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I would have loved a model before I started my treatments here in the US. Thank you for your advocacy.

I just heard today I will probably get immune therapy for my scalp and neck tumor. I'll be part of the trial but I heard they got many great results with this treatment for this type of cancer so I'm hopeful. It really sounds like the future of cancer treatments.

mines was tonsil &base of tongue am still getting loads of side effects after 9 years no fun ❤

This is amazing. I want to be an oncologist. I hope to contribute to improving care for patients with tumours and cancers

How does one sign up for the trial?

MF DOOM 😢

Can chemo to head n neck injury a vessel in your brain? A friend had one chemo n got deadly sick so they switched to radiation. After radiation he came out cancer then 1.5 months later he had a brain bleed n died. Was this caused from the cancer treatment? They did an mri n found it was not a stroke or a tumor. They said caused by stress or age? The bleed was deep in the brain between the two lobes.

My question to Major Jenny Beagent is that if a couple who is from the rainbow community asked you to marry them what would your answer be?

I’m super excited! I just got rid off my herpes genital herpes respectively within 13days drallenben :thanksdoc:

Thanks to Cameron who directed me to DR ALAHO OLU Search him on RUclips Channel who cured my HPV. I’m so excited 😆, contact the herbalist today and all your worries will be over. After many Pap smear test my results were negative…

2015-2016 Head and Neck cancer diagnosis stage four, base of tongue - tumor HPV -16 positive. Radiation and chemotherapy (cisplatin) In 2018 the cancer returned (metastasized) after surgery my doctor put me on Keytruda 2019 cancer returned in one lymph node, 10 rounds of radiation was given In 2022 the cancer returned, flap surgery on the base of my tongue. I was taken off Keytruda post surgery. 2023 the cancer returned on the back wall of the throat. The tumor was removed with a laser. My doctor put me back on Keytruda one month after surgery. All biopsies tested positive for HPV-16

One important fact was left out of this video. Women can be tested for HPV by their gynecologist. There are no HPV tests available for men.

Thank you, Julie. You are incredibly well spoken on a topic I find difficult to verbalise past treatment. I appreciate your advocacy.

As a retired nurse I have found many times my own death bed humor saved my sanity. Not laughing at a patient, but some ridiculous thing in the circumstance. It happens in my personal life & has helped me overcome hopeless & helplessness. I know I’m in trouble if I can’t laugh at my circumstance. Way back during my nursing studies we had a class given by an oncology specialist. He was trying to figure out why people faced cancer in their particular manor. He began with his young patients. In the office wile waiting their turn his receptionist gave the kids plain paper & a box of crayons & asked them to draw their families in their home settings. They willingly did this. He placed each drawing in the child’s record & during the course of treatment would occasionally ask them to do it again. As the children left his care & he studied the drawings, he noted the children who separated themselves from the family didn’t do as well as those who were close in the family group or chores. And they used the black crayon to color the area of their cancer. Some were of course old enough to know where the area was, but more did not know. Adults requested to do the drawings also colored their cancer in black, including areas not yet found as metastasized spots. It looks like some of the things we instinctively know & do are not so far fetched. His best information was a positive attitude made a very large difference in the outcome. So very glad your outcome was so successful. Continued good luck & health to you.❤️🙏🏻

Still in Europe. Saw this pop up. Love you.

Very interesting. Two strong women! Thank you both ♥️🙏🏼🌹🌟

You doing great work 👍

I help out a a 100 year old male in the US. He had a squama cell removed from his head in late August 2023. The margins were clear but a few months later he developed a blockage in a saliva gland on his right side near his ear. He had many tests and had his first immunotherapy in late December 2023 and the pain and size of the tumor has shrunk. He is scheduled for removal surgery on January 22 but I feel like we have not given immunotherapy enough time. I found your talk very interesting. Thank you!

Thank you for presenting this info on immunotherapy, really appreciate the updated clinical data on this form of treatment. I am diagnosed with squamous cell cancer in the scalp which metastasized to my lymph nodes. Due to critically low neutrophil counts, my oncologist is going to treat with immunotherapy instead. My neutrophil counts are too low to tolerate chemo. I wish my oncologist started with immunotherapy versus surgery first. It's going on 4 months and I still have not had the surgery to remove the parotid gland and lymph nodes. I had a hysterectomy, in that 4 month period, to remove suspicious 15 cm mass which ended up being diagnosed with leiomyosarcoma stage 1b. Even with the hysterectomy, 4 months to get neck surgery is ridiculous especially when the ENT oncologist knows I have cancer in the affected lymph nodes. Now I can see why so many people die from cancer.

Great video. I was diagnosed with squamous cell instu on the chest two locations. I was then diagnosed with another squamous cell in the scalp that was invasive with deep margins according to the biopsy. I had wide excision to remove the one of the chest spots, other chest spot treated with Efudex, and superficial radiation on the scalp. I didn't get the scalp treated in time and now the squamous cell cancer has spread to the lymph nodes and have gone to the level 4 nodes. I'm still waiting for neck surgery. Since the spot on the chest I treated with Efudex has returned, my oncologist is looking to treat me with immunotherapy, I don't know what kind though. I wish I could start now, so very concerned how much the cancer is spreading in my lymph nodes.

I just stumble onto your channel Julie.I’d love to see an episode addressing late effects of radiation (Radiation Fibrosis Syndrome) especially Radiation Myelopathy. I accidentally was given too much radiation for Thyroid Cancer Metastasis back in 1987.

