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Doctor as Data Scientist UCL
Добавлен 6 мар 2020
We practise, research and teach Health Data Science. In 2019 we introduced an innovative new course to UCL's medical students, 'Doctor as Data Scientist' (DDS), which is part of the Clinical and Professional Practice (CPP) component of the MBBS. Led by Dr Ami Banerjee, at UCL's Institute of Health Informatics, DDS tackles the lack of training in digital health technology for medical students and doctors across the UK and beyond.
To find out more about us, please see our website: www.ucl.ac.uk/health-informatics/study/undergraduate-study
This channel is for our short course videos.
Many thanks to all those involved in authoring, producing and providing guidance on our podcasts, including Ami Banerjee, Sarah Clegg, and Rob Stephens for guidance
To find out more about us, please see our website: www.ucl.ac.uk/health-informatics/study/undergraduate-study
This channel is for our short course videos.
Many thanks to all those involved in authoring, producing and providing guidance on our podcasts, including Ami Banerjee, Sarah Clegg, and Rob Stephens for guidance
Behind the Mask: The Reality of Living with Long Covid
STIMULATE-ICP patient and public advisor and trial participant, Mag, opens up about the reality of living with Long Covid.
For support with living with Long covid, please see online tool developed by the STIMULATE team at University of Southampton, which offers a symptom checker, advice on seeking support, and encourages people to talk about their symptoms with professionals, friends and family: long-covid-care.org.uk
Please note that this video contains an honest account of the toll of living with a long-term condition and contains reference to suicide.
Samaritans provide 24 hour support, every day of the year to anyone who is struggling: www.samaritans.org or call 116 123
For support with living with Long covid, please see online tool developed by the STIMULATE team at University of Southampton, which offers a symptom checker, advice on seeking support, and encourages people to talk about their symptoms with professionals, friends and family: long-covid-care.org.uk
Please note that this video contains an honest account of the toll of living with a long-term condition and contains reference to suicide.
Samaritans provide 24 hour support, every day of the year to anyone who is struggling: www.samaritans.org or call 116 123
Просмотров: 552
Видео
STIMULATE-ICP Update 15th March 2024
Просмотров 1809 месяцев назад
Today on International Long Covid Awareness day, STIMULATE-ICP co-leads, Professor Ami Banerjee and Dr Melissa Heightman, discuss how the study is progressing with Mag L, patient advisor and trial participant. You can find out more about the STIMULATE-ICP Study at: www.stimulate-icp.org/ and contact us via: info@stimulate-icp.org
Drug Trial Participant 3 Month Update
Просмотров 8610 месяцев назад
Mag gives an update of her experiences of participating in the STIMULATE-ICP drug trial after 3 months of treatment. You can read more about the trial on our FAQs page: www.stimulate-icp.org/faq If you would like to speak to Mag directly about her experiences or have any questions you'd like to ask her, please contact us at info@stimulate-icp.org and we'll put you in touch.
What can you expect as a participant in the STIMULATE-ICP drug trial?
Просмотров 32211 месяцев назад
Mag describes her experiences of participating in the STIMULATE-ICP drug trial and talks through what you can expect if you take part. You can read more about the trial on our website: stimulate-icp.org/ If you would like to speak to Mag directly about her experiences or have any questions you'd like to ask her, please contact us at info@stimulate-icp.org and we'll put you in touch.
STIMULATE-ICP Trial Updates
Просмотров 235Год назад
Rachel Hext, patient advisor to STIMULATE-ICP, discusses the latest updates to the STIMULATE-ICP trial with co-chief investigators Professor Ami Banerjee and Dr Melissa Heightman. Dr Heightman references the Commissioning Guidance for Post Covid Services (11min 55sec) which could be useful to patients in their conversations with GPs. The document is located here: www.england.nhs.uk/publication/...
STIMULATE-ICP Financial Implications of Long Covid
Просмотров 4362 года назад
The patient and public representative panel of STIMULATE-ICP discuss the financial implications of long Covid with chief investigator Professor Ami Banerjee. Some of the services referred to are as follows: - GP: Social Prescriber attached to the surgery who can put you in touch with an advocate, someone who can help with completing forms, for example Personal Independence Payment (PIP) applica...
STIMULATE ICP Work Package 2: Drugs in Long Covid
Просмотров 2632 года назад
Patient representatives Kim and Lyth discuss the drugs being tested in the trial and why they were chosen, along with other aspects of the trial.
