Видео

Merci à vous aussi, les actions de l'associations ne sont possibles que grâce à toutes les familles qui adhèrent, sont présentes aux événements et aux bénévoles 🙂

Thank you ! :)

Really

You gotta get a step on

Me too

@@ciccio1883 You Know P.K.U. Will Not Change Our Life God Made Us Like This We Can't Change Who God Made Us He Told Us To Be Like This For A Reason I Love Who God Made You You Should To <3

@@starfiregaming5700 i respect your view and i hope you are right

@@ciccio1883 I Am right i know who god made us we are who god made us...........He loves us for who we are

So do I!!

mdr merci anouck

Hi no problem, please share it. If you have subtitle files to send to us, feel free to do so at lesfeuxfollets@phenylcetonurie.org and we will add them directly to the video.

It is done for other diseases such as tyrosinemia but not for PKU. This annual ESPKU Conference 2018 in Venice highlighted the potential pros and cons of transplantation for PKU.

I watched a bit of the conference but still don’t understand why you couldn’t preform a liver transplant which could potentially save many children and adults’ lives. Yes there are pros and cons but I think potential saving a child may be more beneficial.

Also thank you for replying

Or wouldn’t it be easier to remove the phenylalanine from the liver?

To be short, the problems and treatments caused by the liver transplant are consideredo much more dangerous than to the dietary treatment.

I have it too

??? À Nouan !!

PKU info ثلذلب