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Medicated Calamine lotion helps with the itch. TOP brand, available at grocery stores. Pink liquid.

May you rest in peace, Ann. 😔You are already so missed! Thank you for everything you have done to support people living with scleroderma!

Would appreciate an update on Amy.

Human form of life isn't actually designed to compete with other species in physical feats or skills. What is the unique privilege of human form than? A real human means to find out what is life itself for understanding that we have all problems gone. Then? What's life? Life isn't the ever changing body itself but the person "I" who falsely identifies with the exterior of this temporary field of activities. This is the beginning. I am not the ever changing gross mater nor the subtle material ever busy mind, I am the observer inside who has to learn how not to be drawn into the misleading chain of impressions imposing false narratives of "me" and "my"

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It's really a terrible disease. I can't believe there's nothing yet to stop it and to stop the fibrosis of the skin and organs. Scientists, pharmaceuticals, 🙏🏼Please help us!! 🙏🏼

When are we going to have medication directly for our skin? It's something really TERRIBLE what this rare disease causes to the skin. Please 🥺🙏🏼🕯️

Could you please talk about more conditions that you have found in patients with Scleroderma. I have asked myself and many many patients have at the same time a variety of autoinmune, hormonal conditions all together (not only rheumatological). Multiple sclerosis, lupus, hormonal conditions, etc.

Good morning My name is Cassandra and i would love for us to chat. My diagnosis started out as polymyositis but scleroderma has shown her not so kind self as well

Such a great presentation. Thank you for showing specific stretches, orthoses, and equipment. ❤

Cannot understand you ladies. Would you consider putting out a new video with clearer communication or with word captioning.

You’re the Best Dr. Fischer!!😊

Very best wishes to you. Thank-you for your inspiring story.🌼🙂

❤️❤️❤️

Sometimes even doctors don't know much about this disease. I was first misdiagnosed with fibromyalgia, Lyme, Lupus. And the rheumatologist didn't take seriously my symptoms, nor my positive lab for Scleroderma. Because of this I was without diagnosis for years!! I hope soon can we have direct treatments for this terrible disease. 🙏🏼

They have all the answers and cures for everything! They use us as cash cows. It’s all about the money. Scleroderma is a cancer of the fibroblast cells. It all starts with diet! Carnivore only people

Congratulations to the team. GREAT JOB - supporting people living with scleroderma!

Dear Ken, Please don’t keep all this pain inside.People who love you want to help you, talk about how you feel to them, never try to fight this alone.Stress makes it all worse.I want to give you a huge hug. I totally understand how you feel.All you can do is listen to your body and embrace the new you.All we suffers can do is take life a day at a time accepting that we can’t make to many plans or take anything for granted.This disease calls the shots.You are an amazing man thank you for your honesty. I know how hard times can be with this painful disease.Being positive certainly helps. I pray that one day soon they will find a cure for us.If not there is still hope a promise from God Revelations 21 verse 4 And he will wipe out every tear from their eyes,and death will be no more ,neither will mourning nor outcry nor pain be anymore. Isaiah 33 v 24 And no resident will say “I am sick.” The bible promises that the earth and the residents upon it will one day live on a paradise earth where there will be no sickness or death.We have been given a hope beyond the suffering we are enduring now. Talk with one of Jehovah’s witnesses they will show you a hope for the future, that can’t be found anywhere else. I wish you all the best Ken now and in the future.

God bless you and continue to be optimistic. My brother has it and is painful for us to see him struggling on his daily life.

Hi Ken, I hope you are well. My brother was diagnosed with scleroderma (systemic sclerosis) when he was about 14 years old. He suffered a cardiac arrest when he was 12 and after multiple attempts to understand what had led to this, he was diagnosed with this disease. He loved playing football but he had to give up all physical activities. Over the past few years he was undergoing therapy to manage the condition since there isn’t a cure and he was generally feeling and managing well. He caught covid in December last year and spent about 4 months in hospital with constantly high fever and breathing difficulties. He spent many weeks in the ICU, including time on a ventilator. At the end of April this year he came home. We all thought this nightmare was over, but he soon started to feel tired, fatigued and generally unwell. The disease was progressing rapidly and his heart had been put under an enormous amount of stress. He suffered a second cardiac arrest and passed away a week later at the end of May, at the age of 22. He was a strong person, determined to fight off any new obstacles that were thrown at him. He knew exactly what was coming and how difficult it would have been, but despite that he never gave up life and refused to be defeated. In all these years, he never complained about anything and was always ready to make a joke and smile, despite the pain he must’ve been experiencing. Over the past few days, I have been wondering about what he might have been really thinking all along, about all the fears he tried to hide and how distressing the last few months must have been for him. He always tried to put on a brave face and I know he didn’t want to give up. His life was literally taken from him and his future too. We had so many ideas and plans in mind. Now it's all gone and I can't come to terms with that. Thanks for sharing your story here, don't give up and enjoy life, like my brother did.

