- Видео 14
- Просмотров 5 126
Sassy Tail
Добавлен 23 дек 2016
My name is Jillian and I am blind due to ROP from being born at 25 weeks. I have a guide dog named Carissa and our dream is to reach, teach and inspire others with my story/journey. Living life with blindness. Please feel free to ask any questions, I am very open about my experiences and open to questions. I hope to spread awareness and educate others about blindness and help anyone who might be going through something similar. You can email me at jilliandaigle@gmail.com as well
Service dog/Guide Dog Carissa
Intro video all about my guide dog Carissa and everything we use!
Просмотров: 423
Видео
What can you see?? Describing what’s left of my vision
Просмотров 1,5 тыс.5 лет назад
What can you see?? Describing what’s left of my vision
Channel is back up and running! Crossing streets blind
Просмотров 2625 лет назад
Channel is back up and running! Crossing streets blind
Part 2 of crazy lunch route
Просмотров 476 лет назад
Part 2 of my crazy lunch route back to my office. Carissa did AMAZING
Crazy route! While blind! Part 1
Просмотров 586 лет назад
A crazy route back to my office from getting lunch. Part 1
Greyhound adventure! Sorry this is sideways!
Просмотров 236 лет назад
Our first greyhound trip! Sorry this video is sideways.
Learning to navigate thru snow together :)
Просмотров 636 лет назад
We are both having to learn how to navigate in snow! This is new to us with being from Texas. Carissa did awesome today!! Short clip of our walk home.
19 Eye Surgeries/procedures!
Просмотров 2846 лет назад
ROP is a sneaky thing. I've had eye 19 surgeries/procedures. Comment below with any questions! :)
My Story of vision loss and battle with ROP
Просмотров 7956 лет назад
My Story of vision loss and battle with ROP
Welcome to my channel!
Просмотров 1,3 тыс.6 лет назад
Welcome to my channel! Please feel free to ask any questions! You can ask here or my email jilliandaigle@gmail.com
Carissa Guiding through Construction mess! (sorry its sideways)
Просмотров 467 лет назад
Last year at school they did alot of construction right outside where I live and they blocked off abunch of roads. So the only way to walk was through some of the construction. My guide dog is AMAZING and did an awesome job keeping us safe!!
December 23, 2016
Просмотров 927 лет назад
A video of Carissa my guide dog and I walking crossing a small crossing and then her working in her shoes. Super short, using this as a test video to figure out to use RUclips :)
I just found your channel and your video is awesome I am also visionally impaired and I have a guide dog I have only light perception in my eye the left is not any good either so thanks for sharing this beautiful video
Hi it’s Shayla I’m going to be taking a break from RUclips health reasons But take care! 👍
How early were you born I was 27 weeks
Can you do a video on if you read Braille or how you read or maybe reading Braille word
you are very pretty young lady ! have a good day
good video ! have you ever considered cane travel? I’m afraid of dogs - I could 1 day loose sight it’s scary
I’m glad you have a special friend
You are a very inspirational person
Will you eventually loose all of your vision?
I love how your being humorous about your vision good deal
is it scary? 😟 wow thanks for this video I have some tunnel vision- from the ROP
Sassy tail, what is it like to be blind? can u describe how your vision looks for you dark, cloudy etc ?
ok nice yes one adjusted to my vision loss also
My question is: how much vision do you have left? I had ROP also
Shayla Kay McCartney wow cool! I just posted a video yesterday all about my vision
Sassy Tail ok I’ll check it out
I’m Shayla you have a pretty voice thank you for talking to us
Is being blind scary? 🙁
Shayla Kay McCartney it can be sometimes but I have adjusted to it over the years 🙂
Good video
I’m Shayla I was born at 27 weeks I had ROP 3 plus I was the first preemie in Alaska to have the cryotherapy 1989 I have a hard time detail vision
Y'all are such a great team! I miss you friend
Good job, pupper! I miss you guys
💜💜💜🦋🦋🦋
Hi, our stories are similar, except for the number of surgeries (I had two). All the best to you!
Where is your Blog?
Rasverix Xyleighraq her blog is wherearethepeas.wordpress.com
💜💜💜 Hi to princess puppy! Give her pets and love for me. Can't wait to see y'all soon!
So cool to see you teaching, friend! This is awesome and so are you 🤗
Hi bestest friend!!! 😄😄😄
Thank you so much for this sharing your story. It is so informative how you describe the perspective of both the VI child and VI adult. Your accomplishment of your degrees, career, and independent living is so inspiring! I shared your story with my 19 year old son who is also a former micro preemie with ROP (and several other eye conditions and preemie related issues). We have felt so isolated in the whole experience up until this point. No one has ever given us any resources as to how to achieve independence as an adult with impaired and declining vision. Thank you!