STIMULATE ICP Work Package 2 : The trial design and pathway for trial participants
Просмотров 1792 года назад
Patient representative Kim talks to the STIMULATE-ICP Trial team about the design of the trial, how participants are allocated to pathways and who is eligible to take part in the trial.
STIMULATE ICP Delphi WP3b
Просмотров 1362 года назад
Emily, patient representative on STIMULATE-ICP, talks to Professor Christina van der Feltz - Cornelis who is leading on the Delphi Study.
STIMULATE ICP Inequalities WP3a
Просмотров 1212 года назад
Patient representative on the study Mag talks to Dr Nisreen Alwan who is leading the Inequalities workstream of STIMULATE-ICP.
STIMULATE-ICP Long Covid Care
Просмотров 3162 года назад
Patient representative Kim discusses the 'Care' work package of the STIMULATE-ICP study. Joining her are Professor Amitava Banerjee, Chief Investigator and Dr Melanie Ramasawmy mixed-methods health researcher at UCL Institute of Health Informatics.
Evidence-Based Medicine and Long Covid
Просмотров 2192 года назад
The next in our series of topical information videos related to Long Covid. This time Professor Amitava Banerjee, Dr Mel Heightman and Mr Lyth Hismeh of the STIMULATE-ICP team discuss Evidence-based Medicine and Long COVID.
Trials and Long Covid
Просмотров 2262 года назад
Three members of the STIMULATE-ICP team (Professor Amitava Banerjee, chief investigator, Dr Melissa Heightman, co-chief investigator and clinical lead, and Mr Lyth Hismeh, public and patient involvement and engagement team) discuss trials and Long Covid. For more information see study website: stimulate-icp.org/
Microclots
Просмотров 1,4 тыс.3 года назад
This is the first in a series of topical information videos for patients, public, health professionals and researchers relating to Long COVID. In this first video, three members of the STIMULATE-ICP team (Professor Amitava Banerjee, principal investigator; Dr Melissa Heightman, co-principal investigator and clinical lead, and Mr Lyth Hismeh, public and patient involvement and engagement team) d...
Introduction to Doctor as Data Scientist
Просмотров 1,7 тыс.4 года назад
Introduction to Doctor as Data Scientist
Evaluation in the Digital Era Is It Different
Просмотров 234 года назад
Evaluation in the Digital Era Is It Different
Evidence Based Medicine, Quality Improvement, Learning Health Systems
Просмотров 484 года назад
Evidence Based Medicine, Quality Improvement, Learning Health Systems
Data Science What opportunities are there for doctors
Просмотров 5394 года назад
Data Science What opportunities are there for doctors
What do doctors need to know about data science
Просмотров 1624 года назад
What do doctors need to know about data science
What is 'Doctor as Data Scientist' at UCL
Просмотров 1124 года назад
What is 'Doctor as Data Scientist' at UCL
aka also known as the long vaccine!!!
Thank you very much!!! Thank you Mag. I have LG for 3 and a half years; it’s been a very difficult time, and today also and then I found you THANK YOU VERY MUCH, you made me feel understood. I live in Mexico and here there is no help for people with LG and friends and family think you are crazy or depressed…. There is few people that support you…. It made me feel good hearing you, thanks. 💖💖💖 God bless you!! ✨🙏🏻✨
Thankyou so much. You articulated this just as it is - devastating. This helped me a lot. Unbelievably hard this battle . I am with you ❤
Hang in there ❤️
Thank you, spot on
I've had lc for two years now. Your video made me feel better please keep up the good work
Hi .. don’t lose hope .. I had long Covid for 22 months (fatigue , brain fog, depression, insomnia etc). I did the Lightning Process in January, and recovered from my fatigue within a week. Brain fog took a bit longer and was certainly helped by taking augmented NAC . Cold showers daily probably has helped as well as well as the Perrin technique interesting videos from Tina Peers re MCAS and the spike protein.. Happy to have a chat to bring any of the above to life if it helps Don’t loose hope ..
What is the Lightning Process & Perrin technique ? Already tried NAC & cold showers, both helped. Open to any new suggestions that help with chroni fatigue, thanks.
Where did you find someone who does Perrin technique?
@@kimouellette2947 lots of info on thire website. Just Google . Augmented NAC and NAC differ - see Dr Tina Peers video on removing spike protein
@@kathydoell5571have you taken the covid vaccine?
