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Inherited Cancer Registry (ICARE)
США
Добавлен 9 янв 2020
“To end the cycle of inherited cancer through research, education, and engagement”
The Inherited Cancer Registry (ICARE) represents an effort to improve access to cancer genetics expertise for patients and healthcare providers. We send clinical and research updates through newsletters, educational webinars, and other resources. The goal of our research includes maintaining a registry of individuals interested in participating in inherited cancer research studies. There is no cost to participate in ICARE and communications can be conducted via phone, email, or mail, with no need for an in-person visit. If you are interested in enrolling in our registry, please visit our website using the link below.
The information on our page is not a substitute for medical advice.
The Inherited Cancer Registry (ICARE) represents an effort to improve access to cancer genetics expertise for patients and healthcare providers. We send clinical and research updates through newsletters, educational webinars, and other resources. The goal of our research includes maintaining a registry of individuals interested in participating in inherited cancer research studies. There is no cost to participate in ICARE and communications can be conducted via phone, email, or mail, with no need for an in-person visit. If you are interested in enrolling in our registry, please visit our website using the link below.
The information on our page is not a substitute for medical advice.
Inherited Breast Cancers in Men
In honor of breast cancer awareness month, our team hosted this patient forum focused on inherited breast cancer in men. Two of our panelists, Harvey Singer and Vicky Wolf are co-founders of HIS Breast Cancer Awareness, an organization founded to "honor of all men who are at risk of, diagnosed, and surviving the disease of breast cancer and those who have died because of it", with a mission to increase awareness of male breast cancer and provide information and support to men and their families. Learn more at www.hisbreastcancer.org/
We were honored to have the following expert panelists available for discussion ⤸
🧬 Harvey Singer - Co-Founder of HIS Breast Cancer Awareness, male breast and ...
We were honored to have the following expert panelists available for discussion ⤸
🧬 Harvey Singer - Co-Founder of HIS Breast Cancer Awareness, male breast and ...
Просмотров: 210
Видео
ICARE Fall 2024 Newsletter Preview
Просмотров 59Месяц назад
ICARE's principal investigator Dr. Tuya Pal provides a preview of the Fall 2024 newsletter. You may view the full newsletter on the ICARE website at inheritedcancer.net/newsletters. Follow us to stay informed on your favorite social media platform: LinkedIn: www.linkedin.com/company/inherited-cancer-registry Twitter: inheritedcancer Instagram: inheritedcancer Facebook...
BRCA1/2 Genotype/Phenotype Associations: Implications to Care
Просмотров 201Месяц назад
Excerpt from the October 2024 ICARE genetics case conference featuring ICARE's principal investigator Dr. Tuya Pal discussing BRCA1/2genotype/phenotype associations and implications to care. Follow us to stay informed on your favorite social media platform: LinkedIn: www.linkedin.com/company/inherited-cancer-registry Twitter: inheritedcancer Instagram: inheritedcancer...
Full Recording of the October 2024 ICARE Genetics Case Conference
Просмотров 6 тыс.Месяц назад
Full recording of the October 2024 ICARE genetics case conference featuring ICARE's principal investigator Dr. Tuya Pal discussing BRCA1/2 genotype/phenotype associations and implications to care. Follow us to stay informed on your favorite social media platform: LinkedIn: www.linkedin.com/company/inherited-cancer-registry Twitter: inheritedcancer Instagram: inheritedc...
Genetic Predisposition to Prostate Cancer & Relevance to Targeted Screening
Просмотров 2502 месяца назад
Excerpt from the September 2024 ICARE genetics case conference featuring Dr. Ros Eeles from The Institute of Cancer Research discussing hereditary prostate cancer. Follow us to stay informed on your favorite social media platform: LinkedIn: www.linkedin.com/company/inherited-cancer-registry Twitter: inheritedcancer Instagram: inheritedcancer Facebook: inh...
Full Recording of the September 2024 ICARE Genetics Case Conference
Просмотров 2082 месяца назад
Full recording of the September 2024 ICARE genetics case conference featuring Dr. Ros Eeles from The Institute of Cancer Research discussing hereditary prostate cancer. Follow us to stay informed on your favorite social media platform: LinkedIn: www.linkedin.com/company/inherited-cancer-registry Twitter: inheritedcancer Instagram: inheritedcancer Facebook: facebook.co...
NCCN Genetic/Familial Guideline Updates: Breast, Ovarian, Pancreatic (V.1.2025)
Просмотров 2882 месяца назад
Excerpt from the September 2024 ICARE Genetics Case Conference with ICARE's principal investigator, Dr. Tuya Pal, outlining updates to National Comprehensive Cancer Network (NCCN) Genetic/Familial Guidelines Breast, Ovarian, and Pancreatic (V.1.2025) Check out the new guidelines below Breast, Ovarian, and Pancreatic: www.nccn.org/professionals/physician_gls/pdf/genetics_bop.pdf Follow us to sta...