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If you lose the circle muscle peristalsis in your small and large intestines and still have the longitude contractions are you able to absorb food in the small bowel

I wonder how's he doing now his heart broking 😢

Ken I understand a lot of what you are going thru and the courage you show is amazing. I am 80 and a woman who was exceedingly active as an equestrian. 30 years ago I began to get so fatigued I could no longer saddle or ride my horses. I was diagnosed with sjogrens syndrome and dealt with that for a number of years no longer riding or very active then a few years ago diagnosed with lupus which pretty much put the skids on me. Moving to another State and going to a new rheumatologist for lupus he ran a lot of tests and said he could treat the sjogrens and lupus but I had major "soft tissue" issues he didn't treat and said I would need another doctor. Not knowing what he meant I ignored that until my BP spiked exceedingly high...had more testing and a dexa scan. The endocrinologist that read the scan diagnosed scleroderma advanced and now I am waiting for another specialist. This diagnosis answers a lot of questions that other doctors ignored as I am so exhausted and reached the point of great difficulty walking and terrible heartburn I had never experienced before nor such high BP. I am finding doctors or nurses know little about this disease and most people refer to it as a "skin disorder" which is frustrating. I have lived wit more joy than most 10 people have experienced in their lifetime and I'm not ready to give it up yet but there are days I consider the Rainbow Bridge with my 16 year old Service Dog ( I also have epilepsy from head injuries)....he is a seizure alert dog and my best friend besides Jesus. God bless you. Thank you for your testimony and encouragement.

Classless scanks

I have grave autoimmune hyperthyroidism I m from India

Is there an update for this video? I mean, this is heart wrenching. I'd never heard of this disease, until now. I just today asked my wife, who's an R.N.

You look just like my brother hope u are ok

It's extremely sad that there's nothing for Scleroderma. I pray for direct better treatments for this disease. Hopefully, someday a cure. 🙏

When is going to exist a good treatment directly for Scleroderma?? It's extremely sad that there's nothing. I can't believe it! 😢😭😢

It's very sad that's there's nothing yet to heal this disease. I hope someday soon a cure, or better treatments can be found. Blessings

Plz konsa treatment

kq11e vum.fyi

I was diagnosed of HPV in 2019, and also I was suffering from bad breathe. I saw a post about Dr. Ekpen Herbs that cures AUTOIMMUNE DISEASES, HIV,CANCER,HSV, FATTY LIVER, and lots more…. I contacted him and told him about my health, he asked me not to worry anymore that he’s going to prepare the medicine and send it to me in my country. 2days after sending I received the package and I took the medicine as prescribed by him and I was cured from bad breathe and HPV. I took the medicine for 14 days,and the medicine has no Negative Influence, it only helped me get cured, you can as well contact him on his RUclips page by clicking on this, ruclips.net/user/shortssZqOvedjcjc?feature=share he's also special on cureing 1. HIV/AIDS 2. HERPES 3. CANCER 4. ALS 5. HEPATITIS B 6. DIABETES 7. HUMAN PAPILOMA VIRUS DISEASE(HPV) 8. ALZHEIMER 9. LUPUS (Lupus Vulgaris or Lupus Erythematosus) also shared an image ,,

Do you know there are root and herbs which can eliminate Autoimmune, Scleroderma and Lupus Symptoms slowly in 2 weeks Roots and plants like; Anise , aralia,basil chamomile with little seamoss and a lot others my dear, this my herbs cure are without no side effects at all. I came on RUclips seeing others making comments in herbs and Dr Steven. Really his herbs are effective and natural 100%, I got it delivered to me and took it warm for 2 weeks , 2 times daily. The Symptoms slowly went away and a week after I got a negative results for both incurable diseases. Herbs is really good way of approaching a definite cure meet him here for more herbs Information ( orderherbs.steven@gmail.com )

Such a lovely couple. My mom died from Scleroderma almost 3 months ago. She had the systemic form with overlap and lived with it for at least 3 years. We miss her terribly and will also be giving to Scleroderma Colorado and Scleroderma Foundation in her memory and to help find a cure. :(

Is there a remedy for permanently removing the morphea patches all over the body? If so could u mention it...please

❤️🙏🏻

Excellent video on schleroderma support here in Colorado.

so does scleroderma ultimately start in the esophagus and causes fibrosis --> then also causes fibrosing of the Lower Esophageal Sphincter (LES) . In other words, the LES is affected after the esophagus tube itself? both aren't mutually exclusive, correct?