I am sorry. You are much too young for this.
Have you seen the work on the " metabolic trap" from the open medicine foundation and bob naviauxs work on mitochondrial dysfunction and the cell danger response
I have had CFS for more than 40 years. Long Covid is another label for the same chronic illness. You feel alone, but there are millions of us out there!
Covid targets mitochondria and the gut microbiome in a lot of people. Healing the mitochondria with the supplement called Researched Nutritionals NT Factor Energy and boosting the good bacteria in the gut are essential. Vitamin C 3x a day. Make sure Vitamin D levels are normal in addition to B12 levels, and ferritin. Keep blood sugar balanced by cutting out processed foods and eating a whole food diet (paleo or keto). I've finally recovered after a year and a half of long covid by implementing these strategies with the help of Dr. Maggie Yu.
I share my story because maybe it is similar to yours.....I have had long covid since 10/2020. I worked until 8/2022 and realized I could no longer do my job and had to resign it was heartbreaking. I loved my career but couldn't function anymore. Everyday I am completely exhausted. I don't see anyone or talk on the phone it's too exhausting. No one understands so I truly appreciate your video. I am blessed to have family support and the finances to stay home. I pray for those who feel like we do and don't have support. I have seen 19 doctors and spent tens of thousands of dollars out of pocket. So many doctors don't understand or even believe in long covid and have diagnosed my symptoms as PTSD, Chronic fatigue, Fibromyalgia, Adrenal fatigue & POTS but its all from long covid. I was healthy before getting covid in 2020. Some positives are my skin rashes are no longer uncomfortable and they are much smaller now and I can actually smell again well most of the time. The other symptoms, insomnia, headaches, brain fog, eye clouds/ discharges, muscle pain, cough, nausea, kidney issues, shortness of breath they all come and go throughout the day and on a good day I don't experience some of them at all. However, the one symptom that is relentless is the chronic fatigue it seems to never leave me. I am hopeful one day there will be a cure. Please stay hopeful you are not alone. Sending you love and strength.
I have m.e. exactly the same symptoms. 20 years in. Look up " the open medicine foundation" non for profit organization They think they can reverse these conditions. Standford scientists. Nobel laureates. There is hope
same here good luck from london
the link in the description doesn’t work
I could handle zero appetite, brain fog, the rash, but the fatigue is crushing and relentless. I believe you.
@@rodneyleonard8714 I believe you I am so sorry you have the relentless fatigue. You might try listening to Toby Morrison to help with the crushing chronic fatigue. He helps you find your baseline and gradually you can build energy.
I've had ME/CFS for 31 years starting in 1993. I understand entirely and at times I've felt gone, so tired with awful symptoms. Living through the disbelief of Dr's in the early 1990's and even with a diagnosis in 2002 I still only have 4-5 good hours a day and that's it! I lost a sporting career when I was 27 and a great job. It took everything away from me. Surviving is so difficult and many don't understand as we look well! My ME/CFS came on after 5 bouts of bronchitis and a bad Flu! My advice for early sufferers is don't PUSH IT as I did as it gets worse that way. Rest and don't exert yourself. Thanks Mag❤🩹❤❤🩹
How long you suppose to take famotodine for? I heard that some people take it for 3-6 months🤷🏻♂️
In the trial it's for 3 months so far.
Super informative, reassuring for prospective study participants and helpful!
『p』『r』『o』『m』『o』『s』『m』 ❣️
Thank you to all participants for putting into words what is so hard to even get my head round! Primary school former teacher, now teaching assistant for children with complex needs, on long-term sick leave, 11 months into Long Covid and facing probable ill-health retirement proceedings in a few months, having applied for PIP and waiting to start 'treatment' with Long Covid clinic I have been referred to... It's a lot to take in!
The biggest problem is employer denial Government gas lighting/nhs gas lighting. I worked on front line on infected wards with infected patients. and only going to work in own car in lock down groceries delivered by asda. There were several individuals that presented with covid at the time I was infected. We routinely took swabs from patients and I contracted virus from patients. In that area. Bluepaper surgical masks when your working with stroke patients is limited protection. You are up close and personal if you can smell the patient halitosis they can smell your coffee breath. Only when patients were confirmed covid +VE Then ffp3 masks were advised. Too late you caught virus giving nebs swabbing patient ng feeds/meds doing up close and personal care. Patients were +VE before their swabs came back +ve. Two days later off work for 18 month plus. still not right and about to fall off financial cliff. Thankfully Ive paid mortgage off.