EGFR and the INHERIT Study
Просмотров 2373 месяца назад
Excerpt from the August 2024 ICARE genetics case conference featuring Diane Koeller from the Dana-Garber Cancer Institute discussing EGFR and the INHERIT study. INHERIT study: inheritstudy.org/ Young Lung study: younglungstudy.org/ Follow us to stay informed on your favorite social media platform: LinkedIn: www.linkedin.com/company/inherited-cancer-registry Twitter: inheritedcancer ...
An Overview of the Inherited Cancer Registry (ICARE)
Просмотров 1924 месяца назад
Follow us to stay informed on your favorite social media platform: LinkedIn: www.linkedin.com/company/inherited-cancer-registry Twitter: inheritedcancer Instagram: inheritedcancer Facebook: inheritedcancer
The NCI Li Fraumeni Syndrome Study: Ongoing Work to Guide Tailored Care
Просмотров 3924 месяца назад
Excerpt from the July 2024 ICARE case conference featuring Megan Frone, MS, CGC from the National Cancer Institute (NCI) discussing Li-Fraumeni Syndrome (LFS) and the NCI's LFS study Follow us to stay informed on your favorite social media platform: LinkedIn: www.linkedin.com/company/inherited-cancer-registry Twitter: inheritedcancer Instagram: inheritedcancer Faceboo...
Coping with Hereditary Cancer: Managing Emotional Distress and Communicating with Family
Просмотров 2674 месяца назад
We hope you enjoy our very first patient forum! The focus was how to manage emotional distress and communicate with family for those with hereditary cancer or hereditary cancer predisposition. Expert panelists include Dr. Tuya Pal who is a genetics physician at Vanderbilt University Medical Center, Dr. Deborah Cragun who is a genetic counselor at the University of South Florida, Dr. Lora Thomps...
SDHA Germline Genetic Testing and Surveillance in Clinical Practice
Просмотров 9226 месяцев назад
Excerpt from the May 2024 ICARE case conference featuring Dr. Helen Hanson from the University of Exeter and Dr. Ruth Casey from the University of Cambridge discussing SDHA germline genetic testing and surveillance. Follow us to stay informed on your favorite social media platform: LinkedIn: www.linkedin.com/company/inherited-cancer-registry Twitter: inheritedcancer Instagram: insta...
Full Recording of the May 2024 ICARE Genetics Case Conference
Просмотров 7716 месяцев назад
May 2024 ICARE case conference featuring Dr. Helen Hanson from the University of Exeter and Dr. Ruth Casey from the University of Cambridge discussing SDHA germline genetic testing and surveillance. Follow us to stay informed on your favorite social media platform: LinkedIn: www.linkedin.com/company/inherited-cancer-registry Twitter: inheritedcancer Instagram: inherite...
ICARE Spring 2024 Newsletter Preview
Просмотров 877 месяцев назад
ICARE's principal investigator Dr. Tuya Pal provides a preview of the Spring 2024 newsletter. You may view the full newsletter on the ICARE website at inheritedcancer.net/newsletters. Follow us to stay informed on your favorite social media platform: LinkedIn: www.linkedin.com/company/inherited-cancer-registry Twitter: inheritedcancer Instagram: inheritedcancer Facebo...
Hereditary Kidney Cancer
Просмотров 2317 месяцев назад
Excerpt from the April 2024 ICARE case conference featuring Dr. Ramaprasad Srinivasan from the National Cancer Institute discussing hereditary kidney cancer. You can view the full ICARE Spring 2024 newsletter on the ICARE website at inheritedcancer.net/newsletters. To view the details of the Bevacizumab, Erlotinib, and Atezolizumab in advanced-stage kidney cancer clinical trial, you may visit c...
