Anand Vaidya
Anand Vaidya
  • Видео 11
  • Просмотров 49 711
Interviews with Patient with Addison's disease
This video contains interviews with patients with Addison's disease led by Dr. Vaidya. These interviews were conducted as a part of a learning session for Harvard medical students in 2020. All the patients have given explicit consent to share their interviews online so that others may benefit from hearing their stories. These interviews are being shared for the benefit of other patients, families, students, and healthcare providers.
Просмотров: 9 207

Видео

Introduction to Adrenal Insufficiency Video Series by Drs. Anand Vaidya and Irina Bancos
Просмотров 5072 года назад
This video contains a short introduction by Drs. Vaidya and Bancos. Following this introduction, there are a series of videos on adrenal insufficiency.
Part 1: What is Adrenal Insufficiency
Просмотров 4572 года назад
This is part 1 of the Adrenal Insufficiency video series by Drs. Anand Vaidya and Irina Bancos. This video will review "what is adrenal insufficiency?"
Part 2: Primary Adrenal Insufficiency
Просмотров 8182 года назад
This is part 2 of the Adrenal Insufficiency video series by Drs. Anand Vaidya and Irina Bancos. This video will review Primary Adrenal Insufficiency
Part 3 : Secondary Adrenal Insufficiency
Просмотров 5 тыс.2 года назад
This is part 3 of the Adrenal Insufficiency video series by Drs. Anand Vaidya and Irina Bancos. This video will review Secondary Adrenal Insufficiency
Part 4: Glucocorticoid Induced Adrenal Insufficiency
Просмотров 2,6 тыс.2 года назад
This is part 4 of the Adrenal Insufficiency video series by Drs. Anand Vaidya and Irina Bancos. This video will review Glucocorticoid Induced Adrenal Insufficiency
Part 5: Diagnosing Adrenal Insufficiency
Просмотров 2,3 тыс.2 года назад
This is part 5 of the Adrenal Insufficiency video series by Drs. Anand Vaidya and Irina Bancos. This video will review Diagnosing Adrenal Insufficiency
Part 1: What is Adrenal Insufficiency?
Просмотров 8462 года назад
This is part 1 of the Adrenal Insufficiency video series by Drs. Anand Vaidya and Irina Bancos. This video will review "What is Adrenal Insufficiency?"
The Expanding Spectrum of Primary Aldosteronism (by Anand Vaidya)
Просмотров 5763 года назад
This is a lecture focused on the expanding spectrum of primary aldosteronism. The lecture covers the physiology of hyperaldosteronism, new concepts in our understanding of primary aldosteronism pathophysiology, and approaches to diagnosis. This lecture was given by Dr. Anand Vaidya on 12/4/2020 to an audience at the West China Hospital Adrenal Related Diseases Forum. This lecture is based on da...
Primary Aldosteronism - Diagnosis and Treatment (Anand Vaidya)
Просмотров 4 тыс.3 года назад
This is a lecture focused on the diagnosis and treatment of primary aldosteronism. This lecture was given by Dr. Anand Vaidya on 11/23/2020 to an audience in Jiangsu Province Hospital in China. This lecture is based on data and opinions from the following published sources. academic.oup.com/jcem/article-abstract/105/12/dgaa606/5899581 academic.oup.com/edrv/article/39/6/1057/5074252 eje.bioscien...
Pheochromocytoma and Paraganglioma Concept Video
Просмотров 23 тыс.8 лет назад
Created by: Anand Vaidya, MD MMSc

Комментарии

  • @jenniferm4023
    @jenniferm4023 7 дней назад

    Great information!

  • @godschild3640
    @godschild3640 21 день назад

    I have secondary adrenal insufficiency and I’m way 113 pounds is how sick it is and you have no strength none and I have stage four non-small cell lung cancer and I use immunotherapy which did this

  • @robertklund3201
    @robertklund3201 Месяц назад

    Can a head injury cause secondary adrenal insufficiency?

