- Видео 16
- Просмотров 32 561
The Life of Lorna
Добавлен 5 сен 2014
Life with PoTS - Cardiology Update
Hello ♥ I'm Lorna. I've decided to document my journey with PoTS - Postural Orthostatic Tachycardia Syndrome in the hope that it might help others who are facing similar challenges and raise awareness about the condition. Thank you for listening, and I hope you gained something from watching my video ♥
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~ Links ~
www.nhs.uk/conditions/postura...
www.potsuk.org/
www.youtube.com/watch?v=_69lR...
www.youtube.com/watch?v=xefx2...
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~ Where you can find me ~
My blog: thelifeoflorna2018.wordpress....
My previous blog: theonedayseeker.blogspot.com/
Instagram: thelifeof_lorna
Twitter: @thelifeof_lorna
Tumblr: thelifeoflorna
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~ Links ~
www.nhs.uk/conditions/postura...
www.potsuk.org/
www.youtube.com/watch?v=_69lR...
www.youtube.com/watch?v=xefx2...
-----
~ Where you can find me ~
My blog: thelifeoflorna2018.wordpress....
My previous blog: theonedayseeker.blogspot.com/
Instagram: thelifeof_lorna
Twitter: @thelifeof_lorna
Tumblr: thelifeoflorna
Просмотров: 375
Видео
Life with PoTS - Tilt Table Test
Просмотров 1 тыс.5 лет назад
Hello ♥ I'm Lorna. I've decided to document my journey with PoTS - Postural Orthostatic Tachycardia Syndrome in the hope that it might help others who are facing similar challenges and raise awareness about the condition. Thank you for listening, and I hope you gained something from watching my video ♥ ~ Links ~ PoTS UK info on Tilt Table Test and other diagnostic tests for PoTS - www.potsuk.or...
Life with PoTS - Echocardiogram - My Experience
Просмотров 6335 лет назад
Hello ♥ I'm Lorna. I've decided to document my journey with PoTS - Postural Orthostatic Tachycardia Syndrome in the hope that it might help others who are facing similar challenges and raise awareness about the condition. Thank you for listening, and I hope you gained something from watching my video ♥ ~ Links ~ NHS info about Echocardiogram - www.nhs.uk/conditions/echocardiogram/ www.nhs.uk/co...
ECG Survival Guide - Standard and 24 hr | Life with PoTS
Просмотров 3895 лет назад
Hello ♥ I'm Lorna. I've decided to document my journey with PoTS - Postural Orthostatic Tachycardia Syndrome in the hope that it might help others who are facing similar challenges and raise awareness about the condition. Thank you for listening, and I hope you gained something from watching my video ♥ ~ Links ~ NHS info about ECGs -www.nhs.uk/conditions/electrocardiogram/ www.nhs.uk/conditions...
Applying for Adult Social Care for PoTS : My Experience so far
Просмотров 3235 лет назад
Hello ♥ I'm Lorna. I've decided to document my journey with PoTS - Postural Orthostatic Tachycardia Syndrome in the hope that it might help others who are facing similar challenges and raise awareness about the condition. Thank you for listening, and I hope you gained something from watching my video ♥ ~ Links ~ www.nhs.uk/conditions/postura... www.potsuk.org/ www.youtube.com/watch?v=_69lR... w...
Applying for PIP - PoTS and Mental Health - Part 2
Просмотров 8 тыс.5 лет назад
Hello ♥ I'm Lorna. I've decided to document my journey with PoTS - Postural Orthostatic Tachycardia Syndrome in the hope that it might help others who are facing similar challenges and raise awareness about the condition. Thank you for listening, and I hope you gained something from watching my video ♥ ~ Links ~ www.gov.uk information on PIP - www.gov.uk/pip Citizen's Advice Guidance - www.citi...
Applying for PIP : PoTS and Mental Health - Part 1
Просмотров 18 тыс.5 лет назад
Hello ♥ I'm Lorna. I've decided to document my journey with PoTS - Postural Orthostatic Tachycardia Syndrome in the hope that it might help others who are facing similar challenges and raise awareness about the condition. Thank you for listening, and I hope you gained something from watching my video ♥ ~ Links ~ www.gov.uk information on PIP - www.gov.uk/pip Citizen's Advice Guidance - www.citi...
