- Видео 183
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James Parkin - living life, DMD style!!
Великобритания
Добавлен 30 окт 2021
Hi my name is James Parkin, i am 31 years old and i have Duchenne Muscular Dystrophy (DMD)
Duchenne Muscular Dystrophy is a muscle wasting condition, so over a period of time my muscles weaken over time. It is 100% fatal with no cure. The average life expectancy is about mid 20's.
I started walking late. I was always last in the egg and spoon race at school. I lost the ability to walk aged 10. Couldn't stand a bit later. Was introduced to a ventilator at 15 and two years later was wearing it all night every night. When I was 18 I lost Thomas. My brother. He was 16 and had exactly the same disability.
however i want to show people that it is possible to live the same life as anyone else. i like to go out and do things and make the most of life. so i will be posting as much content as i can. if it helps people it will be well worth it
Duchenne Muscular Dystrophy is a muscle wasting condition, so over a period of time my muscles weaken over time. It is 100% fatal with no cure. The average life expectancy is about mid 20's.
I started walking late. I was always last in the egg and spoon race at school. I lost the ability to walk aged 10. Couldn't stand a bit later. Was introduced to a ventilator at 15 and two years later was wearing it all night every night. When I was 18 I lost Thomas. My brother. He was 16 and had exactly the same disability.
however i want to show people that it is possible to live the same life as anyone else. i like to go out and do things and make the most of life. so i will be posting as much content as i can. if it helps people it will be well worth it
Decided to redecorate my bedroom to make it look more "grown up!!" Part 1: remove the clutter!!
in this video i talk about my plan to redecorate and renovate my bedroom in order to make it look more sophisticated and grown up. it hasn't been changed since 2007 so its due for a change!!
before i start redecorating some clutter needs clearing from my bedroom!!
before i start redecorating some clutter needs clearing from my bedroom!!
Просмотров: 117
Видео
HAPPY NEW YEAR!! Here's What I Have Planned For 2025!!
Просмотров 27День назад
Happy new year everyone!! in this video i talk about the things that i have planned for 2025!! its going to be an exciting year!!
MERRY CHRISTMAS EVERYONE!! (2024 EDITION!!)
Просмотров 7514 дней назад
In this video i wish everyone a Merry Christmas and a thankyou for your support this year!!
I Visited The Winter Illuminations At Temple Newsam, Leeds!!
Просмотров 703Месяц назад
in this video i went to see some winter illuminations at Temple Newsam Park, which is on the outskirts of Leeds. The @NorthernLightsLeeds is just over 1 miles in length and has lots of different lights and illuminations. it was really good and a sign that Christmas is near!!
Halfway through my MARATHON CHALLENGE!! A Big THANKYOU to everyone that's DONATED so far!!
Просмотров 84Месяц назад
in this video i talk about how my marathon challenge (to raise money for @ANDYSMANCLUB and @pathfindersalliance) is going and i tell you how much money ive raised as well!! The links for my just giving pages are below if you want to donate!! www.justgiving.com/page/james-parkin-andysmanclub?Fjames-parkin-andysmanclub&Link& www.justgiving.com/crowdfunding/james-parkin?MNNGy8
I Started My November Marathon Challenge.....ON BLACKPOOL SEAFRONT!!
Просмотров 79Месяц назад
In this video i started my challenge to drive a marathon distance (26.3 miles) during November. to raise money for @ANDYSMANCLUB and @pathfindersalliance This is a major challenge because my hands tend to stop working when they get cold, so driving can be difficult. i start from the iconic Blackpool seafront. links to my 2 JustGiving pages are below if you want to donate. it would be great if y...
I WENT UP BLACKPOOL TOWER and then Down the TOWER DUNGEONS!!
Просмотров 962 месяца назад
In this video i went to Blackpool Tower, i talk about its history, my history of the tower and show you the view from the top. i also talk about the @theblackpooltowerdungeon-hr1tzBlackpool Tower Dungeons and my experience there. it was good fun!!
Went to this AMAZING Place for a few days!! BRICKHOUSE FARM (near Blackpool)
Просмотров 1382 месяца назад
in this video i talk about where i stayed on my recent holidays, Brickhouse Farm. i give a tour of the accommodation, and show you the hydrotherapy pool they have on site. I also show you how great the environment is at Brickhouse Farm!! brickhousecottages.co.uk/
I MADE A HALLOWEEN FILM: THE CURSE OF THE WHEELCHAIR!!
