Видео

Very informative!

I suffer from pots, but Al-Tayeb knows nothing about this disease and prescribed me Inderal 40 in the morning and evening. Reduce the dose. Please reply

Thank you for the wonderful video and explanation. I wish there was a section on treating pots, because I am in a country that does not know how to treat it 

❤❤❤❤❤

Audio is rough to hear her very staccato choppy harsh..

The second scenario is exactly what happened with me during BJJ today. Thank you for clarifying!

You do realize that these are all early symptoms of Beriberi?

The nausea-syncope-blood pressure connection is a really important topic for people who are struggling with dysautonomia.

How would the cold shower affect you if you have Raynaud's syndrome?

I have this .......severe fainting problem

❤❤

I noticed that taking magnesium at night helped me against palpitations at night :) when I am laying down.

How can I cope better with pots breathing and high sport level? I do crossfit and it is not my dislocations limiting myself but the whole autonomic issues...

Or in our 40s or later in the US

Some things you arent taking into consideration: many of the people that are over 40 yrs, were never diagnosed with EDS/HSD as children. Finding a knowledgeable dr is extremely difficult even in 2024. I waited a year to be seen by the one EDS specialist within a 250 mile radius of the capital city of my state. I was 53 yrs old when finally diagnosed with HSD. I had already been diagnosed with many of the co-existing conditions that seem to be common with EDS/HSD. We as children were known to immediate family members as being clumsy and running into everything. We did not know why....always hitting our head on the way up after bending over. Also having to attend a gross & fine motor class after kindergarten to catch up with our peers. (1970s). We knew that certain stretching positions were very for us in gym class but we did not know why. (Back then terminology was double-jointed.) Still we didn't develop anxiety about it because we did not dislocate our joints. When I was in graduate school is when I had lots of body pains, neck pains, migraines...subsequently diagnosed with fibromyalgia (mid 1990s when diagnosis just came out and then subsequently dismissed by most medical professionals). By the time we develop many of the co-existing conditions...we start researching, wondering wtf? After identifying with many symptoms, we self diagnose but still drs claim, you cant possibly have EDS, it's a rare disorder (from the one paragraph they learned about in medical school). So we remain undiagnosed until we get a sympathetic enough dr who puts in a referral to cross health insurance networks because there is no one in your network. So not sure how your theory of the wiring comes into play here. It is not until we start developing sensitivities to chemicals and foods that we start getting anxious because every foray out of the house is a potential bomb of triggers. Many of us get so sick that we can't work especially since employers do not want to enact fragrance free work place policies. In order to get a work space out of the scented people areas, you have to file ADA accommodation requests with the medical proof that you must avoid all scented people and products lest you get ill. You miss so much work that you are now having discipline issues which you had not had previously. If there are no scented products, no products with VOCs, no off-gassing products....your body's mast cells are not activated and there is no sickness. It only takes 30 seconds of exposure to a trigger for the mast cells to over-react. Now is the time when the anxiety gets ramped up. Relationships with everyone are strained...depending upon who believes your sensitivity or not, depending upon who abides by your requests for scent free environments, many end up missing all holidays with family because you have given up on family to not make a mistake, it is easier to not go. Relationships with significant others fail alot...if partner doesnt understand that using this product vs that product could cause you to be ill. So where is link between hypermobility and POTS and MCAS (mast cell activation syndrome) for those who were never diagnosed until very late in life and only became very anxious (hyper-aware) after developing mcas?

My bed is a king-size wooden box, basically. We got it when we got married. I have a cone pillow designed for sleeping in a slightly raised position. Would that work as well?

Ive been dealing with POTS for years and recently found out ive been suffering with a chronic cerebrospinal fluid leak. Im so happy to see Drs talking about these issues as most people will just get labelled with 'anxiety' when trying to get help from a GP. I may try to find you as its so refreshing to see a Dr who knows what issues such as POTS and EDS actually are and how they affect someone.

Very well explained.

Covid does lots of damage including Hi bp. I never had it before covid. Unfourtunatly i cannot tolerate tbe medication. Civid caused me to experience broken heart syndrom from a severe shock from someone i trusted. My heart is healing fiine but couldnt take those meds either. I have been in bed 2 years. Im 71. Had covid 3 times and am sick again now. All the tests dont help. Im miserable here. Im returning to mexico to die with family. I cannot do drug therapy so this will kill me. all i have control over is where i live and finding happiness again. The worst part is knowing it is man made and the bat lady is still making more virus' in wuhan. No one seems to be concerned. WHY?

I appreciate these videos. Thank you.