Navigating The UK Benefit System - My Experience
Просмотров 1,8 тыс.5 лет назад
Hello ♥ I'm Lorna. I've decided to document my journey with PoTS - Postural Orthostatic Tachycardia Syndrome in the hope that it might help others who are facing similar challenges and raise awareness about the condition. Thank you for listening, and I hope you gained something from watching my video ♥ ~ Links ~ www.gov.uk information on... Universal Credit - www.gov.uk/universal-credit ESA - w...
10 Lifestyle Changes to Help Manage PoTS
Просмотров 2895 лет назад
Hello ♥ I'm Lorna. I've decided to document my journey with PoTS - Postural Orthostatic Tachycardia Syndrome in the hope that it might help others who are facing similar challenges and raise awareness about the condition. Thank you for listening, and I hope you gained something from watching my video ♥ (PS: Apologies for the awful focus and lighting in this video - I was in the midst of a PoTS ...
The Story of My Life over the Past Year - Mental Health, PoTS and Change - Part 2
Просмотров 1565 лет назад
Hello ♥ I'm Lorna. I've decided to document my journey with PoTS - Postural Orthostatic Tachycardia Syndrome in the hope that it might help others who are facing similar challenges and raise awareness about the condition. I may also start to share a bit about my journey with mental health. Thank you for listening, and I hope you gained something from watching my video ♥ ~ Links ~ My Blogpost on...
The Story of My Life over the Past Year - Mental Health, PoTS and Change - Part 1
Просмотров 2365 лет назад
Hello ♥ I'm Lorna. I've decided to document my journey with PoTS - Postural Orthostatic Tachycardia Syndrome in the hope that it might help others who are facing similar challenges and raise awareness about the condition. I may also start to share a bit about my journey with mental health. Thank you for listening, and I hope you gained something from watching my video ♥ ~ Links ~ My Blogpost on...
PoTS and Chronic Illness - Just A Few Positive Thoughts...
Просмотров 1265 лет назад
Hello ♥ I'm Lorna. I've decided to document my journey with PoTS - Postural Orthostatic Tachycardia Syndrome in the hope that it might help others who are facing similar challenges and raise awareness about the condition. Thank you for listening, and I hope you gained something from watching my video ♥ ~ Links ~ www.nhs.uk/conditions/postura... www.potsuk.org/ www.youtube.com/watch?v=_69lR... w...
PoTS - Disappointing First Cardiology Appointment!
Просмотров 4315 лет назад
Hello ♥ I'm Lorna. I've decided to document my journey with PoTS - Postural Orthostatic Tachycardia Syndrome in the hope that it might help others who are facing similar challenges and raise awareness about the condition. Thank you for listening, and I hope you gained something from watching my video ♥ ~ Links ~ www.nhs.uk/conditions/postura... www.potsuk.org/ www.youtube.com/watch?v=_69lR... w...
PoTS - Unconfirmed Diagnosis Limbo
Просмотров 2465 лет назад
Hello ♥ I'm Lorna. I've decided to document my journey with PoTS - Postural Orthostatic Tachycardia Syndrome in the hope that it might help others who are facing similar challenges and raise awareness about the condition. Thank you for listening, and I hope you gained something from watching my video ♥ ~ Links ~ www.nhs.uk/conditions/postura... www.potsuk.org/ ruclips.net/video/_69lR1AA2uA/виде...
My PoTS Journey - Part 2
Просмотров 1326 лет назад
Hello ♥ I'm Lorna. Welcome to the first of my videos on this new RUclips adverture I'm starting out on. I plan to start by sharing my journey with PoTS - postural orthostatic tachycardia syndrome. I may also move on to sharing more about my struggles with mental health, all with a view to raise awareness and help others. Thank you for listening, and I hope you gained something from watching my ...
I have bi polar....i get the low rate daily living and mobility ....i have a phone call ass last week for my pots ...
I am transferring from Income Support to U.C in 8wks,I am ill and disabled,I know there is a5 wk gap between one benefit ending and receiving my 1st payment of U.C,how can I get cash to live while I wait for my first payment?
thank you so much, this is very helpful 🤍
Do you do step by step guide
Thank you for your videos, very helpful indeed and I will watch your videos a few times before my assessment in 3 weeks xx
I have just applied for PIP. Im seeing them in 3 weeks. My anxiety and PTSD leads me to get severe pain in my stomach and back every time I attempt to do the dishes or anyhthing really in the kitchen, wiping surfaces, even quickly frying an egg, or opening a tin of tuna to make a sandwich (egg and tuna sandwiches are all I can really manage) Trying to prepare larger amounts of food like big curries and chillis and freeze it into containers has now become impossible, the longer I am doing things in the kitchen, the more the panic comes and the more agony I am in. Thats going to be interesting for me to try to make them understand. I am pretty sure I can win the basic mobility though, because I suffer with severe anxiety and panic if I have to go somewhere Ive never been before, and when I won my sickness status at court, that won me points, so I have that bit written on a court document and thats just enough points for basic mobility. I would be happy with that. I also get severe pain in my stomach and back about 30% of the time when I try and leave the house, so then I dont bother going out.
