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Hi I believe I have this condition. I have had Lichen Planus off and on from 2012. Today I found out I have a bald spot in my head. I going to make a dermatologists appointment tomorrow.

Hi, thank you for reaching out. I’m so very Sorry to hear of your diagnosis and that you’ve experienced so much hair loss. Reading what you’ve written I would ask for a second opinion on the diagnosis you’ve received given that one doctor said alopecia and the second one said LPP. LPP as well as well as Alopecia are both autoimmune diseases which causes your immune system to mistakenly attack a part of your body. When you have alopecia areata, & LPP cells in your immune system surround and attack your hair follicles (the part of your body that makes hair). Most people who have communicated with me regarding LPP have had similar experiences to me having itchy scalp which can be very painful and sensitive. The hair in my case became quite brittle prior to it falling out. When your doctor diagnosed you with LPP, did they offer you any advice or medication? Are you currently taking anything? One of the most common medications being offered for this condition is the Hydroxychloroquine also known as Plaquenil. Hydroxychloroquine is considered as a disease-modifying antirheumatic drug Immunosuppressants a group of drugs that lessen the activity of your immune system. Be sure to explore your options if you choose to take medication and always look into the side effects before making your decision to take any. I’m not currently taking anything because I felt the side effects outweighed the benefits of the drugs. Outside of that I just make up my own combination of oils to keep my scalp and the little hair I have left moisturized. I also take supplements like zinc, irons, vitamin B & D.

@@geesgoogleaccount2866 I just went to the dermatologist yesterday. I will be having another scalp biopsy done in a few days. During the appointment, my dermatologist asked a pathologist who works in the office come look at my hair, and she said she thought it looked like LPP and not alopecia. They asked me if I had any pain burning or itching, and I said no. Never have. He did mention some medication’s, but I don’t remember what he said. I am currently not taking anything. They said LPP is hard to treat. I guess I don’t know what it is until they do the scalp biopsy and get the results. I’ve never had any burning itching or pain, but I do know it’s been slowly eating away at my hair. It must be LPP because I don’t think alopecia takes that long to fall out. And all because I put those chemicals on my hair. Biggest mistake of my life. I guess I was hoping that it would all just go away and I didn’t want to think about it. My hair is ruined, and now I am terrified and I’m beginning to become very sad and depressed. Initially the dermatologist looked at a previous biopsy from the other place I went to, and they said I have non-scarring alopecia areata. And he recommended the new medication Olumiant. I was reluctant to take that because it has severe side effects, a black label warning. So I’m not sure about this other medication, but I know that I don’t want to go through life and end up completely bald. Right now I feel sick to my stomach. I’ve always been super healthy and I have nothing else wrong with me. Maybe I will go back on an anti-inflammatory diet and see if that will help. I don’t know.

Hi Julie, So very sorry to hear about your experience with LLP. This condition is quite brutal and ruthless, what’s sad is there’s no known preventative measures to stop the initial attack. I’m sorry to hear you were unwell and I hope you’ve now recovered? Have you lost all of your hair? Are you taking any medication to stop the inflammation of the scalp? Do you have the other symptoms also like the sore tenderness of the scalp, the itching and the sore spots that sometimes come up? If you do how have you been coping?

@@genevalewis5220 I got a new Rheumatologist and am on Hydroxychloroquine. I have the typical “hair band” loss. So around the top front and sides. I wear headbands and a lot of hats. I have multiple autoimmune disorders. Hope you are doing well.

Hi Chris Thank you for connecting with me. I’ve never heard of FFA, there are so many different types of hair loss conditions which unless you’re affected by one of them you don’t even know they exist. Traumatizing is an understatement for this condition because it robs you of the things you grow up being told makes you beautiful. Like you all areas of loss have not regrown, for me they’re no longer bald patches but baldness entirely at the crown, sides and back. Those areas are as smooth as a baby’s buttocks 😔. I too wear wigs in fact that is all I wear, I keep saying I’m going to shave off what’s left but I haven’t built the confidence up for it yet. I’ve been using pure aloe Vera on my scalp to help with the itching and on wash days I use the Nigerian black soap on my scalp some times other times it’s the tea tree shampoo. I use a combination of natural oils after to moisturize. I’ve recently started taking hydrochloriquin but I have reservations due to one of the side effects being that it affects peoples vision. What do you use? And how have you been coping?

