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going thru same. thank you for sharing so i can learn more. no answers for me in 2years. i only take tylenol.

I felt your pain brother this is my worst flare ever, it never made me tired before,but even my hair hurts, your not alone,and any day soon it will be better never good but more bearable, get some heat kn you have a stiff one an know your not alone in your hurting

Thank you for sharing. Question. Is your right side affected the most?

Thank you for sharing, my flare up are slowly starting to get worse, but not to the extent that you're enduring. Your video was a good refresher to understand what is going on in my body.

You are not alone warrior✨

Any updates?

I have it mild, I'm trying to manage with calisthenics and gymnastics, when I get a flare-up, walking and doing any mobile activity becomes extra sore in my body. My hip and spine are fused, my spine has issues since my 20s and my spine mobility is quite limited I believe. I'm 40 now, I'm sorry to hear about your issue, do you have anyone who can help?

Thank you for sharing this; i’m 42 with the same diagnosis; i can’t look at myself in the mirror anymore as i feel like my neck is coming out of my chest it’s so hunched. Praying for you. X

Can tell you're in pain here.

I’ve just eat 5 doughnuts to celebrate the flare is down.. Until the morning.. I’m eating what i want end of

Sir I am also an A S warrior , I want to talk to you , please tell me how to contact you.....

Thank you so much for sharing. I’m 58 and was “officially” diagnosed back in 2017 after going through spinal surgeries and “procedures” since 1999. I went from being a strong and active firefighter to being a shell of my former self. (The fire-rescue stuff was only volunteer in my community. “Real” work for me was as an electrical engineer) The aggravating part is the years that I could have been doing more aggressive physical therapy and other things, but was most often told to “rest”. I wasted decades with the pain management “doctors” at St. Barnabas’s ACC center in NJ. I went to HSS (hospital for special surgery) in Manhattan at my Dad’s request. They had me diagnosed within 15 MINUTES! The radiograph of my SI joint (hip) showed it all. I’m HLA-B27 negative and have been on Humira / Remicade / Cosentyx / Simponi / Taltz and a few others with methotrexate as well. I did not receive any perceived benefits but DID develop all sorts of out of control infections, likely caused by the attenuation of my immune system. I’m in extreme pain for nearly 24 hours a day and cannot walk without a cane or walker because the kyphosis is so bad at this point. I’ve been fortunate to have a pain doc that will prescribe pain meds but the hoops required to jump through are brutal. And … now, in America in 2024, my pharmacy and 86 other pharmacies in a 20 miles radius radius… cannot locate morphine or other narcotic pain meds. I get the whole “opiate crisis”, but this is ridiculous. Especially when fentanyl is pouring into our country via an intentional process of destruction of our once fantastic country. Good luck to you!

I am having a lot of your same problems, l was told that it is Lumbar Spondylosis , but the pain and symptoms l am experiencing is like yours , l am suffering a lot of pain because of flairs my doctor doesn’t seem to be helping and is not very knowledgeable even though he had a chart of a person dealing with Ankylosis spondylitis, but l know my body , he only seems to see what the X-rays show which is Lumbar problem but l am also dealing with the Autoimmune Disorder he is trying to get rid of me because of the pain aspect of the problem, l am being very patient with the doctor because l realized there is people that are seeking drugs for other purposes l am in so much pain l am in tears also l am crying over the way l have been treated please give me your perspective on my problem so l can feel some sort of relief thanking you for your help 🙏❤️🇺🇸

Hello. 👋 I also have AS. Took me 15-20 yrs. to get a diagnosis. I appreciate your video because I am really struggling myself also. Just went through a bad flare from being sick with a cold. It turned into pneumonia with so much inflammation in my ears, sinuses, pleurisy and uveitis. Needless to say it took me many weeks to recover. I live in constant pain now, as many AS’ers do. Just know that you aren’t alone. ❤

hi , how many bridgings have you got and when did it start ?

How are you? Have you tried starch free diet😊

Thanks for sharing. I had a bad flare this past summer. I can really sympathize with the pain, frustration, and fatigue that you are experiencing. I think people without AS just can't understand how miserable it can be. Hang in there. You're not in this alone.

I'm on the same journey with AS, it is debilitating. Stay as strong as you can be. I found sharing my experiences on RUclips to be a really good coping mechanism.

Would love to see your streetches.

You are doing an amazing job Nic. I feel so blessed and happy tomsee.someone is sharing their true and authentic real struggle. It is what it is to be human.

It isn't easy to share something personal out here in RUclips land. I hope this is a start in building a community that has this infliction and be a platform to share knowledge, experience, and provide a means of support, both to those who are enduring this, and the family/friends who are coping as well. You always have my complete respect and my full support with this new endeavour. Anything I may be of assistance with, just let me know.

I ask you Jesus to ease my friends suffering and comfort his soul.God bless.

I'm with you my friend big love ❤️

Sorry to hear that