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Hiya....I was wondering if you got accepted?
@@blackgown7485 Thank you for your concern. Well I did not get any points for basic mobility, even though going to unfamiliar places makes my anxiety bad. As for the chronic fatigue and unable to do kitchen tasks due to ptsd, they ignored that also. They said the factI could fry and egg, meant I could cook. And they ignored the fact that I needed help to clean the kitchen, due to ptsd, they said that is cleaning, not cooking. I did forget to mention I also have a problem with a long term severely inflammed throat, meaning I can only speak a tiny bit before it gets too sore. They gave me 4 points for that, even though there could have been 8 or 12 points for my throat. Then at the Mandatory Reconsideration, they still didnt give me points for basic mobility or for help with cooking (even though my sister does prepare my rice so I have tupperwares of frozen rice). They said, well she can fry and egg, and put her rice in to the pan. They said, she does need her friend to clean and do the dishes as this triggers her ptsd, but this is cleaning, not cooking. So I got no points for cooking. They still only gave me 4 points for my throat and speech difficulty, instead of the 8, even though I showed them their own law, which says you have to be able to do something repeatedly, reliabily, without pain, and on subsequent days. So about 2 months ago I opened a Court Appeal. Im trying to go for the 8 points on my throat, as well as the basic mobilty. I have a more detailed letter from my GP on my throat and a letter from my MP. Maybe they wont ever give me 4 points for needing help in the kitchen due to ptsd though, even though I do get help from my friend and my sister to manage. They lied and said I turned up to the assessment on my own, therefore I did not need help with basic mobility travelling to unfamiiliar places. I will say at court, that they lied about this. And also say that with my throat being so bad that I can hardly speak, of course it makes my anxiety bout being in unfamiliar places hard. Well good luck with your appeal, and it is worth going to court about it, as 7/10 cases win.
@@alidolloso1704 this is really sad to hear..my step mom have sever rheumatoid arthritis...her hands are crippled she has no nuccles and she's had 2 knee replacements and hip replacement...she also has 3 crushed disks at the top and bottom of her spine....she cannot put any weight on her hand at all...but she cooks dinner for her family every single day,and she looks after her mother who has heart failure...I think pip are extremely oppressive because anyone even if you have a worse illness you can still do basic things....your not completely disabled. I have saviour depression and ptds and chronic fatigue syndrome also arthritis in my neck and pelvic bones and hands...im absolutely scared to go to his assessment...I've applied for pip but sooooo scared now...I have 4 small children who I struggle to look after...where I live I have no friends really just 1 friend who had 7kids so I never asked for help.....its such a struggle living each day...
@@blackgown7485 Thank you. Your poor step mom, the fact that she cooks though and can use her arms....pip love all that. And poor you. Yes you have to fit in with what Pip says to the T. e.g. I said I cant clean and do dishes cos of ptsd, but i can fry and egg. and argued that doing dishes is part of cooking they said no. So, I think you need to be very precise in order to ge the points. With depression and ptsd, you can say that it stops you getting dressed, stops you socializing, stops you cooking, makes it impossible to manage your finances. You can get 2 points for needing prompting to dress, 2 points needing prompting to socialise, 2 points needing prompting to cook, 2 points needing help to manage finances. Does the ptsd make it difficult to travel to unfamiliar places alone? You can say the ptsd makes it impossible to travel to unfamiliar places alone as it comes on stronger, and you feel faint, and you might run into the traffic, and you need a friend with you going to unfamilar places. thats 10 points - enough to get basic mobility. Can you say you need an AID to do cooking because of the arthritis? So if you do do a little cooking, you need the AID of a table and chair to sit down, and slowly prepare the food, because of the chornic fatigue and arthritis you need to be able to sit down, and cant stand at the counter. Thats 4 points. So you need a total of 8 points. Let me check what else you can say......
Keep up the good work it’s very helpful.
all load of crap for money
just get a job you can do instead of leeching off the taxpayer!!!!!!!!!