Hey Joanne, thank you for your message. I’m happy others find my story inspiring, I have wanted to do a follow up for years but haven’t built up the courage to do so. Hope you are doing great.

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Hey Asia Thank you for connecting, so so sorry to hear of your diagnosis. Please can you tell me a bit more about your symptoms, how they are affecting you and what’s been happening leading up to your diagnosis?

Hey, how can we talk? Let me know

Hey Matodzi You are very welcome. Thank you for connecting with my channel and I hope it’s been a helpful experience.

Hi Nikoya, thank you for connecting. I have seen your message and will respond properly by the end of the week.. Have a blessed day looking forward to connecting with you.

Hey lovely, thanks for connecting. When did you get diagnosed with Androgenetic Alopecia? I haven’t heard of that form before but based on the term genetic I’m assuming it’s hereditary. Does anyone else in your family circle have that condition, these are questions you would need to ask your family, on both sides if that is possible. If no one else in your family circle have the condition you’ve been diagnosed with then I would suggest you seeing a dermatologist for a second opinion. I know this or any autoimmune condition must suck especially because you’re only 19 and trust me I understand the effects it can have on your confidence. Try the options I have mentioned and please let me know how it went. If you need to have a chat or join a support group connect with me and a bunch of other ladies battling LPP and other similar conditions on my Instagram page Lichen Planopilaris Journal.

@@genevalewis5220 I was diagnosed last year (18 years old) but the hair loss started 2 years prior. He told me I had Androgenetic Alopecia combined with Chronic Telogen Effluvium and Tricodomia (pain syndrome). However, only a few areas have regrown (top and hairline) and other have not (left side of the crown, sides and in the nape area), which leads me to believe I may have some kind of scaring Alopecia mixed with it. It has pretty much almost wrecked my self confidence. I’m thinking about seeing a second doctor. Do you have a Facebook group?

@@Carolina-rd3gh I am so very sorry to hear about your different diagnosis and the conditions you are living with. I can only just imagine how difficult it must of been for you emotionally and mentally. Definitely do go back and get a second opinion, are you on medication? How are you managing your symptoms and are you getting side effects from the medication you’re on? Yes I do have a Facebook page however I have been told by people they can’t find me send me your Facebook details and I will add you. I will do some research on the other things you have been diagnosed with as I haven’t heard of them before. Sending you big 🤗. Please stay in touch.

@@genevalewis5220 I am currently on Finasteride, which is a very controversial drug in general used in men but in some countries is banned for pre menopausal women. I’m taking a high dosage as well since my case is very aggressive for my age. I tried oral corticosteroids in the beginning alongside it but my body had a terrible reaction to it (skin thinning and easy cuts everyone just from putting on clothes, lack of balance that stopped me from walking for a few hours and the side effects did not slow down). I’m also using an Anagen stimulator for regrowth but as I said it was only able to regrow certain areas. My sides are very thin and the most concerning area for me. I would love to join a Facebook group for hair loss! What details do you need? Can I dm you on Instagram with my details?

@@Carolina-rd3gh yes please go ahead and DM me

Hi, Thank you for connecting. I am very sorry to hear that you have been diagnosed with this awful condition. To answer your question no I have decided not to take any of the medication due to the side effects they all carry. I know loosing your hair isn’t ideal but I have decided I would rather be bald and otherwise healthy than to put medicine in my body that has the potential of triggering other illnesses. I was initially prescribed plaquenil but after my dermatologist told me that the medication will not bring back the hair I had already lost I decided not to take it. I still loose hair daily but I’m otherwise healthy. Follow me on my Instagram page lichenplanopilarisjournal I connect daily with other people who have the same condition. They are people who have said they have success after changing there diets and some have recommended doctors and herbalists they have used whom they say have helped them. Stay encouraged and hope to see you on my Instagram platform where you can stay connected and get regular words of support and encouragement.