Thank you for sharing your knowledge. I have tried everything. I used to work in the vitamin / supplement industry, so I tired that protocol first. Not much improvement. i tried the antihistamine route, even got an Rx for cromolyn sodium, no improvement. I have tried aspirin along with high doses of fish oil to thin the blood, no improvement. Stopped all alcohol 7/2020. Always eaten mostly organic. Zero junk food. No improvement. I got covid in 3/2020 so I have had plenty of time 'experimenting". I was working full time and having a great life. Now my bones ache from being in bed for so long every day. I give up.
After SARS COV2 infection at some patients erytrocyte aggregation like coin rolls (sludge)can be seen at relative low temperature at optic microscope. A dropp of perifereal fresh blood put on a surface of a cold glass lamela agglutinate before coagulate. May be that can trigger microclothing. Eritrocyte aggregation at relative low temperature can , theoreticaly,induce increasing of blood viscousity. May be Dextran40 , N-acetylcysteine ,and avoiding drugs that decrease body temperature are a solution at the begining.
Nac is OK for clotting? I need more...
@@SupremeODMG not for clothing, only to decrease blood viscousity and enhance capillary blood flow. To decrease rysk of arterial blood cloth acetylsalicilic acid(aspirin)was used at very low dose(50mg/dayly) and dipiridamol -especialy against arterial cloth.(decrease plattelets activity) Against vein cloth other anticoagulants are used.(IT decrease blood coagulation)
Why are you not communicating the risk of the triple therapy - it is well quantified in papers from its use for other conditions, e.g. stroke? These statistics are what you off setting the risks of not treating against. How will it materialise over time......in 10 years when the long term damage of neurotoxins, low ATP, structural brain changes and all the other things, become know? I'm pleased to hear about further studies - are you buying the kit for fluorescent microscopy for your research ?
It is interesting. I'm waiting to read myself when more data shows but I'm not sure how much I'm messing myself up waiting as well.
Very nice. Quick question. So an MD holder shoud apply 4 year course data science or can he just enroll a Masters program for data science? Thanks.
We offer several MSc programmes in the Institute of Health Informatics at UCL. Please see: www.ucl.ac.uk/health-informatics/study for more information. Thanks!
I'm sure that this discussion is very important to many people but not everyone has 20 minutes to spare to watch it. Please could there be a transcript, which would be much faster to read than watching the video.
Hi Diana, the transcript should be available. Click on the More Options (three dots below the video) Select the Open Transcript option from the drop-down menu and it should appear.
@@doctorasdatascientistucl142 Thanks. I can't see a date for this discussion but the internal comments suggest that it took place before January 2022.
Aspirin is so clear cut for long covid, and it is a very benign chemical.
Imagine if are countries put the same amount of money into healing as the do into building bombs and starting wars..and gain of function research
Thank you for this!
Thank you for the discussion. I note that antiplatelets and anticoagulants have been trialed separately at UCL, but I think the rationale from prof Pertorius is quite clear that they should be taken together, possibly explaining the mixed results at UCL so far. Regarding the risks, I understand them but under careful medical supervision this shouldn't be an issue. It may be unusual to use the triple stack approach, but we are dealing with an unusual disease. We must realise what the impact of doing nothing is. Patients cannot wait another 1 or 2 years for treatment. Every month, every week, every day counts. Further, I think everyone agrees that microclots are not the full picture. Autoantibodies, mast cells, and others are also possibly at play. It is however most likely that all these are working together in some way. It will take years before we fully understand what's going on (if at all) and I think it is clear that identifying and treating microclots in patients are the best be have at the moment. I'd like to hear/understand what UCL is doing in terms of looking for microclots in patients with light microscopes - following the Pretorius protocol. This is very hard to get done at the moment, unless you have connections at research labs (which some have successfully done). If we can show they are there, that is half of the puzzle. It will also help understand which patients will benefit from this treatment. It is really encouraging that you are working outside of the protocols and trying get us the treatment we need - and being so open about it. I'd like to see a bit more of this proactive approach to treatment in the UK - listening to patients, balancing risks and benefits.
This has given me SO much hope - thank you to all involved. God I hope we can roll out a treatment protocol to the many of us who have suffered so much