Thank you so much for this. I have hEDS and i get really low blood pressure. I started fainting a few years ago, but the most significant symptom i have is fatigue mainly in the mornings into the afternoon. My legs go bright red and my hands swell up and go red sometimes too. Out of all the symptoms i have including pain, my most disruptive symptom is fatigue and its so hard to explain to people that its not just a feeling of being tired. Thank you for sharing information about this.

We got mom's who took the jab, after delivery spiking so high needing readmission on mag...everyone acting like "this is normal"...

if it slows down sinus rhythm is that why i get wide qrs on kardia monitors while taking ivab

Dear Dr. this is in regards to your video on the link between ATS dysautonomia POTS…. Comments on that video were disabled. So I placed in a comment here. From my own personal experience with these conditions I feel like you’re connecting dots some appropriate that missing the biggest DOT. I could be wrong. I could be right. I could lie somewhere in the middle the truth maybe it’s both or either or. This is still a little bit backwards in my own opinion as to what is happening with the proprioception and then feeling thinking believing or not safe and then therefore the neurological development occurs. I personally believe it’s the loose connective tissue that is sending the fall signal to the whole system to the neurological to be on hypervigilance. Not that there is an adverse experience by the human that then puts the human on hyper-vigilance and a feeling of not being safe and then the numerology develops for heightened sensory and anxiety and depression. I believe it it’s core it’s the signaling of the body to the neurology to be on that heightened alert for the safety of the individual because of the fragility of the host of the structure. If we continue to gaslight the individual that it is somehow connected to their own personal belief system that they are not safe and yet they truly are safe and we must simply retrain the brain and the belief system in the feelings to believe that we are safe and everything is fine there’s homeostasis and then we do a great injustice to a great amazing brain and body design And continue to put the onus in weight and responsibility onto the individual to override overcome something that is bigger than the body brain signaling. The methods and means that we used to try to manage our condition are all well and good but what is not willing good is to continue the belief system that it’s our belief system somehow that we’re not safe when we are safe potentially that is a dangerous slippery slope like forgiving someone who has not thought forgiveness someone who has no intention of changing their own beliefs systems are practices are habits and yet we are to forgive them is a dangerous slippery slope it’s called enabling. Anger is an appropriate emotion and feeling and response in the face of being gaslit misdiagnosed not receiving treatment not receiving proper diagnosis and a fight flight response is normal you need to fight that fight the system that’s enabling let that to continue and you need a flight away from people who are trying to get you to forgive all of those who have led to your increased disability by their ignorance lack of knowledge unwillingness to pursue the evidence the research And potentially simply believe their patients over their own arrogance their own professional training That has taught them falsely. If a doctor would like to step up and apologize and make amends and restitution and said about a path to correct the wrongs that have been done then yes forgiveness is most definitely the appropriate response but until such time as that has happened to just walk around willy-nilly forgiving everyone because you don’t want to Harbor bitterness or anger is to discredit the end dividual and they’re very appropriate response to a wrong.

I want the hour explanation please 😊 vHEDS, MCAS, POTS. The heat brings on one set of symptoms in the cold brings on another and both are quite miserable. I have found cold water shocks to be effective it’s a “reset” to the ANS and often all my symptoms will turn off. The clogged sinuses clear, the inflammation in the head subsides, the brain fog lifts. Sadly though I discovers this due to lack of access to warm water in a winter season and frigid cold water was all I had to use to get clean. A negative effect though was chilblains Raynauld’s from the below 45 degrees temps to the extremities. But the discovery of cold water pouring across the back of the neck was an amazing ANS reset to treat my MCAS vascular inflammation response. I do not like cold water at all. I crave heat and the heat helps for exercise to relax my muscles to support the weak vessels and tendons until they warm up in winter. Sleeping on body warming heat pads in key areas reduces muscle tension and spasms upon waking and tendon pain and with vessel dilation in cold. Heat tempt it is compression to keep vessels from expanding and all blood flowing down and pooling and not coming back up. But with Cold temps I apply heat on the feet and ankles hands and wrists to dilate the the vessels to keep blood flowing in the feet and hands. My EDS symptoms undiagnosed and no disability benefits have resulted in living outdoors in heat and cold and having to do so has taught me how the heat and cold impacts my EDS. Living in controlled temps of indoor heat and AC with unlimited access to hot water can prevent some from taking advantage of cold and heat therapies. It was a “force” I would have never chosen to pour freezing water over my body😂. Or have to warm myself with only charcoal filled adhesive body warmers. But it works. It works well. What works for me is cold water shock followed by heat pad soothing. Across the back of the neck on the feet and hands and sometimes on the lower back right at the base of the spine if you had all of those points with a cold and the heat pads it works like a charm. Perfect! Thank you❤

P r o m o S M

I haven't recovered after 2.5 years

It's practical and true.

