- Видео 114
- Просмотров 29 303
appyjess
Добавлен 8 дек 2007
Official diagnosis part 2
Talking about my diagnosis from my EMU stay and how my diagnoses have changed and also my current treatment until I see the neurologist
Просмотров: 540
Видео
Official diagnosis part 1
Просмотров 46911 лет назад
The official diagnosis from my EMU stay and how my diagnoses have changed
EMU admission experience
Просмотров 40611 лет назад
Sorry about the 4 year old. I tried to redo it numerous times, but I can't get one with less him. Just talking about my experience while in the epilepsy monitoring unit July 16-19th 2013
Neurology appointment
Просмотров 59311 лет назад
How my neuro appointment went. Going to be admitted to the EMU and diagnosed with 'low pressure' headaches.
What is up?
Просмотров 7111 лет назад
Update on my health and the crazy idea I had. When I say "use" I mean take a med. I have two sets of allergy medicines to choose from depending on my location so I use one or the other. I promise, I am not a druggy.
Driving the motorized wheelchair
Просмотров 77711 лет назад
We had a cookout and all my dad's friends from across the country came to honor him. Nearing the end when few were left for the night (it was a weekend long event) Mikey wanted to drive Gamma's power wheelchair. I was rather impressed by how good he was for being 4!
Salt triangle of hell
Просмотров 12511 лет назад
Salt can both increase blood volume and dehydrate you. I apparently go the dehydration route.
Hey, it's been 12 years since you posted this video and i would like to know how you are doing now? I got very bad bile reflux gastritis after having my gallbladder removed 8 months ago, so far no medication helped me😢 I'm praying for a miracle healing 🙏
How are you in 2023? I have autonomic dysfunction as well and you described in your last video that one hormone test came back positive. I also have hormonal issues so I'm trying to make a connection here...
Skip to my Lou.
Hi, are you alive in 2023? Let me know if you are still alive.. I wanna talk to you, for real!
How are you now?
I am very curious on how you are doing now? Please make a followup video if you can. Hope all is so much better with you ❤️
Hope you are ok
How are you now
What caused your diagnosis
I'm kinda confused do you have potz and sick sinus syndrome for the reason you have a pacemaker
I have this and i need to know if your ok. Because If you are than I can be too. Or if anyone reads this comment that has this plz respond. God bless you. Thank you
I am doing good. On my second pacemaker for this condition. Its much better controlled compared to my other conditions. :)
@@appyjess that is great I'm Glad to hear that! I am sorry your other conditions are hard to deal with. That isn't cool. I don't think I have tachy Brady it's looking more like heart failure. I will hopefully know in a week I have two appointments coming up. I pray it's not but it's looking like it.
how are you now?
i realy wanna talk to you and ask some questions, i have same syndrome too and i haven't talked to anyone with this syndrome ever. so , contact me
Hello i wonder to know how you doing ? This video was 7 years ago , but i am actually suffering of this kind of gastritis and i would like to know what you have done in case that you feel better or if your gastritis is worse?
Im sorry you are dealing with this. I still struggle on and off with bile gastritis. What helps me is taking Dexilant and Carafate. hopefully you can find something that helps with your case of it.
God... I wish I could I talk to you
feel free to look me up on Instagram and message me. IG name is appyjess.
It sucks so bad... It knocks me out sometimes
I was the same way. Until after I had a surgery I always have a high resting heart rate and then all of a sudden I had tachy Brady syndrome.
Fromthe TeyaShop how did you got diagnosed with tachy-brady syndrome?? I got diagnosed but dismissed by another doctor am confused🤷♀️
@@Warden8433 it was done by ekg and halter first ( did a 3 day and 30 day) and confirmed by echo.
Im sorry you are having to deal with this as well. It truly does suck, and no fun when you get knocked out by it.
@@appyjess I'm looking down the barrel of a pacemaker... did you ever end up getting one?
Hello I been diagnosed with SSS but one doctor tells me am fine and young and the other one tells me I have tachy - brady syndrome am so confused 🤷♀️ My heart goes up and down on my iwatch from 40 to 209 and I feel dizzy, light headed, shortness of breath,fatigue, and chest pain a lot but mostly fatigue bothers me the most because i have a toddler and a baby to take care of. I am currently looking for third opinion from another cardiologist because am still confused but the cardiologist told me I had to do something soon since is dangerous to be without treatment .
I'm sorry to hear you are dealing with those symptoms. I know them all too well. I encourage you to stick with finding an answer or a cardiologist who can suggest treatment. I waited 4 years once I had my SSS diagnosis before I agreed to have a pacemaker. At first I wanted it to just feel better, but eventually got used to treating symptoms with medications. However after 4 years that no longer worked for me, and it became life or death. I do not regret getting my pacemaker. It has helped make me feel more normal than I thought it would. I love no longer having to worry how low or how high my heart rate is going to get. If you want to talk about it all, I'm here for you.
appyjess I feel the same just want to feel me again with energy and work hard. I just feel useless right now and not everyone understands but I fear for my kids since they are small to leave them thats why I am looking for answers and seriously considering the pacemaker is scary at 24 to make huge a decision but I prefer to be safe than sorry. Am glad I found you I feel lost with all this since is rare and not everyone know about it.
@@Warden8433 I ended up getting my pacemaker not long after I turned 27. It is a huge decision when you are young, and you will forever get the "but your so young to have that". Looking back I don't know how I survived the 4 years without it. But my pacemaker hasn't just helped with SSS. however, It has given me the chance to treat the SSS and rarely have to deal with that anymore.
appyjess hey sorry for bothering but am so confused so I remember mentioning that I was diagnosed with sick sinus syndrome but I went to a third opinion and he did a table tilt taste and he diognosed me with postural tachycardia since my heart rate change from 80s to 150 and blood pressure dropped during the test am so confused. Hope your doing better.