@@genevalewis5220 Thank you💛 I’m sorry you’re dealing with this too. No one deserves this. Mine is affecting my eyelashes,eyebrows and body hair. It got to the point I’m not recognising myself in the mirror. I’m getting partial hair system in two weeks just so I can feel myself again. Mine progressed so quickly not gradually in two months I lost like 30% of my hair(in addition to 50% in 2 years). Plaquenil is a relatively safe drug if not using it long term for years. I’ll look you up on instagram. Thank you for being a light for others. This disease sometimes makes you think if life is worth it. The emotional and mental damage it causes is the worst part even more the hair loss itself. Did you try steriods injections to scalp? its safe and its effective in 50% of cases. maybe it can help? and it can cause regrowth. 🙏🏻 Did you try to use topical steriod solution? its safe not quite effective but its better than nothing? Sending you strength and hugs.

@@E10l the condition actually sucks, but I’m learning to cope the best way I can. I’ve had it since 2014 but officially got diagnosed in 2017. I have my down days and when I do they’re really hard but I try uplift myself so I’m not always unhappy. I have learned of different triggers as well so I limit my dairy intake and try to eat a very healthy diet. Some Nuts are triggers for me as well and stress is the biggest factor so I have no choice but to stay at a happy medium so my stress levels are controlled. Just remember yours not alone and stay connected, I find speaking to others with the same or similar condition helps. 💜💜 stay blessed.

Also in regards to the medication in the UK they don’t readily offer the injections in my case they said my scarring was already too far gn for it to help. I was prescribed a few topical treatments but the ones I used didn’t stop neither the itching or the hair coming out they only caused what hair I had left to become more brittle. In the UK some of the doctors are great and you might just be lucky to get one of the good ones, I cannot financially afford to go private so that left me at a disadvantage. I have also lost my eyebrows, I did microblading a few years ago I need to get it redone again soon, my eyelashes are going and I don’t have to do much waxing anymore either due to bodily hair falling off. Good luck with your procedure, do stay in touch and let me know if it worked. Lovely speaking with you, always here to support.👍🏽🙏🏽💜

Hey Vic-E, hope you are doing great. Thank you for reaching out. Of course you can email me on glewispat@aol.com or connect with me on my new Instagram page lichenplanopilarisjournal, would love to share my experience with you and hopefully we can share coping techniques and ideas. Chat soon.😊

@@genevalewis5220 ok ill reach out.

Hi there, So very sorry to hear about your diagnosis but I’m happy to hear your dermatologist have started you on treatment immediately. Yes definitely hope this works for you and you won’t suffer much hair loss. Do keep us posted on your journey and the effectiveness of your treatment.👍🏽🙏🏽

@Tiffany Stephan did anything work for you? How is your hair now?

Thank you Thelma for your encouragement. Do share what you did, products etc. to help with regrowth. This is a safe place for all people affected by This or any other autoimmune disease that affects their hair to share their journey, products used etc. I’m always as are many others on here looking for a solution to this condition. ❤️👍🏽 do stay connected 🙏🏽

Thank you for connecting with me DeShun, I am so sorry to hear about your diagnosis and the progression of it. I have said this so many times that no matter what strength we possess as individuals when we get diagnosed with conditions that has life changing effects it takes a special type of strength to even start processing let alone accepting the changes that comes with it. How are you now wearing your hair? Have you found a way to disguise the bald patches? One thing I do to get me through is to focus on other things about me that’s beautiful and enhance them, I have since changed my diet, I work out daily. You see I have told myself that if I’m going to be bald then I’m going to be bald and Beautiful. Working on your body can increase your confidence & your mood and overtime you’ll go through most days not thinking or being bothered about your hair loss. It takes time to change your mindset and there will still be down days but they get less overwhelming with time. Stay in touch please I would love to hear about your coping strategies.❤️🙏🏽☺️

I was diagnosed with the same years ago. Try pure rosemary oil. It is a healer, and it is stronger than minoxidil.