Просмотров 1542 месяца назад
This is a short film about a man who gets struck with a unidentified curse and has to rely on an unlikely source to break the curse!! This is my first attempt at a fictional film so hope you like it!! happy Halloween everyone!!
I've Challenged myself to drive a marathon distance (during November)
Просмотров 722 месяца назад
I've Challenged myself to drive a marathon distance (during November) to raise some money for 2 important causes @ANDYSMANCLUB and @pathfindersalliance Both of these organizations are very important to me and they both do very good work. in this video i explain what they both do! i also explain how the challenge is going to work!! ive set up two just giving pages up to try and raise some money!...
I HAVE A NEW HEADREST FOR MY WHEELCHAIR!! Hopefully it'll improve my posture!!
Просмотров 1383 месяца назад
in this video i talk about the new headrest that got fitted to my wheelchair a few days agp. the aim is to improve my posture by supporting my head a bit more!! Its taking some getting used to!
I WROTE MY FIRST EVER POEM!! 'A Cup Of Tea (A Taste Sensation)
Просмотров 1633 месяца назад
In this video i talk about poetry and how im going to have a go at writing some poetry!! Ive wrote my first poem and i read it in this video!! i hope you like it!!
My Football Match Routine!! LEEDS Vs COVENTRY!!
Просмотров 4743 месяца назад
In this video i show you what the typical routine is when I go to the football!! @LeedsUnited are playing @CoventryCityFC, so it was a perfect opportunity to show you the routine. ive been doing this regularly since 2013!!
Struggling with something that i call "Video Block" (Writers Block)!!
Просмотров 833 месяца назад
in this video i explain why i haven't made any videos for a while, im struggling for ideas, like Writers block but with videos. AKA What I call Video Block. So i did this video basically to ask if anyone has any suggestions or ideas on what i should do next!!
All About The Paralympics And Why Its So Great!!
Просмотров 754 месяца назад
All About The Paralympics And Why Its So Great!!
OASIS ARE BACK TOGETHER!! So to celebrate i decided to cover/mime to "WONDERWALL"
Просмотров 994 месяца назад
OASIS ARE BACK TOGETHER!! So to celebrate i decided to cover/mime to "WONDERWALL"
I Went To The GREAT BRITISH FOOD FESTIVAL!! So Much Food To Choose From!!
Просмотров 1154 месяца назад
I Went To The GREAT BRITISH FOOD FESTIVAL!! So Much Food To Choose From!!
I Baked Some Chocolate Chip Cookies (to bring to Andy's Man Club)
Просмотров 1234 месяца назад
I Baked Some Chocolate Chip Cookies (to bring to Andy's Man Club)
I BOUGHT THE NEW LEEDS AWAY KIT!! The Best Kit Leeds Have Had In Years!!
Просмотров 4335 месяцев назад
I BOUGHT THE NEW LEEDS AWAY KIT!! The Best Kit Leeds Have Had In Years!!
I'VE PASSED THE 1000 SUBSCRIBER MILESTONE!! A Great Achievement, Thankyou For Your Support!!
Просмотров 1015 месяцев назад
I'VE PASSED THE 1000 SUBSCRIBER MILESTONE!! A Great Achievement, Thankyou For Your Support!!
Ferry Across The Mersey!!.....ON MY BIRTHDAY!!
Просмотров 1495 месяцев назад
Ferry Across The Mersey!!.....ON MY BIRTHDAY!!
I Went Down Into THE CAVERN CLUB And Up To ST JOHN'S BEACON!!
Просмотров 935 месяцев назад
I Went Down Into THE CAVERN CLUB And Up To ST JOHN'S BEACON!!
I Stopped in a hotel room THAT HAS A CEILING TRACK HOIST!!
Просмотров 2775 месяцев назад
I Stopped in a hotel room THAT HAS A CEILING TRACK HOIST!!
i went to ANGLERS COUNTRY PARK!! it has a CHANGING PLACES!!
Просмотров 1316 месяцев назад
i went to ANGLERS COUNTRY PARK!! it has a CHANGING PLACES!!
Examples Of Muscular Dystrophy In Animals!!
Просмотров 1256 месяцев назад
Examples Of Muscular Dystrophy In Animals!!
Return To CANNON HALL FARM!! A Great Place To Visit!!
Просмотров 5107 месяцев назад
Return To CANNON HALL FARM!! A Great Place To Visit!!
I WENT TO WEMBLEY TO WATCH LEEDS IN THE PLAY-OFF FINAL!!
Просмотров 2407 месяцев назад
I WENT TO WEMBLEY TO WATCH LEEDS IN THE PLAY-OFF FINAL!!