Lisa Munda awww thank you so much! I am always happy to help and feel free to ask any questions about anything!! I've been told many times that I'm one of the oldest first ones with ROP that is able to really share and talk about and describe vision aspects of it all so I want to help others, inspire motivate and encourage others with my story
Hey there Jillian my name is Sam. I really like to thank you for starting this channel I'm glad that it's going to be focused on blind and vision loss with me being legally blind I have been looking for more visually impaired or blind people to collaborate with. I'm sure your videos will help other blind or visually impaired people including myself . I saw your video O&M 01 you mentioned that you were a teacher that's very interesting never seen a blind teacher not to say that you can't do it I'm sure you make a very fine educator I do have one question. Do you also teach orientation and Mobility? I saw that video and I was just wondering. I too have also had multiple eye surgeries glaucoma procedures throughout my life and may even need more eye surgeries in the future due to the Cataract development that I now have in my left eye which is the better I with remaining vision which is fairly low and almost no peripheral vision I can practically see only what's directly in front of me and maybe a little bit off to the right but not very much. Going to school I had a lot of help from services for the blind I had bold line paper bold 20 20 pin markers that I would use magnifiers and large print material and audio which is my preferred choice especially when it comes to reading books I do receive services from the Texas talking book program for the blind. I have also had some orientation Mobility when I was in school however it was not focused on the white cane it was basically focused on just using my low vision on how to get around in my environment also using assistive devices such as monoculars and other optical devices for reading street signs or finding addresses on buildings also familiar ization is another thing I was taught if for some reason optical devices were not available or I just didn't have them at the time I was also taught how to use landmarks in my surroundings to tell me exactly where I'm at if I was unable to read a street sign and whenever possible to maybe just walk up to the sign and read it from there you see I can't read street signs from across the street at an intersection but if I walk up to it enough right under it I can kind of read it somewhat there is still some difficulty though. Once again thank you so much for starting your channel I will be subscribing.
bluetech7753 hi Sam, great thanks for subscribing I saw your comment on my other video and I responded back to you on there as well. Yes I am a teacher of the visually impaired and an orientation and mobility specialist. Yes it is very possible to teach when you can't see I know I know eight orientation and mobility specialist who is totally blind and he is fantastic. Feel free to reach out and ask any questions and thanks for sharing your story.
Miracle Life that would be so interesting to get orientation and Mobility training from an instructor that is blind herself . The mobility instructor I had back in 4th and 5th grade was not blind . Which I can say the o&m training that I had has helped a lot throughout life even though it was not revolving around a white cane couple of months ago I was in San Antonio Texas and got lost finding a dollar store just threw familiarization alone I was able to find my way back get back on track and find my hotel keep in mind I did not use any street signs because I can't read them from a distance and I did not have my monocular with me at the time I had my phone but did not use GPS because I wanted to utilize The Familiar ization skills that I learned many years ago. You still without my monocular I'm kind of almost crippled from a visual standpoint cuz I can't even read bus route numbers until the bus actually stops at the bus stop. As I mentioned before I am using a white cane at this point in time with no O&M cane training because usage is very minimal I am somewhat familiar with the techniques of the white cane because I was kind of just introduced to the white cane my Mobility instructor had one in the back seat of her vehicle I was curious as to how it worked so she was nice enough to pull it out and let me mess around with it in a parking lot and she briefly taught me some of the techniques . I actually carry an ID cane I'm sure you know what that is I like the responses that I get when I have it with me particularly from bus drivers which tend to be a lot more helpful as before when I didn't have it I never got much help out on the streets now if I ask someone for directions they're much less hesitant to give me directions and much more willing to help if my destination isn't too far away they will even just walk me to my destination. Due to my peripheral vision I also have trouble in crowds can't always see people off to the sides whenever I'm with somebody a friend or family in this situation a white cane is not very effective because usually people aren't paying attention especially in high crowded areas situations like this I will always just utilize sighted guide or I guess what they call now human guide that's another skill I was taught while I was in school.
Hi there my name is Sam I live in South Texas Coastal Bend area . I've been legally blind most of my life as well I was born with congenital nystagmus involuntary movement of the eyes I lost all the vision in my right eye due to an eye injury that I sustained at 6 years old also developed glaucoma at a very young age the type of glaucoma is open-angle up until now it has taken most of my peripheral vision so I too have almost no peripheral vision in my left eye. The glaucoma in my right eye is pretty severe the eye pressures are always pretty high they told me that some time at some point in my life I may need to get a prosthetic right eye. I also have developing cataracts astigmatism and myopia I go to my eye doctor and my visual Acuity is usually around 20 / 70 to 20 /100 . I can agree with you when you say that visual Acuity alone doesn't really Define how well a person sees eye doctors use visual acuity basically it's just some kind of measurement system that helps eye doctors determine just how clear you can see however the situation can be so much more different when you're actually out getting around in your environment just because my vision was 20 / 70 during one exam I could walk out of there 30 minutes later I could be worse than that you see I have congenital nystagmus like I said so my visual Acuity fluctuates even if it doesn't always show up in an eye exam it fluctuates day by day sometimes hour by hour I don't know if my opthamologist really understands that or not. I also have depth perception issues because of the eye movement I cannot always find her a curb or a step starts or ends pinpointing the exact edge of a stepper curb is difficult for me I also never use the white cane most of my life but recently has started using one for identification and some very mild Mobility I'm currently using it without any Mobility training cuz I don't really have to depend on the Kane all the time I am considering on getting some orientation and Mobility training in the future should I lose anymore Vision which that is very highly possible. I am also diabetic so that doesn't make things any better you said you were born with retinopathy that seems kind of unusual most people usually get that when they're diabetic there are no signs of it in my case yet but that doesn't mean it can't happen. Anyway thanks for sharing your story I hope to hear from you I hope to get some replies and I hope I can get to know you take care.
bluetech7753 hey Sam! Nice to meet you. Yes I have retinopathy of prematurity which is different than diabetic retinopathy. Feel free to email me at jilliandaigle@gmail.com if you'd like. And yes always happy to chat and get to know people :)
Your doggo is adorable ❤ bc want to see more vids like this !
I hope your videos really make a difference in someone's life! Charles Escalon
Mayhem000 thanks Charles!
Thank you so much! I have just begun to have eye issues with one eye. It is so comforting to see another person being able to cope.
Lyd your very welcome! Always happy to help! :)