Hi Raiyan, happy to hear from you. I am pleased to hear you are not allowing this disease to define you. It takes a special type of strength to be able to not allow ourselves to be dragged down and to see the other beautiful qualities about ourselves, even when we struggle with hair loss and other skin conditions as a result of our diagnosis. I hope I will continue to feel encouraged to post updates about my struggles and the path this condition has taken me on, and by doing so my intention is to encourage others and bring awareness to Lichen Planopilaris. Thank you for connecting and stay blessed.🙏🏽

@@genevalewis5220 and thank you kindly for reaching out to us all. We appreciate you and will continue to support you also. Take care lovely lady❤️🌹🌹

Hi Tina, how are you? How have you been managing your scalp since your diagnosis? Of course you can email me @ glewispat@aol.com or contact me via Instagram on genevalewis_. Looking forward to hearing from you.

Hi Tina , thank you for connecting. I have seen your message and will respond properly by the end of the week.. Have a blessed day looking forward to connecting with you. My Email address is glewispat@icloud.com

Thank you Robinson, Doctors who are passionate about the work they do generally listen to there patients, in most cases this proves to be the most effective choice. I was very angry for a long time even blaming my GP for my condition But! I have since come to terms with it hence my being able to share my story with others. Thank you for connecting and stay blessed 🙏🏽

Hi Halil, welcome to my channel. Thank you for reaching out. Did you get diagnosed by a dermatologist?

Hi geneva, of course, I diagnosed by dermatologist but there was no solution for this illness. I hope and i dreamt about this.

@@halilalimli2436 hi Halil, unfortunately I had the same diagnosis and sadly my dermatologist has said there is no cure for this condition. By the time I got diagnosed I had already lost a significant amount of my hair 🥺 Currently I’m not on any meds having taken a number of steroids and using different creams all of which has not made any difference to the condition. I will keep searching but sadly I haven’t found anything yet that works.

@@genevalewis5220 Hi geneva, currently I read the book which is offering treatment about that situations called autoimmune reactions. I'm trying this nutrition protocol because I wrote the author and she said that I have a cure for you. Once I start this way, I felt energetic, pozitive, healthy and I dont care about painfull arthralgia, it's already lost. But I don't have treatment about hair follicules, I hope that I will stop hairloss.

Hey Halil, lovely to hear from you again. It’s great you have found a book that has influenced you to try a different approach. Often it is said that if you change your diet it will influence your body’s reaction to different illnesses. This book sounds great, where can I get a copy from? I have a recipe with different oils blended together with avocado to wash the hair, this is meant to stimulate the scalp and encourage follicle growth. I personally haven’t tried this yet but will have a go at it this coming weekend. Ingredients- 1 avocado, Jajoba oil, sweet almond & castor oil, rosemary, peppermint & coconut oil. Blend all together with the avocado and use to lather your hair & massage the scalp. Use a shower cap to cover and leave to sit on hair and scalp for about an hour rinse out and condition with a conditioner of your choice. Stay in touch! And do send me more info about the book

Sorry to hear about your diagnosis Detrica. How are you coping and what symptoms have you got? I would very much like to hear a bit more about you as I know how much receiving this diagnosis can affect us in a negative way. Rest assured you are not alone so please do share how you are dealing with the news.

Sorry to hear about your diagnosis joy😔 however the good thing is it got caught early so hopefully with the treatment it won’t spread and you won’t end up with scarring. Please do a diary on the medication you are on, and give us a feedback on your progress- also be mindful of the pills because if they are steroid based then you will gain weight ( dunno if that’s something you would be conscious about). Are you UK based?

