- Видео 55
- Просмотров 37 037
Neuroblastoma Parent Global Symposium
США
Добавлен 9 дек 2020
The 2020 inaugural Neuroblastoma Parent Global Symposium brought together families affected by neuroblastoma from around the world with those who work to treat, help and support them. Over two days, international experts shared valuable and reliable information on treatment, clinical trials, and progress as well as dealing with some of the challenges of a childhood cancer diagnosis, through live presentations, panel sessions and Q&As.
Wrap-Up and Video Tribute, featuring children from around the globe.
Host, Dr. Daniel Morgenstern, provides a summary of the 2023 presentations. Dr. Morgenstern will be joined by neuroblastoma parents, Matt and Colleen White, who will share their insights and messages of hope. The symposium will then close with a moving video tribute featuring neuroblastoma children around the world.
Просмотров: 74
Видео
Welcome and Opening Session
Просмотров 7211 месяцев назад
2023 Host, Dr. Daniel Morgenstern will be joined by the event organiser's charity leaders, Gail Jackson and Scott Kennedy, to warmly welcome you to the event. Dr. Morgenstern then delivers a presentation focusing on highlights of neuroblastoma ‘news’ during 2023 which will serve as a valuable backdrop for the various sessions scheduled throughout the day.
CAR T Cells in the Clinic
Просмотров 367Год назад
This session will provide an introduction to CAR T-cells and build on last year’s presentation with exciting developments in the lab related to CAR T-cell therapy for neuroblastoma. Since then, there have been several advancements in the clinical setting which give a promising outlook for this area of research. This is a recorded presentation from the 2023 symposium.
Advocacy in Research
Просмотров 132Год назад
The voice of the patient community is crucial to making progress in research that brings meaningful impact to children and families. Effective advocacy is becoming more and more present in neuroblastoma research, and in this session expert advocates and researchers will come together to demonstrate the power it holds. This is a recorded presentation from the 2023 symposium.
Landscape Overview
Просмотров 331Год назад
This session will provide an overview of neuroblastoma and the landscape of research that surrounds it. Designed to set the scene for neuroblastoma treatment today, it will include an introductory talk, an overview of clinical trials both in Europe and the US, and a talk on the role of immunotherapies in treatment. This is a recorded presentation from the 2023 symposium.
Neuroblastoma has shaped but not defined me
Просмотров 253Год назад
This session will amplify the voice of neuroblastoma survivors, giving dedicated time for Tom Becker and Tessa Watterson to share their hopeful stories about how childhood cancer has shaped but not defined them. After their presentations, families and audience members engage with Tom and Tessa and ask any questions. This is a recorded presentation from the 2023 symposium.
The Impact of Chemotherapy on Hearing
Просмотров 166Год назад
Neuroblastoma particularly affects young children who are in the process of developing language skills. In this session, Dr. Penelope Brock and Kristen Knight will examine the impact of cisplatin treatment on patient’s hearing and how children may be protected from chemo-induced hearing loss in the future. We’ll also hear from parents who will share their own experience of having a child affect...
Psycho-Social Cancer Toolbox
Просмотров 162Год назад
In this session, themes around supportive care will be discussed with emphasis on mental and physical wellbeing of families and children affected by cancer. Clinical experts will share information and offer intervention strategies. This is a recorded presentation from the 2023 symposium.
Induction Protocol Update from Memorial Sloan Kettering
Просмотров 9832 года назад
This pre-recorded update about the new induction protocol at MSKCC was presented as part of the 2022 symposium.
CAR-T Cell Therapies - Where are we now (edited for unpublished data)
Просмотров 1,2 тыс.2 года назад
CAR-T cell therapy is an emerging area of research for treating neuroblastoma, mostly in cases of relapse. This therapy type is now more common in other types of cancer including leukemia and lymphoma, but the science behind using CAR-T cells for neuroblastoma is still developing. This focused session has been included to give in-depth information on this area of cutting-edge research, based on...
