Pseudomyxoma Survivor
Pseudomyxoma Survivor
  • Видео 8
  • Просмотров 799 119
Diaphragmatic Breathing exercise produced for the PMP and appendix cancer community
Relax, reduce stress, improve core stability - these are all things we need to do when living with pseudomyxoma peritonei and diaphragmatic breathing is one technique to help manage all of these.
Pseudomyxoma peritonei (PMP) is a condition thought to affect around three people per million each year. In most cases, it starts in the appendix; more rarely, it can start in other parts of the body such as the bowel, an ovary or the bladder.
PMP develops from a small growth on the inner lining of an organ. At this early stage, the tumour is rarely discovered as it doesn’t cause any symptoms. Left untreated, the tumour grows and eventually bursts through the wall of the organ into the abdominal ca...
Просмотров: 163

Видео

Anxiety Management in pseudomyxoma peritonei (PMP) and appendix cancer
Просмотров 4263 года назад
Anxiety is a very common issue in people (and friends/family members) with cancer. Triggers for this anxiety are wide-ranging. Anything from scanxiety to fear of medical procedures can be experienced. In this workshop, we will talk about anxiety, how this applies to PMP, and cover some common anxiety-management techniques. The workshop is led by Dr Jason Spendelow, a Clinical and Coaching Psych...
Expansion Exercise by Dr Jason Spendelow, hosted by Pseudomyxoma Survivor
Просмотров 733 года назад
Observe, Breathe, Create space, Allow When we are diagnosed with pseudomyxoma peritonei (PMP), appendix cancer or another rare peritoneal malignancy, we have a lot of feelings to deal with, most of them are difficult. With this expansion exercise, open up and make room for those difficult feelings. Pseudomyxoma peritonei (PMP) is a condition thought to affect around three people per million eac...
Pseudomyxoma Survivor Workshop with Dr Jason Spendelow - Loss and Grief
Просмотров 3073 года назад
There are many losses to deal with, many of which are not obvious to others, or even to ourselves. We will cover grief and loss in pseudomyxoma peritonei (PMP) in this workshop, along with some strategies to help cope with these issues. The workshop is led by Dr Jason Spendelow, a Clinical and Coaching Psychologist who has been in practice since 2005. Jason runs an online practice working with ...
Remaining true to your values following a diagnosis with pseudomyxoma peritonei or appendix cancer
Просмотров 4663 года назад
We've been running a series of workshops with Dr Jason Spendelow. In this first session, Jason explains how we can remain true to our values, so many of which we may feel we've lost after a diagnosis. Pseudomyxoma peritonei (PMP) is a condition thought to affect around three people per million each year. In most cases, it starts in the appendix; more rarely, it can start in other parts of the b...
Audrey Hepburn’s son's RARE family photos and the CANCER that took her life
Просмотров 793 тыс.7 лет назад
Sean Hepburn Ferrer, the patron of Pseudomyxoma Survivor, tells us about his mother and how pseudomyxoma peritonei (PMP) affected her and the family. Pseudomyxoma peritonei (PMP) is a condition thought to affect around three people per million each year. In most cases, it starts in the appendix; more rarely, it can start in other parts of the body such as the bowel, an ovary or the bladder. PMP...
Pseudomyxoma Survivor - together we're stronger
Просмотров 2,6 тыс.8 лет назад
Audrey Hepburn, rare in more than one sense Pseudomyxoma peritonei (PMP) is a condition thought to affect around three people per million each year. In most cases, it starts in the appendix; more rarely, it can start in other parts of the body such as the bowel, an ovary or the bladder. PMP develops from a small growth on the inner lining of an organ. At this early stage, the tumour is rarely d...
Sean Hepburn Ferrer, patron of Pseudomyxoma Survivor
Просмотров 1,6 тыс.10 лет назад
Sean Hepburn Ferrer, Pseudomyxoma Survivor Patron and Eurordis Rare Disease Day Ambassador, talks about his involvement with Pseudomyxoma Survivor. Pseudomyxoma peritonei (PMP) is a condition thought to affect around three people per million each year. In most cases, it starts in the appendix; more rarely, it can start in other parts of the body such as the bowel, an ovary or the bladder. PMP d...