  • @SheilaMore-l4v
    @SheilaMore-l4v 3 месяца назад

    I am so thankful that I listened to this video because I have Addison and so I subscribed I’m not on any medication and I’m really learning a lot. Thanks.😊

  • @SheilaMore-l4v
    @SheilaMore-l4v 3 месяца назад

    Oh my goodness this poor lady with the baby you really did have a struggle. Wow you’re very fortunate you live through that thank God you and your baby made it through. My heart goes out to all three of y’all because I have Addison’s disease too and it’s the most horrible thing I’ve ever been through in my life and I’m just beginning, knowing how to even deal this

  • @SheilaMore-l4v
    @SheilaMore-l4v 3 месяца назад

    Well, I’m so glad I watched this channel because I have Addison’s disease too is horrible and you do feel like you’re gonna die. It’s horrifying. Hope the ladies baby is OK. Hope the baby doesn’t get Addison’s.

  • @christiroseify
    @christiroseify 3 месяца назад

    I am in the beginning stages of adrenal diagnosis, these videos are so helpful, thank you for sharing your journeys with us...

  • @corruptduboiscountyindiana5058
    @corruptduboiscountyindiana5058 4 месяца назад

    jesus, so much bullshit about everything except the medical problem itself. Cant watch it. When you make videos, you have to get to it

  • @ketogenicvegan4970
    @ketogenicvegan4970 5 месяцев назад

    How do they test for it? What if a person has some ACTH / CRH production will the adrenals still atrophy?

  • @brettcollin3693
    @brettcollin3693 6 месяцев назад

    My wife has secondary adrenal and the hydro has eaten thru her bones in taking it for a couple years. So bad that she is waiting for hip surgeries and can't walk. Seriously can't walk. I know you have to take hydro, there no other options other than presidisone???

  • @pamelabellino2171
    @pamelabellino2171 6 месяцев назад

    I have 2 paragangliomas, having surgery to remove them, will find out if they metastatic. Found by accident, had anxiety attack, doctor had me get a CT of my chest and saw two masses, another CT was ordered to confirm, blood tests, etc. I am 65 year old female.

  • @1aliveandwell
    @1aliveandwell 6 месяцев назад

    Under causes and listed iron, is that low, high or in the pituitary or hypothalmic gland? Guess there is no ACTH that may taken.

  • @1aliveandwell
    @1aliveandwell 6 месяцев назад

    Wish your videos would list if serum cortisol labs or saliva or urine. If starting to get high cholesterol, and low hormones, could it be low co factors that turn C into hormones and bile??? Was told my serum cortisol (which seems may be total so active + non active) was high IN range , but saliva morning was low and noon but high at night. Will try to change my circadian rhythem back to higher in morning. College friends suggested be checked for hypoglycemia, but never knew when those feelings of dragging or shaky as sometimes forget to eat and was fine and other times not. 1 Dr did ACTH lab (8am) and was 16 so maybe borderline?, DHEA is not showing up or low thruout yrs(progesterone is). Am thinking maybe many of these causes can be reversed ! When showed up at Dr's underweight and low energy, they'd ask me if had diabetes and I said came here to find what problems was (they asked if thirsty but rarely thirsty entire life). Have craved salt starting 30yrs ago and most since then(maybe to make HCl to digest meat). Had thought my problem was thyroid at firs tbut maybe not. Like your information being availeble and useful.

    • @1aliveandwell
      @1aliveandwell 6 месяцев назад

      Is ACE serum lab the angiotension 2 mentioned here? Have noticed my BP as low most of life is waking higher in middle of night lastely. Could it be related to kidney?

  • @cwhisenant1
    @cwhisenant1 7 месяцев назад

    What is the normal level for 10am cortisol? Thank you.

