- Видео 40
- Просмотров 130 328
mr2als
Добавлен 8 сен 2006
This is my journey with bulbar onset ALS. The good the bad the ugly. I started having trouble speaking in Feb. of 2021. It was so slight no one could tell. By March it was worse so I started seeing doctors. By dr number 4 I was diagnosed with this disease. Consequent visits to several specialists, neurologists, ent’s, etc 10 in all, were certain I did not have als. By the end of June I had to beg my way back to see one of them who was shocked that he had missed it and indeed I did have bulbar onset als. I was told life expectancy for this form was 1-2 years and I was 7-8 months in, luckily I’m bad at math so who knows how much time I have. I took a line from a song by rise against as my motto “when faced with tragedy we come alive or come undone” so here I am, to come alive while I can. I got married on a mountain top 3 weeks after being diagnosed. So here we go, my personal diary/journey of what’s inside a dying middle age wanna be skater, cyclist, triathlete, husband, father.
Видео
MR2 ALS lightens things up ! you have to laugh at yourself..
Просмотров 498Год назад
MR2 ALS lightens things up ! you have to laugh at yourself..
2021 ironman 70 3 world championship documentary
Просмотров 101 тыс.Год назад
Saturday, September 18, 2021, I competed in my last race. I had been diagnosed with ALS (Lou Gehrig's disease) earlier in 2021 after experiencing symptoms in February. Ironman included my story in their race documentary. Less than two years ago I was able to complete this race, now I'm unable to walk, talk, dress myself (May 6, 2023). Every 90 minutes someone is given a death sentence, with an ...
MR2 ALS tells you what I’ve leaned of the afterlife.
Просмотров 379Год назад
We all think we know what exists beyond this life. Or do you
MR2 ALS is falling apart ☹️
Просмотров 596Год назад
brought to you by our friends at TCS motorspots, the MR2 experts. My body is failing me because of advanced ALS.
Want to know what a crippled guy with ALS does all day? Come for a ride in the MR2 and find out.
Просмотров 248Год назад
Want to know what a crippled guy with ALS does all day? Come for a ride in the MR2 and find out.
MR2 ALS goes for a ride with his friend Haley who is braver than anyone
Просмотров 537Год назад
Haley has been through the greatest challenge a person can. I am in awe of her strength. I mean I don't let just anyone drive the AW11 !
No one wants my dead body.
Просмотров 257Год назад
MR2 ALS can’t find a nearby cemetery to take his body
MR2 ALS doesn’t pay taxes and getting out before the next election
Просмотров 264Год назад
I don't care who is president and I'm not paying them!
MR2 ALS has a tip for you drug mules
Просмотров 254Год назад
I regulary have to ship illegal drugs to keep me alive. How do I do it? Here's one way.
MR2 ALS gets invited to a pizza party!
Просмотров 520Год назад
death and taxes? how about death and pizza.
MR2 ALS is married thanks to industrial dance music
Просмотров 528Год назад
MR2 ALS is married thanks to industrial dance music
MR2 ALS finds out a secret in the worst way
Просмотров 929Год назад
MR2 ALS finds out a secret in the worst way
A tale of my tub, from my MR2 AW11, from a guy with ALS and months to live
Просмотров 379Год назад
A tale of my tub, from my MR2 AW11, from a guy with ALS and months to live
Wife makes me take all my belongings to charity in my MR2 because I’ll be dead soon
Просмотров 2,5 тыс.Год назад
Wife makes me take all my belongings to charity in my MR2 because I’ll be dead soon
I answer your question about ALS from the MR2
Просмотров 4232 года назад
I answer your question about ALS from the MR2
An MR2 ALS production. How long does it take a guy with ALS to shave
Просмотров 1622 года назад
An MR2 ALS production. How long does it take a guy with ALS to shave
I just randomly remembered about him, RIP brother.
I've got a offended by the man with the wheelchair woman because he said something about special needs people and I am special needs and I do sports and I cycle
i love him saying autism is my superpower
what a beautiful documentary.
Thank you for this inspiring documentary.
awesome documentary Salute
Just stumbled across these videos and I'm deeply moved. Thank you for sharing the tough journey, with some fun and wisdom along the way...
Gave me a chuckle - I like the format. Hang in there!
r.i.p Kyle and godbless your wife and family and if you're with us still, keep fighting . love from the uk
I am so sorry to hear your story. It has touched me so much and I pray that you do well.