Excellent video. All the best mate!
I didnt clean my room since 6 months, I have an issue with procrastinating.
You have encouraged me to get to it, bedroom needs a ridout and my bathroom is going to be made accessible at the end of the month
Looking forward to seeing what it looks like when you've finished. Great job so far too!
Happy New Year James.
Hope there’s still gonna be plenty of LUFC stuff in your redecorated room! HNY MOT
Merry christmas james xx
Merry Christmas, James. I love the hat! Hope all of the festive season is relaxing, and involves lots of good food!
Merry Christmas and Happy New Year 🎉 MOT
Merry Christmas James, hope you have had a good one!
Marching on Together Brother We are Leeds Always You The Bravest of the Brave On and On On On Leeds Leeds Leeds Love the True Yellow Kit. Its a major pivotal part of our Leeds United history as your great award winning oscar performance is you are our continued history of Leeds United and Leeds United fans allover the world MOT Brother MOT from Dean ALsop.😊
MERRY CHRISTMAS, JAMES & EVERYONE WATCHING. 😆
Merry Christmas 🎄 James. Thank you for sharing your story, inspiration, and love for life. I wish you and your family all the best too. My sister, Margaret, is a fan of yours and was kind to share your site with me. I'll also pass your beautiful message along. ❤
❤❤❤❤
Merry Christmas James!!! 🎄🎅🏼☃❄Love the hat, I like to share my favorite poem from the end of How the Grinch stole Christmas : Welcome Christmas. Bring your cheer, Cheer to all Whos, far and near. Christmas Day is in our grasp So long as we have hands to grasp. Welcome Christmas while we stand Heart to heart and hand in hand. Christmas Day will always be Just as long as we have we. Much Love James Thank you for your Christmas Cheer, you made my day.
Thank you
Fantastic! Well done x
Great Work! MOT
Oh well done mate really proud of you!
💝
❤
You were possessed! I was possessed? Oh dear! Had me in kinks
Well done James! Keep up the good work! So proud of you xx😊
You definitely deserved the hot tub after that
How did you get in and out of the pool please?
There was a ceiling track hoist through to the changing rooms and changing bed
That's my cousin ☺️ I didn't realise he had a yt channel
😱😱SCARY 👻 🎃
this was really fun to watch
Share some of your struggles & victories. Do you take your chair out shopping or out into the public? Document some of your adventures, get a cam attached to your chair and educate the public about what it's like living in a chair with MD
The headrest on my power chair is useless, it keeps on a dropping down anytime I hit a bump or lean my head against it too much.
Spoooooky! That was great James!
What kind of powerchair you getting?
Love it James! And totally agree with you, you can’t beat a good cup of tea. Look forward to hearing more poetry from you 😊
Great stuff. Beautiful poem, and beautifully read. Thank you James.⭐📚⭐
Love your poem, you're so talented. Good job!
Wow! Nice one James!
Bang on James mate, awesome 😎
Nice poem
Love it! Well done James
ALAW ❤
This was good to know. Do you do any mental prep before heading out? Is it mainly a positive experience?
Thanks for sharing, James. I'm glad - if a little jealous - that you got to see such a great match in person!
Great vlog mate, let’s hope for another win tonight. #mot
I'll be in Sheffield next year for the snooker. So I hope I'll get to this place.
Top 10 fav Leeds players ever!
Frustrated for you James, thanks for asking for ideas. Interested in how you go about dealing with public services for identifying needs/replacements - could be equipment or your medicines. Maybe a couple of stories where things have gone wrong - e.g. hoist breakdown/WAV issues, and how you change things to avoid happening again. Likes and Dislikes about things in your local areas. Discussing any local facilities/communities that you get to join in with. Typical match day for you when at Leeds and how you have to prepare, what you do on the day Looking at calendar and things that you look forward to and why / or why not - Halloween/Bonfire night/Christmas Places that you would like to go to and why What a typical overnight routine looks like - are you able to sleep right through or do you need support to routinely move and what works best for you Joint call or interview with another RUclipsr Good luck compiling !
Ten lists do well on youtube, top 10 things you shouldn't say to a disabled person and why, maybe? top 10 places you like to go? If that's not your style, maybe a challenge of some sort, document doing something difficult, set yourself a task you're not sure you can do
Music stuff with James
Is love to see a video of: Tips with equipment Who is your carer and how they get on What are your favourite movies and games Winter is coming how do you keep warm
Cheers mate 👍