Anti GD2 Antibody Therapy - an important approach in the treatment of neuroblastoma
Просмотров 1,4 тыс.2 года назад
This session gives a full picture of the anti-GD2 landscape from lab to clinical research. Dr Robbie Majzner begins by giving a brief history of anti-GD2, as well as a summary of some of his preclinical work in combination therapies featuring anti-GD2. Dr Juliet Gray follows with a clinical perspective- summarizing what we have learnt so far through clinical research, with an update on current ...
2022 Closing and Video Tribute
Просмотров 2302 года назад
Dr. Daniel Morgenstern provides a recap of the 2022 event and closes with a moving video tribute to the children facing neuroblastoma from around the world. This is a recorded presentation from the 2022 symposium.
The Challenge of Curing High-risk Neuroblastoma
Просмотров 1,2 тыс.2 года назад
Reflecting the complexity of high-risk neuroblastoma, this session covers a wide range of subjects that are currently [at the time of NPGS 2022] being researched. Prof. Jan Molenaar gives an introduction to precision medicines and how new targets are identified. Dr. Sara Federico and Dr. Rajen Mody present results of a number of clinical trials looking at new treatments for relapsed disease. Dr...
Treating High-risk Neuroblastoma - Where are we now?
Просмотров 2,3 тыс.2 года назад
Dr Daniel Morgenstern welcomes participants and leads into an introductory talk on neuroblastoma. Topics include information on what neuroblastoma is, where it begins, as well as an overview of standard therapy regimens in Europe and North America, and the current direction of research. This recorded presentation is from the 2022 symposium.
Post Treatment: A Parent's Perspective
Просмотров 3622 года назад
In this session, SKC UK Family Support Coordinator and Mum to Eva, Hayley, presents a safe space for parents facing the emotional challenges of life post-treatment. From feeling forgotten, to back-to-school anxiety and survivor guilt, Hayley’s session opens up the conversation supported by a parent panel on some of the less-talked about struggles faced by families post-treatment. This recorded ...
NPGS 2021 Closing Remarks with Montage
Просмотров 1173 года назад
NPGS 2021 Closing Remarks with Montage
Challenges After Treatment with adult survivor stories
Просмотров 4393 года назад
Challenges After Treatment with adult survivor stories
The Role of High Dose Chemotherapy in Neuroblastoma
Просмотров 9783 года назад
The Role of High Dose Chemotherapy in Neuroblastoma
Progress in Neuroblastoma Clinical Trials: where we’ve come from & where we’re going
Просмотров 5793 года назад
Progress in Neuroblastoma Clinical Trials: where we’ve come from & where we’re going
2021 Opening remarks with Dr. Daniel Morgenstern
Просмотров 3953 года назад
2021 Opening remarks with Dr. Daniel Morgenstern
Current Research Directions Polyamine Inhibition Projects, CBL0137, BCT 100 and New Discoveries
Просмотров 5563 года назад
Current Research Directions Polyamine Inhibition Projects, CBL0137, BCT 100 and New Discoveries
Current Research Personalised Medicine and Zero Childhood Cancer Project including PRISM
Просмотров 3233 года назад
Current Research Personalised Medicine and Zero Childhood Cancer Project including PRISM
Cell Therapies in Neuroblastoma: Panel Session
Просмотров 6553 года назад
Cell Therapies in Neuroblastoma: Panel Session
2020 Closing Ceremony with Survivor Stories
Просмотров 2 тыс.3 года назад
2020 Closing Ceremony with Survivor Stories
SIOPEN/ITCC Relapse Strategy & Trials
Просмотров 2383 года назад
SIOPEN/ITCC Relapse Strategy & Trials
Seeking a Second Opinion & REDMAPP Study
Просмотров 1043 года назад
Seeking a Second Opinion & REDMAPP Study
DIPG 17:40
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Dr. Modak is the best!!
Wish neuroblastoma never existed, but thankyou for all the work you do to help these kids.
Please everyone if you are suffering from herpes please I will advice you reach out to Dr Itepu on RUclips he has a solution to your problems.