Hi , sounds like a good idea. People suffering from my condition are always looking for recommendations as we still hope to one day find something to reverse the condition.❤️🙏🏽

@@genevalewis5220 There's: Hollywood Hair Bar, Kaliedascope, MNMC HAIR LINE GROWH SERUM sold on ETSY, GODDESS HAIR OIL Sold on ETSY...… (mind you I don't know where your spots/troubled areas are) But it would be Awesome for you to document your progress (Before and After Footage) using one product on one side of the scalp - while using a different product on the opposite side of the scalp..... (and documenting results along the way) #FoodForThoughtGoForit

I initially didn’t use any treatments but I’ve just started using a shampoo called Etrivex to help with the itching. I don’t know yet if it works because I’ve only just started using it this week but will definitely provide an update. I’ve been a bit more stressed recently and that’s generally when I have flare ups. For vitamins I take vitamin B, D, iodine and magnesium.

Turmeric ointment, coconut oil also will help topically. Eating a plant based diet helps lower inflammation too.

Hey Angela, Hope you are well, just checking to see where your heads at with you being diagnosed? How have you been coping? What percentage of hair loss have you got and what are the symptoms you are dealing with? It takes strength and courage to even tell yourself it could be worse because most women have been systematically told that our hair is our beauty, that was my mindset forever. To now be told that I have a condition that could potentially make me go bald was nothing short of devastating😔 it’s been more than 2years now since I’ve been diagnosed and I have since found strategic ways to disguise the areas of loss. Hair does play an integral part on how we feel about ourselves and some of the styles I rock definitely gives me a boost in confidence however I have come to terms with the idea that I’ll eventually shave off everything and I often envision myself rocking by baldness and still being beautiful and sexy. Please do share any secret hacks you’ve strategized. Looking forward to hearing back from you.😊

Sorry. Just saw this. I spend most of my RUclips time watching puppy videos. They make feel good. Haha! I started out with letting a couple of dermatologists give me injections in my head. The second time it appeared that I was getting some fuzz growth but then Covid hit hard and I wasn’t comfortable going to Kaiser. I also realized that I was feeling slight dents in my scalp from the injections which told me that wasn’t a good way to go. I then started spending too much time watching videos and spending money looking for miracles. I have a hard time being consistent so that probably doesn’t help either. I am losing hair in the front and on my sides too but I’ve learned how to wear scarves that camouflage my hair loss. Lately I’ve been more discouraged and just bought a couple of wigs. They are super cute but I guess I’m not desperate enough yet to wear them all the time. I’m rambling. Bottom line is I’m coping. I noticed tenderness on my scalp a couple of weeks ago so I scheduled an appointment with a female dermatologist. Even if she doesn’t have encouraging information for me, I’m hoping she will be more empathetic with my plight instead of matter of fact like the two male doctors I saw were. If there is a silver lining in this at all, I see that I am not alone. 👒

Hi , I’ll definitely check it out, thank you for sharing. Much appreciated ☺️

Thank you very much

Hi Jo, so very sorry I missed your message. I am equally sorry to hear about your diagnosis. Now that you have had the steroid injections can you confirm if they have stopped your hair loss? Are you still receiving the injections? Please do give an update on your current situation and if there’s been any improvements. This is definitely a very awful condition to have, it plays havoc on so many peoples confidence. Hope your journey haven’t been too difficult.🙏🏽😘

@@genevalewis5220 Yes the steroid shots helps. My Dermatoliest told me I would have to take them the rest of my life. I go every 6 weeks.