  • @Helga-iv4uf
    @Helga-iv4uf 7 месяцев назад

    I had the almost 90% same terrible pregnancy, and so sick 9 months , and emergency c section. Still suffering 7 years later . Doc is only wanting to give depression pills. I’m declining

  • @santiagozambrano4865
    @santiagozambrano4865 7 месяцев назад

    Andar amor DHEA

  • @kathycarraher5014
    @kathycarraher5014 7 месяцев назад

    You don't seem to mention the low blood sugar part of Addison's. Prior to diagnosis I had most of the typical symptoms tired darker skin ,dark spots on gums and palmer creases. But there was a spell when I woke up in the morning got dressed but I could not figure out how to walk down the steps to the kitchen. I stood a top of steps completely confused as to how I would not fall if I lifted my leg and put it down on the step. I finally just sat down and scooted down. The rest of the day was normal and the step incident was a barely conscious event. I didn't tell anyone or my Drs. for years. When I finally asked my endo. about it he laughed and said we hear that kind of thing all the time, it is low blood sugar. I was very sensitive to any kind of noise and could hear garbage trucks ,barking dogs etc. from a half mile away ,leaf blowers ,motorcycles would also cause me much anxiety. Endo. did tests but I finally found an old study about the ear having many potassium receptors. And with the low sodium ,high potassium of un diagnosed Addison's one's hearing becomes more acute.

    • @bettyperez470
      @bettyperez470 6 месяцев назад

      So true I can hear ringing in ears when in low sodium high k so I take extra hydrocortisone immediately to avoid crisis

    • @xtranailsbyjessi7265
      @xtranailsbyjessi7265 6 месяцев назад

      Yes I feel like I jave super hearing! I usually have my TV on 25 and now it's on 5. Also my bood sugar drops under 50 10 tines a day

  • @davidkropodra
    @davidkropodra 8 месяцев назад

    they quit selling flovent hfa .........been feeling like shit for the past few weeks and it was a small dose for a long time

  • @sheilamore3261
    @sheilamore3261 8 месяцев назад

    I was in the hospital and I was diagnosed with Addison’s disease, but then I heard I had toxic copper overload too Does anybody have Addison’s disease with the copper toxic too

  • @johntanchong3166
    @johntanchong3166 8 месяцев назад

    How do you control your weight despite taking Hydrocortisone? Hydrocortisone makes me gain weight.

  • @johntanchong3166
    @johntanchong3166 8 месяцев назад

    Did they mention the daily dose that they are taking daily?

  • @TheLazyArtist722
    @TheLazyArtist722 8 месяцев назад

    I am sipping on a cup of salt water trying to get approved for medical insurance so i can hurry up and see a doctor. My last visit the doctor told me to just drink more water even after i told her i drank a gallon a day. I fear i wont get the care i need until i have a crisis but this gives me hope to take care of myself

    • @sheilamore3261
      @sheilamore3261 8 месяцев назад

      Try to let your body heal itself. That’s what I’m trying to do try to eat right and see if you can get your body to heal itself. That’s what I’m trying to do.

  • @Liberty1111
    @Liberty1111 9 месяцев назад

    🆘I am alone as have had no energy for 8 years.. my ex, took my kids by filing false criminal charges. I’ve been dragged through prisons and the court system, and even after his death, the government won’t give me my kids or my freedom back my health is ruined, and I have all the Addison symptoms, but my PCP refuses to test, but promised the referral to Endocrinologist . My life is so unbearable I wish for death every day but I will never commit suicide because then I’ll have to come back and do all this again but I don’t know what to do or how to convince the Md to test even in Endo will just order the salt and potassium and since . Not as low and high is normal. They just don’t want to test for anything outside the box. I was even in ER but because of my hypertension, they didn’t see. It is adrenal insufficiency, and just told me to get the hell out of there and refuse to provide any help. Even though I was in collapsed state I just don’t know what I have done that God and the government and doctors treating me so badly that in eight years I cannot get no medical help and no justice.

  • @sneakypress
    @sneakypress 10 месяцев назад

    Thank You for presenting the TRUTH of the situation. 🎉🎉🎉

  • @michelles1517
    @michelles1517 11 месяцев назад

    Noticed her gums were discolored dark when she said she hit rock bottom. Dark circles around her eyes.

  • @moizvahora241
    @moizvahora241 11 месяцев назад

    Thank you ..this will stick to memory. I suggest all fellow docs and students to keep habits of seeing patient interviews, it will get imprinted and help in diagnosis

  • @lasurfette7830
    @lasurfette7830 11 месяцев назад

    This won't be rare much longer - they are giving it to patients using Keytruda (immunotherapy)! I guess it's just the cost of doing business.

