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Lupus Foundation of Minnesota
Добавлен 30 окт 2009
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The Lupus Foundation of Minnesota (LFM) encourages interaction, discussion, commentary, questions and even criticism, but respectfully asks that comments and posts are kept relevant and respectful. Personal attacks, inappropriate language, racism, spamming and excessive posting will not be tolerated. LFM reserves the right to remove any post or ban any user for any reason. We reserve the right to move discussions offline and to delete excessive wall postings to improve the overall visitor experience. LFM reserves the right to remove posts advertising commercial products, as well as those that violate RUclips's terms of service, or are inaccurate, or are otherwise objectionable. We will not post form letters with the same content from multiple users. Relevant comments or "likes" on previously published posts are always welcome.
The Lupus Foundation of Minnesota (LFM) encourages interaction, discussion, commentary, questions and even criticism, but respectfully asks that comments and posts are kept relevant and respectful. Personal attacks, inappropriate language, racism, spamming and excessive posting will not be tolerated. LFM reserves the right to remove any post or ban any user for any reason. We reserve the right to move discussions offline and to delete excessive wall postings to improve the overall visitor experience. LFM reserves the right to remove posts advertising commercial products, as well as those that violate RUclips's terms of service, or are inaccurate, or are otherwise objectionable. We will not post form letters with the same content from multiple users. Relevant comments or "likes" on previously published posts are always welcome.
WEBINAR: Understanding and Using Medications Wisely
In this webinar, Karen Bastianelli, PharmD, shared information on how to make the most of your medications and to use your pharmacist as a resource to navigate the changing world of medicines, health care, and self care.
Просмотров: 187
Видео
WEBINAR: Neonatal Lupus: Facts and Fiction
Просмотров 2 тыс.8 лет назад
In this webinar, Dr. Jill Buyon discussed the unique aspects of neonatal lupus, including what the disease is, who is at risk, what the current thinking is regarding its cause, as well as management approaches.
Making a Difference
Просмотров 1958 лет назад
(Premiered May 4, 2015 at Lupus Food and Wine Classic) The Lupus Foundation of Minnesota is determined to make a difference in the lives of people with lupus, by funding research, providing education and supportive services, and increasing public awareness. The Lupus Foundation of Minnesota urgently needs your help as we fight together for the future of those living with lupus. Contact us by ph...
WEBINAR: Living Well with Lupus as a Youth
Просмотров 1238 лет назад
Approximately 20 percent of people living with lupus are diagnosed in their childhood. Being a youth with lupus can be challenging, to say the least. In this webinar, Dr. Mona Riskalla discussed the unique aspects of being a youth living with lupus, including symptoms, medications, and general strategies to better manage the disease such as nutrition, exercise, and the use of supplements. For m...
WEBINAR: Research Updates on Treating Lupus and Other Chronic Arthritic Diseases
Просмотров 2259 лет назад
Curative therapies for autoimmune disease such as Systemic Lupus Erythematosus will rely on the selective induction of tolerance in dangerous autoreactive T and B cells, while avoiding immunosuppression of protective immune cells. In this webinar, Dr. Mueller, a 2015 LFM research grant recipient, discussed his research studying these dangerous T-B interactions and his preliminary data suggestin...
WEBINAR: Interconnections: Stress, Pain, and Health
Просмотров 1789 лет назад
This webinar focuses on individuals living with lupus and the management of their pain and stress. During this presentation, occupational therapist Brenda Frie, MA, OTR/L discusses the benefits and negative consequences of stress and pain, their impact on health and well-being, and offers strategies that may provide relief. About the Presenter: Brenda Frie joined the Occupational Science/Occupa...
WEBINAR: Lupus Updates on Research Aimed to Help Improve Treatments in African-Americans
Просмотров 1649 лет назад
In this webinar, 2015 LFM research grant recipient Dr. Emily Gillespie talked about her study of the relationship between lupus and women, particularly African-American women. Several gene expression patterns, or biomarkers, appear to be unique to African-American patients. Dr. Gillespie explained why the discovery of these patterns highlights the need for further biomarker-driven research effo...