Комментарии

  • @oldstuff59
    @oldstuff59 3 года назад

    I have had two surgeries and two drains. Round 1 diagnosis, almost killed me, round 2 wasn't worried, round 3 was stressful because of personal/family issues, round 4 was terrifying because new symptoms appeared. Fell into 3month long depression and fear unable to control my emotions. For a month now the emotions have leveled off and slowly getting back to normal.

  • @CHNL.s
    @CHNL.s 3 года назад

    can you become ned from this even if it has spread into your abdomen? I have slow growing lawn im only 26. :(

  • @arvineyano2347
    @arvineyano2347 3 года назад

    Pls help me what to do sir...

    • @nwl1749
      @nwl1749 3 года назад

      I was diagnosed with low grade appendiceal mucin neoplasms 1 year ago. I had major 7 hour long surgery to remove my spleen. Ovaries. Uterus. Appendix. In that process the mucin in my abdominal cavity was also removed. I had the HIPEC treatment to. "Kill" any remaining mucin. I am disease free. It is possible to recover your health and well being.

  • @barbaragordon8433
    @barbaragordon8433 3 года назад

    I am a twelve year survivor of Pmp and thank God every day for the wonderful surgeons and nhs staff in Basingstoke who saved my life. So sad that Audrey never had that chance Such a beautiful person Barbara Gordon

  • @BecD1983
    @BecD1983 3 года назад

    My beautiful mother died due to this cancer, 7 months after diagnosis 💔

    • @pmpsurvivor
      @pmpsurvivor 3 года назад

      Sorry for your loss. We do have a bereavement peer support group for those who have lost someone to pseudomyxoma peritonei (PMP) and/or appendix cancer.

    • @BecD1983
      @BecD1983 3 года назад

      @@pmpsurvivor where do I find that please?

    • @pmpsurvivor
      @pmpsurvivor 3 года назад

      @@BecD1983 If you apply to join our support group and put in the message that you would like to join the bereavement group, we'll be in touch to send you an invitation. www.pseudomyxomasurvivor.org/community/join-community/

    • @BecD1983
      @BecD1983 3 года назад

      @@pmpsurvivor thank you

  • @gitanjalianand3543
    @gitanjalianand3543 3 года назад

    She will live forever in our hearts! ❤️

  • @francislee7306
    @francislee7306 3 года назад

    let her RIP. she was the most remarkable and charming lady I have ever met. iam75, greetings from Hong Kong ❤

  • @tishsmiddy71
    @tishsmiddy71 3 года назад

    Yes she was extraordinary to so many ! Thank you 😊

  • @amalHope3
    @amalHope3 3 года назад

    RIP Miss Audrey Hepburn

  • @sharonbragin9854
    @sharonbragin9854 4 года назад

    The Ultimate Woman 💖

  • @shirleybingle5024
    @shirleybingle5024 4 года назад

    Beautiful Person so lovely and a Handsome son 🥰

  • @kathleenmccann8205
    @kathleenmccann8205 4 года назад

    She was such a beautiful woman In every way.xxx

  • @GrandmaSandy
    @GrandmaSandy 4 года назад

    Very good video really enjoyed it thank you for sharing it with us

  • @doreenfernandes2431
    @doreenfernandes2431 4 года назад

    Audrey Hepburn was a lovely human being who gave her all. God bless her with eternal peace in His heavenly kingdom.

  • @CJ-ph6zk
    @CJ-ph6zk 4 года назад

    She carried herself with such dignity and grace. She and Grace Kelly were the epitome of elegance. I see the same in Catherine Middleton.