Could the lower leg vessels be more dilated with an amber and red blood pressure? The gut vessels look beautifully dilated, but the lower legs not as much…

Why would this happen while you're sitting? Most of my pre-syncope episodes have happened while driving. It's very scary 😥

What is induction hub?

Great information! Thank you !! 🥰

This was great! You mentioned HRV and the ability to go higher and lower. It sounded like HRV you want to be able to have a higher range of what is your low, or what is your high? For example, your low is say 35 and your high is 40. This shows a small range and is not as well as say going from 25 to 60. When you google HRV your left with, "below 50 your dying", but there is other studies that mention age ranged and say 40+-10 is an average, etc. Would you say for overall heart and autonomic function its better to have your body have a higher range, then a lower range but a higher HRV? and continuing to do more to increase your over all HRV in addition to maintaining a range? I've seen where some say HRV can genetically be lower due to your heart for example having a higher heart beat (someone who during day ranged from 75-100 for example versus the person 55-90 - they would generally have a different HRV baseline? I personally use the Elite HRV app and Polar 10, and there is the "free mode" where you can watch your breathing, and even choose some breath exercises. I did order the hearthmath as well.

My experience with one of the doctors in the video is amazing! I highly admire the respect, care and love! See you soon! I believe you are closing-in to a solution/root cause for my condition 🙏

I did a test regarding stress. I had a a month break from work (extreme stressfull project environment) but I had no change in my condition! Anyways, managing stress is very important as a general rule! Thanks a lot !

Thank you for the sharing this teaching/ case ❤

Great information! Thank you ❤

Thank you for sharing! I had blood pressure that was 110/80 and hurt my neck (2014) , and about 6 months after that I started to noticed my blood pressure climbing to 135/80; I thought I was getting older, but after two Covid infections is going down to 124/70. I believe that I have long Covid since it has been 2 months and I still feel like I am sick and my muscles feel weak all the time. I am focusing on getting all the nutrients that my body needs and hoping it gets better soon. Great video, very informative and it explains things that the Doctors do not understand.

Thanks Dr Danni & team

Thank you! Great advice.

So, digestive problems, shortness of breath not relieved by albuterol breathing treatments, extreme mid and high back pain/spasming and bp readings at crisis level 190/110 +...not just in my head...that's a very helpful and life changing explanation😝❤❤❤ THANK YOU!!! I have one or two good days, do too much trying to "catch up" because I feel ok and guilty and then I'm worthless the rest of the week...until I get better and catch whatever new virus floats my way and the cycle repeats! The psychology and validation seem to be very very important here, what a mess😝❤❤❤ Thank you for addressing it!!!

Thank you so much for sharing your experience. I am getting one soon.until listening to your experience I was so nervous. Again thank you. You are so pretty.

I have never had high blood pressure until after covid.

Indeed, I have a history of fainting and so am always trying to find to overcome these events. I have gotten to a stage whereby it's manageable, ie not very frequent. The goal is to get to a stage whereby it almost or indeed never happens. Wouldn't that be Nice.

What is the difference between convulsive syncope and vasovagal syncope? Everytime my stomach is upset and I throw up I end fainting. I also feel dizzy when I am too hot and also faint on those occasions. While feeling hot I can somehow avoid, the upset stomach I really find trouble. I had a syncope episode one month ago and was in the hospital for 3 days. Now I am always very stressed that I eat something that hurts my stomach that I can barely eat and feeling weak. :( I just want this to go away.

My blood pressure has always been normal, since I had Covid I developed hypertension, it's nice to get some validation.

I hv hypertension for 1year after i got covid. Im 22yo. And i hv usually 140~150, 60 or 70. The problem is i hv so high blood pressure and so much difference in which time i measure it. I wanna belive that time will solve this. I dont wanna eat hypertension pills since im still young. Do u think time will solve my hypertension??

BEST explanation I have heard yet! Especially for the physical effects of an expectation of recovery! AND for high BP following covid and long covid .

What can I do if my blood pressure is high from covid I have long covid how do u get it down many thanks

this video was a wealth of information...thank you...my wife had covid for about a month in which she was in bed for at least 2 weeks or more...she could hardly talk...well she got over it then started having dizzy spells and almost fainting...she thought it was her inner ear and maybe an infection...last night she woke me up and told me to get her to the hospital...they examined her and found out her blood pressure was 270 over ? maybe 110 i dont remember but after several hours and medication they got it down to 122 over 71...and i had wondered if covid had anything to do with it because she never had those symptons before...