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Why this condition sends us insane: -NHS urologists and GPs dont recognise or believe it exists. -We have to pay thousands of pounds for our own treatment. -the only treatment is long term high dose antibiotics for years which causes all kinds of problems. -were in pain 24/7 and talking about it is embarrassing for us -NOBODY UNDERSTANDS

<3 I have this too and it's changed my life forever . I am sorry

Drink fresh coconut juice with an empty stomach in the morning and please include probiotics with steains that focus on urinary tract and intemate part.Wear 100% cotton underwear.

Drink fresh coconut juice with an empty stomach in the morning and please include probiotics with steains that focus on urinary tract and intemate part.Wear 100% cotton underwear.

Drink coconut juice with an empty stomach in the morning and please include probiotics with steains that focus on urinary tract and intemate part.Wear 100% cotton underwear.

Try coconut juice (young one,green color)with an empty stomach in the morning and please include probiotics with strains that focus on urinary tract and vaginal part.Wear 100% cotton undies.

I think WATER needed; 5-6 15 ounce glasses per day - one before each meal and water also with meals. So more than 5 or 6 glasses. Since the kidneys have to filter water in the blood - correct?....... constipation (or non poop) causes the poop to convert to gas - which causes the kidneys to work harder to clear the blood. That inflamed condition is produced by multiple factors - that burning sensation. Sugar and caffeine needed to be treated carefully; avoid after 2 pm. If the burning sensation reappears, immediately drink water. Kefir was recommended by someone; I would try.

Thanks for bringing up the topic of biofilm within the bladder. My family works in the medical circle, and most doctors aren't even up to date with new or niche medical researches. So don't expect family doctors to know, go straight to a specialist!

Unhinged advice for everyone: if you're in agony and suicidal from pain, just take 1 FULL dose of antibiotics for minimum 5-7 days. I know doctors gate keep antibiotics in order to prevent resistance yada yada. If you know your body well and understand basic medicine, just grab a pharmacist by the scruff and tell them "give me the good shit". From someone with compromised immune system that over-rely on antibiotics for survival, 1 dose ain't gonna do jack in harm. Trust.

I was about to order something for the UTI.....when I realized I had little pain upon urination. What happened?? WATER!!.......I recommend 5 or more 15-16 ounce glasses of water before each meal; Bob Harper in his book "The Skinny Rules" has coffee once in the morning and water before and during meals. I'm on my 4th glass of water today. There seems to be a substantial difference in pain between 45 ounces of water per day ---and 75 ounces of water. Between 45-75 ounces the pain disappears. I'm also thinking I should boil water if you have municipal water - let it cool, then place in container. Bacteria in colon, bladder?? I currently use Brita filter beforehand.

Hi Scarlett, I hope you are getting better

I had a UTI like this for 3 months after a birth. I refused antibiotics, however, because I didn't want to harm my nursing baby. I took cranberry pills and d-mannose, but was still in pain. In desperation I went to a clinic where I also received a negetive test. While driving home I was asking the Lord for help, and one word came into my mind: "Kefir." I started drinking it by the quart. The clinic called to offer me a prescription for the pain, and I refused. My pain was gone after 2-3 days of drinking the kefir. I sure hope you find a solution. That is the worst pain. I thought I was dying.

Your bathtub/bathroom could be a growth area for fungus........

Kidney disease? Cut carbs, caffeine. Try Bob Harper's "The Skinny Rules."

The UTI could be......bacterial? Yeast? Ringworm? Ringworm (athlete's foot) is contagious.......dating someone with this? Fungal bathroom/floor?? Try Vagisil......first (medicated wipes), etc. Monistat? The burning could be like athlete's foot (zock itch) try Lotrimin. Work your way up medication wise.

This is the same story as mine I thought I was going to die at one point I'm on antibiotics now and elmiron try serrapeptase and molalourin there natural bio busters and antibiotics you can take with your antibiotics I waiting for the vaccine

Have people here tried biofilm disruptors? MicrogenDX?

How are you doing now?

Do you inject UROMUNE or do you take it orally?

I just healed mine in a week with a mostly meat based diet. I'm AMAZED it actually worked. Terrible awful burning and yes glass shards when you urinate. The only thing you have to lose is pain if it works for you!

For people out there dealing with this.. please look up TMS (tension myosotis syndrome) or Mind body syndrome !! 1,000s of women have cured chronic UTI’s and all pelvic pain with this including myself! This is a nervous system issue!! You don’t need to suffer for years .. do this work and it goes! Watch and listen to all the recovery stories ❤ Dr Howard Shubiner Nicole Sachs (Spotify podcast) Dan Buglio (Pain Free You) on RUclips ❤

I don’t know if it will help anybody, but I was suffering from recurring UTI and constant pain even after the antibiotic treatment; the pain was not going away. I was losing all my hope but I gave one doctor a chance, and it turned out that I actually had bacterial vaginosis, which was causing the constant pain and the recurring UTIs. Once I started to treat the bacterial vaginosis, all the pain went away. So actually, in many cases, the pain after or before peeing is caused by vaginal issues rather than UTI. So if you are having those kinds of problems, ask the doctor to examine your vagina also. I hope this helps.

I truly Love your Glasses )

I know what's your going threw

I sympathize with you. I had this for 26 years. When I prayed to the Father for discernment he showed me to eliminate ALL traces of grains, sugars, starches and sweet fruits. Eat a keto style diet. You have carbohydrate intolerance and the bugs love it.