  • @annajames8122
    @annajames8122 4 года назад

    Oh my god, I could cry listening to this😪It upsets me because your mum was so beautiful, talented and a good person. This is the first time I am hearing abt this rare cancer. Thank you for sharing.

  • @lisanealy1703
    @lisanealy1703 4 года назад

    Beautiful🌹

  • @vio3366
    @vio3366 4 года назад

    I've never met Audrey but I feel I miss her

  • @VitoelMaxenceHepburnSLUA
    @VitoelMaxenceHepburnSLUA 4 года назад

    Sometimes angels become humans to help humans become angels.

  • @marialucilia7203
    @marialucilia7203 4 года назад

    Beautiful Lady l love ...

  • @victoriabernuth9728
    @victoriabernuth9728 4 года назад

    I see the same gentle kindness in you. A true gift.

  • @thestud1881
    @thestud1881 4 года назад

    fuck that cancer who killed her

  • @JulieJersey
    @JulieJersey 4 года назад

    💙

  • @vinniejackson4646
    @vinniejackson4646 4 года назад

    ❤️❤️❤️🙏🏻

  • @maralopez3458
    @maralopez3458 4 года назад

    Your mother was an angel,she’s not gone baby she’s in your heart ❤️ always. I still watch all her movies when Iam in a lot of pain or not just myself I watch her and is like a cure for me. I wish she was still here. Audrey Hepburn is a true angel. We miss and love you sooo much

  • @colinturner4158
    @colinturner4158 4 года назад

    Class elegance beauty brains she had it all huge work for unicef caring loving

  • @brucejeanduc841
    @brucejeanduc841 4 года назад

    Oh how beautiful she was.

  • @ignorantbliss1778
    @ignorantbliss1778 4 года назад

    Of all old Hollywood actresses, only Audrey and Ingrid really touched my very soul..

  • @LMays-cu2hp
    @LMays-cu2hp 4 года назад

    Thank you God Bless your Mother.

  • @racheljamieson6617
    @racheljamieson6617 4 года назад

    I'm not an emotional person at all but I've loved her since I was little and I'm crying from this short video. She was so loving and gracious and elegant and to be gracious isn't being a pushover or whatever ppl might conceive it as but she was..whats another word. She was selfless and just beautiful. And he has her eyes. So lovely xxxxx

    • @pmpsurvivor
      @pmpsurvivor 3 года назад

      If you would like to make a donation to Pseudomyxoma Survivor, please go to www.pseudomyxomasurvivor.org/donate

  • @manueladietzig4040
    @manueladietzig4040 4 года назад

    ❤️🌹❤️🌹❤️🌹

  • @paulinechamberlain8569
    @paulinechamberlain8569 4 года назад

    10outof10 ain’t bad.

  • @rociobany290
    @rociobany290 4 года назад

    Yes, an extraordinarily beautiful unique heart filled Lady ... too bad she only got 5 years with UNICEF Rest in Peace ... you will never be forgotten **

  • @heikebohne8864
    @heikebohne8864 4 года назад

    Audrey was Magic...... Rest in Peace. ♥️♥️♥️♥️♥️🙋🏼‍♀️🇩🇪👩‍⚕️🌷🌷

  • @helgafingerhut5777
    @helgafingerhut5777 4 года назад

    Verehrung, Verehrung, Verehrung!!!

  • @saragrant3667
    @saragrant3667 4 года назад

    Many thanks for this vídeo, such a close to my heart anything regarded to Audrey Hepburn! 👏🏻❤️🙏🏻

    • @pmpsurvivor
      @pmpsurvivor 3 года назад

      You're so welcome! If you would like to make a donation to Pseudomyxoma Survivor, please go to www.pseudomyxomasurvivor.org/donate