Hey Vuyo, I am so very sorry to hear about your recent diagnosis.😔 The onset of this disease is very stressful especially with the discomfort that comes with it plus the hair loss. I have always expressed to others that we all respond to it differently but I must confess we are all plagued with the initial shock, stress and acceptance of the diagnosis. My journey started pretty similar to yours and it took almost 2 years before I was finally diagnosed by then I had already lost a significant amount of my hair and already had scarring in the areas of loss. The hairstyle I was wearing in the video I posted was the first stage of me accepting the condition and then conditioning my mind to not let the fact that I had lost a significant amount of my beautiful hair be the defining factor to my happiness. Don’t get me wrong each day was different, there were days when I was so depressed that I just wanted to get some clippers and just shave everything off so I wouldn’t have to witness how I would be impacted further. I refused to have steroids injections which was offered only because I already had scarring and it was pretty much confirmed that the chances of regrowth In those areas was very slim. I chose to shave the sides and back off and that became my signature look. I am in my 5th year of having the disease and have witnessed no re-growth in the areas I have lost hair, I have no creams or treatment I can attest to, to say they helped. When my scalp becomes itchy and sore I wash with head & Shoulders at times adding peppermint oil or tea tree oil. I massage my scalp with a mixture of peppermint, coconut and tea tree oil but I’m not using any prescribed emollient or taking any medicine. I now wear wigs and occasionally go back to my signature style . I now go by the motto, ‘My Hair doesn’t define me’ . It’s hard I know but dependent or where you are in the world treatments can be very expensive and it’s not guaranteed they will work. If you can afford treatment then yeah go for it but please focus on all the other beautiful aspects of what makes you you! Learn to love yourself unconditionally hair or not and whatever choices you make for your hair embrace it and rock it with confidence. I wish you all the very best and do hope you find a treatment that works for you, & if you do please share so others can also try. Stay blessed and keep connecting. 😘❤️

@@genevalewis5220 Thank you for bein an inspiration to me....I pray i find my motto but its hard to see that when everyday is a struggle, cant afford expensive treatments but my dermatologist has sadly told me ther just is no cure .that broke me even further i only thirty and I am loosing cinfidence in myself...as i never care about what others think of me ....but if it starts eating me personally then it messes up with self confidence....hopefully i love myself allover again my inflammation of dark skin patches clears out(dermatologist said it might het worse and never recover) but God id my witness I will recover...Thank you so much lookng forwatd to ur other videos...God bless you and your family

Vuyo Khoetha Hey you, your reaction to this condition at this moment is normal. It may take a long time for you to get to a place where it is no longer the focus of your attention. I often remind others and even myself that we aren’t going to respond to the prospect of hair loss the way we probable would accept other illnesses, and that is mainly because our hair is our crown and most of us are raised to believe our actual hair is what makes us beautiful. Don’t get me wrong the hair does bring out certain elements of beauty in us, a changed hairstyle or look often boost our confidence. But people like us who have been diagnosed with this condition and start suffering hair loss now have to recondition our minds and that is not going to be an overnight process. It took me a long time to accept that this was going to be my new reality, I went through stages of depression, of asking myself why me and stayed in a dark mental space for a very long time. 1. You will need to first accept that you have this condition, 2. You will then have to find an hairstyle that conceal any hair loss you’ve already experienced. 3. Once you have found your hairstyle, you need to own it, & as hard as it might be for you to display confidence you’ll have to find a rock your new look. Your confidence has been knocked, but only you will be able to rise against this new challenge. I am offering myself as a support system to you and will be here to help you get to a place where you can start feeling comfortable again. Take care of yourself & please update me with anything new

Columbus Mcghee , thank you for watching my video and for also sharing how your diagnosis is affecting you both emotionally and physically. I do also hope they find a cure for this disease if not even for myself but others who are and will be affected by it . Look after yourself and in your darkest moments try and find Beauty within.

@@genevalewis5220 Thank you so much. I revisited your channel this morning because I'm in crisis with LPP right now and slipping into depression. I'm an African American woman and I've tried everything like you. One side of my hair is quickly disappearing. You give me inspiration with your beauty inside and out. Any advice would be welcomed. BTW, we are connected by our names too. My given first name is Neva

@@columbusmcghee7654 it’s lovely hearing from you again, I know our connection isn’t under the very best of circumstances but hopefully something lovely can come from it. I am so very sorry to hear that the condition has worsened since our last conversation, unfortunately I am no closer to hearing about a cure for this terrible disease. With regards to what you can do moving forward you will need to change your mindset and start creating your own happiness with what you’ve got. I’ll ask you a few key questions to help me analyze the best approach in getting you to start falling in love with yourself in a way you didn’t realize you were capable of doing. 1. What do you consider as beautiful? 2. Outside of your hair what other two body features do you love 3. Do you wear extensions and if not do you see yourself as someone who could embrace shaving all your hair off? Please don’t be alarmed by my questions as I fully understand this situation isn’t the easiest to embrace . Believe me when I say I have seen the worse side of depression from this condition and I had to claw myself out of the pit that I was in. I still have days when I struggle but I’m better these days than I was before. I will send you some photos of styles I have worn since the loss and I am now at a point when I can look in the mirror and see myself as beautiful. Also how are you wearing your hair now? Please stay in touch as I am here to support you.