  • @EGF1000
    @EGF1000 11 месяцев назад

    I have addison's. It was missed because an A&E department did not listen and told me to drink water. It was finally diagnosed when I was dying. The drug regime I have been put on is fludrocortisone and hydrocortisone. These drugs have taken the muscle from my thighs and upper arms and turned this into fat around my abdomen. I have put on 18kg/40lbs in a year. From 66 kg to 84 kg. From 145 lb to 185 lb. I used to be slim. I am now fat. The medical care in the uk is disgusting and rudimentary; it's the worst in Europe. They don't listen. I see the physician dealing with this once every 6 months. No real tests are done. When I raised the weight issue he tried gaslighting me that I was fat, but the Addisons was concealing this. This is total nonsense. What can I do?

    • @barbarabeckersouza
      @barbarabeckersouza 11 месяцев назад

      Hi, I'm not a doctor, but I have Addison's (diagnosed 2016) .I too struggle with weight gain, but I always have, so it's hard to tell if it is caused by cortisone excess. I felt the highest weight gain after a crisis, when I was given high doses of hydrocortisone. I take fludrocortisone and prednisone. I've been to 3 different doctors and they all told me that both doses I take were correct, so my weight gain was my fault. The last appointment I had the doctor at least admited it could be related but considering it was life saving, it was still my best choice.

    • @surlespasdondine
      @surlespasdondine 8 месяцев назад

      Do u have a proper endocrinologist?

  • @Sasbie65
    @Sasbie65 Год назад

    Question: A glucocorticoid can cause it and fix it?

    • @sneakypress
      @sneakypress 10 месяцев назад

      Yes and No. Administration of corticosteroids by doctors leads to the brain detecting enough hormone (cortisol) present in the blood. Therefore, adrenal gland production is reduced, or stopped. If this unnatural steroid intake (administration by doctors) goes on for too long, the brain may fail to produce more ACTH, or the correct amount. The adrenal glands may stop producing glucocorticoids altogether, (the “use it or lose it” idea), Or, only produce a little (insufficiency). So, yes (it’s caused) by way of unnatural administration. And, no, because unnatural administration to replace low or non-existent production does not really fix it. Dose (concentration) and timing are almost impossible to get correct. Especially under stressful conditions. It’s like a band aid, that only works sometimes, and has lots of side effects. Best not to get treated by doctors. They don’t really know, or understand, (or care?) what they do to people’s health. You cannot fix these problems once they happen.

  • @hollowman5636
    @hollowman5636 Год назад

    Great topic and explained in the best way . Can you please make videos on Vasculitis?

  • @roniB262
    @roniB262 Год назад

    I listened with tears in my eyes as I can personally relate to these stories. I nearly died from an Addison's crisis in 2006. Thank you for teaching our future M.D.s as I was misdiagnosed over and over!

    • @surlespasdondine
      @surlespasdondine Год назад

      I nearly died from it in March of this year. Still very tired and I don't sleep well.

    • @Grahamt978
      @Grahamt978 9 месяцев назад

      I live with Addisons so I understand completely. I hope this text finds you well💕

    • @kieranbranagan765
      @kieranbranagan765 8 месяцев назад

      So similar to my wife's story. Nearly died before being diagnosed back in 2000. Thought she had mental health issues!! before finally realising it was Addison's. Happily managing now.

    • @bettyperez470
      @bettyperez470 6 месяцев назад

      @@surlespasdondinetry to eat some turkey and cheese or delicious protein shake this will help sleep u need fuel for sleep

  • @Ava-oc1dg
    @Ava-oc1dg Год назад

    So the cause is the cure?

