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All about Sun ☀️
Добавлен 8 апр 2015
Day to day activities with Sun!
Follow me on IG @ SunHughley
Follow me on IG @ SunHughley
3yr update after HFS (Hemifacial Spasms) surgery
3yr update after HFS (Hemifacial Spasms) surgery
Просмотров: 56
Видео
My HFS (Hemifacial Spasms) Journey
Просмотров 2415 лет назад
Hemifacial spasm is a nervous system disorder in which the muscles on one side of your face twitch involuntarily.
*Promo SM* 😝
Glad to see that you're doing well... Can you please give an update. How are you doing now ❓ Because I suffer with the same ailment and my surgery is do to take place next month. A little nervous about brain surgery, but I'll do anything that will work to take this agonizing pain away.🙏✌️❤️💯
@@user-cw5yr5ew8o I'm 10 months in, the pain hasn't just instantly stopped, I'm still on gabapentin and carbamàzepine
@@user-cw5yr5ew8o However.... I'm better than what I was before, everybody' heals differently, so yeah 👍🏽 I'm getting better, but I also just had a rough 9 months 😔 Doctors want try to ween me off some of the meds now until I am completely off 😊. Anyways...... Besides all of that, 'm ok Thanks for asking 🙏🏼👍
Could I e mail you to ask you a few questions as I have the same issues. X thank you x
Sure. You can email me at SunAlwaysShines1@gmail.com
Can you post a 1 year update please?
Punk Snickets posted. Thanks again for watching
Hi, Thank you for sharing your videos. I have slowly developing hemifacial spasm for over a year. I too am getting botox and i dont think it is working anymore. By chance did you also feel fullness in your ear on the side that the spasm was happening on? I too currently feel alone, my family doesnt understand when i try to explain it to them. I hope you are doing well and i am happy the surgery worked for you.
Hey yes it did. I'm sorry to hear that you feel alone. I also felt frustrated due to the fact it is not a common disease and it was very hard for me to explain how I felt or what I was dealing with on a daily basis. I'm glad my video was able to help you and you can see that you are not alone.