@@columbusmcghee7654 Let me know what’s the best way to share the photos with you.

@@genevalewis5220 Thank you. Please email or text me: mwilliams@burrell.com or 3124978515. Your hairstyle looks lovely. No one would know your burden.

PinkSkittlesss thank you for connecting, you are the first person to have declared that the effect of LLP has also affected your eyebrow. I’ m also considering Microblading but unfortunately it’s not the cheapest if you want it done properly here in the Uk. I’m regards to the injections I was never offered that from my dermatologist mainly because I think by the time I got diagnosed the progression of the LLP was too severe. I was given a few topical creams which all caused irritation to my scalp so I discontinued the use and now I don’t use anything as I have resulted to wear wigs. A lot of the medication people have access to in America and other parts of the world are not available in the UK . I haven’t given up but I am beyond allowing this condition to control my daily emotions and life. You are also very beautiful, thank you for your compliment. Does any particular medication work for you and where in the world do you live.

@@genevalewis5220 Geneva Lewis Thank you! I'm in California, United States. I'm sorry certain things are not as accessible to you. But to be honest I worry about the long term use of these scalp injections I've been getting for the past year. but my fear of losing all of my hair pushes those worries to the side. This all started for me in 2010, but I kept pushes off getting the injections because i just Hope's it would improve on it's own. I wish there were more options for us all. Microblading i got was pretty expensive ($400.00) way more than I wanted to spend. But the insecurities I had with my brows being gone was really getting to me. I have a family and felt selfish spending that much on myself. But I finally saved up and decided I would do it for myself if it meant me feeling a little better about what was happening. I think you should also know it does fade over time so I have had to get it touched up about every 2 years. I also learned you cant get it done to often because it can damage your skin. The "microshading" stays much longer than the "microblading" because places the color deeper in the skin. I'm sorry for my long reply I have so much to say :) I pray your able to have it done too one day soon. You are worth it! I wanted to suggest a product I used to draw mine on before I got them done. It is called But if you have access to this Kat Von D product its called ( KVD 24-Hour Super Brow long wear pomade) you need to apply it with a angled brush and goes on very smooth. Once it dries it stays on very long. U can get it wet and it stays! I'm sure you can orders it from Sephora.com. I really hope that helps! I'll keep you posted about anything i try and works so hopefully you can try it too.

Cheyenne Campbell hey Cheyenne so very happy yours have been caught early and you’re getting treatment. Sorry to hear of your diagnosis because hair loss can be hard on us. I have never had the steroid shots as the dermatologist I was seeing didn’t seem bothered about my visible baldness. I’m ok with the condition now and I no longer allow it to stress or depress me. I wear wigs daily and that works for me. I hope your treatment works and I’m wishing you all the very best. Please do share if your treatment is a success as this will be inspiring for others.

Grt plz tell me your medicine

@@learncivilengineering3477 I was prescribed spironolactone and oracea which is a form of doxycycline.

Hi @@beyondcee6564 . My doctor prescribed spironolactone for me. Did you have any side effects from this medication and did they go away? They made me tired.

Hey sugar

Hi, would you be so kind as to provide an update on how you are since connecting with me. How have you been managing?

@@genevalewis5220 hello! My LPP seems to have calmed down. I haven't had any of the intense itching in about a year. My hair has not returned in my area of loss. However my remaining hair is healthy which was always my goal of preserving what I had. How are you? I hope you are well.