Where are you located?

Hi Ken, my name is Janet. I live in North Texas. A few weeks ago my Rheumetologst told me I have Scleroderma, limited. It don't feel limited. I'm so tired all the time, my hands, legs and feet hurt. I have been thrown pills for this and that. My BP is out of control and I take pills for that plus nurileptics. One thing after another. I don't feel like I'm going to die but, my life has changed so much and everything is so hard to do. I'm praying anyone who has this maybe they will find a cure. My doc said there is no cure. But, I have faith .

Poor Voice quality

My cold sore caused by my herpes virus was cured permanently including the virus with a herbal medicine from Dr Madida on RUclips

My cold sore caused by my herpes virus was cured permanently including the virus with a herbal medicine from Dr Madida on RUclips .

My father passed 3 months ago- he in my eyes won the battle. 7 1/2 years! Army strong dad!

What are updates or treatment for discoloration on black skin. I am having a hard time finding people that look like me

God bless Dr Godwin I am James co co I’m here to testify about what Dr godwin did for me. I have been suffering from (GENITAL HERPES VIRUS) disease for the past 4 years and had constant pain and inching, especially in my private part. During the first year, I had faith in God that i would be cured someday.This disease started circulating all over my body and I have been taking treatment from my doctor, few weeks ago I came across a testimony of Rose Smith on the internet testifying about a Man called Dr Godwin on how he cured her from 7 years HSV 2. And she also gave the email address of this man, advise anybody to contact him for help on any kind of diseases that he would be of help, so I emailed him telling him about my (HSV 2) he told me not to worry that I was going to be cured!! Well, I never doubted him I have faith he can cure me too,, Dr Godwin prepared and sent me Healing Oil, Soap, roots and herbs which I took. In the first one week, I started experiencing changes all over me, after four weeks of using his Roots/ Herbs, Oil and Soap, I was totally cured. no more inching , pain on me anymore as Dr godwin assured me. After some time I went to my doctor to do another test behold the result came out negative. So friends my advise is if you have such disease or know anyone who suffers from it or any other disease like HPV, HBV, HIV, ALS, HBP, CANCER etc. you can contact Dr.godwin for help via drgodwin52@gmail or whatsapp +2348158184060...

Having herpes Disease is not the end of life,there are treatment to cure herpes disease with the help of Dr favour herbal medicine. I have been suffering from this deadly disease called herpes disease (HSV) and i lost hope because I was not myself anymore it was not easy working with herpes disease, i searched online to know and enquirer about cure for herpes and i read someone testimony on how he was cured from herpes, I don't believe it's true, but I decided to give a try to know if it will really work out for me so i contacted him to know how he can help me and he told me never to worry that he will help me with the natural herbs from God! after 2 days of contacting him, he told me that the cure has been ready for me and he sent it to me via FedEx and it got to me in 3 days! i used the medicine as he instructed me (MORNING and EVENING) after using the medication for few weeks I started experiencing change inside my body, could you believe as I finish the medication I was totally healed It's really like a dream but i am so happy!that's the reason i decided to also add more comment of Him so that more can be saved just like me! You can contact him via drfavour37@gmail.com or WhatsApp +2348028081669

I have been suffering from (HERPES SIMPLEX VIRUS) disease for the past six years and had constant pain, especially in my knees. During the first year,I had faith in God that i would be healed someday. This disease started circulating all over my body and i have been taking treatment from my doctor, few months ago i came on search on the internet if i could get any information concerning the cure of this disease, on my search i saw a testimony of someone who has been healed from (HERPES SIMPLEX VIRUS) by this Man Dr Ayo and she drop the email address of this man and advise we should contact him for any sickness that he would be of help, so i wrote to Dr.Ayo telling him about my (HERPES Virus) well after all the procedures and remedy given to me by this man few weeks later i started experiencing changes all over me. I am now here to testify that i am not longer a herpes patient, I have experience a total transformation in my life,for all herpes patients get your herbal medicine to cure your sickness. And there has being rapid improvement in my health, I no longer feel pains and I wake up each morning feeling revived. So friends my advise is if you have such sickness or any other at all,you can contact him on any of this diseases CANCER EPILEPSY. GENPILENCIN. HIV AIDS. DIABETICS STROKE. EXPANDS OF PENIS BREAST H.P.V TYPE 1 TYPE 2 TYPE 3 AND TYPE 4. TYPE 5. HUMAN PAPAILOMA VIRUS. HERPES. HEPATITIS A B and C Whats-App/call number +2349051727347 or email him on drayo0229@gmail