WEBINAR: Lupus Fatigue Fact and Fiction
Просмотров 8059 лет назад
This introductory webinar focused on the concept of fatigue management through the exploration of the physiological base underlying the symptom of fatigue in lupus. During the presentation, occupational therapist Brenda Frie, MA, OTR/L describes the impact of lupus on fatigue levels, identifies treatable causes of secondary fatigue, and analyzes the evidence supporting fatigue management strate...
2014 LFM Student Summer Fellow, Jenna Ruggiero
Просмотров 57410 лет назад
2014 Lupus Foundation of Minnesota Student Summer Fellow, Jenna Ruggiero, discusses her research project for the summer.
2014 LFM Student Summer Fellow, Londyn Robinson
Просмотров 40510 лет назад
2014 Lupus Foundation of Minnesota Student Summer Fellow, Londyn Robinson, discusses her research project for the summer.
2014 LFM Student Summer Fellow, Sam Albanesi
Просмотров 17010 лет назад
2014 Lupus Foundation of Minnesota Student Summer Fellow, Sam Albanesi, discusses his research project for the summer.
2014 LFM Student Summer Fellow, Lillian Nosow
Просмотров 13210 лет назад
2014 Lupus Foundation of Minnesota Student Summer Fellow, Lillian Nosow, discusses her research project for the summer.
Updates in Lupus Webinar
Просмотров 2,2 тыс.10 лет назад
Dr. Timothy Niewold, Associate Professor, Mayo Clinic, Division of Rheumatology and Department of Immunology, presents this webinar featuring the latest updates in systemic lupus erythematosus (SLE) and related research. Dr. Niewold, who is also the Chair of the Federation of Clinical Immunology Societies of Excellence, explores why genes are causing lupus, suggested complex inheritance of inte...
LFM Student Summer Fellow Charlotte Stanford
Просмотров 8111 лет назад
2013 LFM Student Summer Fellow Charlotte Stanford introduces her research work in the Fife Lab at the University of Minnesota.
LFM Student Summer Fellow Danielle Johnson
Просмотров 14511 лет назад
LFM Student Summer Fellow Danielle Johnson
LFM Student Summer Fellow Lindsey Pogge
Просмотров 5711 лет назад
LFM Student Summer Fellow Lindsey Pogge
Interferon in Systemic Lupus: Friend or Foe?
Просмотров 1,3 тыс.11 лет назад
Interferon in Systemic Lupus: Friend or Foe?
Rheumatoid Arthritis and Systemic Lupus Erythematosus Webinar
Просмотров 63 тыс.11 лет назад
Rheumatoid Arthritis and Systemic Lupus Erythematosus Webinar
SLE-PTPN22 Lupus Study Recruiting Participants
Просмотров 60111 лет назад
SLE-PTPN22 Lupus Study Recruiting Participants
Lupus and Arthritis:Similarities and Differences
Просмотров 20 тыс.12 лет назад
Lupus and Arthritis:Similarities and Differences
Cory Cove Kicks off Sludgeathon for the Lupus Foundation of Minnesota
Просмотров 2,4 тыс.12 лет назад
Cory Cove Kicks off Sludgeathon for the Lupus Foundation of Minnesota
2010 Student Summer Fellow Philip Titcombe.MP4
Просмотров 23514 лет назад
2010 Student Summer Fellow Philip Titcombe.MP4
2010 Student Summer Fellow Laura Zwilling.MP4
Просмотров 17914 лет назад
2010 Student Summer Fellow Laura Zwilling.MP4
2010 Student Summer Fellow Dane Schaleben-Boateng.MP4
Просмотров 13214 лет назад
2010 Student Summer Fellow Dane Schaleben-Boateng.MP4
Nice Philip!
Is fasting safe for folks with lupus and myocarditis?
I have RA and Lupus and I have had it for close to 2 years and have suffered horrible experiences with pain 💔 until I got into a specialist and was diagnosed with blood work I have just finished chemo and radiation from Breast cancer 🎀 can cancer treat have triggered my Lupus??
I’m glad I found you here on RUclips Doc Kham. Curing me from herpes is something I never imagined.
I’m glad I found you here on RUclips Doc Kham. Curing me from herpes is something I never imagined. I’m so excited to be cured!.
You’re truly a life saver Dr IGUDIA on RUclips.I’m now living a very comfortable life after using your herbs medication to cure my genital herpes virus
his herbal medication is 100% Cure for Shingles virus and any disease virus and STDs I was cured after 12days of using the herbal medicine I ordered from Dr.Ani John contact him now and get your permanent cure.