I still have my gallbladder and i am suffering from bile refflux it is the most painfull gastritis, there are many types of gastritis but this one its the most painfull one In most of the cases medication won't work, surgery is required 😞
How are you doing now? I got my pacemaker 4 years ago after I fell and broke my head open. 6 weeks ago I fell and broke my chin open. Yesterdays I had an episode of afib that was nasty. I am on a heart monitor for a month.
I dont want an ablation.
Hi! I guess I really need to make an update video because I have been having a lot of people ask home I'm doing now. I actually got a pacemaker almost 4 years ago now. I still faint a lot - due to very low blood pressures, and still have a lot of things going on. SO much has happened in the last 4 years. I'm so sorry to hear you had a bad episode recently. I know how frustrating it is to think you have some sort of handle on something and then your body decides otherwise. I hope you can get some good answers that allow for a treatment you are more comfortable with.
Yes you nailed it with the body decides otherwise thing. SUUUUUUX
But yeah mine seems to be getting worse.
yep, I know what you mean. I went to the doctor yesterday for something simple, and walked out with a new diagnosis of something completely different. Sometimes you just have to wonder when it will all stop being thrown at you. Guess we just have to take it one day at a time.
how are u coping now in 2017? hope your well
Train-insane I should probably make a update, but as of right now I have a pacemaker and have been homebound for nearly 6 months due to my health. thanks for asking.
Does your heart rate constantly fluctuate whilst resting? 30bpm - 70 - 30 etc ?
Train-insane Yes
I'm not judging, but are you a hypochondriac? you really sound like it😞
I'm sorry you feel that way. I have not made videos in a couple years, but my health has indeed gone down hill. Since my last video I have gotten a pacemaker implanted due to sick sinus syndrome, and have been diagnosed with severe autonomic dysfunction. Unfortunately, with the conditions I have the symptoms vary drastically and very few people or doctors understand the condition. I will gladly share more details about my story with you if you would like to understand any of it better.
I know how you feel i have svt.Too
😘😘😘 hope your ok I been suffering sharp head pains and seizures too
Does anyone know if this is something that is happening more often then in the past and if it's affecting younger people more so then in the past. We are seeing huge increases in auto immune diseases, diabetes, cancer.
Jessica could u please txt me I have tachy Brady syndrome and I'm scared: (
hi,My English is poor , don't hear that you said.
can this cause.. my fainting spells,blackouts,sweating,dizzyness and headaches???
grettagrids my heart rate goes from 52-120. never what it should be. I take betablockers for my chest pains and palpitations but then I pass out.
Mine goes from 0 to 180+. But not below 60 now that I have a pacemaker.
I'm a fainter too. My first episode was at age 11. Don't do that often anymore since I got older and gained too much weight. I still have them occasionally first thing when I get up in the morning after being in bed all night. Hope you are doing OK.
i like to drink tonic water from the quinine good stuff and i feel much better, and even though you look wiped you are quite beautiful, feel better
I honestly think it was because I passed out while sitting and that is never good in the eyes of anyone trained. It doesn't happen very often with me, but been happening more frequently lately. Especially in hot areas. Ironically the medics remembered me from high school. So weird. I was an EMS explorer and ended up getting my EMS basic before moving away. That was almost 9 years ago, so really shocked someone remembered me. Esp since I look completely different!
oh no! Why they always insist on calling the ambulance when someone is there to advocate for you is beyond me!
:( I had a fun experience today that I normally don't have. I ran out with my sister tonight to get dinner and didn't put on my compression sleeves (I had just gotten out the bath) nor compression shorts or binder. It was dark but still hot. About 2 blocks from the house we hit a road block and while the cop was checking her license I passed out sitting in the passenger sit! Whoops! Apparently my sister told him it is alright I do it all the time, but he still made an ambulance some and clear me
my BP tanks after meals too :( heat and me do not go well together either.
I tried to send you a message but it wouldn't let me! Feel free to try and see me one. I will try and send one again.
Really I am just happy for answers. I knew something wasn't right. I have been getting worse for the last couple years and this explains so much. Although according to the doctor and the articles he has sent me PAF is mild and not life threatening. I am still learning about it, and will share what I learn.
Oh wow Jess glad you have some answers, I understand how not knowing can be but that DX is not good news. I know you will make the best out of though. Best wishes
I found your videos from your TachyBrady video. I have that to and checked it out and wanted to find out more about you. You sure have alot of challenges but glad your dealing with them.
I wouldn't go back to that hospital if you could. For them to have sent you home when you still had major issues is lawsuit type shi!
Hi, I have Tacky Brady Syndrome also and have had a really hard time getting help and support. I started a facebook page for more awareness for this for that reason and I want to help others not to have to go through what we are, I been fighting it for 3 years now and have lost everything because i'm unable to work... please come and join me and we will fight this together... I understand what you are dealing with. facebook.com/#!/TackyBradySyndrome
Praying for you. All the best for the hospital trip and the study. Summer can be so horrible for POTS thank God for air conditioning :-)
Sending you all my love and hope you feel better soon.x
Hope you get to feeling better
My heart goes out to you - hope this doesn't happen anymore. It must be so scary. Thinking of you.xx
My glucose level was fine when they found me. They checked it before I regained consciousness.
I think the only reason they let me leave is because I have had such a workup and they try to do as much outpatient as possible, esp up here. Plus my doc here only has the solution of 'salt'.
hate events with no memory. similar weotd stiff with me. good luck
Me too. Gotta say, of all the places it was the best. I have fainted in public, but this was so different I was glad to be close to the hospital.
that would be scary. So glad you're okay. please keep us posted if you find out anything
I've done the EMU before. Hope they can find some answers for you.