PIP has nothing to do with work. Although it's unlikely that anyone granted PIP is able to work, it can be award to anyone who requires support, whether they work or not.
hi thanks for this video. I have POTS and EDS hyper mobility as well as severe anxiety and adhd and I was refused the pip but my friend and partner write the whole thing for me and I have a hearing issue and the same you need headphones and someone to interpret but they refused the pip. hope you are ok, pots is very horrible isn't it
I have also applied for PIP in the past. I had the help of a support worker from an employment agency to fill in the form & help me collect the requested evidence. I attended an assessment where I had to ask twice to take a break due to my anxiety getting the better of me. At the time I'd been diagnosed with GAD, PTSD & Depression, pot's wasn't something I was even aware of let alone something I suspected I maybe suffering from. I spent over an hour on my own with the assessor in a small room answering all her questions to the best of my abilities. Several weeks later I too received the decision letter only to find I hadn't been awarded the benefit. I felt devastated by this as the wording of the letter seems to imply that you are trying to claim something that you don't need & are not entitled to. Personally I found the whole experience to be traumatic, humiliating & incredibly difficult given my mental health state. Now having been diagnosed with pot's alongside my mental health issues I am trying to decide whether I can face even applying again, let alone another rejection. Videos like this are incredibly helpful even for those who received help completing the forms. Based on my experience I would be tempted to ask for my assessment to be carried out in my home as traveling to strange unfamiliar place's, meeting stranger's & being closed in with strangers are all main triggers for my anxiety, plus if I'm having a bad pot's day just being able to get myself washed, dressed & out the door can increase the severity of my symptoms & lead to fainting spells, brain fog, fatigue & physical pain. I would also request that a family member or close friend be with me for support. If you're looking for help in applying definitely watch both parts of this video, definitely read the CAB's excellent guide & if you're still daunted by the process book an appointment with your local CAB office and have a chat about your options. Good luck to those who go on to apply, if I decide to do so myself I'll update my post accordingly
I hope you reapplied. Because they fail most people. 65% of appeals get overturned
Thank you. I suffer from PTSD anxiety and depression ( working on NHS myself ) as a result of my condition I am taking a longer time to recover. I have been advised by HR to apply but I am so scared of the process and rejection!
It has being interesting to hear how long you had to wait as I’ve been away from December to see a cardiologist believe I have pots
I have POTS and a few other issues and your video has really helped me. Thank you
I'll be upfront, I want to work, but as I said on another one of you clips, I feel very fatigued at the moment. I am better off in the benefits system than out of it.
just get a job that you can do instead of leeching off the taxpayer!!!!!!!
Leeching as you put it can be alot better than actual working 🤷♀️
@@RickSatan I am on benefits and I have never been so better off including my rent I am only around about £400 a month worse off , so happy days in my life time I have always worked for low pay but if people want to call me a scrounger then let them get on with it but at least I can sleep in till 10 every morning😅 why go out to work for £320 a week on the top when you can get £220 a week for doing nothing including your rent and council tax I am talking about plus all the other benefits of being on benefits like free prescriptions interest-free loans the government putting £301in your bank account this month etc etc etc I am a single guy who lives in a council flat and my children are in their 30s and when I hit 55 I retired with my works pension not my state pension I'm not that old yet lol 😅 but there is no way I am working till I am 67 just because this government can't get their finances together proceed to spend six-and-a-half million a day of people who are on low pay who pay tax to give the red carpet treatment to people who enter this country illegally there is no way am I struggling in all weathers to pay towards that " no way that's why I am on benefits as soon as I heard that story that made my mind up to retire as soon as I hit 55 🤔
I watched your PIP videos with great interest, as other people said to get enhanced on both from a paper based assessment. I used to have WPW, which I have had surgery for. I know have HOCM, AF, VT, SVT, high blood pressure, orthostatic hypertension, as well as Asthma & Diabetes. I had a head injury a long time ago, which has left me with a right sided weakness. I have to hand it to the local council, they gave me an Adult social care, occupational health assessment, they fitted for me free of charge, an additional stair rail, gave me a perching stool for the kitchen, and other kitchen devices to make life easier, a bed handle, rails in my bathroom, and a shower stool. I have had three PIP assessments over around 10 years, The first one I got standard daily only, after tribunal The second one standard daily and mobility after a mandatory reconsideration The last one enhanced daily and standard mobility after a mandatory reconsideration, this lasts until April 2025 My heart issues cannot improve, so why they only gave me a five year award? My medication (30+ pills a day) does not help. I feel very fatigued most days, tried a college course, was doing ok, but missed most of this year due to a chest infection and a CV19 positive test, I wonder if I have long covid now? I don't know if you still monitor you YT feeds, but hang on there. I just listen to music, and watch various TV streaming services. Thank you for sharing your experiences
I used to receive personal independence payments and unexplained they stopped my payments. Right before Christmas and my birthday. So I think the reason why personal independence payments stop was because I recently had a medical assessment done to see how I was going and there asked me questions and asked from scale 1-10 how I felt about my everyday basic things I needed to do. I will upload the paper work so you can see. So in the assessment I was asked about my ability to cook and clean. I mentioned food in the process only because I recently got diagnosed with type 2 diabetes. So I have to watch my diet. I forgot to mention to the woman doing the assessment. The reason why I mentioned food was because I recently got diagnosed with type 2 diabetes so there fire it required healthy food for me. On the 19 Th of November I recently had a phone call from DWP in regards of personal independence payment and I just came from being hospitalised from the dangers of diabetes. I have uncontrolled diabetes due to my stress and confusion. I have been told by my Gp it’s impossible for me to work because of my diabetes. My risks are comma or losing a leg.