All thanks to DR. OSAKA on RUclips Channel for curing me from Lupus with his natural herbal diet.
l,m forever grateful to a man called DR.Osaka on RUclips channel who recommended his herbal medicine for me and i got completely cured of Lupus.
I am absolutely delighted and grateful with the immediate healing I got through Dr omoh home channel on RUclips keep saving lives Dr omoh I'm forever grateful 🙏🙏
I am absolutely delighted and grateful with the immediate healing I got through Dr omoh home channel on RUclips keep saving lives Dr omoh I'm forever grateful..
I’m a little disturbed that the “ arthritis foundation” is involved with RA and Lupus. I advocate and wholeheartedly believe that rheumatoid arthritis should be renamed to rheumatoid disease because the arthritis that presents itself is not your every day osteoarthritis. Honestly it’s not even in comparison to pain or on any level of arthritis.
Testifying about Dr Ogie Herbal on RUclips is the great joy I have ever had in a while because, this man transformed my life In all ramification. Thanks doctor for putting an end to my lupus and putting a smile on my face again Thanks doc 🤗
I have Lupus and have a constant pull on my heart. My family refuses to acknowledge the huge risks of heart attack with Lupus.
Meeting Dr Gboya on RUclips has really been one of the best day of my life after years of suffering I have been finally cured from lupus thanks doc God bless you,,,😇
Sorry , recently my wife expired due to sle having suffering about 16 years .
dont be sorry it is nice you looked it up mine does not have a clue i have had it since 2008 maybe before all i get is poor mother cause she has osteoarthritis I'm a pain and can not do with it at all just goes around to visit his mother now she has dementia that will be fun with lupus can not go out much with my sun sensitivity she comes my house puts flowers in my garden wonder why im not impressed with her it is my home she triggers my condition. can not even go for a walk without a flare up or a cold. im Subacute the rash one
She is now a resident at duke university
Can not handle prednisone
I recommend Dr.Auchi on RUclips channel for saving my life from Sle Lupus disease 🦠, when I use the herbal remedies I get from Dr.Auchi. I was totally 💯 cured completely..ruclips.net/channel/UC6tA16t1IlKx1bY93lc2rcg ,,
My daughter had this 21 years ago, a rash. She was tested negative for lupus and others. I was diagnosed with lupus SLE and discoid 4 years later.
the most educational video of lupus . The best
All thanks to DR. OSAKA on RUclips Channel for curing me from Lupus with his natural herbal diet.
Am here to let the whole world know that I was diagnose of Lupus diseases 7years ago were all hope was lost and I had nothing to do about it,I just accepted the faith that one day I will cure of this disease and I just pray everyday for a helper and one day my sister introduce me to a herbal man called Dr otuke that she saw on internet,well, I gave him a try on his email drotukeherbalhome@gmail.com,I was not fully convinced until he sent me the herbal medicine which he ask me to take for two weeks I took it with faith and i went for a retest in different hospitals and today am cured of this disease and am also using this medium to let all those having STD,like herpes and the rest not to give up,their is a man who can cure you,his name is Dr otuke contact him on drotukeherbalhome@gmail.com or you can also WhatsApp him +2347034971061 Or visit http//Facebook//drotukeherbalhome.
Please suggest me I have disease since 25 years I need help I can't control my self in pain many times I had sleeping tablets for relief
I recommend Dr.Auchi on RUclips channel for saving my life from Sle Lupus disease 🦠, when I use the herbal remedies I get from Dr.Auchi. I was totally 💯 cured completely..ruclips.net/channel/UC6tA16t1IlKx1bY93lc2rcg ,,
Hello every one,I want to share tip with you all on how I get rid of lupus in just 8 day of taking the herbal medication doctor Ovie sent to me,I am from United States I was infected with lupus in two year now I away use hospital medication since two year now. until I see a testimony who was cure from lupus with the help of Doctor Ovie ,on the testimony I saw an email of doctor Ovie and I contact him for help also in just 1 hours time I receive a reply from doctor Ovie and I was very happy he told me that is going to prepare herbal medicine for me and he send me a form to fill so that he can deliver the medication to me which I did,on Monday I receive a call from delivering service that I have a package send to me by doctor Ovie ,that is how I receive the medicine which cure my lupus,I am sharing this because I no that there are so many people at there looking for lupus cure you can via Email: {Ovie.miraclemedicne1@gmail.com} call or whats-app Dr on +2349056393169
Hello viewers i am really happy for being a normal human being again after taking the herbal medicine of Dr Ovie the herbalist. i never believe that my LUPUS DISEASE can be cure again until i visit Dr Ovie for help, he gave me his herbal medicine that cure me after 14 days, i am really happy and i am short of words, please you all should help me thank him for what he has done for me, i am now a normal human being and i am getting married next month. please you all should contact him through his email if you are a patient of LUPUS DISEASE. here is his email address: ovie.miraclemedicine1@gmail.com or you can contact him through what's app +2349056393169 .