Hi Scarlet . I am not in the medical profession i am just an ordinary human.but have ever tried a cup of Sage tea ? May be once a day.

Just watched your account of your uti, I’ve had blood in my urine for a year uti,s symptoms pain when peeing burning every time I pee, I do a urine test comes back negative for bacteria. I’ve been on a course of chemotherapy for an autoimmune condition that has not helped the urine blood had an ear infection and I’ve developed tinnitus. Could you just list what drugs they’ve given you to make you feel better? This has been horrible and nothing’s helping many thanks . x

ruclips.net/video/HCwh5KLV3bg/видео.htmlsi=Z2HYV7GvXrd2TLMD

Is it possible to contact you and share my experience. Please, respond

I’ve been going through this for 10 years. I’m now 27 years old. I recently (past year) heard about bacterial biofilm. I’m worried about antibiotic resistance.

Thank you Scarlett. I’m experimenting with serrapeptase and Nattokinase, while on cephalexin for ten days. I hope it will make a difference

Hello Scarlett! I saw your video, and I am thinking of a lot about writing You. I can decide not easily, say I sg to You. First of all I understand you, I had UTI when I was child. I know how doctors examine and heal this problem. I know about nothing about Chronic UTI (VUR), but I had operation too when I was child, which solve the problem to my whole life. I would like to suggest you, try to talk about your doctor, because for children the operation prevent the bactarial back- going to the kidneis. And I do not know, I am not a doctor, but my experiences people can recover, and I do not know in adult life how could the doctors help in such way. If you can get the operation tour, and doctors make it in adult life too, you can leave the pills after some time. I tried to help You and I understand You! I do not have already had problem since then. So I think you should talk about it witg your doctors, could you help in such way to recover and be better! (You are not alone, I do not know will I have family too. My partner is very patient with me. I wish you if you did not have a partner, find sy to understand You.) VUR is similar to UTI, but a bit others. In my adult life I have to pay more attention to be cold. I try to prevent UTI. I have PTSD and deep traumatic feeling too. My life is tragedy. How can you life with pleasure? You are breave to face to your life problem. I understand your pain, I had operation in my childhood and 0-8 yeras old part of my life I was in hospital at urology- nefrology- I understand it. I do not know about your life, but I do not know could I have a child, I do not know can I undertake it. I suffered it during 8 years, and I know what you feel, I had more problme in my soul to my adult life. And I know what does it mean somebody lifes through in this symptomes. I had several effects to my adult life too. I can not life normal private life, I had sexual abuse years ago. I try to avoid the hurting men. ( I saw your more videos)

Is there any update on your condition?

Thanks 🙏🙏🙏

Hi, we would love to get an update. How are you currently?

I was suffering from utis for 6 months. Didnt want to take the anti biotic route so researched. D mannose worked but even better is desert aloe vera capsules. Amazing godsend all pain is gone and can eat what I want now.

Scarlett, have you tried phage therapy with Eliava? I'm waiting for a custom phage now for Raoultella Terrigena (very simialr to Klebsiella). It should be ready in 4 weeks. They have standard preparations such as intesti phage and pyo phage that you could try it. It works against common strains of bacteriia that cause UTIs.

Thank you for sharing your story! I’m four months post fulguration with DrB. I still feel exactly the same, sadly. Hopefully one day things will get better.

This is my story....

You are so brave I am too suffering with chronic There is help out here unfortunately Orthodox does not work You HAVE to try a functional.medicine or a natropath nutritionist who specialises in functional medince They look at the cause if what is going on It's the antibiotics that are cause the problems It's all about building up the microbiome in the gut Please look into Invivo health care call them xxxx ,

Thank you for helping me understand Scarlett and thank you Ella x

Thank you for sharing this. I went on holiday and came back with a uti in 2019 that never went away. Our stories are so similar. I waited 1 year with a diagnosis of interstitial cystitis. I got worse before I saw Dr. Bundrick who's test showed high loads of klebsiella esbl, e.coli and enterococcus. I've been in treatment with long term antibiotics for 15 months (iv invanz and macrobid) and I just started feeling 95%. So scared that coming off antibiotics will put me back to square 1 as the bacteria is likely still hiding. But I'm not giving up hope. Sending you every ounce of well wishes.

try functional medicine I am sure this can be turned around look at biofilms

Thank you for making this video; I relate to every word you said in this video no one understands what it is like for us I’ve only been dealing with this for just 10 months and it’s awful. Sometimes I pray to die as I loose hope that I will ever get better. But listening to others stories really helps me. Hope that you are able to beat this thing!

Have you tried fasting ?

I sick of being in pain too I feel I want my bladder removed coke alcohol irritate me I did flush out my uti once some years ago by drinking 6 bottles of 2L. For 2 weeks it's not easy drinking that much but it came bk then when I had a baby it went for 2 years and came bk. But the pregnancy was excruciating I can't work normal either you are me . I'm in excruciating pain again now

I don't feel human I have no sex life

Mine uti has never gone it's been there 15 years it's destroyed my life it's never ending

Thank you for your story

I feel your pain I have had chronic bladder infection for 15 years still on going and I have excruciating pain now going through a flare up swimming pool makes it worse and hot weather makes it worse. I know exactly what your going through I'm suffering the same pain as you