Good advice hun
how can someone claim this, i can't even use the phone to ring them it will trigger my anxiety and god knows how I would manage to go to a assement i'm like you in that way, can't meet new ppl, being single nearly 10 years, I only talk to ppl via text or by typing on some sort of messenger,
I like the jars what are you putting on them x
admire you alot lorna keep strong xx
You need to try and do yourself in and get sectioned before you get to claim pip these days, you will be waiting a year to see a specialist I mean a proper phyciatrist to diagnose it takes a long time, and to get a cpn, it's awfull, there is so much mental health in the world now, every one will be claiming pip, it's so sad!
That's not true for everyone. I have no intention of claiming pip and i suffer with horrific gad and cptsd. I'd rather have a job. I can earn in 1 or 2 shifts a week what they offer on middle rate. I'd be uncomfortable but at least I'd be comfortable enough to know that that money won't stop unless I don't go.
Your advice is amazing. Thank you x
The twisted thing about PIP is that it is supposed to stand for Personal Independence Payment. However, when someone who is disabled, physically mentally, or both, when they TRY to be 'independent'...THEY ARE DENIED THE BENEFIT BECAUSE THEY ARE THEN DEEMED 'FIT'!!! !!! So, really, PIP is a twisted contradiction in terms.
You are beautiful x
I have mental illness will I be eligible for this? And recently lost my job due to discrimination and I resigned. How much roughly I can get?
I hun sorry what youv been through you should get your doctor to get you to a mental health team...
Its really hard like i mean it took me 2 years and still nothing
Thank you so much Lorna. I'm starting work as a Social Prescriber and your story is a great way to get some context on the UK benefits system. I will definitely use this info when talking to clients. Awesome job!
I am interested in your experiences with the application of Pip & THE DWP. I feel the scheme is very discriminatory and very stressful. I am hopeful of setting up a forum of those who have had negative experiences with this scheme and the DWP. MY EMAIL IS NVNATJI@HOTMAIL.COM. AND MY NAME IS NACI.
Thanks for your insight into this, though wish I had seen this sooner! I have recently had a similar experience with PIP being denied and am now beginning the “mandatory reconsideration” after receiving the “we don’t believe you” letter. Very disheartening but seems all too common. Good to know you got there in the end - appreciate your advice and hope you’re doing well. 😊
@Tracy Whittaker Hi Tracy, I know the feeling. I’m sorry to hear you’ve had a similar experience. I did ask for a MR initially, but with covid and the way the world was when I began collecting evidence etc it was a slow and difficult process, and with worsening mental health and physical health issues, I am only just getting round to dealing with it. I have a feeling they will make me go thru the whole claim/assessment again as it has been so long - and I also think they are very well aware that they are dealing with a vulnerable group of people who will struggle to fight back against their biased decisions, hence more money for them. If you have got some evidence of your health condition and you feel there is more you can show to them to prove you meet the criteria, I would say go for it!! If you are entitled to help, you deserve it, and should receive it! I don’t know where you actually fall on the criteria, but I’m guessing it’s no where near zero. All I can say is I understand how you must be feeling, and it’s unfair we have to go thru a battle to get the support we need. I hope you can get what you deserve 🙏🏼
@Tracy Whittaker no I haven’t had any decisions yet but I’ll try and update you if/when I hear back - I’m expecting the worst as I’ve left it too long, but then I have also been having a nightmare with my health so... what do they expect?! I’m sorry to hear you’ve struggled with mental health issues as well as physical, I can relate and I know how difficult it is to just get by each day nevermind having to fight for PIP etc. I’ll be keeping my fingers crossed you go for the MR and get it, and also that ur health improves!!! Xx
@Tracy Whittaker it definitely is. Hang in there, tho. I hope it all works out, for both of us!! I’ll try and shoot u a message when I hear something back, and if u decide to appeal and get any updates, let me know. I’ll be rooting for ya 🤞🏼🍀💕