Go Kyle go! ❤
I watch this last video a bunch of times and it still brings tears to my eyes. I hope someday it will be easier. But it helps me to know how many lives you have touched as I read the comments, and that's what life is about, touching people's lives for the better. I need to strive to be better at that and you have been an example to me. Love you forever, Dad
God speed brother. Thank you for the courage to share and inspire others.
you are so missed Kyle. i don’t know how i stumbled upon this channel. i’m just newly interested in cars and not even necessarily into MR2s, but i’ve tuned into every episode refreshing your channel since i cannot have post notifications. i go through a ritual similar to yours in my 2006 TL with my headlights and popping my sunroof (although mine is electrically operated). i’ve been listening to a lot more New Order, too. i don’t know what else to say.
RIP Kyle. You're truley an inspiration for so many out there.
Godspeed Mr. Brown...Godspeed. The courage you've taught your family is the most impressive thing about you. Thank you for the inspiration.
Love you Kyle Brown. Your acting was an inspiration to all young boys who wanted to be funny. Thought your sketches (or reality, was never sure) were the funniest things when I was a child listening on RFH. I will always look over there!
RIP Kyle, hope your wife and kids find peace in knowing you’ll no longer be in pain. Their happy memories of you will push them forward as they carry on without you.
The car looks good very clean
RIP Kyle…you’re legacy lives on.
RIP Kyle Brown. I'll put up your memorial on the corner of State and Main.
Rest in Peace or your MR2 Kyle.
RIP Kyle. You are an inspiration to all. We love and miss you! :😢🙏❤
❤️🩹
Love you man
You put up a good fight!
Long live the LEGEND! Thank you for keeping on fighting and telling us your story!
Hey brother, I've been following your "journey" with ALS for a good time now. It is clear how wonderful of a man you are, even smiling at your worst. I can't really even imagine what you or your family are going through right now, but im praying for you, and hope that you can make the best out of this, not-so-good situation. You seem to be doing the best of what you can, with the amount of time that you have left, and I have nothing but respect for that, as it can't be easy to do. I hope you know there are many people out there, who may not personally know you, but love and respect you. Just thinking of the day this channel doesn't post again, is very sad. But you WILL be in a much better place. Remember, all dogs go to heaven, so there's lot's of friends to be made up there!
Thanks for always kicking my dads ass on the bicycle. You’ve always inspired him to ride harder and I’ve enjoyed watching these and hearing your letters on RFH. Sending all the love to you and your family. ❤️❤️❤️
I normally just stalk videos, but this broke my heart. My heart goes out to you and your family. Thank you for taking us on this ride and you will be missed dearly. ❤
Kyle, thank you for taking time to write in every week to RFH even if it's shitty news. My friend died 5 years ago from ALS and mother trucker it's a bitch. So much love to your wife and family. All of your strength is admired and yet deep inside I know it comes with a price of grief when checking out. May your journey to your new energy be calm and full of New Order. Thank you for letting us along your journey, we will keep fighting.
Had the pleasure of riding with you, I'll never forget...
😢so sorry bud.
Miss you Kyle. God bless you and your family now
Thanks for sharing your story, Kyle. Every time I ride my bike, drive my 1993 MR2 or listen to New Order, I will remember you and the powerful fighting spirit you displayed. Hope I am blessed enough to meet you on the other side.
Love you man ❤
Thank you for sharing your life with us Kyle!
we love you kyle
Thank you for posting this video.
#ENDALS
God speed from a former mr2 owner.
So sorry! Will keep you and your family in my Prayers!!! Love the aw11 my first car and my favorite!
My favorite "our son kyle" was when he was making his own braces with bits of stained glass in them. Sad to see you go.
ALS is just awful. I am so sorry this has happened to you. I work at a hospital that treats patients with ALS and does research to find a cure, so videos like these will continue to inspire the folks doing that very important work. Each time I get behind the wheel of my SW20 now, it will mean so much more to me. Thanks for sharing this video and best of luck to you and your family in the fight.
God bless you! ❤️
Love you, Kyle. The world is a better place with you in it. I’m sure almost all of us have “Elegia” prepped to play when we hear the news that this fucking disease has finally taken you away from us. ruclips.net/video/LFVFaYN77Lo/видео.html
First time youtube recommended a good video. Dont even know what to say.
Here before this blows up
Because of you I make sure to take a little more joy when I drive my MR2. Because of you I live a little more deeply. I never got to meet you, but I am honored we got to share some communication. I think of your lovely wife, your collective humor, strength, and I take pause to consider whether I have the guts to do what you all have been doing, with such grace and a smile. Thanks for everything... rest easy when the time comes my friend. You lived fully. Also, the cassette deck is broken in my MR2... just putting that out there. I jest... all the best to you and yours. What a life. The rest of us won't be far behind you. Love.
Thank you, Kyle. Thank you for sharing your Journey with ALS in a very accessible way. Much love to you all.