8:00
Oh I'm from nepal
Am here to testify about a great @dr_akhere180 who cure me from herpes virus with his herbal medicine,I have be suffering for herpes disease for the past two years now, I have take many treatment but it was as if the virus was getting worst and I have be believing God for a cure one day till I came across a lady on the internet testify of a great @dr_akhere180 who cure her from Herpes virus and she share his number and email so I decided to contact him and he send me the herbal medicine that I was taking and @dr_akhere180 told me after 3weeks the herpes will be gone througly I was cure from the herpes virus that almost rule my life, so if you also need cure for Herpes virus you can as well contact +2349017082519 he said he also cure all kinds of sickness like HIV Cancer Asthma
I lost my 1st baby due to neonatal lupus plz tell me and suggest me how to decrease risk and complications raised due to neonatal lupus?
My baby possible has this and I was ok till I read your comment. Can you tell me what happened??
Plz tell what happened with your baby.
@@ourtechilifestyle5744 8th month tk sab ok tha 8 th k bad 33 week me achanak bp high or pani km fir emergency csection krwane padi 34 week me baby boy weight 1.4kg tha or 3 days tk NICU me rha or achanak breathing problem hone lgi jhatka aane lge or ventilator pr rakha gya 18 days ventilator pr struggle kiya dr bole brain haemorrhage ho gya baby ko 20 th day ko achanak haemoglobin km platelets km or baby death kr gya bad ne torch or apla lupus test Hua to PTA chala lupus like anticoagulant positive tha mera Please bataye ab aage kya krna chahiye Ye mera 1st baby tha jo csection 3rd November 2019 ok huyi or baby death 22nd November ok Hua Ab mujhe kya step lena chahiye or kya krna chahiye healthy or safe baby or pregnancy k liye
This was great, thanks, I have been researching "medicine for lupus disease" for a while now, and I think this has helped. Have you heard people talk about - Denmelia Jansabella Builder - (search on google )? It is an awesome one off product for discovering how to treat lupus minus the normal expense. Ive heard some decent things about it and my friend got cool success with it
This is a text done to me does it mean I have lupus? SSA (RO) ab Your Value Positive Standard Range Negative SSA antibody is observed in 70-75% of Sjogrens Syndrome, 30-40% of Systemic Lupus Erythematosis, and 5-10% of Progressive Systemic Sclerosis patient cases. Testing was performed using a multi- plexed, microparticle-based immunoassay for antibodies (IgG) to nuclear antigens.
Hi I was diagnosed with lupus in my 12th std it's my worst year
I recommend Dr.Auchi on RUclips channel for saving my life from Sle Lupus disease 🦠, when I use the herbal remedies I get from Dr.Auchi. I was totally 💯 cured completely..ruclips.net/channel/UC6tA16t1IlKx1bY93lc2rcg ,,
9
Isolation is extreme for me since I am photosensitive
I’m in MN and I have no one to talk about it. There is no support for people with my illness in where I live. I’m newly diagnosed
Rheumatoid arthritis is awful disease I had it for over 17years and it's deformed my hands pain is unbearable at times
Take boron
Are muscle tremors included with this diag? thanks
Thanks for reply, finally found the name of what I am looking for "resting tremors"
i have ana alp lupus and sle internal lupus erythematosus internal ra and diabetes Nd 10 all togather
Very smart girl.