@Tracy Whittaker that's what you tell them.what you've just put.from pain medication etc. There's a good vid on here ruclips.net/video/ZDkurvvN5VY/видео.html that gives u advice on filling in the form from what u can't do need help with etc. I've just watched it as I'm in the process of a review! It's fucking shit the system! U like me might be due back dated money. I was knocked down a level because of advice from doctor and welfare rights person whom attended my tribunal! The ones that are supposed to help don't! Source advice from people in similar situation like your doing. Like the saying goes... Don't let the basturds grind u down! Get a form in ask to get it back dated! Hope u get what u deserve 👍
Love your videos! I also have POTS
I had my telephone tribunal yesterday really lovely panel I had a male judge male Dr and female disability organisation. Just waiting outcome in post should of lasted 1 hr only 1i mins. They not hostile at all they understanding they don't intimidate us either people shouldn't panic just like talkin to your friends drs etc
Hi Lorna, my name is Janette Hodds, I'm a freelance TV producer working for ITN Production, i was wondering if i could chat to you about this video. Many thanks Janette Email: janette_hodds@hotmail.com
I have mental health issues and I'm on medication for it, my doctor's notes currently say "anxiety and depression" I haven't had a proper diagnosis yet, would I still be able to claim pip? X
beardsgirl 2020 yes just provide evidence for medication u take and describe the feelings u going true U supposed to be able to get it Good luck
@@simonavlt4258 thank you ❤️ I've kind of been putting it off because I hear that if someone fails their pip assessment then their other benefits get stopped aswell ☹️xx
beardsgirl 2020 No nothing to do with another benefit how far as I know If u don’t feel confident Then I advise better get advice from Shelters or citizen advice,, Don’t trust any other fake helpers Be careful at the same time World is not that nice anymore Best of all for u😉
@@simonavlt4258 thank you, I'll apply for it and hopefully it all goes well, and you too right about the world today ❤️xx
beardsgirl 2020 Trust me u don’t know what hell I am still going true the law system rights and all eu struggle I live in the country 10 Over!!! Years but not entitle to any hel when I needed I got all kind of mental illness right now And still not finished of my journey If I knew I never come to this country So hard to explain 😌
I have schizophrenia and it does effect me daily. Is pip for me too? Coz I don't have a physical disability
Yes absolutely - you can get PIP for a mental health condition if it affects your daily life. I know a lot of people who get it just for MH 🦄
@@thelifeoflorna607 thank you, your comment means a lot!
Danm girl u very pretty anxious ,Im getting this test too for POTS, It seems that people with POTS get a huge rush with ardrenaline from normal things and or something to get anxious about so its on o whole other level of anxiety its like drinking 5 redbulls at once
plenty cash she has.
I'm not exactly sure what you mean, but I don't actually have 'plenty of cash'. I have enough to just about get by, and I don't live extravagantly!
Useless and no meaning
Thank you for taking your time to do this video and the part 2. 💕
I'm also living with POTS and trying to access social services. I've had an equipment assessment from my local authority who have given me a shower stool and a trolley to use in the kitchen (I have a seat that I use in there already) and I'm waiting for their OT team to assess me for a stair lift and a ramp (I'm now a wheelchair user). My husband cooks my meals and cleans and is there when I shower in case I faint. They won't put a 'care' package in place because I have my husband but I have a number to ring if he's ever hospitalised to discuss and implement emergency care in that scenario. I was only referred to them because I was recently diagnosed with autism and the lady who did that was an OT who recognised my physical needs and went above and beyond her station to recommend it for me. My main point to social services is asking them to treat me like someone with a lung condition because I don't get enough oxygen to my brain when I'm upright and my lips go blue from lack of blood reaching my head. I hope you get everything sorted soon! Take care.
15:50 Really good point about mental health relating back into real life. Totally relate. Mental health is important and we are also incorporating it in our app and videos. Love this video though. Definitely subscribing, looking forward to more about this!