  • @saragrant3667
    @saragrant3667 4 года назад

    Hi Sean, I just have got this fantastic compilation book completed by your brother Luca with all those wonderful photos and recipes of your Mum, what a pleasure to have it! Your Mother was and always will be the proper icon of woman, amazing human being and style, charm, chic, great fashion & great taste whatever it means under the most clasical standards and beyond of it. Her values as a person who suffered deeply 2WW, hunger , family outbreak will be always Audrey’s most authentic trademark for all the women of the world. I’d say nowadays She’s highly remembered and recognised because by the authenticity of these personal valúes your Mother always preserved. My very preferred actress of all the times! ❤️🌹🙏🏻

  • @TheBlueVagina
    @TheBlueVagina 4 года назад

    My sister died from this disease two years ago. There is approximately 30 people throughout Canada suffering from this disease.. It is a terrible and Incurable disease if diagnosed too late. That was her case.

    • @pmpsurvivor
      @pmpsurvivor 3 года назад

      We're very sorry to hear about your sister. Please accept our condolences. If you would like to make a donation to Pseudomyxoma Survivor to help us raise awareness so that patients can be diagnosed earlier, please go to www.pseudomyxomasurvivor.org/donate

  • @rma3_3_3
    @rma3_3_3 4 года назад

    Extrodinary!

  • @mariabiro8658
    @mariabiro8658 4 года назад

    UNFORGETTABLE ICON TRUE ANGEL AUDREY ! RIP

  • @mercyklinesantos
    @mercyklinesantos 4 года назад

    I admire and love her,she was a incredible lady,sometimes I watch her movies,❤️❤️🇨🇦

  • @RC-ku8pr
    @RC-ku8pr 4 года назад

    I LOVED Audrey Hepburn...my grandchild looks just like Audrey Hepburn and my grand daughter name is also AUDREY...AUDREY HEPBURN WAS A WONDERFUL MOVIE STAR...AND YOU SEEM LIKE A WONDERFUL SON....

  • @quaver1239
    @quaver1239 4 года назад

    Thank you for this. I am in my 78th year, and Audrey Hepburn remains one of the most memorable people in my life. A beautiful, elegant and gentle lady.

  • @ladyanne8139
    @ladyanne8139 4 года назад

    I recall her speaking of this cancer.... Shé made reference to eating tulip bulbs as a child during wartime....wondering if this could have contributed.. How I LOVE HER. PRECIOUS SOUL SHE SHARED WITH MILLIONS... 💜💗💞

  • @suzanbeverlyhills2310
    @suzanbeverlyhills2310 4 года назад

    RIP beautiful lady

  • @dj4123
    @dj4123 4 года назад

    She was always a class act for sure.

  • @rrjackaroo
    @rrjackaroo 4 года назад

    Sean, you are an absolute delight... your mother would be so proud of you. I did meet her and Andrea Dotti a few times in Number One Rome, when I happened to be living there for a few years... she was extraordinary beautiful is a natural way. Simplicity is the word I’m looking for..if only it were like that today....thankyou Sean.

    • @pmpsurvivor
      @pmpsurvivor 3 года назад

      Wow, on behalf of Sean, thank you. If you would like to make a donation to Pseudomyxoma Survivor, please go to www.pseudomyxomasurvivor.org/donate

  • @nenereyes4330
    @nenereyes4330 4 года назад

    I named my only daughter audrey. shes brilliant beautiful and intelligent. great daughter, mom to her 2 kids and wife to her husband. shes not a movie star but she can sing dance and play all kinds of musical instruments. she became a doctor.

    • @pmpsurvivor
      @pmpsurvivor 3 года назад

      As a doctor, we hope she is aware of pseudomxyoma peritonei (PMP).

  • @monicamoreira8863
    @monicamoreira8863 4 года назад

    I loved your mother! I too cut my bangs as mist girls did. The Audrey Hepburn cut. She was elegant and absolutely beautiful!

  • @tinarider9945
    @tinarider9945 4 года назад

    Thank you sharing with us this touching video..maybe today with a scanner is possible to discover on time this rare disease?All respect to Audrey and Sean...❤🙏👸🤴🌞