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Thanks Dr for such a precious efforts but I have a dought about troriluzole, because I have consumed riluzole 50 Mg for three months but it didn't not benefited for me that's why I have some fear regarding its work for me I am suffering from sca3 72 repeat any suggestions please appreciated before

❤ Thank you

So my Chiari Malformation is possibly the cause of this?

Wish you had dumbed it down for me.

Could all of this be caused by beatings ?

I have Fredrich ataxia if anyone have similar disease please contact me

I recently found out about CANVAS after years and years of miss and undiagnosed issues and my symptoms and imparements line up with CANVAS. I'm based in Melbourne and right before I clicked on this video I was wondering if anyone in Australia has knowledge of CANVAS. It's really good to know someone down here cares about these rare conditions.

Tuve dos derrames cerebrales antiguos que ni los senti nada mas mi PARPADO caido el ojo derecho el neurologo me lo dijo por presion alta altisima diria yo llege a tenerla a 200 pero ahorita esta controlada por mi cardiologo me quedo disartria y voluumen bajo lo mio es ataxia gracias

Great content, as always! A bit off-topic, but I wanted to ask: I have a SafePal wallet with USDT, and I have the seed phrase. (alarm fetch churn bridge exercise tape speak race clerk couch crater letter). What's the best way to send them to Binance?

Sca27b

Pleased, make medicine for ataxias

My mom has this. Hopefully I can get tested in a few weeks

very informative...such less information out there for cerebellum ataxia ...thanks a ton for putting this online

Thank u for your informative presentation❤

Pls share the herbs....my mother suffers from pcd.. ofcourse we will do our research before using them

I'm trying to find that list

Celiac disease with hypothyroidism Addison s pernicious anemia autoimmune gastritis, mthfr mutation and hereditary spastic paraplegia spg4 (Arg/cys). I am improving my upper motor neuron and I do really think that my Ataxia was caused by the Gad65 antibodies and vitamin b12 deficiency. Any studied on upper motor neurons and autoimmunity correlation ? I know that with my celiac I developed fat malabsortion (vitamin e) and gastritis (b12 and folate deficiency) Glad to hear

I developed some sort of ataxia..about 3 years ago I don’t know the type, I feel like my fine motor skills were detoriating for a while,no family history.

Sca1 46 yrs old also other problems of course using a walker long distance like Walmart lol in a chair

Dr Perlman, may ur frataxin keep working tirelessly for the tired ataxic patients....true inspiration...stay blessed...especially for ur home work

I nave CANVAS taxia do you have some idea how i can slow down?

speaking from my possible MNGIE Dx and all the sx's aligned with any all these. I can only ask, how impressive it is to have this depth of information. ONLY to recognize people like myself seeking ANY MF AMA physician who CARES that listen to my misery as well where the FK to go..as usual the industry is so proud to do research with Data that goes unused*, NO one getting help on this probable genetic autoimmunity. SHOW me where i can get HELP of any kind? that wont deny me IE: "Barrows", in Phoenix and "Mayo" in Scottsdale. My neurologist Stephan Flitman as well my D.O Dr Alessi in Arizona on infectious disease docs are shrugged shoulders not knowing where to send me..i had to order the Genetic TYMP test.. I had to ask for MIBG or Pet for neoplasms and the Spinal tap(-) in all syndromes GBS MG MS etc.. so now what..?

My question i had stroke. Can ataxia muscles the eye musles?and far as getting the vaccine I think it stroked me double edge sword

We are from Georgia. My daughter, who is 19 years old, has Friedrich's ataxia. We do not receive any treatment or therapy, due to the fact that there is no treatment for our disease in our country. Our problems started at the age of 10-11. Now we are already kaliaska sitting in the . Please help me, how should I act?! I really want to put him in a program to improve his daily life and health

I am a carrier of this but I am certain this is my diagnosis. I have all the symptoms and abnormal mitochondria. I well believe it can be dominant.

Have you currently taken any video on spg 4 ?

I have gluten ataxia and an upper motor neuron called hereditary spastic paraplegia. Both of the diseases overlaps with their symtoms. What helped me was finding my celiac disease diagnosis, high supplementation with Vitamin E/D/A end electrolytes such potassium, zinc, magnesium and manganese. With the high fat diet the homocysteine decreased down to normal levels. And also my dislypidemia and fasting glucose/insulin came back in normal range

I am in Canada. Incredibly thankful to you for doing this

Dr. Susan. Could you give me the detail of stem cell program in Taiwan ? I would love to know more about that please ?

Hi. I am 77. Have been diagnosed over 10 years ago. Type, unknown. Mother and grandfather had. Mom started at 50. Have been tested for type, but no type indicated. I use sight for balance a lot. I know because of low light situations. I go gym 3 days a week. Know I am going to fall and like to get up and not being hurt. Oh, MRI shows lesions..

I am really worried, because it seems now that it is busy affecting my eyes. Johan

I am 59 years old in johannesburg south africa and suffer from ataxia speech and walking problems? PLEASE HELP

I suffer from Friedreich's ataxia. I can't walk at all. How can I heal?

Wife has sca 2 and she's really sensitive to lights and loud or too much going on around her surrounding. Is that normal with ataxia or is this that could be from something else.

Thank you from Ontario Canada. Do you have much information on the vax the jab and ataxia . I started all my symptoms 3years ago after my second vax. .i was very healthy before. I am falling a lot more . And I use a walker now. I do choke on liquids.any thoughts to help. I already had problems with nystagmus from birth . But the other problems started after the 2end vax or jab. Any meds. I am 67 years old.

Thank you for providing this!

i have type34sca

Não compreendo o idioma inglês... Como passar para o português?!

Tengo ataxia no tengo familia con con ataxia lo que más me preocupa no poder hablar y caminar

My hubby has this disease

I had dttpke got me in the cellvelum hard quality of life gone

thanks

Correlation: astrocytes/interleukin/mhc2/mthfr atp/ Ros/ vitamin b12 and Purkenjee cells/glutamic acid.

Thanks from Ontario Canada

Living with Trimethylaminuria was a big mess not until I came across Dr okouromi on RUclips, the holistic herbal doc whose herbal medication and body cleanser finally cured me and restored my life after 5 years of battling with it, no side effects it took 3 weeks and got cured completely with his alternative Herbal treatment. ❤️‍🩹❤️‍🩹❤️‍🩹❤️‍🩹❤❤

i hope problem related to balance and coordination will have solution very soon i am patient of FRIEDREICH ATAXIA

Thank you from Ontario Canada

Hello, thanks for the informative video. I have Episodic Ataxia type 2 since I was about 12 (although it was only diagnosed when I was 30). I noticed that I have the attacks more frequent over time, and now I have an attack once every two days or something (more if I play sports). I'm a bit nervous about your statement that these episodic attacks can become chronic. What are the changes that I develop chronic Ataxia? Is that common?

Can you talk about ataxia and digesting food? Stomach problems?I live in Ontario

Can you talk about ataxia and digesting food?