Видео 274
Просмотров 78 070

11:24

Family Forum 2024: Italfarmaco

14:48

Family Forum 2024: Dyne Therapeutics

13:48

Family Forum 2024: PepGen

13:24

Family Forum 2024: Edgewise

9:18

Family Forum 2024: Catalyst & Kye Pharmaceuticals

9:40

Industry Update: Avidity

Defeat Duchenne Canada hosted an industry partner update recorded on Thursday, October 3. In this free webinar, Avidity Biosciences shared the initial data from the EXPLORE44 TM Clinical Trial.
Tune in to the evaluation of del-zota(formerly AOC 1044)for the treatment of individuals with Duchenne muscular dystrophy mutations amenable to exon 44 skipping (DMD44)
Hear more from our Industry Partners: defeatduchenne.ca/webinars/

Видео

11:24

Family Forum 2024: Avidity

Просмотров 1728 дней назад

Patient Advocacy Update: Avidity Speaker: Henry Nchienzia About the Family Forum: Defeat Duchenne Canada's Family Forum is the country's only national education program specifically designed for those living with Duchenne muscular dystrophy and their families. It provides a unique opportunity that connects our rare disease community - families, researchers, clinicians, and industry professional...

14:48

Family Forum 2024: Italfarmaco

Просмотров 3928 дней назад

Patient Advocacy Update: Italfarmaco Speaker: Paolo Bettica About the Family Forum: Defeat Duchenne Canada's Family Forum is the country's only national education program specifically designed for those living with Duchenne muscular dystrophy and their families. It provides a unique opportunity that connects our rare disease community - families, researchers, clinicians, and industry profession...

13:48

Family Forum 2024: Dyne Therapeutics

Просмотров 3828 дней назад

Patient Advocacy Update: Dyne Therapeutics Speaker: Katherine Beaverson About the Family Forum: Defeat Duchenne Canada's Family Forum is the country's only national education program specifically designed for those living with Duchenne muscular dystrophy and their families. It provides a unique opportunity that connects our rare disease community - families, researchers, clinicians, and industr...

13:24

Family Forum 2024: PepGen

Просмотров 4828 дней назад

Patient Advocacy Update: PepGen Speaker: Alayna Tress About the Family Forum: Defeat Duchenne Canada's Family Forum is the country's only national education program specifically designed for those living with Duchenne muscular dystrophy and their families. It provides a unique opportunity that connects our rare disease community - families, researchers, clinicians, and industry professionals, f...

9:18

Family Forum 2024: Edgewise

Просмотров 2028 дней назад

Patient Advocacy Update: Edgewise Speaker: Drew Scruggs About the Family Forum: Defeat Duchenne Canada's Family Forum is the country's only national education program specifically designed for those living with Duchenne muscular dystrophy and their families. It provides a unique opportunity that connects our rare disease community - families, researchers, clinicians, and industry professionals,...

Family Forum 2024: Catalyst & Kye Pharmaceuticals

9:40

Family Forum 2024: Catalyst & Kye Pharmaceuticals

Просмотров 12228 дней назад

Patient Advocacy Update: Catalyst & Kye Pharmaceuticals Speakers: Amy Grover & John McKendry About the Family Forum: Defeat Duchenne Canada's Family Forum is the country's only national education program specifically designed for those living with Duchenne muscular dystrophy and their families. It provides a unique opportunity that connects our rare disease community - families, researchers, cl...

Family Forum 2024: A Conversation About Accessibility

41:54

Family Forum 2024: A Conversation About Accessibility

Просмотров 1328 дней назад

A Conversation About Accessibility Speakers: Dr. Jeff Preston & Leah Miltchin Carson, Easter Seals About the Family Forum: Defeat Duchenne Canada's Family Forum is the country's only national education program specifically designed for those living with Duchenne muscular dystrophy and their families. It provides a unique opportunity that connects our rare disease community - families, researche...

Family Forum 2024: The Duchenne Registry & Clinical Trials

49:26

Family Forum 2024: The Duchenne Registry & Clinical Trials

Просмотров 4428 дней назад

The Duchenne Registry & Clinical Trials Speaker: Dr. Hugh McMillan About the Family Forum: Defeat Duchenne Canada's Family Forum is the country's only national education program specifically designed for those living with Duchenne muscular dystrophy and their families. It provides a unique opportunity that connects our rare disease community - families, researchers, clinicians, and industry pro...

56:42

Family Forum 2024: Living with Duchenne

Просмотров 1228 дней назад

Living with Duchenne - Sharing our Stories Speakers: Terrence Ho, Torrance Ho, Eric Morden About the Family Forum: Defeat Duchenne Canada's Family Forum is the country's only national education program specifically designed for those living with Duchenne muscular dystrophy and their families. It provides a unique opportunity that connects our rare disease community - families, researchers, clin...

20:10

Family Forum 2024: Treatment Options

Просмотров 8528 дней назад

Treatment Options: What’s Available Now and in the Future Speaker: Dr. Amanda Yaworski About the Family Forum: Defeat Duchenne Canada's Family Forum is the country's only national education program specifically designed for those living with Duchenne muscular dystrophy and their families. It provides a unique opportunity that connects our rare disease community - families, researchers, clinicia...

Family Forum 2024: Navigating the Education System

22:25

Family Forum 2024: Navigating the Education System

Просмотров 1928 дней назад

Navigating the Education System - The Basics Speakers: Allison Green & Mireille Choquette About the Family Forum: Defeat Duchenne Canada's Family Forum is the country's only national education program specifically designed for those living with Duchenne muscular dystrophy and their families. It provides a unique opportunity that connects our rare disease community - families, researchers, clini...

Family Forum 2024: Keynote Speaker - Elijah Stacy

44:25

Family Forum 2024: Keynote Speaker - Elijah Stacy

Просмотров 3728 дней назад

Keynote Speaker - Elijah Stacy About the Family Forum: Defeat Duchenne Canada's Family Forum is the country's only national education program specifically designed for those living with Duchenne muscular dystrophy and their families. It provides a unique opportunity that connects our rare disease community - families, researchers, clinicians, and industry professionals, for a weekend full of ed...

Family Forum 2024: A Conversation with Satellos

13:03

Family Forum 2024: A Conversation with Satellos

Просмотров 20128 дней назад

A Conversation with Satellos Speakers: Frank Gleeson, Co-Founder, CEO & Dr. Ryan Mitchell, Vice President About the Family Forum: Defeat Duchenne Canada's Family Forum is the country's only national education program specifically designed for those living with Duchenne muscular dystrophy and their families. It provides a unique opportunity that connects our rare disease community - families, re...

Family Forum 2024: A Conversation on Life Transitions

34:11

Family Forum 2024: A Conversation on Life Transitions

Просмотров 3228 дней назад

A Conversation on Life Transitions Speakers: Dr. Hana Alazem, Tara Previl, Eric Morden, & Emerson Bartel About the Family Forum: Defeat Duchenne Canada's Family Forum is the country's only national education program specifically designed for those living with Duchenne muscular dystrophy and their families. It provides a unique opportunity that connects our rare disease community - families, res...