaning should be motivation but nope. Gonna keep sitting. lol. TFS your day.

Do you have any gear currently available to sell or trade? I have some pull straps I’ve been looking for a new home for.

This was interesting. I’ve been looking for new type of harness options. So thanks for the review. Yours looks really good together.

Your makeup looks soooooo good! You need to show your eyebrow routine!

I'm so glad you like the key chain wallet thing! I love you 💚

Those socks would be PERFECT hospital socks

Beautiful as always!! 🤍

Watching your Q+A as if I don't know (almost) everything about you 💀

Oohhhh I love ginger beer!

You’re looking lovely! And loving pink! Love it

We missed you too! I miss your thrifting vlogs! Or can you do another shein haul 😭

Your makeup looks good good! Make the unboxing video!

What breed or mix is Chowder? :)

Newbie here glad to see your posting again. And as a fellow chronically Ill person I understand what you mean about getting dressed and showing up for yourself daily. I struggle with that too❤ sending gentle hugs.

that is so scary to hear about your sepsis. glad you are okay now and hopefully are managing alright while you wait for your port <3

also, I love that you are showing more than just your illness!! Ifelt the same for me personally, I like showing the things I love and why I live rather than my illness!!

so glad you are back!! seeing others with chronic illness is such a support to myself; so I'm glad you are back!!

I get the disoriented weak tired feeling and I’ll sometimes fall asleep if I sit down, it’s like running a marathon just standing or walking for short periods of time, I never like fainted and fell though (hopefully never do) my SD is trained primarily in the car while I’m driving to let me know when to pull over, he boops a button to alert, 😊

Hello. I am new to your channel. Hope your doing well. Your son is so cute. Your dog is so cute too. I was wondering what breed is he?

Have you heard about Dr.Ross Hauser? He treats the hypermobility with Prolotherephy.

I know i'm late to the comments but chowder is amazing! He looks like a great service dog!

i do want to know how u got iv fluids for pots. ive been tryiong to get them and my doctors keep saying its not treatment for pots.yet i see so many people with pots on it aned saying how helpful it is. how do it help if it is treatment and how did u convince ur doctors?

I would love to know more about your IV hydration. I also have gastrparesis.

Maybe not right thing to say but absolutely deliciously gorgeous 😍 just wow what an amazing body

Ive never seen something more fake😂

I cannot find either of the two on etsy...... Stitch and the Hound or Patch| Royal K9 gear. Anyone else have recommendations for small businesses that do this kind of work?

You look so cool and I love the idea of doing blogs centered around chronic illness as a chronically ill person! Will definitely be taking inspiration for my own channel from this!

shein 🤮🤮🤮🤮🤢🤢🤢🤢

I was training my psdit at softball and someone said train your dog more😢

I would love for u to do an update for those have seen your video😢ordered and lost their monies, I lost $320.”00

I fainted in the grocery store a little over a year ago. Haven't been back since. I order my groceries online now and do curbside pick-up. I have nearly fainted several times since so I don't go out much now. I do still drive but only short trips around town, and luckily, I have plenty of warning that I'm near fainting so that I can pull off the road. I keep salt and water in the car and that helps. POTS is horrible.

Beautiful bedding! Just discovered your channel. Question: how did you get your doctor to approve infusions for your pots?

Those are all super cute! I love the top that you said you weren’t sure if you’d wear it. And if they’re not paying your bills then nobody has a right to say anything about what you decide to spend on what and when.

That chair was a bargain. Here in the UK you can't get a chair under £200 second hand. Man what a steal. I love a good thrift haul x

I can't wait until we hang out so we can go thrifting together!! 🤍

Just recently found your channel love your videos and your energy ❤️

I love your channel and I think your little family and animals are cute. When you said that someone told you that they didn't care about you and was just wanting to know about your dog that angered me. Tik tok hun is a massive breeding ground for trolls which is why I don't use it. Look at all the drama on there! You don't rank on there unless you bring drama to the table. Making money on social media is hard because it is a competitive platform especially when alot of people are doing similar things. I watch your chronically piggies channel too. Although chowder is good at his job bless him and he's cute I genuinely care more about you in regards to your health. Im 38 and I have crap loads wrojt with me too and have done all my life. And I struggled as a single mum at 17. Bringing up kids with chronic illness and mental health was tough. Although we don't have the same conditions I feel you. Keep doing what your doing persistency is key x

Watching the patch getting stuck on your cardigan made me laugh so hard 😂 Love you! 🤍

OMGGG LOVEEE

I love all the outfits it was so cute to see you so excited hope you do another one soon