Liquid Biopsies to Guide Breast Cancer Therapies
Просмотров 6548 месяцев назад
Liquid Biopsies to Guide Breast Cancer Therapies
NCCN Genetic/Familial Guideline Updates: Breast, Ovarian, Pancreatic (V3.2024)
Просмотров 4338 месяцев назад
NCCN Genetic/Familial Guideline Updates: Breast, Ovarian, Pancreatic (V3.2024)
The Long Telomere Syndromes: POT1 Mutations in Cancer
Просмотров 4429 месяцев назад
The Long Telomere Syndromes: POT1 Mutations in Cancer
Transplant Eligibility and Inherited Cancer Results
Просмотров 12510 месяцев назад
Transplant Eligibility and Inherited Cancer Results
Full Recording of the December 2023 ICARE Genetics Case Conference
Просмотров 35111 месяцев назад
Full Recording of the December 2023 ICARE Genetics Case Conference
Care for Gender Diverse Individuals with or at Risk for Inherited Cancer Predisposition
Просмотров 27311 месяцев назад
Care for Gender Diverse Individuals with or at Risk for Inherited Cancer Predisposition
Full Recording of the November 2023 ICARE Genetics Case Conference
Просмотров 267Год назад
Full Recording of the November 2023 ICARE Genetics Case Conference
Management of Individuals with CHEK2 Mutations
Просмотров 1,8 тыс.Год назад
Management of Individuals with CHEK2 Mutations
Full Recording of the October 2023 ICARE Genetics Case Conference
Просмотров 340Год назад
Full Recording of the October 2023 ICARE Genetics Case Conference
Full Recording of September 2023 ICARE Genetics Case Conference
Просмотров 341Год назад
Full Recording of September 2023 ICARE Genetics Case Conference
NCCN Genetic/Familial Guideline Updates: Breast, Ovarian, Pancreatic (V1.2024)
Просмотров 498Год назад
NCCN Genetic/Familial Guideline Updates: Breast, Ovarian, Pancreatic (V1.2024)
Gene Expression Algorithm for Prioritizing Treatment Options in BRCA1/2 Carriers with Breast Cancer
Просмотров 423Год назад
Gene Expression Algorithm for Prioritizing Treatment Options in BRCA1/2 Carriers with Breast Cancer
CHIP/Variant Interpretation in Li-Fraumeni Syndrome
Просмотров 5 тыс.Год назад
CHIP/Variant Interpretation in Li-Fraumeni Syndrome
Benign Tumor Predisposition/DGCR8 and Other Related Syndromes
Просмотров 802Год назад
Benign Tumor Predisposition/DGCR8 and Other Related Syndromes
Is there an Icare centre in Mumbai - India?
someday we're gonna have decent webinar audio quality ....... someday.......
Hi dose biopsy courses cancer cells to spread?
Hi i have li- fraumeni syndrome and i live in canada i had my diagnostic in 2016 because my twin sister die after having breast cancer at 24 and multiples metastases in her brain in 2018 ... i have really poor investigation i would like to know what exacthly my doctor need to screen cause she said to me i have nothing but i m scare i m 37 ... and not a lot of test also i m a novo variation because nobody in my familly have it just me and my dead sister
Its caused from WMDS and all the toxins our govt are hiding it the drs are exploiting us
I'm thankful for your compassion and kindness throughout my treatment journey. Your expertise has made a significant difference in my health, and I'm grateful DR OKOUROMI ON RUclips....🌄🌄🌄🌄🌄🌄🌄🌄🌄.......
I'm thankful for your compassion and kindness throughout my treatment journey. Your expertise has made a significant difference in my health, and I'm grateful DR OKOUROMI ON RUclips....🌄🌄🌄🌄🌄🌄🌄🌄🌄.......
Inaudible and hence kind of useless
Hello, I have chek2 mutation t.476m. Dcis stage zero. Can you do a session or case for this please
Colon too which is second highest
Smack d snack.
I was diagnosed with Embryonal Rhabdomyosarcoma of the cervix in 2017 when I was 16 years old. During initial testing they also found cancer in half my thyroid which they removed after the Rhabdo treatment was finished. (I'm coming up on 5 years NED this May) We did genetic testing and found the DICER-1 Syndrome, so we also tested both my parents and all 5 of my siblings ... we found out that my dad was the carrier and two of my younger siblings also inherited the syndrome. My dad had thyroid nodules that were mistaken as cancer when he was a teenager, so he had a full thyroidectomy but no malignancies thus far, and he's 45. (He has a really wide array of non-related health issues though) Out of myself and the two siblings that are carriers, thankfully I'm the only one with a malignancy thus far, however all three of us have thyroid nodules that are being monitored. One of the other two had a testicular mass that they are saying I believe was malignant but not enough for treatment?! Just continuous monitoring I guess? And then the other thankfully so far has had nothing, and they're both in their mid-teens. Insanely interesting to think about, and my/my family's case is what's inspiring me to look into going to school for genetic research. I find it fascinating the way it's played out for us , and I wish I could get our extended family tested to find out more lol
Step Rednow Russian ending theme Save the Cow
Thanks for posting!
Presenters should be told to use a ‘real’ microphone.
Hi last year I was diagnosed with overin cancer stage 2a . I had total hysterectomy then chemotherapy. I had blood test and the result came back palb2 positive. Should I be worry or no.thanks
So few people know anything about this. So glad to have more information via video! Thank you!
my genetic test gave average risk for palb2 without BRC1 and 2. should i worry?
We recommend speaking with your healthcare provider.
@@inheritedcancer ok
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This was very awesome. I have been trying to research for a vid that educates the ideas in this vid!Your video reminds me of the videos of this smart health enthusiast Dr Ethan. Ethan's videos are totally educational and he really helped me a lot on diet. He is a informative Dr! I suggest you check out his page out and give the medical student a subscribe! ➡️ #DoctorEthanOnRUclips