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Are you still taking Ingrezza? Hello from Romania!

Are Tardive Dyskinesia and Dyskinesia the same thing? As far as I know, "tardive" means "late onset". So if you start a med in 2024 and the dyskinesia doesn't begin until 2026, that is tardive. But if the symptoms begin immediately, is it still called Tardive Dyskinesia?

What do use use for chapped lips?

👏👏👏👏

Did you hit yourself ? Grand Daughter wakes up with voilent moments? Waiting on sleep study results?

:) I was navigating some info about TD and found this channel. Having watched a couple of your videos, I got to have a little hope that my TD will be gone one day.. ❤

Hey don’t forget to go get that new mental health drug igreeza it helps fight side effects from other mental health drugs and it causes side effects too but we’ll soon make another pill to treat that drug’s dangerous side effects too 😂 get off all those bogus mental health SSRIs etc they almost cost me my life slamming my truck into a wall at 80 mph. Finally I told my doctors kiss my ass take your Non Narcotic dangerous bull shit and kiss my ass. Been great no problems ever since. Everyone that goes to any mental health doctor is Bipolar Schizophrenia Manic Depression everything they can think of to push as much shit on you as possible don’t Fall for it. It’s Natural for people in their late teens 20s to mid 30s sometimes to experience anxiety etc it’s because your brain is going from child to adult and it can cause serious problems. Just drink a little alcohol like I did but don’t make it an habit and you’ll be fine. Biggest Help is Stay Busy. An idle Mind is the Devils Playground. God Bless you all.

If I was your child I would prefere to deal with the mood swings that to see you kill yourself with these drugs. Have you tried Jesus.

aRE you not afraid of getting Parkinson's? Its a side effect of ingressa

I’m sorry to hear that you have to deal with so many different conditions. Thank you for sharing your situation. My best wishes go out to you, and may the Lord be with you.

ARRGH MATEY I HOPE YE ONE DAY BREAK THE CURSE OF DAVEY JONES LOCKER. ARRRRRRGH

Great video!! Thank you so much for doing this... I have DID as well. Information is so powerful!! ❤ I'm working on a video series, I will share soon.. Thank you again! 😘

Thanks for the update

hi . is td go away or not?

how were you able to aquire such an expensive med like $750 a pill

Mel, I so admire you. You are staying focused and doing what you need to do for you and your family. I am in a situation where I’m guessing what is the best for the person I love and you really are helpful to me. Thank you for sharing; thank you for holding on.❤️

Mel, thank you so much for this information.❤

I have a disabled and elderly parent who has been bedridden for a long time. She has been very low functioning for decades with advanced cerebral atrophy, COPD, multiple physical ailments, possible mini-strokes, etc. She was diagnosed with tardive dyskinesia, but she has no facial tics, just severe hand and arms tremors. The tremors have become more severe lately even becoming full body tremors (making me think it was something more serious than tardive dyskinesia). She can no longer write and can only feed herself when the tremors aren't as bad. Unfortunately, she is on so many medications that she is mostly immobile and still soils herself and the bed during the day. It's exhausting as she cannot use a remote control, can rarely tell you what she wants to watch (or wants to watch what we do not have access to), and she can no longer cook, go down steps, take caps or lids off of things, cut her food, etc., and when she tries to do such things at night, ends up starting fires or making huge messes. The tardive dyskinesia has had things worse.

i have blephorspasm thanks to the alpha lipoic and pumpkin seed extract i can watch tv 90 percent of the time with out sun glasses before i could not watch tv at all with out sun glasses

i had much more severe tardive dyskenisa then the lady in the video and quitting psych meds 100 percent and taking alpha lipoic acid and magnesium which is in the pumpkin seed extract i take has helped me 90 percent the alpha pills stopped my depression very well

When I found out that TD worsens (not sure with ingrezza) the longer you take antipsychotics, I switched to lithium carbonate which works like a dream. I already dislike the side effects from TD that I will now have for the rest on my life. Did you know out of pocket ingrezza costs $7000 a month. Such bullshit. No one told me the anti psychotic (invega) would cause a permanent condition. Anyway I'm pretty bummed about it all

i take alpha lipoic acid and i take pumpkin seed extract for prostate these pills have helped tremedously for my meige syndrome and blephorspasm i also had to quit psych meds 2 years ago some people can function fine without psych meds some cant u have to determin if u can or cant function without psych meds i have no side effects i trust alpha one hundred times more than any other pill

Thank you for sharing your experience. My mom is on Ingrezza and it seems to make her very tired.

Is your TD better now?

i wanted to keep using it but it would knock me out to much.. maybe i will try it in the future again... there is no physical problem with my tick but i interview people and it sticks out like a sore thumb.

