- Видео 16
- Просмотров 67 447
PWSAI
Ирландия
Добавлен 9 окт 2014
What is Prader-Willi Syndrome?
Watch our video to learn more about Prader-Willi syndrome.
A huge thank you to super sibling Molly, our narrator who's sister Fianna just happens to have Prader Willi Syndrome.
A huge thank you to super sibling Molly, our narrator who's sister Fianna just happens to have Prader Willi Syndrome.
Просмотров: 25 542
Видео
Managing your child's PWS behaviour by Elizabeth Roof
Просмотров 9 тыс.9 лет назад
Film by Elizabeth Roof on managing your child's PWS behavior recorded in November 2015.
Janice Agarwal
Просмотров 2,7 тыс.9 лет назад
Film by Janice Agarwal on Theraputic Interventions for the Young Child with PWS recorded in November 2015.
Behaviour and Mental Health in Prader-Willi Syndrome
Просмотров 9 тыс.10 лет назад
Educational film featuring Professor Tony Holland and families of people who have Prader-Willi syndrome.
Dietary Management in Prader-Willi Syndrome
Просмотров 3,7 тыс.10 лет назад
Educational film on dietary management in Prader-Willi syndrome featuring people who have Prader-Willi syndrome and their families.
Growth Hormone Therapy in Prader-Willi Syndrome
Просмотров 2,7 тыс.10 лет назад
Educational film featuring Dr Charlotte Höybye and people who have Prader-Willi syndrome and their families.
A New Diagnosis of Prader-Willi Syndrome
Просмотров 9 тыс.10 лет назад
Educational film featuring Dr. Suzanne Cassidy and people who have Prader-Willi syndrome and their families.
Dr. Hubert Soyer speaking at the 2014 Prader-Willi Syndrome Association Ireland conference
Просмотров 95610 лет назад
2014 PWSAI conference presentation by Dr. Hubert Soyer entitled, "Overview of supported living for adults with PWS in Germany".
Dr. Susanne Blichfeldt speaking at the 2014 Prader-Willi Syndrome Association Ireland conference
Просмотров 86910 лет назад
2014 PWSAI conference presentations by Dr. Susanne Blichfeldt entitled, "Healthcare for adults with Prader-Willi Syndrome" and "Evolution and development of adult services for PWS in Denmark".
Dr. Suzanne Cassidy speaking at the 2014 Prader Willi Syndrome Association Ireland conference
Просмотров 76110 лет назад
2014 PWSAI conference presentation by Dr. Suzanne Cassidy entitled, "Overview of health issues for children with PWS".
Janalee Heinemann speaking at the 2014 Prader Willi Syndrome Association Ireland conference
Просмотров 26710 лет назад
2014 PWSAI conference presentation by Janalee Heinemann entitled, "Overview of current PWS research".
Georgina Loughnan speaking at the 2014 Prader Willi Syndrome Association Ireland conference
Просмотров 71610 лет назад
2 2014 PWSAI conference presentations by Georgina Loughnan entitled, "Physical activity for people with PWS" and "FamCare".
Dr. June Anne Gold speaking at the 2014 Prader-Willi Syndrome Association Ireland conference
Просмотров 1,1 тыс.10 лет назад
2014 PWSAI conference presentation by Dr. June-Anne Gold entitled, "Genetics of PWS".
Prof. Tony Holland speaking at the 2014 Prader-Willi Syndrome Association Ireland Conference
Просмотров 93910 лет назад
Prof. Tony Holland speaking at the 2014 Prader-Willi Syndrome Association Ireland Conference
Very well spoken thank you for the insight
This should be more awareness ♥️♥️♥️ ♥️♥️♥️ with this condition♥️♥️♥️
Yes +1 sub
this really does deserve more awareness and attention. As someone who suffers from prader-willi syndrome and still isn't getting the proper treatment, thank you for this video.
hi um i also have pws do u know if there's someone who can live alone
@@T3RM1N4llyOffl1n3 sorry if i misunderstood the question but in general someone with pws shouldn't live alone. Though if you're taking care of yourself well enough and can afford it financially then go for it?
I want to.contact u because my baby boy is prider willi
My daughter had all the symbols and was tested but did not show pws until she was 4 years old She was in nicu for 31 days...
Yes 1 sub
One of the best supports ever.i have learned some of these by myself but these reinforce.thanks
+1 sub
SOoo🤔what exactly IS ”growth hormone?"... Cause this video just sounds like a guinea pig test on kids and people??? TEST SUBJECTS...WHAT MAKES IT PROVEN SAFE???
Very interesting , but I wonder why the first half was Irish and the medical half was American . As in Ireland all the available services will be provided by the NHS , but in America and some other countries you only have access to what you can afford .
Or what your insurance will cover...
This is a wonderful video. To say this would be a comfort to a parent with a recently diagnosed child is an understatement. Very well done.
Everyone should check out a book authored by Dr. John Hall, "Guinea Pigs: Technologies of Control."
What does that have to do with people who have PWS?
@@gingerhammond6446 In general, a lot of people are misdiagnosed with mental illnesses because they are unwitting test subjects of pulsed microwave electromagnetic radio frequency weapons and technologies. The book covers that.
@@sleepingbeauty3239 This is a GENETIC DISORDER.
What a great help! Thank you so much!❤
that person looks like Jack Nicklson
This is such a clear, helpful and concise video for all parents of newborns. A "must-see" for developmental stages of newborn to toddler. Thank you Janice!
i have pws
@anna 1 emily how r u?
@@sanathnarayanan2429 I am fine thank you
Thanks for all your work on this video which made me feel that i am not alone with my 2 months old pws daughter..
And she is our second baby which makes us to participate in that 1% lucky part :)
@Faith Akbulut how is she?
Thank you so much for posting this video.