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I hope you have the support you need I nursed my Dad through Alzheimers and my mum just six months after my Dad passed with terminal cancer. There are 4 of us kids but I was the main one funny really 2 had early retirements but I was working and providing care with careers I was exhausted and in the 6mnth period lost 3 stone I was little anyway so i looked terrible When my mum died I was ashamed If felt peace You should never be soul carer you stop being you Im so sorry this happened to your family My sister now has breast cancer and im waiting to see if I have it too strange coincidence If I do but I won't let loved ones take the strain I will go to hospice if that time comes don't lose sight of yourself your a wife and a mum first. x

I looked it up it's something about the brain

Oh I looked it up it's something about the brain

Retired immunologist with a friend with HD. Are you aware of any trials (or anecdotes) of diets or antioxidant therapy that may slow progression of the disease? I am particularly interested in ketosis and ketogenic diets used for epilepsy and whether it may apply to other neurological diseases.

May God help you find the cure!

Really good advice, thanks.

Becki, you are very strong and very brave. I wish all the good in the world on you.

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Thank you for sharing your story!💜

I’m currently my husband’s caregiver because of Huntington’s. It’s tough, but I want him to be as safe, happy, and healthy as possible for as long as possible. It’s a horrific disease.

🙏🙏🙏❤️. I love your perspective and serene energy.

See this was what I kept saying when people were being so hateful like it was our fault that families couldn't come in (those of us working in the care homes). Tried to say this to lots of people telling them come get a job and you can come in, we need the help too. But not one person did this even those who were griping that their employers had to close their jobs.

Having a diagnosis is important because even though you know that you keep seeing those job ads and you would love to be able to be a tree-climbing Arborist. You know that your father would have probably been able to work for longer if he wasn't a roofer. He didn't know that he was HD positive, though.

The absolute worst disease that can affect a human being. A cure is desperately needed

❤ I am in coastal Georgia, US ! My family members has been tormented with this HD disease. Really for 30 years We thought was Parkinson’s early on! I am just quoting my job thee years it took to get ssdi! My CAG is 42 and I am 57!

Steve, thank you for this. My wife is in stage 4. Retrospect is insightful to understand the impact the disease has on us as spouses and care-givers, but the personal aspects are nuanced and hard to make others understand. So, bravo to you for giving us a collective voice. -Scott, co-founder of Team2CureHD, US.

Thankyou for sharing, your message ❤❤

May God bless you all...

Thank you Poppy for all the help and support you gave me and my kids, words cannot describe my gratitude for the kindness and support you gave us.

I have this disease. I think it's about time someone finds a cure

Hi Holly! I was just diagnosed myself! Bless you

I have this disease! It’s not fun!

thanks for your video i have Huntington disease can you help me

thanks for vided

A brave video which will help so many people. I learnt I was at risk when I was 16. I waited until I was 47 to get a negative test. During that time, there was no support. I'm 62 now, with numerous family members who have passed away as a result of the illness. The disease changes family dynamics and isolates. If you are able to talk about it, it will help the terrible isolation of this illness.

then why do i feel so alone?

Well too you all of use great video living with my son with juvenile Huntingtons knowing now that I'm not alone in so great ❤

Fantastic video

What a brilliant film and well done to all the youngsters who took part and were so open and honest about this condition. An exemplar for others to consider.

Well done. You are brave young people. This video will help so many

Well done to all those involved. This a great video and very useful

Great video! :)

I believe that the amino acid selenocysteine may slow down the onset of Huntington's disease. Selenocysteine is selected by the stop codon TAG ( UAG in mRNA ) and prevent trunctation of huntingtin. Deamination of methylated Citosines in CAG triplet repeats could be the mechanism causing HD: Citosines become Thymines, transforming CAG codons in TAG codons. Glycosilases do remove wrong Thymines but it seems that glycosilases become overwhelmed above a limiar of CAGCAG... repeats and the error is installed in the DNA gene encoding huntingtin. Pseudouridine could also slow down the onset of HD.

Does it skip a generation?

I'm so sorry you're going through this.

Thank you for sharing your story. Very very sad and prayers for you and your family.

I want you all to join me thank Dr Madida on RUclips for helping me with their treatment plan to reverse and cure my Parkinson disease I have been suffering from for 12 years, it is amazing how this treatment plan has changed my life for the better and I know that he can do same for you all too and that is the reason I am recommending him to you because his treatment works 100% 🎉🎉🎊🎉🎊//

God bless this beautiful lady, God bless her family and of course.. God bless Anita. 😭🙏🏻💘

Alison, thank you for sharing and what a great partner and mother you are. I adore your strength and wish your husband and daughter all the best as they deal with this horrible affliction x

what would Jesus do? What did He instruct us to do?

I find these stories devestating. My dad died when i was 9 and my mom was put in a nursing home because she had HD. Then from 2014 - 2017 I lost 4 sisters to HD and my nephew who took his own life by jumping off a building cos he was in the early stages of HD. I was tested around 2002 and tested negative. All my love and respect goes to this very brave and beautiful soul for telling her story

I once worked with a woman while she was still in the early stages of HD. Her father was thought to have Alzheimer's until she got HER HD diagnosis. She never had any children of her own, although for other reasons, so no fears of passing it on, and died a few years ago. I don't know if her father knew anything about his own ancestry. He might have been adopted, or his biological father was not who everyone thought he was, or the affected relative might have died from something else before they developed HD symptoms.

Bless you X

Becki gutted for you and so admire you for who you are, a courageous gal who lives life and has made so much of each day . God bless each day you are here to share your love and story for us all to learn aboùt HD. Keep well and as strong xx

God bless you. My ex has it and I pray a lot for her

Thank you for making this film. I was diagnosed January 2020. Your bravery helps other care givers. Right now, I am doing well. I home schooled our three daughters. But because those seventeen years were with me not working, I never went back to work. Now I have too few points for SocialSecurity help with disability. I have a wonderful family. Some haven't tested. I never wanted to either until I started with such depression and anxiety, But now I take meds for those symptoms, and because I never went back o work, I don't have the worry of not being able to work correctly cognitively. So far, I am walking well, etc.... I am a fall risk and chocking risk though. I use a medical necklace which we are all thankful for. I still drive, but will stop on my birthday and not renew. I only drive one place now,, close to home. As I said, thankful for all you are doing for the community and raising awareness.

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Thanks for sharing, I have it too. Just had to retire early from teaching. i am in the first stage and my mom is the end the last. My uncle died two years ago and my grandfather tried to commit suicide by shooting half his face off. At that time we thought he had Parkinsons. I have known for fourteen years and have hoped for a treatment. I have lots of family that will not get tested.

Im sorry, Alison. I wish I could give you a hug. Praying for you 🙏 ❤️