I have discoid lupus but s/s of SLE myalgias big time, chronic fatigue pain in elbows, negative ANA but cytoplasmatic fluorescence was noted on hep2 slide. Other reactivates anti-mitochondrial antibodies or anti smooth muscles antibodies may be responsible for this? Do you think is SLE? My Md is referring me to RA
+April Keller, feel free to connect with us at the Lupus Foundation of Minnesota by calling Sandy at 952-746-5151/800-645-1131. She'd be happy to chat with you about your questions.
Thank you so much
I think you should get checked out for crest syndrome scleroderma, if you have Raynaud phenomenon (shaky tingling finger pain in cold temperature or tense conditions) and Telangiectasia (visible veins, and red pinprick like spots that blanch under pressure, aren't pinpricks).
is there a place that will help me get ssi i have lupus i live in california and no one here seems to care about lupus patients at all im tired of going to doctors fighting social security and cant even get welfare or general relief here due to time limits im to the point where i dont want any doctors to help me there is no other medication i can take at all the steroids already messed me up and i can no longer take anything what happens when we get to this point nothing works in terms of medicine
+jacquelinewashere, don't hesitate to contact us here at the Lupus Foundation of Minnesota for some answers or referrals. Contact Sandy at 952-746-5151/800-645-1131.
Thank you very much
I CARE!!! Im in the INSANITY boat of Lupus too....IT IS physically and mentally depleting, IM WITH YOU.🤗💜💜
jacquelinewashere , I believe you, it is the same here in Texas, seems that doctors do not care about Lupus, they do not take it seriously, as for me , I do not want to take steroids, it makes patients feel and look swollen, puffy face, I found a nutrient in Mexico, that it is very promising, very expensive, and I am going to give it a try.
Move from comiforniA to to another state I have lupus and have my SSI benefits live in south Florida I got mine in less than one year
I have symptoms of lupus. For 4 years now nd have had so many different diagnosis?
Donna, don't hesitate to reach out to us here at the Lupus Foundation of Minnesota for some answers or referrals. Contact Sandy at 952-746-5151/800-645-1131.
Me to
Me to so many different diagnoses
@@LupusFoundationofMNhow can a person get the right diagnoses for lupus
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You must remember that ANA comes and goes to flaring...and I have Discoid Lupus which can go systemic with a low positive and then a negative...but with a positive skin biology. So it is a very unpredicatable and misunderstood disease...so glad we are making such wonderful strides...the last decade has made so much progress to cure Lupus!
All thanks to DR. OSAKA on RUclips Channel for curing me from Lupus with his natural herbal diet.
Flaring means?
@@debangananandy3194 An increase in activity ie feel like have a bad cold/flu high temp37 Mine is a rash on my face butterfly rash more visible, been outside to long in sunlight try and go in the shade very difficult on holidays. lightbulbs uv new kind.
Heart disease and other cardiac problems have surfaced as the most serious long-term risk for people suffering from lupus. It is important for providers to monitor heart health in their lupus patients, regardless of any prior symptoms, as cardiac complications are a leading cause of mortality in lupus patients.Taking a proactive approach to heart health is vital and a conversation every lupus patient should have with their provider.
How does one know lupus is affecting their heart?
Because many branches of specialty want to have little to do with rheumatology, it is difficult to know. That has been my experience. The system likes to pass the buck onto the next referral.
I have and I use to model and go to school and I don't want to do nothing nomore and don't want to model nomore and don't want to go to school nomore and I tell people I have lupus and people don't know what it is either but the sad thing I can't afford to go to the doctors and I went years without going to the doctors cause I couldn't afford going to the doctors.
@iAMcirca Thank you for your comment. Regarding your symptoms, I'd suggest you write them down and how they affect you and make an appt. to talk with your doctor. The diagnosis process can take time and there are a variety of things doctors look at -- medical and family history, symptoms and blood tests. As far as living with lupus, people learn to live with lupus in healthy ways thru management, doctors visits, support and treatment. (continued)
I am so proud have raised awareness...Keep it up and spread awareness...You are a blessing.
I am from Wisconsin. I have Lupus. I am very happy to see that their are people who care about all of us with this illness. I am wishing for brighter days in my life. I have the photosensitivity and flare with sun or fluorescent lighting. I need to be able to live a normal life. One without pain preferred... LIke all of us with Lupus hope for...Thank you so much! God Bless you and keep up the good acts of kindness!