  • @debigdogk9563
    @debigdogk9563 Год назад

    Thank you for taking time to teach and share. Thank you❤❤❤❤❤

  • @debigdogk9563
    @debigdogk9563 Год назад

    Thank you for teaching. God bless you ❤❤❤❤

  • @skpkhajuriya
    @skpkhajuriya Год назад

    My family member is suffering from it, Doctors of rgcirc Delhi diagnosis it but they said that they can not treat or operate, Please help me if any hospital in India has treatment of paraganglioma,

  • @debigdogk9563
    @debigdogk9563 Год назад

    Please upload the glucocorticoid withdrawal syndrome and assessment. Thank you ❤❤❤

  • @debigdogk9563
    @debigdogk9563 Год назад

    Very well explained. Thank you.❤❤❤

  • @debigdogk9563
    @debigdogk9563 Год назад

    GOATT- Greatest Of All Time Teacher- thank you ❤❤❤❤❤

  • @debigdogk9563
    @debigdogk9563 Год назад

    Great teaching. Thank you ❤❤❤❤❤

  • @debigdogk9563
    @debigdogk9563 Год назад

    Great job 👏🏿 ❤❤❤

  • @lisakoenig21
    @lisakoenig21 Год назад

    How do we approach this subject with our doctors to get diagnosed? I feel the mere mention of adrenals, the more they refuse to even entertain the idea.

    • @pixiedust6149
      @pixiedust6149 Год назад

      You need a good Endocrinologist. I know they are not easy to find & depending on your health insurance it can be a challenge. I’d go in with this type of information in this series. Be insistent. It’s a simple blood test that checks salt & potassium levels for Addision’s. A primary care Dr should be able to run that test. Thyroid tests are more intricate. I hope this helps.

  • @sir.burbonburg7008
    @sir.burbonburg7008 Год назад

    So, I myself think I have Addison's disease, but it was suppressed with nicotine consumption. When I stopped smoking for health reasons, I started to experience typical symptoms, but more on the inflammation side, like inflamed gums and gut with diarrhea, brain zaps, and food intolerance through an immune system overreaction. However, I never got tanned because I started smoking again, knowing it was related probably because the immune system was preventing it from attacking my adrenal glands further. Now, I have permanent damage, and I never felt the same again. I'm still smoking because I am anxious that it might come back. At that time, doctors didn't take me seriously, and I was so frustrated because I knew I was very sick, but not sick enough to make them curious and test my cortisol or ACTH. At that time, I didn't know what I had, but now I know, and if I stop nicotine, it will come back.

  • @maxxdv8
    @maxxdv8 Год назад

    So what do you do when you suspect an adrenal insufficiency but every doctor you see doesn't take you seriously?

    • @lisakoenig21
      @lisakoenig21 Год назад

      That's where I'm at, too. 😪 I just sleep with a note on my pillow now and I write "adrenals" on my body with a Sharpie and can't wait for the day this torture is over.

    • @pixiedust6149
      @pixiedust6149 Год назад

      You need a good Endocrinologist. I know they are not easy to find & depending on your health insurance it can be a challenge. I’d go in with this type of information in this series. Be insistent. It’s a simple blood test that checks salt & potassium levels for Addision’s. A primary care Dr should be able to run that test. Thyroid tests are more intricate. I hope this helps.

    • @ctunderman
      @ctunderman 8 месяцев назад

      You need to get a 9am cortisol test so check your level.

  • @devinpeirce7152
    @devinpeirce7152 Год назад

    Can they test acth by a blood test ? My blood results showed normal sodium and potassium

  • @freddiespinoza
    @freddiespinoza Год назад

    Thank you very much to you guys for sharing your stories.

  • @kdineashkumar
    @kdineashkumar Год назад

    I couldnt find videos on Glucocorticoid withdrawal syndrome and Assessment for recovery of adrenal function? Could you please share the link?

  • @louisephillips5914
    @louisephillips5914 Год назад

    How likely are babies likely ti develop addisons with a mother that actually has primary addisons?

  • @freddiespinoza
    @freddiespinoza Год назад

    That is very well explained.

  • @TheRagbags1
    @TheRagbags1 Год назад

    Mine was 192 nmol but apparently it completely un interpretable as taken at 17.30 ! I have low sodium 131 & low Osmolality is 277 (285 lowest )

  • @TheRagbags1
    @TheRagbags1 Год назад

    I suspect I have this I was exposed to huge stress , followed by a big surgery , I have Hyponatremia and extreme morning tiredness my evening cortisol was 192 nmol ( 18.00 hours ) but I had a private test & my saliva am was low . I’ve seen an endocrinologist and back again in a month