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Who's taking up steriod for long-term medications? Do you stop taking it at 5mg?

I was diagnosed with NMO in 2016 I had just graduated highschool

I was diagnosed last year,one of my eye get blind.

I am in Jamaica and really need this help

My mother is also a patient of NMO, suffering from 2013

Did Somebody here experience Itchiness around the body?is that a symptoms of NmOSD?

I was diagnosed today 10/4/23 with NMO. So many questions, I am terrified.

Deshon is an inspiring young man with a heart of gold. Thanks to all who put the work in to help him. He’s a hard working young man who keeps fighting. I met him at Lowe’s in Cartersville. I see him in there all of the time, in the garden section. He is always positive, helpful and cheerful. It’s a pleasure to see him in there. On a slow day he told me his story and it lead me to this video. My heart goes out to him and all who have to deal with this. God bless and keep him.

Desmond it was very nice meeting you at Lowe’s Sunday. You are a very nice young man. It’s a incredible story, glad your getting the help you need. Your in our prayers 🙏

God bless you 🙏🙏 I’m happy you got a diagnosis and hopefully it will help you to live a bit better. ❤

hello, im from Indonesia and i have had NMOSD since 2018.

Wow so many people saying all wonderful things about this young man ❤ hoping he heals and can live a healthy life ❤

I met Deshon at his workplace. His determination is nothing short of amazing. He is an extraordinary young man, with an tremendous personality. He made my day a better day. Be strong Deshon…may God bless you in your battle with this illness.

As I sit here and watch your video tears run down my face and it’s because I know of everything you’ve gone through because two years ago my daughter was diagnosed with NMO and everything you experienced she has experience it, she lost her vision in her left eye first then her right eye, there is so much to say but I will just sum it up with God is faithful she doesn’t have the pain in her body anymore and she’s able to walk now but she hasn’t regained her vision yet but I know that there’s nothing too big for God and with him all things are possible he’s faithful to his promises.. be and stay encouraged and know that God is a healer and he will never fail you .. God Bless You

I was Blessed today while shopping at Lowes! Meeting Dashon was a n awesome Blessing and the sharing of his testimony just made my day. He went above and beyond while helping me and I really appreciate it! Lowes aught to be commended because while he was helping me one of his coworkers Terry had came out just to check on him. That Blessed me to see the love and concern for one another! TGBTG!!!

Thank you for sharing your story I to have NMO. I am moderately paralyzed from the waist down. I was First diagnosed with transverse meylitis then a year later NMO, a struggle of 6year now. I like to say 3 years of decline & 3 years of positive progression. My story is to long to go into, but trust me i am muuuuuch better from where I started. Your video is motivation to me, to get up and work that much harder to continue to eat healthy, workout, & to stay Address to new technologies. I am sure there will be a cure one day. Again thank you for sharing. For those that my want to know my treatment. ( keep in mind these Doses were higher at 1 point in time. But giving the positive progression have been lowered. And this is where I today. Rituximab treatment- 3times a year 2 in June 1 in Dec. Mycophenolate 500mg every other day. Baclofen 20 mg 3 times a day I was on Prednisone for about 2yrs. But given my progression was able to come off it a year ago! To all that are fighting this disease dont give up. I know the mental battle can be harder then the physical at times. I pray for your progression, peace and strength ❤ Jermaine Smith

Thanks for sharing your story with me today Deshon trust and believe in our merciful God to bless you plentifully through your journey 🙏🏾 PEACE ✌🏽 My Brother.

I had the honor of meeting Deshon today with my granddaughter. He was so very helpful and genuinely wanted to help me find what I was looking for. He shared his incredible story and that it was on RUclips. I told him that he is one special man and that his Heavenly Father needs him to be here to share his story. He hugged me twice and we gave one another high fives a few times, I told him that I would see him again. The Spirit was so strong when I was talking with him, I was meant to meet Deshon today! What a wonderful day….on the Sabbath❤️❤️❤️❤️❤️

Great testimonial, you are an inspiration to so many others facing this debilitating disease. God bless you.

Deshon, thank you for sharing your story with me, I am so glad to see that you have such a beautiful group of caring and supportive people and great healthcare team members. I can truly see how far you have come! Thank you so much for your help today! I admire your spirit, and your great customer service! Bea

To every doctor and scientist ty... yall saved my life

My friend Deshon

Does steroid and immunosuppressants prevent acute attack

"Promo SM" 😱

I'd love to know the treatment. I fell sick around August 2021 by November 2021 I was completely disabled. Diagnosed with nmosd in February 2022. But I am seronegative. I've been on Ocrevus q6 month infusions and 3-5 day solumedrol infusions for flares. I'm not getting better. Only worse and I'm missing out of my entire life. They want to try Acfhar self injections now. Other than that I just feel and know I'm a goner. This is a horrible disease. I'd never wish it on anyone for even a 5 minute walk in my shoes.

Thanks Lee... Concerning your willingness to share your story and your ability to identify with our Patients reminds me of this passage, "Blessed be God, even the Father of our Lord Jesus Christ, the Father of mercies, and the God of all comfort; Who comforts us in all our tribulation, that we may be able to comfort them which are in any trouble, by the comfort wherewith we ourselves are comforted of God," (2 Corinthians 1:3-4).