@@t.thompson8985 Lovely to hear from you and thank you for the update, it’s unfortunate this condition is such that once you have had significant loss the hair doesn’t seem to grow back in those areas. I’m happy to hear that the rest of your hair is healthy👍🏽🙏🏽😊 did you use anything in particular to retain the rest of your hair? I’m ok to be honest? I’ve had more loss but I honestly am so over it! It’s guess it’s just acceptance on my side. Thanks again for responding to me it’s really great.😊

@@genevalewis5220 I did the steroid shots for a while, about a year but I stopped. Just used topical meds for the itching until it finally stopped. As far my hair I use protective styles and half wigs for versatility. I keep my hair moisturized, take biotin and hair supplements. It is hard to deal with, but I try to keep perspective that it is just hair. There's a congresswoman here in the US Ayanna Pressley that recently went public about her alopecia, such a hero! I hope the best for you hon.

Hi Desiree, Thank you for sharing, I was diagnosed with LPP about 6 months ago and started the injections, I also saw a nutritionist to help with an elimination diet, since this is an autoimmune condition I figured something isn't right within my body. Due to covid my appts were canceled and a few weeks ago my scalp started burning and got really itchy and not to mention the amount of shedding increased dramatically. I was really scared because I had not felt the burning sensation before I started the treatment. I was able to see my dermatologists and he told me that my condition unfortunately is just getting worse and would need to start taking medication to suppress my immune system. I opted to seek alternative medicine and declined taking any more medications. I have been doing some research and I am actually torn between seeking a homeopath or a naturopathic approach. Can you share the names of the doctors and why you chose homeopathy? Thank you

@@cristinaandagana6102 Hey, Try blackhairandskincare.com. I'm using her organic line for external healing. I let go of relaxers and all other chemicals. My main spot is filling in slowly. Look at her picture reviews with before and afters from customers. Unbelievable! Most of her customers complained of burning before using her products. I hope this helps. Also, watch her videos.

Hello Made Mia. I share the same pain. Please let us know how to contact Dr. Shah. And please keep us updated on you transplant. I know its very expensive, but if it works it is certainly worth it. I pray that it works for you.

All you beautiful ladies are very brave given the symptoms of this disease. Hope you are all well, just checking to see where everyone’s heads at with your diagnoses? How have you all been coping? What percentage of hair loss have you all got and what are the symptoms you are all dealing with? It takes strength and courage to even tell yourself it could be worse because most women have been systematically told that there hair is there beauty, that was my mindset forever. To now be told that I have a condition that could potentially make me go bald was nothing short of devastating😔 it’s been more than 2years now since I’ve been diagnosed and I have since found strategic ways to disguise the areas of loss. Hair does play an integral part on how we feel about ourselves and some of the styles I rock definitely gives me a boost in confidence however I have come to terms with the idea that I’ll eventually shave off everything and I often envision myself rocking by baldness and still being beautiful and sexy. Please do share any secret hacks you’ve strategized. Looking forward to hearing back from you all soon. 😊

Hey honey, I’m so very happy you’ve reached out to me. I’m very sorry to hear about your diagnosis, and you being bullied. Are you on any medication at the moment? People in this world can be very cruel and tend to make fun of and treat others unkindly. LPP is a rare neurological condition, many people have never heard about it and aren’t aware of how badly it can affect the people who are affected by it .i know it’s hard to not listen to mean comments and react to being bullied but you will have to try and ignore them. I please be reassured you have found a friend and I can promise to be there to talk to you and encourage you on those not so great days .please do stay in touch.

You will be okay because you have LLP you are already stronger than the bullies -

Hey sweetie, how are things for you now? I’d be interested to know things you’ve tried...Really hope your ok 🙏🏽❤️

Hi Rafaela, so sorry to hear about your diagnosis. I’m in a much better place mentally and emotionally having being diagnosed over a year ago. I haven’t taken any medication because from research and also confirmed by other sufferers the medication causes more damage than good and is not guaranteed to cure or restore hair already lost. I made the choice to refrain from using any drugs because I wanted to be active and alert for my young kids. Thanks for reaching out and please keep me posted on what decisions you make as each person reacts differently to medication and the choices I have made are personal to me so please don’t decide against medication because of another persons decision.