Botox was recommended by my PCP as a possible treatment for my TD as he said it could reduce the movements. To me it would seem hit or miss because which muscle group would it be used on when most movements are from the right side of my body.

Glad it worked for you. I was actually part of the test study for Ingrezza and it was possible I got placebo in beginning but eventually got the real drug and after 2 months there were no improvements. Now I am going to try Austedo and pray that it works. I have trunk & head movements. It really sucks. I took Geodon for years and switched to Perphenazine where TD was the first warning in bold letters. I feel my Doctor did me a disservice.

Please reply how much time botox is last for you? Please reply

Has any of you tried Ibogaine when having Tardive Dyskinesia? It works on cocaine and opioid addicts and brings the receptor to its default function. I wonder if this could be helpful in the treatment. Have any of you done experiments with it?

Learn to pronounce it correctly… 🤦🏻‍♂️

Just smoke weed!!! It won't give you any side effects , other than the munchies. Big pharma can kiss my cannabis a$$🤣🤣🤣 oh yea don't forget. "So called mental health meds" can cause suicidal thoughts, diarrhea, constipation, o H yea possible liver failure. Do ya really think big pharma really tests these? I mean really? Ppl open your eyes. Don't white collar workers have therapist? Oh yea they're the ones who prescribe it. Like I said...

Have you experienced weight gain on Ingrezza?

I've been suffering from residual schizophrenia for more than ten years..But my psychiatrist prescribed me many antipsychotic medication at extremely low dose and I'm on clozapine right now...Clozapine is one of the best antipsychotic medication in recent years..And this antipsychotic medication has also shown to significantly alleviate the symptoms of tardive dyskinesia..You can talk to your psychiatrist...Get well soon and I admire your courage..

I so appreciate your bravery and honesty 💜 Unfortunately I am currently in a no win situation with my TD. Ya see I was given Haldol at a very young age which paralyzed me for 6 months. I was a zombie and was helpless. Traumatized events added to my depression........Melaril was no good. At every turn I was just getting sicker and sicker. Doctors didnt care. I came off everything completely. Then with the support of my family miraculously I was 33 years without any drugs accept smoking cigarettes. I know that's bad but that was all I had. Then I got hit with more devastation.......They shot me up with Geodone and then gave me Resperdol which is what did me in. It took me down in 4 months. Traumatized my brain immediately.......then emergency room with addivan to calm the nerve damage this poisonous drug did to me. Now throw menopause on top of it all. I fight for my life everyday......every breathe, every moment, every minute of the day. Oh I also quit smokin after 34 years too. Actually I'm quite fortunate I can type this right now. All I can say is.......my heart goes out to anyone dealing with this. Its ruined my life, that's for sure. I can only pray that someday with the help of God that all this pain and suffering shall be no more and that HE wipe out every tear from our eyes. Thank You and May God Bless Us Everyone. 💜🙏💜

I’ve just come across your videos, and they have been very helpful as I begin helping a loved one to navigate TD and the tightrope-walk that is the treatment of multiple concurrent diagnoses. Thank you for your honesty, and willingness to share your experiences on the journey to find a balance of therapies that works for yourself and your family. Love, strength, and healing to you.

Levodopa can also cause dyskinesia!

Did you take ingrezza while on geodon? I think the hand tremors is a side effect on geodon and should go away if you discontinue

Thank you for your video. I’ve recently been diagnosed with td. My mouth is very sore. Dr put me on 5mg clonazipam it did nothing. Today I begged the doc for help. Told him I usually don’t reach for rum marijuana and gummies along with cbd oil. Dr gave me clonazipam 3 times a day plus 50mg of trazidone. We will see what happens thanks for listening. I hope by now you are much better!

Why you come back on APs? You should feeling better off them. More dopamine = more happines

My mother just started this medication three days ago. How long did you take it before you noticed an improvement? She is chewing her tongue and clenching her jaw. It’s almost unbearable for her.

How does this differs from Tourette’s?

I am on effexor 150mg, and latuda 40mg. I was on 80mg of latuda but it made me a zombie. I have noticed lately I have been licking my teeth, or rubbing my tongue back and forth over my teeth. I never even thought it might be tardive dyskinesia. Wow!

Your a brave good momma ..God bless you and help you

Always good to see someone "dealt a bad genetic hand" rise up and defeat it.

Thank you

Did you experience any symptoms at night?

Any updates?

thanks for sharing .

hello. l'm a local Chinese .and was tricked to eat antipsychotic drugs for three months. and after stop drug for ten days. l found the muscul is start don't comfort. and became worse day by day.this is happen 15years ago. and never became a little better.the muscle is disorder stiff. on head. sometimes expand to neck.some doctor is killer for money.

Thank you for your testimony. You are brave