I have no idea what sitting would feel like but I can only suspect sitting would be easier. Diagnosed with stage 1 tonsil cancer. HPV positive . 30 rad treatments although I wish now had not optioned for radiation treatment. Maybe chemo would have been better, or nothing at all. Initially I had surgery, seven and a half surgery to remove the cancer in the left tonsil with neck dissection. . Had difficulty swallowing then, but much worse after radiation. Lost 80 pounds in four months. Still, 11 years later have issues with swallowing. However, I’m alive! My heart goes out to all of you who have been through this hell.

Wow, really excellent insight into the head and neck cancer experience. The mask truly looks like an instrument of torture. We are very impressed with the "My health, my way" kiosk and app - this looks like something that could be adapted for use with many other cancer types. Thank you, Julie, for this enlightening presentation.

What an excellent discussion. Thanks to Julie for organising it and to Isabel for being such a great beacon of hope for cancer survivors of all types (and their loved ones). We really look forward to seeing services like this become the norm.

"Promo SM"

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Thanks

Julie they can’t remove the mask because they have to keep you still that’s why they pin it down ,as one move, and the radiation could hit your spine and you would be paralysed,I had all that explained to me before my treatment 🏴󠁧󠁢󠁳󠁣󠁴󠁿

Rename this video. While it contains useful info, none of it ever mentions actual post-radiation dental problems or oral regimes necessary to cope with the new set of problems that radiation treatments create. The viewer is left no wiser or helped after watching this video.

Methods I used to cope through the 35 sessions IMRT. I tried to slow my breathing. I did this counting 1 to 5 in my head while I slowly inhaled. Then counted from 5 back to 1 while I exhaled. I think this distracts you from panicking because you concentrate on the counting and breathing. I hope this method may help someone.

Thanks for this video Can MR linac avoid chances of doing surgery for a cancer patient?

Thank you for sharing. This is a video we can share with our patients before treatment here in Africa. Anxiety is a real problem that needs to be solved.

Beautiful, thank you so much! 🙏🏼👏🏼🫶🌎

we’re you not left with burn scarring on ur neck or swallowing difficulties plus dry mouth ❤

He is my husband's doctor in 2017 at liverpool hospital sydney. He is a Very kind doctor. The best doctor. Really concern to all of his patients. Treated my husband more than as a doctor to a patient. 7 weeks chemoradiation the cancer totally gone. Thank you very much dr. Forstner.. I wish God rewards you.. from George Boyle & family.

Thank you for this. For someone heading into radiation for stage 4 P16 SCC of the base of tongue, I appreciate the overview. Thank you.

Very informative. Thank you

excellent video - they also need music or podcasts to be available to take the patient's mind off the process

I'm nearly two years post radiation, I didn't have chemo but I did have throat surgery and a neck dissection to remove 29 lymph nodes. I never experienced mask anxiety during radiation but I did when I had the mask fitment, probably fear of the unknown. I think the model concept or even an initial tour of the radiation facility would be beneficial for new throat cancer patients.

great you don’t have so much side effects .you look great take care ❤

why no comments ?.... I get mine pulled tomorrow..Thanks for all your videos.

I just wanted to say thankyou for this. I'm just beginning my journey and had mask made yesterday and already feel completely traumatised. I am just panic stricken and struggling to move forward. This video at least gave me half an hour of not crying and hope that in the future things could be different. With love from the UK 🇬🇧.

I would like to know how is immunotherapy, and the others cure for head and neck cancer related to vph, it is the same. or is there a difference?

Hard to eat healthy when you cannot swallow and are on a feeding tube and cannot swallow.

I had tongue cancer and could not find any type of mental support during or after the treatments. There should be support groups during as well as after going through having your head snapped down to a table and fried. I am now 3 years out, still on feeding tube, still have much mouth pain and irritation. The extreme dry mouth makes you suicidal at times. You cannot sleep more than 2-3 hours at a time because of the extreme dry mouth. The cevemeline nor the pilocarpine has no effect once they have destroyed your saliva glands with radiation. Once they get their million dollars out of your insurance company you are pretty much on your own, You cannot get anything for pain and all they want is to continue to see you so they can get more money but they say there is nothing more they can do for you. If I ever had any type OF cancer again, I would NEVER go to a mainstream Doctor (oncologist) again. I regret having the treatments and would never allow them to burn and p[oson me again. You should be allowed to speak with others that have done the same treatments BEFORE you ever decide to do the treatments but they use FEAR to rush you into a wrong decision. Not being able to eat or taste food is NO QUALITY IF LIFE. cancer therapies are all about money/NOT HEALING. i HAD ONE VISIT WITH A PSYCHOLOGIST THAT TOLD ME I WAS FINE. I WAS NOT FINE! I WAS SUICIDAL, GOING THROUGH 3 MONTHS OF TREATMENT ALONE. THE RADIATION LEAVES YOU WITH NO QUALITY OF LIFE. THE MASK IS LIKE A HORROR STORY. YOU NEED CANNABIS BEFOREHAND TO BE ABLE TO SUFFER THROUGH IT.

So will this work with full reconstruction of upper palete and remaining jaw? All dying from osteonacrosis?

after 7 years of tonsil and base of tongue cancer T4 N2 my front teeth are all broke off dentist said i can’t get crowns

i had primary tonsil cancer that went to base of tongue with two lymph nodes 7 years ago my top front teeth are all broken away dentist said i can’t get crowns as there’s mo room for them yet the bones on roots are strong